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Jun 12, 2011
Simon 578 posts

Topic: General Discussion / What should DUAG being doing for you?

DUG is open to anyone who's taken the course, and are canvassed by DAFNE and the DUAG for opinions / research etc.

DUAG are an elected representative group of DAFNE Graduates who meet regularly and take part in activities to ensure DAFNE Graduates are better represented to DAFNE, Diabetes UK, NHS Trusts etc.

That's my take on it anyway!
 
Jun 12, 2011
Simon 578 posts

Topic: Site Development / Do you use the Diary Graphs?

Fair comment Garry, they are just the defaults - any preferences?
 
Jun 12, 2011
Garry 328 posts

Topic: Site Development / Do you use the Diary Graphs?

Bit dull in terms of colour Simon...but perhaps I'm just an old metfartin! Sad

Regards
Garry
 
Jun 12, 2011
meltow 78 posts

Topic: General Discussion / What should DUAG being doing for you?

Perhaps it's only me?

Sorry Peter, but I just don't get the difference between DUG and DUAG, and their roles and purpose.
 
Jun 12, 2011
Linda S123 8 posts

Topic: General Discussion / Watch out for your dog!

My labrador used to sleep at the side of my bed and when younger, I was prone to night time hypos. The dog would waken me up and one time he actually nosed the twix bar towards me that was lying on bedside cabinet. I could always trust him to look after me when I asleep. Thanx Max Razz
 
Jun 12, 2011
Linda S123 8 posts

Topic: Questions for HCPs / Metformin /Type 1

Hi, Im about to do the same anf start taking metformin tablet, starting with one a day in morning and go on to twice daily and take it from there, Should I drop my insulin dose forst and work from there or take the chance of lows and correct as it goes ?
 
Jun 11, 2011
marke 686 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Being the cynic of the site and the internet, I would say use this with extreme caution. There are a million sites offering suggestions and ideas as 'facts' all over the internet and most have absolutely no scientific basis for what they say. As Novarapidboi says we would neeed to make VERY clear it is only an estimate NOT based on
any scientific evidence. As ever what works for some may not work for all and so the answer for some may be very accurate whilst for others it may be way off.
The site referenced says its based on CGMS data and indeed if we all had Constant Glucose Montoring Systems ( man that really would be good) the HbA1c results
probably could be calculated reaonably accurately. However with only 4 points of measurement each 24 hours, I don't see how any calculation can be accurate.
I also think that your HbA1c result will not 'really' be a suprise to anyone, if you have been testing regularly so an estimate ( via this calculation ) will only confirm what you all ready know so will be of limited use. But if people do find it useful why not.
 
Jun 11, 2011
Peter 109 posts

Topic: General Discussion / What should DUAG being doing for you?

The DUAG (DAFNE User Action Group)team were elected 2 years ago by the membership of DUG (DAFNE User Group) to act as representatives of DUG, and to provide a User voice in the running of DAFNE in the UK and Ireland. We have members who participate in the research and educator meetings as well as on the DAFNE Executive team.

In the last 2 years we have had little contact with our users, primarily because we have e-mail addresses for a subset of them. We are currently reviewing the our objectives fro the next 12-18 months, and so would welcome your thoughts (whether a DUG member or not) on what the challenges are for DAFNE at the moment, and what we should be doing to tackle them.

Thanks.

NB. If you're not a member of DUG and would like to join, then details are provided in the DAFNE User Group forum on this site. (All DAFNE Graduates in the last 18 months should have been told about DUG, and given the application form, as part of your training course. Those who graduated earlier will not automatically have been given the information).

If you want to get involved in DUAG, then send me a message through the site.
 
Jun 11, 2011
Peter 109 posts

Topic: General Discussion / BG Diary

Tony, I would suggest you talk to your diabetes team about changing on to a twice daily basel (background insulin) regime. This is recommended for many people and when taken last thing at night and first thing in the morning it has the benefit of increasing the background insulin levels during the morning, which may help with the increases you are talking about in the morning.

Given the number of changes you've made in quick succession it's difficult to know where the problem area are. I would also be thinking about increasing the background dose given that the BG level is high across the day. It would be worth talking about that with your diabetes team.

Good luck.
 
Jun 11, 2011
Peter 109 posts

Topic: Questions for HCPs / Blood Glucose range whilst pregnant

There is a section in the course handbook on pregnancy (see link at the top right of the page, assuming you are logged in as a graduate). the targets stated there are:

The normal level of HbA1c is lower during pregnancy so we encourage women to try to get their HbA1c below 7% if possible. During pregnancy is one of the few times we recommend testing your blood glucose level in between meals. The target levels during pregnancy are:

Less than 6 mmol/l before meals.
Less than 8 mmol/l 1-2 hours after meals / before bed.

Good luck in meeting those. They certainly look tough to achieve.
 
Jun 11, 2011
novorapidboi26 1,819 posts

Topic: Site Development / Do you use the Diary Graphs?

the graphs seem to work good for me, I think I prefer these versions, might just be the novelty though, better compatibility with more devices is important though......
 
Jun 11, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / BG Diary

dawn phenomenon but a bit later, that's strange the liver action doesn't happen before you wake..............

if your waking normal, then tackling the liver maybe easier, you can just compensate with some QA insulin at breakfast, nothing is ever simple though.....

you don't need to suffer the highs in the morning, the 24 might be good enough to get you through the night, but it may not be enough for during the day, have you discussed that with anyone.....
 
Jun 11, 2011
Simon 578 posts

Topic: Site Development / Do you use the Diary Graphs?

If so, we've changed them recently from Flash to Javascript, which makes them viewable on a wider range of devices (purely selfishly, I'm an Apple fanboy and Flash doesn't work on iPhones/iPads).

Let us know if the new graphs work OK for you - and if there are other kinds you'd like.

Simon
 
Jun 11, 2011
Tony Brewster 4 posts

Topic: General Discussion / BG Diary

hi, my blood sugar goes up in the morning even when i dont eat, i could wake up norm but be about 17-19 at lunch time. its not really a ration for breakfast its more like assuming what sugar myy liver will pump out and try to match it on top of brekky. this is my week first on dafne. 24 i like because works best when im sleeping. but the mornings are killing me
 
Jun 11, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / BG Diary

is this your week on the DAFNE course..............?

I will assume your on Lantus as there is only one dose, and so I would also comment on the fact that you have changed your dose and not allowed 3 days for it to show its effectiveness, all dose changes should be allowed to work, but especially Lantus as it takes a few days to settle down.............is it Lantus.....?

It seems like the 24 dose was the best overnight, maybe just a wee bit to strong, but you wouldn't know for sure unless you stuck with it for a few days.....

As this dose is still being established insulin/carb ratios wont be able to be tweaked properly..............

I see you have went up to 3:1 at breakfast, most people are more resistant at that time so you could be right there................
 
Jun 11, 2011
Tony Brewster 4 posts

Topic: General Discussion / BG Diary

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Jun 11, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Welshmapleleaf said:
Hi guys,

Just graduated from DAFNE today!!!! This would be a really cool addition to the analysis on the site!!

I am looking forward to my next set of results (which can only get better!!!) but a bit of a guide to what I can expect would be amazing!

Anyway, I'm looking forward to making a meaningful contribution to the forums as I put into practice what I've just learned.....and continue to learn!



Warm welcome from me...............

DAFNE turns round everyones understanding of how to manage the condition, the condition still remains a pain and unpredictable as insulin needs change all the time...........i have upped my activity levels at night and my blood sugars are all messed up now.............

Look forward to hearing how you get on and to discuss any concerns you may have...........
 
Jun 10, 2011
Welshmapleleaf 19 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Hi guys,

Just graduated from DAFNE today!!!! This would be a really cool addition to the analysis on the site!!

I am looking forward to my next set of results (which can only get better!!!) but a bit of a guide to what I can expect would be amazing!

Anyway, I'm looking forward to making a meaningful contribution to the forums as I put into practice what I've just learned.....and continue to learn!
 
Jun 10, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

derekh1965 said:


Well at 12:37 today my BS was 5.7. Never had any lunch, no food has passed my lips since breakfast.
Tested 5 mins ago and my BS is 4.1. So looks like my morning BI is working fine. Just ned to get my evening 1 sorted and I will be a happy man:-)
Although no big rush as my morning BS has been high for the past 17/18 yrs.

DAFNE was what I needed years ago.



thats sounds good, your closer than you think then......
 
Jun 10, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Simon said:
Novorapidboi - where did you get this from? I could incorporate it into the Diary on here...




Heard it from a few people on other forums, but it is derived from the formula to work out average BG from an HbA1c result...........one of many sources can be found here........

are you saying you could fire those numbers in to the diary and have a an estimated HbA1c, cool...........you would need to stress its only a guess, or a broad estimate.......
 
Jun 10, 2011
Simon 578 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Novorapidboi - where did you get this from? I could incorporate it into the Diary on here...
 
Jun 10, 2011
derekh1965 95 posts

Topic: General Discussion / Some advice please



Well at 12:37 today my BS was 5.7. Never had any lunch, no food has passed my lips since breakfast.
Tested 5 mins ago and my BS is 4.1. So looks like my morning BI is working fine. Just ned to get my evening 1 sorted and I will be a happy man:-)
Although no big rush as my morning BS has been high for the past 17/18 yrs.

DAFNE was what I needed years ago.
 
Jun 10, 2011
navman2000 5 posts

Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible?

Thanks... Yeah my overall control since DAFNE has been brilliant, never seen such great BG readings before, always was on the high side of things, and hopefullu this time round HBA1c will have improved from the 11 i had to something a bit more within range Smile
 
Jun 10, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

No doubt your childhood has resulted in certain behaviors as an adult...............

Its OK to have something to eat before bed every night, and its also OK to have lots of carbs before bed if you want to as well, but when testing your doses ,as many variables if not all variables have to be removed ,that's what the step wise approach teaches..........

The likelihood is that your low carb snack before bed wont be effecting your overnight numbers that much if any, but you cant be sure, so in order to be confident the dose is right, you need to see it on paper, telling you, with no carbs or QA working away overnight, your BG held steady or went up or down........

Sorry if I am being repetitive.............. Sad

How did your lunchtime readings go....................I am having a few problems myself right now as well...........started going low mid morning (possible effects from previous evening exercise), and getting large spikes between lunch and dinner, its a never ending battle......... Wink
 
Jun 10, 2011
derekh1965 95 posts

Topic: General Discussion / Some advice please

I basically have the same every night. n the nights when I had CPs I had a bowl of low fat creme fraiche and 100g of blueberries (5g carbs).

A lot of times I can have both, sweet and savory. The bowls are small ikea bowls so not a massive amount but enough to satisfy my physocological craving.

I had a good stable upbringing and my mother and father are still together after 53 years but there was never any love shown.

When I went to secondary school and met new mates I can remember one of them going out and kissing his mum and telling her he loved him and I found that totally weird., said to him n"do you give your mum a kiss!!". I most probably used food to feel love and they say childhood affect's you for the rest of your life.

Maybe I need some hypnotism or EFT (emotional freedom technique). If you've never heard of it I would Google it. It does work. My girlfriend was petrified of spiders for years,. Would hyperventilate. 1 hour session and she was cured. For it to work you have to get to the root cause of your problem and I don't know what caused my problem.


The amount I have wrote there sounds like I need some counseling, lol.