Recent Posts
Search the DAFNE Online Forums
15,864 posts found
|
Jun 18, 2011
derekh1965
95 posts
|
Topic: General Discussion / Some advice please Yes I'm going t stick with the 32 at 22:30 and maybe take 22 at 10:30. The trouble I was having with the Isophane was the peak was making my BS go low. Although they will tell you BI doesn't lower your BS it clearly does. n An example is Tuesday 3am test I was 5.6 then at 8:30 I was 14.7!!Isophane peaks between 4 to 6 hrs. Lantus (Glargine) has a much less defined peak than Isophane. Never mind, one of these days I'll be hunkey dorey. |
|
Jun 18, 2011
novorapidboi26
1,819 posts
|
Topic: General Discussion / Eye Screening Hey, welcome to the forum.............From the stories I have heard laser treatment is successful in stemming any minor leaks, there may be minor leaks around the outside but its ones near the middle that may effect the sight.............I have had it for 12 years, diabetes that is, and I have background retinopathy, its normal I suppose after so long.............. being referred doesn't mean you will have to get the laser, just means some more in depth investigation is needed, but if you do, don't worry, it will help......................and remember retinopathy can improve if you can lower your BG levels nice and slowly........ I am sure someone with more first hand experience will be along soon......... |
|
Jun 18, 2011
Third Lanark
3 posts
|
Topic: General Discussion / Eye Screening Having had diabetes for 13 years have thankfully not had any problems with my eyesight. However just got a letter sent from the eye screening unit that there have been changes to my eyesight because of diabetes and that I am being referred to an eye specialist.Been a bit of a fright to say the least and am now seriously worried about my vision, dont get me wrong I havent noticed any changes but thats the thing you dont until it can be very late. The information sheet provided with the letter states that laser surgery can be used to treat retinopathy. Does anyone know how successful this type of treatment is? Been getting quite worried about it |
|
Jun 18, 2011
novorapidboi26
1,819 posts
|
Topic: General Discussion / Some advice please I don't know it all, just using what I have learned....................but I like helping if I can............are you talking about splitting the evening dose, before bed and then in the morning..........that's a new one to me........... I think the 32 before bed is the best option, its seems to have given you a good result, so if this continues you know your have the right dose..................I think taking less before bed is just reducing your chance of waking on target...... on the wed night you were 9.0, so assuming the QA was right, then it looks as if the 30 was just short of what you needed............. So my non professional advice would be to take the 32 at 22:30, the your 22 when you get up, so the chances of waking in single figures is greatest and then your giving yourself more BI to stop any rise from breakfast to lunch.............. what has your team been saying........... |
|
Jun 18, 2011
Peter
109 posts
|
Topic: Questions for HCPs / Newer Insulins under pressure from QIPP Mark, Don't forget, as Carolin said, that the second part of the message given at the DAFNE Collaborative was "ANY type of BI taken twice daily was better than analogue taken just once daily". |
|
Jun 18, 2011
derekh1965
95 posts
|
Topic: General Discussion / Some advice please Hi NovprapidboiI was well chuffed but true to form for me it doesn't last. I have decided to go back onto Lantus. 32 units at 22:30. When I took it before I am sure I took 2 injections. 1 in the am and 1 pm but can't remember how much. My first evening taking the Lantus I woke with a BS of 7.3 which I was delighted with. Then last night I thought I would try splitting the dose as it's duration is 18 - 24 hrs. Took 18 last night with the intention of taking 12 this morning but woke with a BS of 13.7. I am probably too early to receive a reply this morning but worth as try. Should I take 32 this morning and 32 tonight or what do you think? You have a great knowledge concerning all this and I fully appreciate all the help you are giving to me. best regards Derek |
|
Jun 17, 2011
Jenny
27 posts
|
Topic: Questions for HCPs / Menstrual Cycle, BI I'm glad I'm not the only one. I think those insulin pumps with the continuous glucose monitors are the only way to solve the problem! I've tried to predict changes but can never get it right. Everything changes week by week so by the time you have gathered evidence to talk to someone everything has changed again. |
|
Jun 17, 2011
marke
686 posts
|
Topic: Questions for HCPs / Newer Insulins under pressure from QIPP since I know at least one of the DAFNE 'top brass' read this forum I will let them give a 'full' answer if they wish too. However at last weeks DAFNE Collaborative I attended a workshop that contended that NPH could well be preferrable to newer analogue insulins. Indeed the original DAFNE program was and still is based on NPH insulin NOT the newer insulins.One of the problems with new analogues is there is not the long term evidence and experience of using them like there is NPH. It was said at the DAFNE workshop that if they had known years ago what they now know about NPH insulins they would use them differently and more effectively. Newer is not always best ! Although all new insulins have obviously been safety tested before being generally available that is not the same as years of experience of using them over a very wide range of people who are all different. Perhaps QIPP is just trying to trying to avoid the 'newer is better' syndrome, or maybe not, I can't really comment on that. |
|
Jun 17, 2011
Karen Westwood
38 posts
|
Topic: General Discussion / Hb1Ac results
Been a little off track of late and not done the testing that I should have been and my HbA1 has increased from my previous post DAFNE 6.7% to 8.1%, So I am now back to testing before each meal again .... back on track ..... onwards and upwards from here!!!! 
|
|
Jun 17, 2011
marke
686 posts
|
Topic: General Discussion / iPhone BG Meter nothing on their websites, just press releases at various other sites so I guess its not acutally available commercially yet. It looks potentially interesting but why plug it directly into an iphone, a bit of a strange decision. The connector looks weird sticking out of the side, presuming its not retractable its likely to potentially get battered in use. Also using something like bluetooth would mean you could connect it to any device that you wrote the software to talk to it on, opening up a bigger market with android, windows mobile etc. Anyway as I said it looks interesting, would be very interest to hear if anyone gets their hands on one. |
|
Jun 17, 2011
marke
686 posts
|
Topic: General Discussion / How can you work out HBA1c by using your BG averages? Is it possible? Carolin has asked me to post the table below from the new handbook ( available online shortly) that she thinks will help. It basically what she posted on this thread previously but laid-out in the same way as the handbook. (if you are reading this in an email, it won't display properly. You can only view it on the site) |
|
Jun 17, 2011
Ray O'Toole
4 posts
|
Topic: General Discussion / iPhone BG Meter Does anybody know where can I purchase the iBGStar iPhone meter?Regards, Ray. |
|
Jun 17, 2011
Athena
52 posts
|
Topic: General Discussion / Advice if possible.
Think you would need to think of Levemir or Insulatard. Lantus can be split but I know at our centre, they are not finding this to be successful as it is really meant to be used as a one off once daily injection. I would e-mail your DSN and ask for advice. levemir is supposed to be one of the worst for reactions, so it may be a problem for you. We have been told that old-fashioned insulatard works well with DAFNE so you could ask about that too. Good luck, you really need to get something sorted out with this. |
|
Jun 17, 2011
Athena
52 posts
|
Topic: Questions for HCPs / Menstrual Cycle, BI Hi All,Just to update you that I did not hear back from the DAFNE folk. No reply to my e-mail about including this aspect of control on future courses so no luck there. I also think that lots of gals won't realise what the problem is and so when DAFNE Extra becomes available no -one will include this in the course. I said to people on my course that maybe this was why they couldn't get control. They had not recognised the problem and now see a pattern to their BI changes. I have told my DSN's but nothing is mentioned in our follow up meetings. i wish they would address this. Why would they keep pretending that one BI is what you should aim for and will do you? It seems such an oversight. Anywya, hwo are we all getting on? I am not much fourther forward. I can predict the time of rise but not how much to raise it. I am now trying doses for one day only and changing the next day if not working. This is because I know when I am on the way up, and when I am on the way down. I think changes are required more quickly thatn the step- wise approach allows, especially on the way down of course when menstruation occurs and the insulin has to be whacked right down right away. I suspeact as other says that DAFNE jsut can't help with this and we all need to find our own pattern. Good luck all! |
|
Jun 17, 2011
Athena
52 posts
|
Topic: General Discussion / Hb1Ac results
That's interesting Sara. I thought I would point out to patients in Scotland that they can register to get their results on - line. Google My diabetes myway if interested. Once registered all HBa1C, blood pressure, cholesterol etc, results from previous years are available to you , and like SAra you can see trends over the years. |
|
Jun 17, 2011
Athena
52 posts
|
Topic: General Discussion / Stimulants Anyone got any advice/ experience of using herbal or pharmecutical stimulants to stay awake with diabetes? I have looked into this and found a few rememdies. I am about to try Guarana and then other stuff like diet pills. Coffee is just not strong enough to deal with diabeteic tiredness especially with DAFNE where bg's seems to be higher than on normal MDI. Just not getting used to the higher levels so need to do something about it until I get my doses sorted. Any advice welcome.thanks |
|
Jun 17, 2011
Welshmapleleaf
19 posts
|
Topic: General Discussion / Advice if possible. I'm on Lantus - as it is supposed to be a 24hr ish BI, can you split it or would I need to consider going on to levemir? |
|
Jun 17, 2011
Athena
52 posts
|
Topic: General Discussion / Advice if possible. IAS for the dawn phenomena, I am the same. i wake up okay, but if I don't take a QA with my BI first thing, at 7am by 8am I have gone high. I would also do what novorapid boi suggests try an uneven split on BI. I do this as well taking BI at 10pm and 7am. it is a really sensible suggestion. You need to try one thing and then the other, and then the two in combination though.If you wake up ok, you may get away with just a small QA dose as soon as you wake up. If not, I would try the uneven split. Good luck |
|
Jun 17, 2011
Welshmapleleaf
19 posts
|
Topic: Questions for HCPs / Newer Insulins under pressure from QIPP Having only graduated last week, I am still grappling with normalising my BGs at a stable and consistent level. My own attitude whilst I was learning the DAFNE principles, and still is this week, is that at the moment, exercise is another complicating factor which would make it more difficult for me to 'get in tune' with how my body is reacting to CPs, ratios of QA etc etc.I hope within the next few weeks, I'll get the confidence to build some exercise into my regime. I don't know whether any further information on this subject wouldn't have 'muddied the waters' on the course itself, but it would definately be welcome by the time of the six week reunion. |
|
Jun 17, 2011
Carolin
83 posts
|
Topic: Questions for HCPs / Newer Insulins under pressure from QIPP
Hi, This is a very important point and has been noted by DAFNE nationally. The consensus is that the vast majority of people need the basics during their DAFNE week so they can at least tackle exercise more safely & effectively. The DAFNE Collaborative ran an 'exercise masterclass' for Educators and Doctors late last year, partly to help Educators to think about different ways of delivering that part of the 5-day course, but also to think about developing an 'advanced module' for DAFNE graduates. It may be worth approaching your local Educators to find out if they're planning anything along these lines. In Sheffield we've provided 2 additional sessions this year in our 'RefresherClinics', aimed at people who do regular exercise and sports and incorporating more detail on exercise physiology and sports nutrition. |
|
Jun 17, 2011
novorapidboi26
1,819 posts
|
Topic: General Discussion / Hb1Ac results
Do you not do this anyway? |
|
Jun 17, 2011
novorapidboi26
1,819 posts
|
Topic: General Discussion / Hb1Ac results you can find the conversion here |
|
Jun 17, 2011
Carolin
83 posts
|
Topic: Questions for HCPs / Newer Insulins under pressure from QIPP
Hi, Yes, I think your colleagues may have got hold of the wrong end of the stick regarding BI use. Analogue BIs are certainly used almost exclusively in some DAFNE centres, however the evidence still comes out very favourably for NPH and is what Michael Berger's algorithms were developed around (the ITTP programme in Dusseldorf on which DAFNE is based). But the audit data show that the important thing is taking the BI twice daily, whichever it is. So many centres prefer to keep patients on analogue and just split the dose. |
|
Jun 17, 2011
Aneirin
15 posts
|
Topic: General Discussion / Hb1Ac results I've never mentioned in percentages. What is 6.7% compared to mmol? |
|
Jun 17, 2011
novorapidboi26
1,819 posts
|
Topic: General Discussion / Advice if possible. If you are just outside the targets then it shouldn't take much effort to pin down, a later evening dose perhaps, I was in the high teens constantly, was really fed up, and really tired, I just didn't want to get up.....
|
