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May 9, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / cure for type 1 No, have you any links?Doesn't seem likely, although without seeing something on I cant say for sure........... How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow? |
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May 9, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / cure for type 1 No, have you any links?Doesn't seem likely, although without seeing something on I cant say for sure........... How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow? |
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May 9, 2012
margaret asp...
9 posts
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Topic: General Discussion / cure for type 1 Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin. |
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May 9, 2012
margaret asp...
9 posts
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Topic: General Discussion / cure for type 1 Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin. |
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May 9, 2012
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Glandular fever As Garry says, Lantus takes a few days to settle, but yeah, just keep upping the dose until you see normal numbers...........but then expect to reduce again as things return to normal..............Lantus is not very flexible unfortunately, mon the Levemir........ 
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May 9, 2012
Garry
328 posts
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Topic: Questions for HCPs / Glandular fever Please give it time.Changes in Lantus dose - for most people....me included....seems to take some 3 days to have any impact. Go steady and once you are satisfied you have a set pattern you can then make further appropriate adjustments. I wish you well. Regards Garry |
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May 9, 2012
GXK949
4 posts
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Topic: Questions for HCPs / Glandular fever Ive recently been diagnosed with glandular fever and im worried about what to do regarding my diabetes. Its already made my sugars increase and i cant seem to get a handle of them. I have tested and only have trace amounts of Ketones but glandular fever usually lasts for months and i dont want to have my sugars all over the place for that long. Im finding they are particularly high in the mornings around 16/17 so i did a couple of 3am tests and they were around 10-13 so increasing dramatically after 3am. I have already increased my BI insulin from 13 of lantus in the morning and 12 of lantus at night to 14 both morning and night but it doesnt seem to be having a huge effect. Should i try increasing my BI more or increasing my quick acting instead? i am still eating fairly normally and drinking plenty of fluids |
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May 9, 2012
Ahmentep
99 posts
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Topic: Questions for HCPs / High Blood Pressure Hi Alan,I don't have a very high opinion of my GP's either. One of them actually told me to stop going to the practice nurse for BP checks after I had reported a BP reading over 200, which he asserted could not possibly be correct. I either had a faulty machine or I had made some sort of mistake. This was before the hospital incident. Just after the hospital incident I was given another tablet, for my gut. Anyway, after getting it I read the leaflet very thoroughly and found that, if I was taking certain medication, I should consult my doctor or pharmacist. As I was indeed taking these medications I asked for a telephone consultation. I pointed out that no-one had alerted me to the Meloxicam/Lisinopril conflict so, having read this warning on the leaflet I wanted to be sure that it had been taken into consideration. She assured me that everything was fine and I was not to worry. However, at the first renewal of that prescription I was given a different form of that medication which does not carry the warning about possible problems with the other things I am taking. I think there are many people out there suffering all kinds of problems caused by conflicts in their medication which should have been picked up by their GP's. I am equally sure that many will have died for the same reasons, but their deaths will have been recorded as a natural result of whatever they were suffering from. I would have thought that modern computer systems would automatically flag up contra-indications when new medications were added to the list. If not, why not? My DAFNE team are excellent, but I fear that my GP's, and many non-diabetes medics in hospitals are just as likely to kill me as cure me. You may feel that I am paranoid, but of course being paranoid doesn't mean they are not out to get you. The older you get the more people you see slip off this mortal coil in questionable circumstances. Many of the circumstances will appear questionable only because of the ignorance of the layman, but many more are questionable because things were done, or not done which should not, or should have, been done. Please forgive this rant. I am so frustrated that we all seem so helpless when it comes to getting our healthcare systems to work properly. Kind regards, Roger |
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May 8, 2012
Podarcis
14 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right I think that what Simon means by "right" is not that the calculation will always return our BG to its target level (if only!) but simply that any change to the app will support all of the users in ways that they find helpful.Those that prefer to do BG correction adjustments in their head, or on notepaper, can simply leave the new facility disabled. It would continue to do exactly what it does at present. For myself, I have found that rigorously applying the full DAFNE formula [QA = CP * QA:CP + (BG - target) * QA:BG] gives me much better BG control than anything I have had before. The best way of obtaining this rigor is to get the app to make the calculation for you. Less brain strain too. I would love for the app to make this calculation automatically, according to the parameters I have specified as being suitable for me. It would definitely be very helpful. |
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May 8, 2012
thebatoutofhull
60 posts
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Topic: Site Development / Have "amber" colour for just-over BG A graph is easier and quicker to understand than a list of numbers.It is instant. My GP follows a graph quickly. It is her I want to get my information across to. I want to show her I am improving or not improving my control by comparing two or more graphs. Even if my control improves significantly the target charts can still look the same. So maybe we leave it as it is. I have 2 ideas. 1) Can some one tell me how I should use the current graphs/charts to effect change with a view to improve my diabetes management? I normally use the tables but there must be a reason for the graphs. 2) Lets have a new chart. A pie chart like the target chart but with no fixed section markers to adhere to. A Blood Glucose pertentage chart. Simply 1m/mol through to 40m/mol. Done over a fixed period of time. It would not under mine the DAFNE charting system but it would state the FACTS as a percentage. It could be a rainbow of colours graduating dependant on BG results. It could work beautifully in tandem with the target chart. The BG% chart would be a great motivational tool balanced by the structured target chart. Let me know what you think. Is there any mileage in this? |
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May 8, 2012
Podarcis
14 posts
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Topic: Site Development / Have "amber" colour for just-over BG Mark - I understand what you are saying about medical evidence. But, you must accept, there is also no medical evidence that contradicts the common-sense view that a BG that often goes into the 7.5-10.5 zone but rarely above 10.5 is less likely to lead to complications than one that often goes above 10.5. What is more, I very much doubt that any evidence will be found if it were investigated, because the common-sense view is almost certainly right. And that is why most of us feel it would be a useful addition to the DAFNE Online web site records and the phone apps. Good for you that you're prepared to support us even if you have reservations, and I hope you find support when you do take it forward.We should consider this fact, that IS recognised by medical authorities, that there is a danger, as my Diabetes Nurse tells me, that keeping BG too low leads to hypo unawareness (something I have suffered from and am trying to overcome with the aid of DAFNE). She is quite happy for me to have a significant number of BG readings slightly above the target range (but not way above), and it is that fact that prompted me to make this "yellow" suggestion. It would support me in trying to achieve what my nurse is advising me to do. |
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May 8, 2012
novorapidboi26
1,819 posts
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Topic: Site Development / Have "amber" colour for just-over BG marke makes good points there............there would be no point changing things and opening up a can of worms just so folk using the online diary can have something more appealing to look at and make them feel better about their control.......it would be easier to remove the colour coding would it not.........the main concern is the 7, 14, 30 and 90 day averages........ ............[obviously minimal spiking is good too......]I initially thought it would be a good idea, but I can see the points made by marke make sense........ |
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May 8, 2012
marke
686 posts
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Topic: Site Development / Have "amber" colour for just-over BG Well I can raise the issue at a DAFNE User Action Group meeting with regards to the DAFNE Course but that is NOT the same as this site which is not part of the DAFNE Programme and is run outside of it. That said we have to abide by the rules set down by the DAFNE Programme to a degree. I think I am guilty of confusing people here, apologies for that. People seem to be approaching this from a different angle to me. I will try to explain again what I mean.Currently the graphs in the Diary pages shown anything outside the 'standard' DAFNE range as red. This is because years of research into Diabetes and DAFNE have shown that if you keep your BG within that range you substantially reduce the chances of you having complications. This research is what I refer to as 'evidence'. There has been no research, as far as I am aware, on the risk of complications in a range above this say 7.5 - 11, this is the range people are suggesting should be shown in yellow. If we as a site show this range in yellow we are suggesting to people that there is less danger being in this range than the red range, however there is no evidence to back this up. A number of posts seem to be looking at this from a 'one off' point of view i.e if I have one reading above 7.5 then its not a problem since I can correct to bring it back in range. I agree for a one off that is ok however at what point do the number of readings in the yellow range constitute a 'red' situation i.e an increased risk of complications. This is the root of my concern, NOT one off readings but the average being outside the range. In addition everyone is different so an average of 8.0 for some people could be a 'red' situation where as for others it could be fine. This is why I am not convinced that this is a good idea and would not be comfortable with it being implemented without consultation with Medical experts rather than just graduates which is what we all are. If people can come up with a good reasoned arguement to justify this I am happy to take it to the DUAG and DAFNE Programme even if I don't personnally agree with it. However I think it needs more discussion with a wider range of people on the site to produce a good concensus. |
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May 8, 2012
novorapidboi26
1,819 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Exactly, everyone is different, although I do believe you would still follow the same behavior, so the higher you are the more you would need.............Its worth working out and recording what 1 unit is doing at varying levels.......... |
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May 8, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Hi NRB,From your corrections if you were 17 you would correct 10 or 11 units to get to 6 or 7mmol? For me I would be flaked out at that, shows how different people are  Phil |
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May 8, 2012
thebatoutofhull
60 posts
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Topic: Site Development / Have "amber" colour for just-over BG Thank you for your reply. So how can we argue the case for change? I clearly see benefits for me, but understand my opinion may not be shared by others.
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May 8, 2012
marke
686 posts
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Topic: Site Development / Have "amber" colour for just-over BG There IS scope for change and innovation, the DAFNE programme is constantly evolving. I am on the DAFNE User Action Group committee that tries to do this. However as I said change needs to be backed up by evidence not opinion, opinion drives the change by getting research to provide evidence. Yes the majority of people on this site would probably support change however this is NOT the majority of the people who have done the DAFNE course its the minority. I am happy to discuss the idea of banding with the DAFNE Programme team but I'm sure their position would be the same as me, it would only be done after research to understand the effect it hasa on peoples control. Thats not to say Simon won't add it to the site, it merely would not be supported by DAFNE until they have gathered evidence of its benefit. It may well benefit some people on this site but may just confuse others and the DAFNE Programme is for all. |
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May 8, 2012
novorapidboi26
1,819 posts
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Topic: Site Development / Have "amber" colour for just-over BG Just out of curiosity, what recent changes had you to re learn?I would be interested to hear them......
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May 8, 2012
thebatoutofhull
60 posts
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Topic: Site Development / Have "amber" colour for just-over BG 'the DAFNE programme or course which is generally what people on this site are looking to follow' marke site admin.This site is excellent and truly has made a huge difference to my diabetic control. However users willingly follow the DAFNE programme. There has to be scope for change and innovation! You talk of evidence over opinion. I agree but where is your evidence that users of this site would not want to follow the 'DAFNE programme' with alteration? From 2000 the DAFNE approach HAS changed. New terminology and tweeks have been implimented, I have had to re learn recently, changes put into practice. The DAFNE ethos is about choice and adaptability. ADJUSTMENT for normal eating. |
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May 8, 2012
novorapidboi26
1,819 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Podacris,No, I don't correct using the banded fashion that you set out, just a simple matching up of BG level to the strength of 1 unit.....it would be madness to try and do your banded version....... I came to those corrections by simply observing what 1 unit done at each band of BG level......once I got enough readings to spot a pattern I was confident enough to use them... I think having a QA calculator would be possible, and I see there are concerns as to whether it would be on/off. Ultimately it will only be a guide, a back up to your mental arithmetic. I can never be anything more and so its irrelevant whether its on or off by default.......
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May 8, 2012
thebatoutofhull
60 posts
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Topic: Site Development / Have "amber" colour for just-over BG I ran a similar idea by the team, l think it was last year and got a +ve reply. However nothing has changed yet. This would help me when I see my G.P. I take my ipad with me and show the graphs. She seams somewhat alarmed at the amount of bad/high results. In fact a lot are in the 7.6 to 10 range. I get ten minutes with her. Most of which is used explaining. This is wasted time / money!!Podarcis You have my full support. Diabetes is not red and green, Life is not red and green, DAFNE online is! Any one on the development, team this is an idea worth pursuing. It still allows the official DAFNE bands to be displayed (which you can change yourself anyway) but also gives greater depth of information to doctors. This idea is not going away. |
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May 7, 2012
marke
686 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right make that two grumpy old men I think it should be defaulted to off since it will be too complicated for 90% of people and I don't believe its possible to getit 'right', we are are not machines that can be defined by formulae rather than random BG events looking for a pattern
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May 7, 2012
marke
686 posts
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Topic: Site Development / Have "amber" colour for just-over BG When I say 'evidence' I am referring to research to investigate something not personal opinion which is not medical evidence, it is one persons opinion. It is clear you believe it is a good idea and correspondingly clear I do not. As I said Simon may well implement it but I believe it should be an option that a user turns offor on because it does not form part of the DAFNE programme or course which is generally what people on this site are looking to follow, |
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May 7, 2012
Alan 49
284 posts
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Topic: Questions for HCPs / High Blood Pressure Wow Roger! 234/84 - it's a wonder you didn't explode!Your GP should have picked up these contra-indications before prescribing this combination of medications. That's part of the job. I have been suffering from high-blood pressure for a long time. It seemed that every time I had my BP checked, my medication was increased, until I was taking the maximum recommended dose of 4 different BP tablets. About a year ago I started to feel really lousy in the mornings - everything was a real effort. I even had to have a lie-down after taking a shower. I went to my GP who referred me to the hospital for investigation. I had various scans and procedures, but nothing showed up. After all these hospital visits I was passed to the Cardiology department. While this was going on, I checked my BP with my own meter, which showed that every time I felt lousy, I had low BP. One day it was 84/44. The Cardiology department gave me a 24 hour BP meter, which was then returned for analysis. When I went back to see a Cardiologist I took my prescription re-order form. When he saw all the BP medication, he immediately said that I was on too much. He stopped one of the tablets and halved the dosage of another. Since then, I am glad to say, I have stopped feeling lousy and my BP is not too bad. As you might guess, I have a pretty low opinion of my GP after this. |
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May 7, 2012
Stew B
125 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Crikey, my head is spinning..Presumeably any function which calculates QA and correction values will be optional (and hopefully not the default option)? For me, the beauty of the DAFNE diary is that it lays out the information for me to make a judgement. Yes, much of the time the QA calculation is a straightforward one, but often I have to take into account things like planned exercise, temperature (things are very different for me during cold weather) etc. DAFNE is a peculiar mixture of science and "art", and of course I may be becoming a grumpy old man, resistant to change.. Stew |