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Jun 29, 2011
derekh1965
95 posts
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Topic: General Discussion / Battling Diabetes o Problem Marke, Have you saw this about website blocking proposals by the uk government. http://www.openrightsgroup.org/ http://www.openrightsgroup.org/blog/2011/rights-holders-propose-voluntary-website-blocking-scheme |
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Jun 29, 2011
marke
686 posts
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Topic: Questions for HCPs / Blood Testing Hi, just to back up what others have said. You need to stand your ground with your GP, involve your DAFNE educators and also find your PCT's PALS ( Patient Advice and Liaison Services ) office via http://www.pals.nhs.uk/ and contact them. PALS staff are usuallyvery helpful and its their job to help you with any issues you have with the NHS. They will assist you AND log your complaint so the GP has no excuse for not acting. I appreciate this would be a last resort as you have known the GP for some time, however it is NOT acceptable for any one in the medical profession to act in such an unhelpful fashion. Its natural to assume its all about cost, however in some cases its down to not understanding the requirements of patients and particularly the DAFNE approach and why its essential to test regularly. |
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Jun 29, 2011
marke
686 posts
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Topic: General Discussion / Battling Diabetes Derek, thanks for the suggestion and sorry to be negative but... Any site that gets you to put in your interests usually only has one thing in mind to target you with advertising. If you read their privacy section (stumbleupon) they explicitly state they may do this. I'm not saying this should stop you using the site, just making you and others think about what they share on the internet. You should also read the privacy section on battlediabetes, where they don't take responsibility for advertisers on their site !This site (DAFNEOnline) does not and will not share your info with anyone since we are DAFNE Graduates like you. However if google come along with a big financial offer who knows  I have a family to feed after all  |
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Jun 29, 2011
ang78
12 posts
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Topic: Questions for HCPs / Blood Testing Thanks GuysThe thing is this guy has been my GP for 20 years, he knows more about me than I do!!! He deals with all the Diabetics in the practice and it was him who recommended DAFNE when I ''fell off the wagon'. I know the practice got the letter from the dafne team because my prescription has changed, all exept the test strips. I'm sure it might be something to do with the fact they cost £25 per pot!!!!! Will have to contact my dafne team I think, untill then i'll just keep emailing the prescription line!!!! |
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Jun 29, 2011
maria51
22 posts
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Topic: Questions for HCPs / Blood Testing I just have to say, my heart goes out to you guys re test strips. Over here you don't need a script. I just walk into the chemist & buy the strips over the counter. The thought of testing a couple of times a day makes me shudder. I agree with novorapidboi, change your doctor if he continues to give you grief. |
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Jun 28, 2011
AllanR
15 posts
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Topic: General Discussion / Travelling with insulin Cheers for that Alan. Seem quiet an interesting product which am sure will become quiet useful. Noticed they also sell smaller ones to fit a pen in, always wondered how a pen really lasts sitting trundling around in a jacket pocket all the time etc. Seems one of them might be quiet good, although for normal use maybe a tad overkill for how long a cartridge tends to last.Thanks again for the suggestion 
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Jun 28, 2011
derekh1965
95 posts
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Topic: General Discussion / Battling Diabetes Hi I stumbled upon this website. It is American and seems to have a lot of information. New research etc. I haven't looked at it all but seems quite a good site. http://www.battlediabetes.com/ Incidentally case nobody knows about stumble upon http://www.stumbleupon.com/ Discover the best of the web. You sign up free, input your interests from a long list of topics and then start stumbling. It will find websites related to your interests. Derek |
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Jun 28, 2011
JayBee
587 posts
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Topic: Questions for HCPs / over injected I think I did this once, and all I did was somehow manage to eat the CPs to correspond with what I took.16 CPs for a meal is possible so it can be easy to sort out! XD |
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Jun 28, 2011
JayBee
587 posts
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Topic: Questions for HCPs / Blood Testing Hey ang78, I've been having similar problems and I think it's due to them (my GP surgery in general) somehow getting the idea that we're Type 2s, not Type 1s. Type 2s do not need to test as much in comparison to a Type 1.Has been frustrating me no end.. Most recent annoyance has been my GP deciding to take all my insulins off my prescription... simply because when I became ill for a couple of days, became hospitalised due to dehydration and on their notes about my insulins, they stated I was self medicating "Levemir". Fair enough you'd think but Levemir is also known as Detemir on my GP listing, so some idiot doctor took BOTH of my insulins off because they didn't understand! I've also been told that I blood test too much and inject too much! What?! I'm still even now, after getting my DAFNE team to assist me, to get my previous arrangement back in place AND on repeat instead of just "current". I am aware that my GP surgery are having to circulate their doctors to cope with the lack of staff, but that's not really much excuse for diabetic ignorance... ARGH! I'd better stop there! I wasn't very impressed as you can tell! LOL ;P Best of luck sorting out your GP surgery! Edit: Is it true that Levemir is an insulin used by some Type 2s? Maybe this is causing the confusion (for me anyway)? |
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Jun 28, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / over injected You're absolutely right with a logical solution. However, I don't think that I would have been physically able to eat 10 slices of bread at 11pm after a large dinner so I was just trying to get carbs into me in a form that I was able to stomach. Maybe a couple of extra units would have been an additional safety precaution to make sure that I didn't drop too low overnight. I was waking myself up and testing as well though so I was able to keep an eye on it that way.M xx |
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Jun 28, 2011
Aneirin
15 posts
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Topic: Questions for HCPs / over injected Same here. Though I wnet with normal acting carbs. Quick acting ones like a drink wine gums or anything trated for a hypo will go out the system to quickly and lead to it not doing much except make you higher to start off with. It's a pain, but bread/toast or something similar sounds like it would work best.i.e. took 16 by mistake at night, on a one to one ratio at this time, so eat TEN slices of bread (my bread is 1.6 units, may)...maybe with eggs and beans so it's not as boring...or maybe something like some rice, chips if you have time. Something that acts normally. Ten slices may sound like a lot and you may get a little bloated...and I may be wrong, but foods with a high glycemic index (which admittedly, would be much easier to eat due to not being as filling, such as sweets, drinks and what not) will not stay with you through the night. Guess the bloated feeling will teach not to inject too much insulin! |
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Jun 28, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Blood Testing you need more strips, and the plain facts are that you know why and your GP doesn't.............did he/she get the letter from your DAFNE team.............If he/she refuses, which they cant if instructed from the specialists then change doctor.......... Type 2 individuals are told only 2 times a day, and I suppose if on a mixed insulin, you would only test 2 times a day as any more would be a waste........ Once the GP is informed and educated everything will be fine............. |
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Jun 28, 2011
JayBee
587 posts
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Topic: General Discussion / ratio for snacks Thanks for replying Carolin.
So, I do go by what my BGs are expected to be, especially if I have injected QA? There's rarely a time when I don't have some QA going on with BI when I'm a fairly active person, so I do keep a lot of the DAFNE exercise rules in mind... I just tend to trip up when it comes to working out what I need to do for certain exercise situations. For example, when at work... to me, doing lots of standing up and sitting down, walking from one end of the reception area to the other, or just pulling my work chair from side to side to retrieve money from a very close drawer seems like the equivilent of doing a gentle stroll... however, my body tells me otherwise by hypoing (sometimes even after taking off for exercise!). With me being active, it does make working out my doses very frustrating... so I wanted to ask to check to see if it'd help straighten things out for me just a little bit! ^_^; |
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Jun 28, 2011
chrisinbrum
41 posts
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Topic: Questions for HCPs / Blood Testing I'm sure other people will give more helpful advice - luckily my GP was more than happy to increase my script after DAFNE and the letter he was sent...but my understanding is that if you're following the DAFNE rules you should be testing at every meal (I do snacks too), before driving (very important, and during long journeys too), if you're ill and also if you're being active. That can add up to quite a few more than the 2 tests a day your GP is telling you.I'd say you're right and your GP is wrong, probably because they don't understand DAFNE! Maybe speak to your DAFNE nurses and ask for their help/advice...I'm sure they would want to try to 'educate' your GP. Good luck!
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Jun 28, 2011
ang78
12 posts
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Topic: Questions for HCPs / Blood Testing HiI completed DAFNE in march this year and have reduced my hba1c from 12 to 8.6, still high but am working on it!! I have just been to see my GP (none diabetes related) and asked for some more test strips as I only get one box at a time on my script. He asked me how many times a day I test so I told him, 4-5 sometimes more and he told me I should only be testing 2 daily and rotating test times, refused to up my script and all but told me I wouldn't get the strips to test more often, even though the team put in the letter after DAFNE to up my scrips to 4 pots at a time. Now i'm confused. Have I got this wrong? How many times should I be testing?? Please help!!! Angela |
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Jun 28, 2011
MelissaF
56 posts
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Topic: Questions for HCPs / over injected Hi Linda,I've done it too - once, as Helen says! I did the same thing - matched the QA with corresponding carbs and kept testing and it all worked out OK. I used full sugar soft drinks (fortunately my husband had cans of Coke in the house) to make up most of the carbs as otherwise it's a bit hard to make up 120g carbs at 11pm! Glad you're OK! Melissa xx |
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Jun 28, 2011
Alan 49
284 posts
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Topic: General Discussion / Travelling with insulin AllanThe good thing about the Frio packs is that you only need a bowl or basin with cold water in it to get them working. The inner pouch contains special crystals - you soak the pouch in the cold water for 10 to 15 minutes, until the crystals soften and then they will stay cool for around 24 hours. So if you've got a couple of Frio pouches and access to cold water, they will keep your insulin supplies cool. Gosh! I sound like a Frio rep. Alan |
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Jun 28, 2011
AllanR
15 posts
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Topic: General Discussion / Travelling with insulin Very true, but guess he was trying to be helpful when he decided to book it for me hehe. Told him otherwise for the return trip though luckily. Was also amusing how in the height of all the air scare silliness, the higher classes get metal knives and forks and glass bowls etc, while cattle class gets flimsy plastic stuff (including the food ). Guess the old joke is that terrorists don't fly first class 
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Jun 28, 2011
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / over injected Well done in getting through the night unscathed........ |
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Jun 28, 2011
novorapidboi26
1,819 posts
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Topic: General Discussion / Travelling with insulin I can just imagine you sitting with your fancy meal and cutlery, you must of felt like a King.......... To me there is no such thing as Diabetic meals...............being on the DAFNE forum, no one should be thinking like this.......we can all eat anything we like, at whatever time we chose to do so, that's the beauty of it......... I suppose these airline companies and others who supply food need to cater for as many circumstances as possible...... |
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Jun 27, 2011
HelenP
218 posts
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Topic: Questions for HCPs / over injected As I said I did it ONCE and it does scare you but you do have a lot of knowledge and experience which you bring to bear (and you obviously brought to bear) when coping with situations like this. It also tends to make you more alert regarding the fast acting stuff! Well done. Helen |
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Jun 27, 2011
Linda S123
8 posts
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Topic: Questions for HCPs / over injected Im fime, made it thru the night waking every 2 hours with the alarm to do test and as I had calculated the amount of extra units taken, I ate 6 cp's before bed and tested at 1 / 3/ /5/ /7 then got up ! I was high to start as I'd eaten a huge snack before bed but it was interesting to see how much it was dropping through the night. By 5am I was low and had to eat then. By the time I got up I was climbing again as I hadnt taken the levemir. was too scared ! Thanks for your support
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