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Jun 21, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please So are you saying you are going to take your 32 units of evening Lantus earlier than 22:30pm?This would mean your 32 units would need to last longer, if in fact this is actually the issue. If it wasn't lasting as long as you want, then injecting as close to the morning as possible is best, so in your case, immediately before bed. If you are going ahead with this change, remember to do 3 am blood tests, each time you change the time or amount of your BI dose... Do you understand my point about timing............? 
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Jun 21, 2011
derekh1965
95 posts
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Topic: General Discussion / Some advice please HiWas on Humilin I for 17 years (since diagnosis) and BS was always high in the mornings. The Hospital put me on Lantus the latter part of last year and the morning BS improved immensely but I started feeling really tired and depressed. Looked up side effects of Lantus and read some people suffered those effects whilst using Lantus. Asked the hospital to put me on animal insulin because I read some people felt a lot better on animal insulin.. I felt no different so went back onto Humilin I and the high morning BS. Now I have went back onto Lantus. I used to take 1 injection of Humilin I at dinnertime and just remembered I took the Lantus at the same time. Used to only take a max of 18 units of Isophane because the BI insulins function was never explained to me so I thought the more I took the lower my BS would go. They just told me it was a long acting insulin. I took 1 32 unit injection of Lantus yesterday at 10:30 and woke this morning with a BS of 13.7 again which makes me think the lantus has run out by morning so will take my injection at dinnertime and hopefully it should last until breakfast time. Just noticed you don't have to keep adding a new diary to posts. It automatically updates, cool. (small minds are easily amused, lol) |
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Jun 20, 2011
sphillips
24 posts
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Topic: Questions for HCPs / Newer Insulins under pressure from QIPP Hi I'd like to add my support to what Carolin is saying. In my 9 years experience as a DAFNE educator in a centre that has tended towards analog BI's we are now reviewing this based on the evidence gathered from the DAFNE database and our clinical experience. We are seeing the benefits of NPH insulin, especially for those who exercise a lot, work shifts, like to drink alcohol (!) and in some cases it has been more beneficial than glargine in dealing with the dawn rise. I think we are right to be sceptical about issues around funding and insulin and protecting peoples choice but there is a lot of good evidence in support of NPH. |
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Jun 20, 2011
JayBee
587 posts
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Topic: Questions for HCPs / Information on menstrual cycle Discussion continues here... |
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Jun 20, 2011
JayBee
587 posts
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Topic: General Discussion / local meetings Well, still trying for a Norwich meal out.... still waiting for any decent interest to make itself known though. (If the link doesn't work, it's this: http://www.dafneonline.co.uk/forums/1/topics/755 - it's on page 3 of the General Discussion forum section) As for any other projects... not heard of anything. |
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Jun 20, 2011
sphillips
24 posts
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Topic: General Discussion / local meetings Hi Just wondered how people were getting on with the local meeting idea? Has anyone got anything going yet? I'd be grateful for any feedback. thanks. |
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Jun 20, 2011
JayBee
587 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI That is disappointing news... it's stupid considering for years it's been common for even HCPs to say "your BGs rise on your period".At the moment I seem to need to drop my dose during the actual period week... very annoying to cope with. I did think it was caused by the recovery of illness before but considering it's that time again and I'm hypoing again... I'm not convinced now that it was just a simple case of illness recovery... T_T On that note, I didn't just put down my BI by two units on both sides of the split, but I found I had to put my ratios back down by 0.5 (I'm normally 1.5:1 for breakfast and dinner; 1:1 for lunch - so they were all put down). In other news, I'm now off the pill and using a non-hormonal "coil" which I'm sure will result in interesting times to come now my body can be more natural again... shall see. Haven't been reporting back because these changes of course. I haven't been keeping track of temp since being ill... I probably should start that up again with these changes.... |
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Jun 20, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / DAFNE Myths WOW, good presentation, definitely issue that need raised..........all of the misconceptions in there to me are not from DAFNE, I dont think any literature connected with DAFNE has resulted in them, maybe some item missed during the teaching process maybe............. for example from the handbook: As a general principle: 1 unit of quick-acting insulin lowers blood glucose by 2-3mmol/l. For blood glucose levels above 11mmol/l this rule does not necessarily apply. This clearly states that with higher BG you may need more insulin to correct, resulting in a higher dose than 4 units.....dismissing the misconception that 4 is the maximum, however it is only a misconception, so misunderstood is all.... This has always been clear to me........ I look forward to hearing what else comes from this..............as there is no doubt myths and misconceptions out there....... 
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Jun 20, 2011
marke
686 posts
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Topic: General Discussion / DAFNE Myths On the 10th June the Annual DAFNE Collaborative was held. This is the DAFNE get-together of all educators, programme management etc. I wasfortunate enough to be there as a DAFNE User Action Group rep. One presentation that really caught my ear that I can now share with you was about DAFNE Myths and Misconceptions. If you click here you can read the presentation in PDF form. Remember it is being said that ALL the things in the presenation are myths. Have a read and post your views here ! Its bound to cause some controversy, which is why I'm posting it here to see what peoples views are. |
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Jun 20, 2011
chrisinbrum
41 posts
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Topic: General Discussion / Eye Screening
I had a referral to my local eye clinic and it turned out not to be serious, but just because the person who did my annual eye test/check wasn't sure if what he saw was significant or not. I think it's natural to be a bit concerned when you get a referral like that, but it could well be just to check your eyes a bit more carefully like it was for me. After a few appointments just to make sure there were no changes or problems my appointments at the eye clinic have stopped. The changes your letter mentions might just turn out to be minor and they could sort themselves out like other people have mentioned. Just make sure you ask any questions if you're worried when you get to the clinic. The specialist i had for my first appointment barely uttered a word or explained anything until I didn't leave at the end of the appointment and started asking what was going on and what he'd seen after staring at the back of my eyes! |
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Jun 20, 2011
Third Lanark
3 posts
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Topic: General Discussion / Alternative medicines Hi guys,I was wondering if any of you had taken any alternative medicines with ahving diabetes. Obviously the main point we always must remember is that we must continue to take our Insulin, tablets etc What I was meaning was I was thinking about taking something like Gingko Bilbo (I think thats how you promounce it) to help boost my circulation or Bilberry fruit which I am told is good for eyesight. Was just wondering if any of you guys had tried these alternatives medicines or other ones and if you had noticed any effect on your diabetes good or bad? Thanks guys |
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Jun 20, 2011
Third Lanark
3 posts
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Topic: General Discussion / Eye Screening Guys,Thank you both for your warm welcome to the forum and for your very helpful comments and information and also for sharing your experiences. Its much appreciated and not only has it helped given me a better understanding of retinopathy it has also made me fe a bit better about the whole thing. Thanks again |
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Jun 20, 2011
Brum_Taffy
13 posts
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Topic: Questions for HCPs / Newer Insulins under pressure from QIPP We seem to have gone into a blind alley, as can sometimes happen The only way to decide a 'Which is better?' argument is the Harry Hill method, IMO  Instead, I am still hoping to get some observations from people with type 1 diabetes in the forum: what you think, what you experience each day, how things are today, compared with how you used to use insulins previously. In essence, Lance Armstrong famously said "It's not about the bike"- do you experiences agree? 
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Jun 20, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please High again, and that was with 32 units at 2230 or there abouts.................If it was me, I would continue with this dose till Wednesday night, if still high in the mornings, add 2 units at night, repeat the process...........3 am test to confirm its working or not and to avoid hypo........ What were you on before going back to Lantus..........? |
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Jun 20, 2011
derekh1965
95 posts
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Topic: General Discussion / Some advice please HiThanks for your replies. I was on Lantuis for a few months and only stopped taking it maybe 3 months ago. I am pretty sure I was oin 1 injection of 32 units in the morning so I have taken my 32 this morning and will leave it until tomorrow morning to see the results. When I was on it before my morning results were good. Stopped taking it because started feeling more tired, depressed, no energy and read sometimes lantus caused those side effects for some people. Been off it for 3 months and feel no different. Still tired and depressed lol. My BS was 13.7 this morning. |
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Jun 20, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Advice if possible.
What you are describing here is the dawn phenomenon, the sharp rise over a short period of time is the hormonal response, so it may also be your BI running out combined with the DP, but even if your BI lasted past this time, this effect would still happen............taking your dose later is a good strategy, one which I adopt, and means your are giving yourself more BI at that specific time in the morning when your pancreas starts spitting out the glucagon...... I only moved it to the later time after I had upped my BI dose to the correct one, as I was not taking enough...... |
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Jun 20, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Some advice please The 50-50 split is always a good place to start if you are going from one dose, usually Lantus, to two doses, usually Levemir or Humulin I.......But I think its apparent you need more at night that you do during the day, at least that's what it looks like.......Karen makes a good point though, try the dose out for 3 consecutive nights, tweak if needed, then move on to your daytime BI and QA... And if the DP does cause you problems in the morning, giving your 22 dose when you wake is best...........its not a 12-12 hours split, but Lantus and Levemir last longer than this in the majority of people..... Look forward to seeing this weeks results..............your doing well..........
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Jun 20, 2011
Karen Westwood
38 posts
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Topic: General Discussion / Some advice please You may find that as it is a different insulin that you will need different doses anyway and only time will tell.I have found that splitting 50/50 has worked for me but you will probably have to do a few alterations before you find the dose that is right for you. My main advice would be to change one thing at a time and then give it about 3/4 days to look at your results and then decide what may need changing next. It took me months to finally get my lantus at the correct levels so don't worry about things not happening over night. When you do get there all the hard work will eventually pay off. It might be worth speaking to your diabetic nurse to discuss what levels of lantus you should start off on after the change from Isophane. Did they not tell you this when they changed you over to lantus? Karen x |
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Jun 19, 2011
derekh1965
95 posts
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Topic: General Discussion / Some advice please Hi KarenThanks for your input. I was taking 30 units Isophane in the evening and 22 12 hrs later (10:30 am and pm}. Total of 52 BI. Do you think splitting it I should take 26 units each time? I have taken my 32 tonight and will see what my BS is tomorrow morning and take it from there. |
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Jun 19, 2011
Karen Westwood
38 posts
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Topic: General Discussion / Some advice please Hi there, just been reading your posts and thought I would just mention that when you make changes with Lantus it can take (from my experience) upto 3 days for the changes to actually work fully so don't worry about highs in the meantime, just give the lantus a few days to settle.I too used to take all my Lantus in the evening and then I tried splitting it 50/50 morning and night. I take it at 8.30 in the morning and again at 8.30 in the evening. I have an alarm set on my mobile phone to remind me!!! Personally I have found this has worked really well. Hope this helps Karen x |
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Jun 19, 2011
deanna
8 posts
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Topic: General Discussion / Advice if possible. Novorapidboi26 – the burning under the skin comes from my QA insulin, considerably less often from my BI. I have tried novorapid, humulinS and im now on humalog. I am unsure about what causes my physical symptoms at the moment, as my average BG is around 7-8 I don’t know if this is just too high for my body. I have seen my doctors frequently, but they keep trying to put me on anti-depressants to help deal with my mood, headaches and pain-receptors. I am still unsure.Athena – I didn’t realise that your honeymoon period could still be going on even after 2 years, although my diabetes was caught very early, so this could be true in my case. Those with the dawn phenomena, have you tried testing to see if your split dose of BI is lasting the correct amount of time over night, as I myself am unsure if I am experiencing the dawn phenomenon or if my BI is running out to soon. I have tested and recorded my BG over many months now and my BI, Levemir, seems to only last 6-7 hours during the night before my BG starts to rise (for example, from 6.5 to 14.0 in the space of 2 hours in the morning around 7oclock). I have started waiting to take my BI as late as possible, resulting in a habit of going to sleep about midnight. This seems to be working at the moment, as my BG only rises between 3-5 points and doesn’t make me feel as much like ive had a hyper in the night. Welshmapleleaf I think that if you are having difficulties with your BI, in my personal opinion it would probably be worth changing to a split dose BI (even if its just to see how effective it works for you) as it is easier to control and adjust so you can get the dosage right, without having to deal with the consequences for too long if you accidently get the dose wrong, i.e. 10-12hrs instead of 20-24. x |
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Jun 19, 2011
deanna
8 posts
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Topic: General Discussion / Advice if possible.
Okay i understand what you mean. However in my case it is the QA insulin not the BI that cause me these problems, so if these facts are true what could be the cause. It doesnt make sense does it really aha x |
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Jun 19, 2011
deanna
8 posts
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Topic: General Discussion / Advice if possible.
Thank you Garry for the advice on exercise i'll look into it
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