Recent Posts - DAFNE Online

Feb 23, 2011

ReNZoR 5 posts

Topic: Carbohydrate Counting / Spirits and Wines

Hey

Thanks for the reply mate :0

I generally only drink Tequila or Jack Daniels that I mix myself with diet lemonade. From what I can tell on the bottles, nothing seems to have been added to the mix. I stay away from pre-mixed drinks like WKD etc.

As for the wines, I did actually make a mistake. I meant Dry and Sparkling white wines lol, not Sweet. I guess the Dry and Sparkling varieties would be much the same as the red wine regarding no carbohydrate?

Lager I do drink, but not since starting DAFNE... the carbohydrate booklet states 1 CP for 1 pint (575ml), however the cans I have are 440ml , 135ml off being 1 pint. I need to work that one out before I start drinking those again, as I don't really want to be over or under dosing myself. The other problem being my syringes (I have owned NovoPen etc and disliked it:/) are 1unit increment, not 0.5, I need to sort that out as some things that are 1.5 CP I cant inject 1.5, I end up either not eating those foods or eating double or matching something to them to round the numbers up.

Thanks again guys, really appreciate the help Smile

Stuart

Feb 23, 2011

Dr.Jamie 2 posts

Topic: DAFNE Online Mobile / How to download data from iphone app

Hi All,

I am a new DAFNE Graduate and have been using the iphone app to record by Testing results.
Can anyone tell me if it is possible to download these results into my online diary?
I hope there is a method because it will be a fools errand to transfer them one at a time.

Kind regards
Dr. Jamie Downing

Feb 23, 2011

Growler 4 posts

Topic: DAFNE Online Mobile / Mobile site released

Is there a way to force the online version from the phone so I can add it as a favourite? Something like appending "/mobile"?

Just started with the online entries and I'm finding it so much more useful than the paper version, especially for those days when the blood tests just keep on coming!

Feb 23, 2011

marke 681 posts

Topic: General Discussion / local meetings

Hi, interesting to hear these suggestions, it is something that has been discussed in the DAFNE User Action Group but not really moved forward. Part of the issue is contacting people in the local area. DAFNEOnline obviously has a user based but the general DAFNE graduate population is much higher. The big problem is only the local DAFNE eductators have any record of local graduates so its hard to make progress without their input. They tend to be VERY busy people who are very stretched and so don't always have time to assist.
That said I'm 100% in favour of this idea and am happy to help in my DAFNE Centre, we even have our own 'free' venue to hold a get together since the local Diabetes charity built our Diabetes centre and allow us to use it in the evening for free. I'm in South East Kent.
Lastly I would suggest people interested in organising something like this, post in their DAFNE Centre forum to gauge interest as this is the idea of the centre forums. Its worth keeping people updated in this forum but you are likely to find it easier to do the orgainsing in the local forums. I agree with Sarah, that is better graduate led because its more likely to occur and keep occuring with its 'driven' by the people its for rather than by the DAFNE Educator. I would still invite the educators to the meetings though !

Feb 22, 2011

Steve Whitfield 8 posts

Topic: General Discussion / BG Graphs

Hi All

Just wondered if there was any way of emailing my BG Graphs. I have found a way of printing them but my dotor wants me to email them to him.

Ta

Feb 22, 2011

JayBee 587 posts

Topic: General Discussion / local meetings

I'm happy to try and help out for the Norfolk area.

Feb 22, 2011

moyesy 10 posts

Topic: General Discussion / LOL

Laugh out Loud

Feb 22, 2011

Alan 49 284 posts

Topic: General Discussion / LOL

I often see 'LOL' in various postings but have no idea what it means.

Litres of Lager?
Levemir or Lantus?
Lack of Learning in my case, I think.

Feb 22, 2011

sphillips 24 posts

Topic: General Discussion / local meetings

i was thinking very local eg the county that you live in. I was hoping that this topic would spark some interest and that people might look at organising something themselves. We tried to organise a local user group before DAFNE online was developed but the danger is it becomes another healthcare lead thing and in the spirit of DAFNE and from what i've noticed from talking to people in clinic some kind of meeting run by graduates themselves would seem quite appealing, now there is DAFNE online there is a better vehicle to organise this type of thing. I just wondered how people felt about this?

Feb 22, 2011

JayBee 587 posts

Topic: General Discussion / local meetings

Lol@cakes and booze comment! Smile

What "local" are we refering to here? Would these meets be split by county or even country? Organiser volunteers will be needed. Could possibly ask at libraries (especially if they have cafe with cake!) if they'll be happy to accomodate a gathering like this. Smile

Feb 22, 2011

sphillips 24 posts

Topic: General Discussion / local meetings

thanks for your comments. I was hoping that one of our local graduates would set something up with support-if required-from the local educator team. I kind of thought that people with newly diagnosed type 1 diabetes might also want to come along as there isn't a really anything locally that seems to appeal to people with type 1 diabetes?

Feb 22, 2011

Growler 4 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

I have the Windows Phone Dev tools and I've been thinking of getting back into programming now the kids are nearly out of nappies so maybe I'll take a look myself.
I'd agree about earlier Windows Mobiles though, I went through that pain myself, but 7 is completely different. Smile

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / local meetings

Or possibly put the pressure on the local hospitals as we overindulge in cakes and booze.............LOL

Feb 22, 2011

marke 681 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Not at the moment, we don't really have the time to implement one and have no 'test' bed to test it on. The android app is hardly progressing so taking on another platform is not going to happen very soon. I also think that you need a special version of the development tools to develop for windows mobile, I have 'standard' development tools for windows but NOT for the mobile version. So I would go get your iPhone back ;^) ( I would anyway, I had many fun years with earlier versions of windows mobile and won't be going back to it )

Feb 22, 2011

JayBee 587 posts

Topic: General Discussion / local meetings

I'd be interested in coming along to a DAFNE gathering. Possibly would take pressure off the hospitals! Smile

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / local meetings

It would definitely be worth trying.............I think informal would be a good place to start until you know people are going to attend for sure.........

Feb 22, 2011

sphillips 24 posts

Topic: General Discussion / local meetings

Dear All
I was wondering if there was any interest in setting up local regular (say 4 x per year) meetings for people who've done a DAFNE course. Just informal to get together and catch up etc or more formal like the DUK meetings with speakers? What do you think?
Sarah Phillips Leicester.

Feb 22, 2011

marke 681 posts

Topic: General Discussion / Dispatches - Hospital Food

When I fully applaud your efforts and aims, I can understand why it doesn't happen. Unfortunately politicans are great at talking not so good at doing. With budgets ever decreasing
and re-organisations on the horizon realistically its going to be low on a PCT's agenda. I'm not suggesting it should be just pointing out the realities. I didn't see the programme so I can't
comment, I tend to avoid stuff like that since they mostly seem to have an agenda before making the programmes and the outcome is always something 'sensational'. A lot of stuff
at hopsitals is now outsourced to the most 'competitive' bidder, this is the root cause to most of these issues. The same thing happens with cleaning at hospitals, the cheapest cleaners not
the best cleaners. Not sure how you 'break' this system.

My biggest issue with hospitals was convincing the HCP's that I could manage my own diabetes and didn't need them to tell me when to test and when to inject. They seemed to want to
'take over' my management for me. This obviously was not going to happen so it caused a few 'tense' moments until they got the idea that they would not be doing it.

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Old habits die hard...

I wouldn't disregard that advice, do it and see the results............... but for example, I was rising overnight, I could add on some units and see the result/success/unsuccessful the next morning.....I think maybe 5 days is a lot, 3 days max for me.....

Feb 22, 2011

JayBee 587 posts

Topic: General Discussion / Old habits die hard...

Im on Levermir now (since about Oct2010 I think). I was advised at my hospital appointment last friday by a DAFNE nurse to leave BI changes for 5-7 days. 2 days isnt enough time for your body to adjust to the new dose.

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Old habits die hard...

The Lantus information regarding changing doses came from the DAFNE course and then following months on Lantus......cant remember if its in the handbook, maybe in the onset, peak and duration section........

If you o Levemir you can change a dose and record an accurate response to that change almost immediately....

So are you on Levemir on Lantus?

Feb 22, 2011

JayBee 587 posts

Topic: General Discussion / Old habits die hard...

(~~Pardon in advance the multiple posts - on cheap mobile!~~ All tidied up now!)

Not sure how that works with the hypos if things are insulin sound. Im still finding confidence in my doses (being female means regular shifts) so I find hypos are due to exercise, miscalculation of CPs of unroutine foods or a hormone shift. On page 39 of the DAFNE guidebook, it says your insulin sensitivity increases - perhaps your sensitivity increases more than others when you've hypo'd?

Pre-DAFNE and the course of breaking the habit, I was making a conscious decision, though sometimes I took certain action because I wasnt convinced (joys of learning the hard way...). Pre-DAFNE I managed to get the idea into my head that if I was 12BG, I'd take 2QA to get myself down. If I was 14, Id take 4QA. I was living in a guesswork cloud, I didnt understand what my body wanted and often felt that it was up to me to figure it all out. I got it to a point where I was getting great HbA1c (I still remember now how happy I was to be hitting 6 range!) but the boomeranging got too much. I was hungry and tired all the time, Im still amazed now that Im still alive! When I asked about needing help, DAFNE was being introduced to my hospital and so I got asked if I was interested in being a participant. I did try to do DAFNE before the course, but I was adjusting the CP when it came to changing ratio due to a misunderstanding, but doing the course soon straightened that out lol.

Good guess on thinking I am on Lantus - I was, but I was put on Levermir late 2010 (I think it was October)! I appreciate the heads up about the timing difference however has this information come from advice, experience or is it in the guidebook? On this note I think I will add a note about "after BI change, leave it for a week"!

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Spirits and Wines

All standalone spirits have no carbohydrate in them, that's any spirit, so noticing if it has been pre mixed with anything is essential..........but in the context I think you are talking about it will just be spirits on there own......

I am a red wine drinker myself and these have no carbohydrate either, neither do the whites, however there are some varieties out there that may have some, possibly maybe the sweet varieties you mentioned above......

Obviously the beers and ciders have carbohydrates so watch out for them...

As a Scotsman I find myself drinking Buckfast Tonic Wine, looks very similar to a bottle of red however it is packed with natural sugars and caffeine and it doesn't tell you this on the bottle, I had to contact the company for carb values, 90g in it, so considerable, just watch out for things like that, hopefully most of the time these things will seem obvious...

Feb 22, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Dispatches - Hospital Food

Whatever the choice of food you are given, whether it be bad or good food, the hospital staff, being aware of your condition, must make the effort to provide you with accurate carbohydrate values.................yes, as a graduate you can comfortable estimate the carbohydrate values but for some, probably most, an accurate count is what is needed for good results..........

I would expect this from any hospital I attend. Will it happen with everyone, probably not, as not everyone may be as confident or fit to ensure it happens.......

Feb 23, 2011 ReNZoR 5 posts	Topic: Carbohydrate Counting / Spirits and Wines Hey Thanks for the reply mate :0 I generally only drink Tequila or Jack Daniels that I mix myself with diet lemonade. From what I can tell on the bottles, nothing seems to have been added to the mix. I stay away from pre-mixed drinks like WKD etc. As for the wines, I did actually make a mistake. I meant Dry and Sparkling white wines lol, not Sweet. I guess the Dry and Sparkling varieties would be much the same as the red wine regarding no carbohydrate? Lager I do drink, but not since starting DAFNE... the carbohydrate booklet states 1 CP for 1 pint (575ml), however the cans I have are 440ml , 135ml off being 1 pint. I need to work that one out before I start drinking those again, as I don't really want to be over or under dosing myself. The other problem being my syringes (I have owned NovoPen etc and disliked it:/) are 1unit increment, not 0.5, I need to sort that out as some things that are 1.5 CP I cant inject 1.5, I end up either not eating those foods or eating double or matching something to them to round the numbers up. Thanks again guys, really appreciate the help Stuart

Feb 23, 2011 Dr.Jamie 2 posts	Topic: DAFNE Online Mobile / How to download data from iphone app Hi All, I am a new DAFNE Graduate and have been using the iphone app to record by Testing results. Can anyone tell me if it is possible to download these results into my online diary? I hope there is a method because it will be a fools errand to transfer them one at a time. Kind regards Dr. Jamie Downing

Feb 23, 2011 Growler 4 posts	Topic: DAFNE Online Mobile / Mobile site released Is there a way to force the online version from the phone so I can add it as a favourite? Something like appending "/mobile"? Just started with the online entries and I'm finding it so much more useful than the paper version, especially for those days when the blood tests just keep on coming!

Feb 23, 2011 marke 681 posts	Topic: General Discussion / local meetings Hi, interesting to hear these suggestions, it is something that has been discussed in the DAFNE User Action Group but not really moved forward. Part of the issue is contacting people in the local area. DAFNEOnline obviously has a user based but the general DAFNE graduate population is much higher. The big problem is only the local DAFNE eductators have any record of local graduates so its hard to make progress without their input. They tend to be VERY busy people who are very stretched and so don't always have time to assist. That said I'm 100% in favour of this idea and am happy to help in my DAFNE Centre, we even have our own 'free' venue to hold a get together since the local Diabetes charity built our Diabetes centre and allow us to use it in the evening for free. I'm in South East Kent. Lastly I would suggest people interested in organising something like this, post in their DAFNE Centre forum to gauge interest as this is the idea of the centre forums. Its worth keeping people updated in this forum but you are likely to find it easier to do the orgainsing in the local forums. I agree with Sarah, that is better graduate led because its more likely to occur and keep occuring with its 'driven' by the people its for rather than by the DAFNE Educator. I would still invite the educators to the meetings though !

Feb 22, 2011 Steve Whitfield 8 posts	Topic: General Discussion / BG Graphs Hi All Just wondered if there was any way of emailing my BG Graphs. I have found a way of printing them but my dotor wants me to email them to him. Ta

Feb 22, 2011 JayBee 587 posts	Topic: General Discussion / local meetings I'm happy to try and help out for the Norfolk area.

Feb 22, 2011 moyesy 10 posts	Topic: General Discussion / LOL Laugh out Loud

Feb 22, 2011 Alan 49 284 posts	Topic: General Discussion / LOL I often see 'LOL' in various postings but have no idea what it means. Litres of Lager? Levemir or Lantus? Lack of Learning in my case, I think.

Feb 22, 2011 sphillips 24 posts	Topic: General Discussion / local meetings i was thinking very local eg the county that you live in. I was hoping that this topic would spark some interest and that people might look at organising something themselves. We tried to organise a local user group before DAFNE online was developed but the danger is it becomes another healthcare lead thing and in the spirit of DAFNE and from what i've noticed from talking to people in clinic some kind of meeting run by graduates themselves would seem quite appealing, now there is DAFNE online there is a better vehicle to organise this type of thing. I just wondered how people felt about this?

Feb 22, 2011 JayBee 587 posts	Topic: General Discussion / local meetings Lol@cakes and booze comment! What "local" are we refering to here? Would these meets be split by county or even country? Organiser volunteers will be needed. Could possibly ask at libraries (especially if they have cafe with cake!) if they'll be happy to accomodate a gathering like this.

Feb 22, 2011 sphillips 24 posts	Topic: General Discussion / local meetings thanks for your comments. I was hoping that one of our local graduates would set something up with support-if required-from the local educator team. I kind of thought that people with newly diagnosed type 1 diabetes might also want to come along as there isn't a really anything locally that seems to appeal to people with type 1 diabetes?

Feb 22, 2011 Growler 4 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed I have the Windows Phone Dev tools and I've been thinking of getting back into programming now the kids are nearly out of nappies so maybe I'll take a look myself. I'd agree about earlier Windows Mobiles though, I went through that pain myself, but 7 is completely different.

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / local meetings Or possibly put the pressure on the local hospitals as we overindulge in cakes and booze.............LOL

Feb 22, 2011 marke 681 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Not at the moment, we don't really have the time to implement one and have no 'test' bed to test it on. The android app is hardly progressing so taking on another platform is not going to happen very soon. I also think that you need a special version of the development tools to develop for windows mobile, I have 'standard' development tools for windows but NOT for the mobile version. So I would go get your iPhone back ;^) ( I would anyway, I had many fun years with earlier versions of windows mobile and won't be going back to it )

Feb 22, 2011 JayBee 587 posts	Topic: General Discussion / local meetings I'd be interested in coming along to a DAFNE gathering. Possibly would take pressure off the hospitals!

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / local meetings It would definitely be worth trying.............I think informal would be a good place to start until you know people are going to attend for sure.........

Feb 22, 2011 sphillips 24 posts	Topic: General Discussion / local meetings Dear All I was wondering if there was any interest in setting up local regular (say 4 x per year) meetings for people who've done a DAFNE course. Just informal to get together and catch up etc or more formal like the DUK meetings with speakers? What do you think? Sarah Phillips Leicester.

Feb 22, 2011 marke 681 posts	Topic: General Discussion / Dispatches - Hospital Food When I fully applaud your efforts and aims, I can understand why it doesn't happen. Unfortunately politicans are great at talking not so good at doing. With budgets ever decreasing and re-organisations on the horizon realistically its going to be low on a PCT's agenda. I'm not suggesting it should be just pointing out the realities. I didn't see the programme so I can't comment, I tend to avoid stuff like that since they mostly seem to have an agenda before making the programmes and the outcome is always something 'sensational'. A lot of stuff at hopsitals is now outsourced to the most 'competitive' bidder, this is the root cause to most of these issues. The same thing happens with cleaning at hospitals, the cheapest cleaners not the best cleaners. Not sure how you 'break' this system. My biggest issue with hospitals was convincing the HCP's that I could manage my own diabetes and didn't need them to tell me when to test and when to inject. They seemed to want to 'take over' my management for me. This obviously was not going to happen so it caused a few 'tense' moments until they got the idea that they would not be doing it.

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Old habits die hard... I wouldn't disregard that advice, do it and see the results............... but for example, I was rising overnight, I could add on some units and see the result/success/unsuccessful the next morning.....I think maybe 5 days is a lot, 3 days max for me.....

Feb 22, 2011 JayBee 587 posts	Topic: General Discussion / Old habits die hard... Im on Levermir now (since about Oct2010 I think). I was advised at my hospital appointment last friday by a DAFNE nurse to leave BI changes for 5-7 days. 2 days isnt enough time for your body to adjust to the new dose.

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Old habits die hard... The Lantus information regarding changing doses came from the DAFNE course and then following months on Lantus......cant remember if its in the handbook, maybe in the onset, peak and duration section........ If you o Levemir you can change a dose and record an accurate response to that change almost immediately.... So are you on Levemir on Lantus?

Feb 22, 2011 JayBee 587 posts	Topic: General Discussion / Old habits die hard... (~~Pardon in advance the multiple posts - on cheap mobile!~~ All tidied up now!) Not sure how that works with the hypos if things are insulin sound. Im still finding confidence in my doses (being female means regular shifts) so I find hypos are due to exercise, miscalculation of CPs of unroutine foods or a hormone shift. On page 39 of the DAFNE guidebook, it says your insulin sensitivity increases - perhaps your sensitivity increases more than others when you've hypo'd? Pre-DAFNE and the course of breaking the habit, I was making a conscious decision, though sometimes I took certain action because I wasnt convinced (joys of learning the hard way...). Pre-DAFNE I managed to get the idea into my head that if I was 12BG, I'd take 2QA to get myself down. If I was 14, Id take 4QA. I was living in a guesswork cloud, I didnt understand what my body wanted and often felt that it was up to me to figure it all out. I got it to a point where I was getting great HbA1c (I still remember now how happy I was to be hitting 6 range!) but the boomeranging got too much. I was hungry and tired all the time, Im still amazed now that Im still alive! When I asked about needing help, DAFNE was being introduced to my hospital and so I got asked if I was interested in being a participant. I did try to do DAFNE before the course, but I was adjusting the CP when it came to changing ratio due to a misunderstanding, but doing the course soon straightened that out lol. Good guess on thinking I am on Lantus - I was, but I was put on Levermir late 2010 (I think it was October)! I appreciate the heads up about the timing difference however has this information come from advice, experience or is it in the guidebook? On this note I think I will add a note about "after BI change, leave it for a week"!

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Spirits and Wines All standalone spirits have no carbohydrate in them, that's any spirit, so noticing if it has been pre mixed with anything is essential..........but in the context I think you are talking about it will just be spirits on there own...... I am a red wine drinker myself and these have no carbohydrate either, neither do the whites, however there are some varieties out there that may have some, possibly maybe the sweet varieties you mentioned above...... Obviously the beers and ciders have carbohydrates so watch out for them... As a Scotsman I find myself drinking Buckfast Tonic Wine, looks very similar to a bottle of red however it is packed with natural sugars and caffeine and it doesn't tell you this on the bottle, I had to contact the company for carb values, 90g in it, so considerable, just watch out for things like that, hopefully most of the time these things will seem obvious...

Feb 22, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Dispatches - Hospital Food Whatever the choice of food you are given, whether it be bad or good food, the hospital staff, being aware of your condition, must make the effort to provide you with accurate carbohydrate values.................yes, as a graduate you can comfortable estimate the carbohydrate values but for some, probably most, an accurate count is what is needed for good results.......... I would expect this from any hospital I attend. Will it happen with everyone, probably not, as not everyone may be as confident or fit to ensure it happens.......