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Jun 22, 2011
JayBee 587 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

Sorry about the delay... work got in the way!

Here's my current period pattern... look familiar?
 
Jun 22, 2011
JayBee 587 posts

Topic: General Discussion / DAFNE Myths

I'm impressed if you've never been over 10 BG after a hypo to not want to take a correction, novorapidboi26.

You say you can correct freely... I'm confused. I know my sensitivity increases when I hypo because even when eating at the same time, I have hypo'd without fail after correcting after a hypo (I have even witnessed 1QA take me down by 9 points of BG during a correction test from 20BG to 11 - how would that be possible if this wasn't true?).

I can't see why my DAFNE care team would mislead my entire group about this correction business either.
 
Jun 22, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / DAFNE Myths

I wouldn't correct after a hypo, as I would expect my BG to be on target after treating with 1.5-2 quick acting CPs..........

If I had a hypo at 3PM, corrected, had dinner, then went to have some toast before bed, I would correct a high at the pre toast test........as you are now on a totally different cycle of insulin/carbohydrates.....

To me, that principal seems straight forward knowing now what I know about insulin action and digestion etc......

So I would of thought that particular misconception should be in the myth section............
 
Jun 22, 2011
dafne-dude 11 posts

Topic: General Discussion / Travelling with insulin

i did notify the airline i was diabetic when i booked but that was just to request an alternative menu, you may need something from your GP stating you are diabetic and will be carrying needles on you ect..(but to be honest no-one checked this when boarding) also tell the airline you have diabetes when booking and they will request an alternative menu, (all your meals are served first and the food is alot better).. I flew with emirates when travelling to australia and they were very helpful and understanding about keeping the insulins in the fridge..

hope that makes sense to you,,
 
Jun 22, 2011
JayBee 587 posts

Topic: General Discussion / DAFNE Myths

I'm confused about the "High BGLs after a hypo should not be corrected with QA insulin for 24 hrs"... is the "should not" the reason it is a misconception? I don't believe that it "should not be corrected" by QA... however, it was drilled into my DAFNE group to be very wary about correcting because of the increased insulin sensitivity... correcting after hypos was a very hard habit for me to break so to see it stated as a misconception is a bit disappointing. Sad

Others are funny - but also kind of scary because some are a mixture of old general diabetic myths and misconceptions being mixed in with DAFNE rules.... it is very frustrating sometimes the amount of ignorance you can find (especially on the internet).

I do find it particularly interesting about what insulins DAFNE has been designed for! I had no idea (before this and another thread on here stated it). Smile
 
Jun 22, 2011
GXK949 4 posts

Topic: General Discussion / Travelling with insulin

sjohno said:
Very Happy

I'm not sure if this site will help but try http://www.friouk.com they may have some travelling equipment that may help you, good luck.



Brilliant thankyou! Very Happy
 
Jun 22, 2011
GXK949 4 posts

Topic: General Discussion / Travelling with insulin

dafne-dude said:
Hi there,

I did travel to austrailia a few years back but only for 6weeks not a full year but like you say alot cheaper to take insulin over than buy it... For the insulins that i was'nt usin i would wrap a dish towel around a cool pack and sit this next to my insulin until i was on the plane then mentioned to the air steward who would kindly store the insulin in a fridge for me..

Hope this helps it worked for me traveling to austrailia then brazil...




Thanks! Smile one more question! Did you have to notify the airline before you travelled that you would be carrying insulin? or did you just tell them when you got on the plane?
 
Jun 22, 2011
dafne-dude 11 posts

Topic: General Discussion / Travelling with insulin

Hi there,

I did travel to austrailia a few years back but only for 6weeks not a full year but like you say alot cheaper to take insulin over than buy it... For the insulins that i was'nt usin i would wrap a dish towel around a cool pack and sit this next to my insulin until i was on the plane then mentioned to the air steward who would kindly store the insulin in a fridge for me..

Hope this helps it worked for me traveling to austrailia then brazil...
 
Jun 22, 2011
GXK949 4 posts

Topic: General Discussion / Travelling with insulin

Hi, im hoping someone can give me some advice, i am moving to Australia for a year to study and stopping in Dubai for a short holiday on the way! I have to take a considerable amount (6 months worth) of insulin with me as it will be expensive for me to get insulin in Australia! Does anyone have any advice as to how i transport such a large amount of insulin or have any experience with taking insulin on long haul flights?
Thanks
 
Jun 22, 2011
dafne-dude 11 posts

Topic: General Discussion / Eye Screening

I would'nt worry too much about the laser treatment third lanark, i had retinopathy treatment about 3 yrs ago due to the diabetes and at first i was worried too but 3 short blasts of the laser and it was corrected, got a check up about 6months after treatment and all ok..
 
Jun 22, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Eye Screening

LOL...........I suppose it would have been worse if you had known you were covered in it......at least you traveled home comfortably thinking thank god that's over.....
 
Jun 21, 2011
Alan 49 284 posts

Topic: General Discussion / Eye Screening

I have my eyes checked for retinopathy twice a year at my local hospital and so far there has been no need for laser surgery. A couple of years ago, the opthalmologist noticed some a slight worsening and I had to go in for a different sort of test. This involved putting a drip into the back of my hand and feeding in a flourescent yellow dye. The opthalmologoist then put the drops in my eyes to dilate the pupils and looked at the back of my eyes with one of the special viewing thingies, to see if any of the dye had leaked out. Thankfully, it hadn't. On the way out of the hospital, I went to the toilet and noticed that my pee was flourescent - I'm sure it would have shown up in the dark. It was alarming at first, but then I realised that it was the dye and I was quite amused.
Because of the pupil dilation, I had to get the bus home and when I got there, my wife was alarmed at the way I looked. There were yellow streaks down my face - when I had the drops in my eyes, they gave me tissues to wipe my eyes, which obviously spread the dye over my face - I wondered why I was getting some funny looks on the bus.
 
Jun 21, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

The concept of your liver releasing energy more severely through lack of carbs is valid and one which I experience on a daily basis........but surely your liver would not release extra stores of glucose during the night when you are sleeping, it wouldn't need to, as your energy need are lower at night.........

So for the purpose of testing an overnight BI dose you could still go carb free, to see what is happening up until the point the DP kicks in.........and if you observe a greater rise when not having anything you can go back to having carbs once you know the dose is right, as it will also help beat the morning highs......
 
Jun 21, 2011
derekh1965 95 posts

Topic: General Discussion / Some advice please

When I was on the Isophane I took that at dinnertime, teatime to us scots and always high. Then when on the lantus took that at the same time and my bs was on target all the time. A vast improvement.

I was having 0 carbs at bedtime for months and then the DAFNE HCP told me that was probably why I was going high as my body was crying out for glucose and the brain was telling the liver to produce some glucose.
 
Jun 21, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

From previous diary results you seem to consistently have some carbs at about 23:30, so the option to move to that time is available........

That 3 am test you have given is a useful bit of information, it tells you that your BI is too strong or that your QA is too much, that's why carb free is best when BI testing...........

You could have went lower than that 5.6 and then rebounded to give you the 14.7, or you could have remained within 1/2 mmols of the 5.4 then the DP could have kicked in, again, confirming this with the 3am, 4am, 5am tests would be good also.......

Allegedly 3 am is a time where there is the least hormonal activity, and its the hormones we need try and fight on a daily basis, as opposed to just meeting carbs with insulin.....

When taking your BI at dinner time in the past, was it successful? You say you have had high mornings for the past 17 years.............that must be really tiring.........

Moving your dose to later on would increase the chances of beating the highs ie. more insulin at 3, 4, 5am inside you......increasing the dose would also help, and that's were a 3 am is important, eventually you will increase the dose to a point were it is too much, 3 am test is the only way to know when this happens......



 
Jun 21, 2011
derekh1965 95 posts

Topic: General Discussion / Some advice please

Hi

I am not sure I believe in the 3am testing as can be seen by this diary. Bed was 7, 3 am test 5 and then 14 at breakfast.That was with 30 units of Isophane at 22:30.

When I was diagnosed I was on a Hunilin S (soluble) and Humilin I mix twice a day. Then they moved me onto Humalog and told me to only take the isophane at dinnertime.

The reason for moving my lantus onto dinnertime was that was what worked in the past for me. I am used to having no BI during the day. Thought that was normal and the QA covered you anyway. As I said the BI function was never explained to me.

I was taking the BI at bedtime and because of my bedtime being all different times the HCP told me I needed to be more regular? take it the same time every night and that is where the 10:30 and 22:30 comes in.

Having lived with high morning BS, over 15, for the past 17 years and starting to see an improvement in the last 2 months I am happy I will get there eventually.






 
Jun 21, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

I seen that alleged myth in the myth slideshow, but I believe its valid to test at this time.................especially if the dawn phenomenon is at work as anytime after this is when the glucagon release will start........so the 3am test will confirm if that dose of BI is right, or would have been right without the DP.......

I think it was a misconception actually, so purely a misunderstanding of an existing principal................oh yeah.... Wink
 
Jun 21, 2011
JayBee 587 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

Athena said:
Hi JWO,

it looks as if you are having the same pattern as I am. I drop my BI immediately at menstruation and a little bit in the few days prior to it. I am not sorting anything using QA at all yet, but may do as I find getting the rest of the month sorted not good.
Interestingly, I have the dawn phenomena, and actually have to put this dose up when my BI goes to its lowest point during menstruation. I suppose I need some more QA to compensate for the lower BI. Sound like you are following the same sort of pattern. I fid that that is the easy bit. The step -wise approach is too slow to work with the gradual rise in insulin requirements up to the premenstrual time. I am now abandoning this and using a change after 1 day approach , rather than waiting for a pattern to see if that helps. I habve tried the step - wise approach for over a year now and as i feel really ill on DAFNNE, I don't want to continue with it to sort this out. As I know when requirements are rising and falling I can do this ok.

takekcare



Yay for familiarity! I'm so happy to know this - it's so morale knocking... but still we carry on!

I have been continuing to apply the 2 day rules for QA and 3-4 days for BI adjustments myself (BI was after advice from my DAFNE team). I'm on Humalog and Levemir for the comparison.

I'm not convinced that I responded correctly last month by putting BI down first then QA so now (I've just had the dreaded "dropping monday" yesterday) I'm trying adjusting just my QA.... I will post up my progress shortly...
 
Jun 21, 2011
JayBee 587 posts

Topic: General Discussion / local meetings

Oh okay... how weird considering I'm familiar with BB code! Thanks for fixing it. ^_^;
 
Jun 21, 2011
marke 686 posts

Topic: General Discussion / local meetings

JWo and others your link in the previous post didn't work because you put speech marks around the website link, you don't need them and indeed they stop the link working. I have fixed your post so that it works but for future reference you need url=<website link> without speech marks around <website link>
 
Jun 21, 2011
marke 686 posts

Topic: General Discussion / Some advice please

Its interesting what you say about Humilin, at the DAFNE collaborative it was suggested that it is probably more effective as a 4 times a day injection but they felt people would not be prepared to do this. My view was a few more injections wouldn't make much difference either way. Apparently 4 times give optimum control becasue of the 'duration' of Humilin, originally it was used as a 'long' lasting once a day insulin but it is not as effective if used only once a day. This is the kind of information that is lacking about Lantus/Levemir becasue there is not the body of evidence built up over time.
With regard to high BS in the morning the opininon was as per Novarapidboi i.e inject as close to bedtime as possible to get the best effect on morning BS. Although they still insist that Lantus IS a 24 hour insulin and care should be taken if you overlap a split dose. I can't comment on that as I'm on Levemir.
I'm not sure about the 3am testing though, I thought that was a DAFNE Myth Wink
 
Jun 21, 2011
Athena 52 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

JWo said:
That is disappointing news... it's stupid considering for years it's been common for even HCPs to say &quot;your BGs rise on your period&quot;. Sad

At the moment I seem to need to drop my dose during the actual period week... very annoying to cope with. I did think it was caused by the recovery of illness before but considering it's that time again and I'm hypoing again... I'm not convinced now that it was just a simple case of illness recovery... T_T

On that note, I didn't just put down my BI by two units on both sides of the split, but I found I had to put my ratios back down by 0.5 (I'm normally 1.5:1 for breakfast and dinner; 1:1 for lunch - so they were all put down).

In other news, I'm now off the pill and using a non-hormonal &quot;coil&quot; which I'm sure will result in interesting times to come now my body can be more natural again... shall see. Haven't been reporting back because these changes of course. I haven't been keeping track of temp since being ill... I probably should start that up again with these changes....



Hi JWO,

it looks as if you are having the same pattern as I am. I drop my BI immediately at menstruation and a little bit in the few days prior to it. I am not sorting anything using QA at all yet, but may do as I find getting the rest of the month sorted not good.
Interestingly, I have the dawn phenomena, and actually have to put this dose up when my BI goes to its lowest point during menstruation. I suppose I need some more QA to compensate for the lower BI. Sound like you are following the same sort of pattern. I fid that that is the easy bit. The step -wise approach is too slow to work with the gradual rise in insulin requirements up to the premenstrual time. I am now abandoning this and using a change after 1 day approach , rather than waiting for a pattern to see if that helps. I habve tried the step - wise approach for over a year now and as i feel really ill on DAFNNE, I don't want to continue with it to sort this out. As I know when requirements are rising and falling I can do this ok.

takekcare
 
Jun 21, 2011
novorapidboi26 1,819 posts

Topic: General Discussion / Some advice please

So are you saying you are going to take your 32 units of evening Lantus earlier than 22:30pm?

This would mean your 32 units would need to last longer, if in fact this is actually the issue.

If it wasn't lasting as long as you want, then injecting as close to the morning as possible is best, so in your case, immediately before bed.

If you are going ahead with this change, remember to do 3 am blood tests, each time you change the time or amount of your BI dose...

Do you understand my point about timing............? Very Happy
 
Jun 21, 2011
derekh1965 95 posts

Topic: General Discussion / Some advice please

Hi

Was on Humilin I for 17 years (since diagnosis) and BS was always high in the mornings. The Hospital put me on Lantus the latter part of last year and the morning BS improved immensely but I started feeling really tired and depressed. Looked up side effects of Lantus and read some people suffered those effects whilst using Lantus.
Asked the hospital to put me on animal insulin because I read some people felt a lot better on animal insulin.. I felt no different so went back onto Humilin I and the high morning BS. Now I have went back onto Lantus.

I used to take 1 injection of Humilin I at dinnertime and just remembered I took the Lantus at the same time. Used to only take a max of 18 units of Isophane because the BI insulins function was never explained to me so I thought the more I took the lower my BS would go. They just told me it was a long acting insulin.

I took 1 32 unit injection of Lantus yesterday at 10:30 and woke this morning with a BS of 13.7 again which makes me think the lantus has run out by morning so will take my injection at dinnertime and hopefully it should last until breakfast time.

Just noticed you don't have to keep adding a new diary to posts. It automatically updates, cool. (small minds are easily amused, lol)