Recent Posts - DAFNE Online

May 10, 2012

novorapidboi26 1,819 posts

Topic: Site Development / Standard Deviation..

The link I provided is quite complicated but might still be relevant. I recently found out that Excel offers a formula that works it out for you, so:

=STDEV(B1:B100) will give you the Standard Deviation of the results in cells 1 - 100 of column B.

You would be looking for a deviation one third or less of the mean value of numbers in cells 1 - 100.

Does that make sense?

So it could be done on a daily basis, but also monthly, and i suppose on a 7, 14, 30, 90 day basis, which would be relevant to the scenario I am requesting on the Online Diary her at DAFNE Online..... Very Happy

May 9, 2012

derekh1965 90 posts

Topic: Carbohydrate Counting / Sweetcorn

Hi
I am making a bean and sweetcorn bake for dinner. I am using sweetcorn, obviously and cannellini beans. The total carb count is 6CPs.
Do I count them or are they put as vegetables?
The reason I ask is before I would count them as a CP, but the last time I treated them as veg and BS went high.

Maybe just answered my own question, but what would others do.

Thanks in advance

Derek

May 9, 2012

Moris 9 posts

Topic: General Discussion / Accu-Chek Aviva Expert Meters

I ve tried three different machines in the last two years and the one that I use every day is the One Touch Verio Pro. It is easy to use and gives you 7, 14, 30 and 90 day averages. The only problem is that to use their software you must agree to them being able to export your personel information. This I will not do.
If you have problems getting strips and or machines ask your Diabetic nurse.

May 9, 2012

Jenny Spollen 13 posts

Topic: General Discussion / Logging Pump and Meter Readings

Hi Jenny,

I recently started on a medtronic pump and I'm wondering if I have the same as you..it's a paradigm VEO minimed. I was also supplied with a medtronic/bayer contour link meter.

If that's what you have then you're sorted. Basically the meter and pump can be set up so that the meter sends the BG to the pump. Then you get your hands on a CareLink USB and log on here
https://carelink.minimed.com/patient/entry.jsp?bhcp=1
and upload your pump. If you do it once a week you have all your BG and bolus and basal rates for the week automatically uploaded and if you are using the pump wizard (personally I can't be doing with it!) then you will even have your carbs uploaded as well. I test as often as you do and I've found that even if the pump is not displaying them all they still show up on the carelink site....

alternatively, if you don't have the contour link meter then there is a capture event option on the pump (on the main menu) which allows you to enter a BG reading directly into the pump as you take one.

Hope that's of some help and all the best with the pump,

Jenny

May 9, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Accu-Chek Aviva Expert Meters

Its probably because it has some insulin dose calculator on board that you will need to familiarize with and with the consent of your HCP so that you don't go away, give yourself the wrong dose and then blame the company/HCP...

May 9, 2012

Phil Maskell 194 posts

Topic: Site Development / Standard Deviation..

Hi,

I like the sound of this, I normally run about 10ish, but when I do try to tighten control I yo-yo quite a bit due to almost being on the verge of a hypo, it would be nice to see the deviation on this yo-yo effect.

Phil

May 9, 2012

Alan 49 284 posts

Topic: General Discussion / Accu-Chek Aviva Expert Meters

Does anyone have one of these BG meters? The seem to have lots of features built into them - what do you think of them?

I've made enquiries about them at my GP surgery and they seem very difficult to get hold of. Evidently, you have to go on a course to use them - is this true?

May 9, 2012

novorapidboi26 1,819 posts

Topic: Site Development / Standard Deviation..

I heard from another forum that there were some blood meters that can provide a standard deviation figure which shows the severity of the swing from low to high of your blood sugars, a larger number meaning there has been large swings and lower being more stable etc...

I personally would be interested obtaining this number to see how stable my control is, seeing as large swings can damage the micro vascular system and that this may be the most significant problem for diabetics...........

How to Calculate Standard Deviation

The above site details how to get this number. Could a formula be devised? Could this be implemented into the Online Diary?

Any thoughts.......?

May 9, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / cure for type 1

No, have you any links?

Doesn't seem likely, although without seeing something on I cant say for sure...........

How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow?

May 9, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / cure for type 1

No, have you any links?

Doesn't seem likely, although without seeing something on I cant say for sure...........

How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow?

May 9, 2012

margaret asp... 9 posts

Topic: General Discussion / cure for type 1

Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin.

May 9, 2012

margaret asp... 9 posts

Topic: General Discussion / cure for type 1

Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin.

May 9, 2012

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Glandular fever

As Garry says, Lantus takes a few days to settle, but yeah, just keep upping the dose until you see normal numbers...........but then expect to reduce again as things return to normal..............

Lantus is not very flexible unfortunately, mon the Levemir........ Wink

May 9, 2012

Garry 328 posts

Topic: Questions for HCPs / Glandular fever

Please give it time.
Changes in Lantus dose - for most people....me included....seems to take some 3 days to have any impact.
Go steady and once you are satisfied you have a set pattern you can then make further appropriate adjustments.
I wish you well.
Regards
Garry

May 9, 2012

GXK949 4 posts

Topic: Questions for HCPs / Glandular fever

Ive recently been diagnosed with glandular fever and im worried about what to do regarding my diabetes. Its already made my sugars increase and i cant seem to get a handle of them. I have tested and only have trace amounts of Ketones but glandular fever usually lasts for months and i dont want to have my sugars all over the place for that long. Im finding they are particularly high in the mornings around 16/17 so i did a couple of 3am tests and they were around 10-13 so increasing dramatically after 3am. I have already increased my BI insulin from 13 of lantus in the morning and 12 of lantus at night to 14 both morning and night but it doesnt seem to be having a huge effect. Should i try increasing my BI more or increasing my quick acting instead? i am still eating fairly normally and drinking plenty of fluids

May 9, 2012

Ahmentep 99 posts

Topic: Questions for HCPs / High Blood Pressure

Hi Alan,

I don't have a very high opinion of my GP's either. One of them actually told me to stop going to the practice nurse for BP checks after I had reported a BP reading over 200, which he asserted could not possibly be correct. I either had a faulty machine or I had made some sort of mistake. This was before the hospital incident.

Just after the hospital incident I was given another tablet, for my gut. Anyway, after getting it I read the leaflet very thoroughly and found that, if I was taking certain medication, I should consult my doctor or pharmacist. As I was indeed taking these medications I asked for a telephone consultation. I pointed out that no-one had alerted me to the Meloxicam/Lisinopril conflict so, having read this warning on the leaflet I wanted to be sure that it had been taken into consideration. She assured me that everything was fine and I was not to worry. However, at the first renewal of that prescription I was given a different form of that medication which does not carry the warning about possible problems with the other things I am taking. I think there are many people out there suffering all kinds of problems caused by conflicts in their medication which should have been picked up by their GP's. I am equally sure that many will have died for the same reasons, but their deaths will have been recorded as a natural result of whatever they were suffering from.

I would have thought that modern computer systems would automatically flag up contra-indications when new medications were added to the list. If not, why not?

My DAFNE team are excellent, but I fear that my GP's, and many non-diabetes medics in hospitals are just as likely to kill me as cure me. You may feel that I am paranoid, but of course being paranoid doesn't mean they are not out to get you. The older you get the more people you see slip off this mortal coil in questionable circumstances. Many of the circumstances will appear questionable only because of the ignorance of the layman, but many more are questionable because things were done, or not done which should not, or should have, been done.

Please forgive this rant. I am so frustrated that we all seem so helpless when it comes to getting our healthcare systems to work properly.

Kind regards,

Roger

May 8, 2012

Podarcis 14 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

I think that what Simon means by "right" is not that the calculation will always return our BG to its target level (if only!) but simply that any change to the app will support all of the users in ways that they find helpful.

Those that prefer to do BG correction adjustments in their head, or on notepaper, can simply leave the new facility disabled. It would continue to do exactly what it does at present.

For myself, I have found that rigorously applying the full DAFNE formula [QA = CP * QA:CP + (BG - target) * QA:BG] gives me much better BG control than anything I have had before. The best way of obtaining this rigor is to get the app to make the calculation for you. Less brain strain too. I would love for the app to make this calculation automatically, according to the parameters I have specified as being suitable for me. It would definitely be very helpful.

May 8, 2012

thebatoutofhull 60 posts

Topic: Site Development / Have "amber" colour for just-over BG

A graph is easier and quicker to understand than a list of numbers.

It is instant. My GP follows a graph quickly. It is her I want to get my information across to.

I want to show her I am improving or not improving my control by comparing two or more graphs.
Even if my control improves significantly the target charts can still look the same.

So maybe we leave it as it is.

I have 2 ideas. 1) Can some one tell me how I should use the current graphs/charts to effect change with a view to improve my diabetes management? I normally use the tables but there must be a reason for the graphs.

2) Lets have a new chart. A pie chart like the target chart but with no fixed section markers to adhere to. A Blood Glucose pertentage chart. Simply 1m/mol through to 40m/mol. Done over a fixed period of time. It would not under mine the DAFNE charting system but it would state the FACTS as a percentage. It could be a rainbow of colours graduating dependant on BG results. It could work beautifully in tandem with the target chart.

The BG% chart would be a great motivational tool balanced by the structured target chart.
Let me know what you think. Is there any mileage in this?

May 8, 2012

Podarcis 14 posts

Topic: Site Development / Have "amber" colour for just-over BG

Mark - I understand what you are saying about medical evidence. But, you must accept, there is also no medical evidence that contradicts the common-sense view that a BG that often goes into the 7.5-10.5 zone but rarely above 10.5 is less likely to lead to complications than one that often goes above 10.5. What is more, I very much doubt that any evidence will be found if it were investigated, because the common-sense view is almost certainly right. And that is why most of us feel it would be a useful addition to the DAFNE Online web site records and the phone apps. Good for you that you're prepared to support us even if you have reservations, and I hope you find support when you do take it forward.

We should consider this fact, that IS recognised by medical authorities, that there is a danger, as my Diabetes Nurse tells me, that keeping BG too low leads to hypo unawareness (something I have suffered from and am trying to overcome with the aid of DAFNE). She is quite happy for me to have a significant number of BG readings slightly above the target range (but not way above), and it is that fact that prompted me to make this "yellow" suggestion. It would support me in trying to achieve what my nurse is advising me to do.

May 8, 2012

novorapidboi26 1,819 posts

Topic: Site Development / Have "amber" colour for just-over BG

marke makes good points there............

there would be no point changing things and opening up a can of worms just so folk using the online diary can have something more appealing to look at and make them feel better about their control.......it would be easier to remove the colour coding would it not.........the main concern is the 7, 14, 30 and 90 day averages........ Wink

............[obviously minimal spiking is good too......]

I initially thought it would be a good idea, but I can see the points made by marke make sense........

May 8, 2012

marke 681 posts

Topic: Site Development / Have "amber" colour for just-over BG

Well I can raise the issue at a DAFNE User Action Group meeting with regards to the DAFNE Course but that is NOT the same as this site which is not part of the DAFNE Programme and is run outside of it. That said we have to abide by the rules set down by the DAFNE Programme to a degree. I think I am guilty of confusing people here, apologies for that. People seem to be approaching this from a different angle to me. I will try to explain again what I mean.

Currently the graphs in the Diary pages shown anything outside the 'standard' DAFNE range as red. This is because years of research into Diabetes and DAFNE have shown that if you keep your BG within that range you substantially reduce the chances of you having complications. This research is what I refer to as 'evidence'. There has been no research, as far as I am aware, on the risk of complications in a range above this say 7.5 - 11, this is the range people are suggesting should be shown in yellow. If we as a site show this range in yellow we are suggesting to people that there is less danger being in this range than the red range, however there is no evidence to back this up. A number of posts seem to be looking at this from a 'one off' point of view i.e if I have one reading above 7.5 then its not a problem since I can correct to bring it back in range. I agree for a one off that is ok however at what point do the number of readings in the yellow range constitute a 'red' situation i.e an increased risk of complications. This is the root of my concern, NOT one off readings but the average being outside the range. In addition everyone is different so an average of 8.0 for some people could be a 'red' situation where as for others it could be fine. This is why I am not convinced that this is a good idea and would not be comfortable with it being implemented without consultation with Medical experts rather than just graduates which is what we all are.
If people can come up with a good reasoned arguement to justify this I am happy to take it to the DUAG and DAFNE Programme even if I don't personnally agree with it. However I think it needs more discussion with a wider range of people on the site to produce a good concensus.

May 8, 2012

novorapidboi26 1,819 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

Exactly, everyone is different, although I do believe you would still follow the same behavior, so the higher you are the more you would need.............

Its worth working out and recording what 1 unit is doing at varying levels..........

May 8, 2012

Phil Maskell 194 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

Hi NRB,

From your corrections if you were 17 you would correct 10 or 11 units to get to 6 or 7mmol? For me I would be flaked out at that, shows how different people are Very Happy

Phil

May 8, 2012

thebatoutofhull 60 posts

Topic: Site Development / Have "amber" colour for just-over BG

Thank you for your reply. So how can we argue the case for change? I clearly see benefits for me, but understand my opinion may not be shared by others.

marke said:
There IS scope for change and innovation, the DAFNE programme is constantly evolving. I am on the DAFNE User Action Group committee that tries to do this. However as I said change needs to be backed up by evidence not opinion, opinion drives the change by getting research to provide evidence. Yes the majority of people on this site would probably support change however this is NOT the majority of the people who have done the DAFNE course its the minority. I am happy to discuss the idea of banding with the DAFNE Programme team but I'm sure their position would be the same as me, it would only be done after research to understand the effect it hasa on peoples control. Thats not to say Simon won't add it to the site, it merely would not be supported by DAFNE until they have gathered evidence of its benefit. It may well benefit some people on this site but may just confuse others and the DAFNE Programme is for all.

May 8, 2012

marke 681 posts

Topic: Site Development / Have "amber" colour for just-over BG

There IS scope for change and innovation, the DAFNE programme is constantly evolving. I am on the DAFNE User Action Group committee that tries to do this. However as I said change needs to be backed up by evidence not opinion, opinion drives the change by getting research to provide evidence. Yes the majority of people on this site would probably support change however this is NOT the majority of the people who have done the DAFNE course its the minority. I am happy to discuss the idea of banding with the DAFNE Programme team but I'm sure their position would be the same as me, it would only be done after research to understand the effect it hasa on peoples control. Thats not to say Simon won't add it to the site, it merely would not be supported by DAFNE until they have gathered evidence of its benefit. It may well benefit some people on this site but may just confuse others and the DAFNE Programme is for all.

May 10, 2012 novorapidboi26 1,819 posts	Topic: Site Development / Standard Deviation.. The link I provided is quite complicated but might still be relevant. I recently found out that Excel offers a formula that works it out for you, so: =STDEV(B1:B100) will give you the Standard Deviation of the results in cells 1 - 100 of column B. You would be looking for a deviation one third or less of the mean value of numbers in cells 1 - 100. Does that make sense? So it could be done on a daily basis, but also monthly, and i suppose on a 7, 14, 30, 90 day basis, which would be relevant to the scenario I am requesting on the Online Diary her at DAFNE Online.....

May 9, 2012 derekh1965 90 posts	Topic: Carbohydrate Counting / Sweetcorn Hi I am making a bean and sweetcorn bake for dinner. I am using sweetcorn, obviously and cannellini beans. The total carb count is 6CPs. Do I count them or are they put as vegetables? The reason I ask is before I would count them as a CP, but the last time I treated them as veg and BS went high. Maybe just answered my own question, but what would others do. Thanks in advance Derek

May 9, 2012 Moris 9 posts	Topic: General Discussion / Accu-Chek Aviva Expert Meters I ve tried three different machines in the last two years and the one that I use every day is the One Touch Verio Pro. It is easy to use and gives you 7, 14, 30 and 90 day averages. The only problem is that to use their software you must agree to them being able to export your personel information. This I will not do. If you have problems getting strips and or machines ask your Diabetic nurse.

May 9, 2012 Jenny Spollen 13 posts	Topic: General Discussion / Logging Pump and Meter Readings Hi Jenny, I recently started on a medtronic pump and I'm wondering if I have the same as you..it's a paradigm VEO minimed. I was also supplied with a medtronic/bayer contour link meter. If that's what you have then you're sorted. Basically the meter and pump can be set up so that the meter sends the BG to the pump. Then you get your hands on a CareLink USB and log on here https://carelink.minimed.com/patient/entry.jsp?bhcp=1 and upload your pump. If you do it once a week you have all your BG and bolus and basal rates for the week automatically uploaded and if you are using the pump wizard (personally I can't be doing with it!) then you will even have your carbs uploaded as well. I test as often as you do and I've found that even if the pump is not displaying them all they still show up on the carelink site.... alternatively, if you don't have the contour link meter then there is a capture event option on the pump (on the main menu) which allows you to enter a BG reading directly into the pump as you take one. Hope that's of some help and all the best with the pump, Jenny

May 9, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Accu-Chek Aviva Expert Meters Its probably because it has some insulin dose calculator on board that you will need to familiarize with and with the consent of your HCP so that you don't go away, give yourself the wrong dose and then blame the company/HCP...

May 9, 2012 Phil Maskell 194 posts	Topic: Site Development / Standard Deviation.. Hi, I like the sound of this, I normally run about 10ish, but when I do try to tighten control I yo-yo quite a bit due to almost being on the verge of a hypo, it would be nice to see the deviation on this yo-yo effect. Phil

May 9, 2012 Alan 49 284 posts	Topic: General Discussion / Accu-Chek Aviva Expert Meters Does anyone have one of these BG meters? The seem to have lots of features built into them - what do you think of them? I've made enquiries about them at my GP surgery and they seem very difficult to get hold of. Evidently, you have to go on a course to use them - is this true?

May 9, 2012 novorapidboi26 1,819 posts	Topic: Site Development / Standard Deviation.. I heard from another forum that there were some blood meters that can provide a standard deviation figure which shows the severity of the swing from low to high of your blood sugars, a larger number meaning there has been large swings and lower being more stable etc... I personally would be interested obtaining this number to see how stable my control is, seeing as large swings can damage the micro vascular system and that this may be the most significant problem for diabetics........... How to Calculate Standard Deviation The above site details how to get this number. Could a formula be devised? Could this be implemented into the Online Diary? Any thoughts.......?

May 9, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / cure for type 1 No, have you any links? Doesn't seem likely, although without seeing something on I cant say for sure........... How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow?

May 9, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / cure for type 1 No, have you any links? Doesn't seem likely, although without seeing something on I cant say for sure........... How would the pancreas produce insulin again if the beta cells that produce the hormone have been destroyed? Would new cells grow?

May 9, 2012 margaret asp... 9 posts	Topic: General Discussion / cure for type 1 Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin.

May 9, 2012 margaret asp... 9 posts	Topic: General Discussion / cure for type 1 Has any body heard about the new trial. Injecting people with the BCG vaccine for TB, will stimulate your pancreous to produce insulin.

May 9, 2012 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Glandular fever As Garry says, Lantus takes a few days to settle, but yeah, just keep upping the dose until you see normal numbers...........but then expect to reduce again as things return to normal.............. Lantus is not very flexible unfortunately, mon the Levemir........

May 9, 2012 Garry 328 posts	Topic: Questions for HCPs / Glandular fever Please give it time. Changes in Lantus dose - for most people....me included....seems to take some 3 days to have any impact. Go steady and once you are satisfied you have a set pattern you can then make further appropriate adjustments. I wish you well. Regards Garry

May 9, 2012 GXK949 4 posts	Topic: Questions for HCPs / Glandular fever Ive recently been diagnosed with glandular fever and im worried about what to do regarding my diabetes. Its already made my sugars increase and i cant seem to get a handle of them. I have tested and only have trace amounts of Ketones but glandular fever usually lasts for months and i dont want to have my sugars all over the place for that long. Im finding they are particularly high in the mornings around 16/17 so i did a couple of 3am tests and they were around 10-13 so increasing dramatically after 3am. I have already increased my BI insulin from 13 of lantus in the morning and 12 of lantus at night to 14 both morning and night but it doesnt seem to be having a huge effect. Should i try increasing my BI more or increasing my quick acting instead? i am still eating fairly normally and drinking plenty of fluids

May 9, 2012 Ahmentep 99 posts	Topic: Questions for HCPs / High Blood Pressure Hi Alan, I don't have a very high opinion of my GP's either. One of them actually told me to stop going to the practice nurse for BP checks after I had reported a BP reading over 200, which he asserted could not possibly be correct. I either had a faulty machine or I had made some sort of mistake. This was before the hospital incident. Just after the hospital incident I was given another tablet, for my gut. Anyway, after getting it I read the leaflet very thoroughly and found that, if I was taking certain medication, I should consult my doctor or pharmacist. As I was indeed taking these medications I asked for a telephone consultation. I pointed out that no-one had alerted me to the Meloxicam/Lisinopril conflict so, having read this warning on the leaflet I wanted to be sure that it had been taken into consideration. She assured me that everything was fine and I was not to worry. However, at the first renewal of that prescription I was given a different form of that medication which does not carry the warning about possible problems with the other things I am taking. I think there are many people out there suffering all kinds of problems caused by conflicts in their medication which should have been picked up by their GP's. I am equally sure that many will have died for the same reasons, but their deaths will have been recorded as a natural result of whatever they were suffering from. I would have thought that modern computer systems would automatically flag up contra-indications when new medications were added to the list. If not, why not? My DAFNE team are excellent, but I fear that my GP's, and many non-diabetes medics in hospitals are just as likely to kill me as cure me. You may feel that I am paranoid, but of course being paranoid doesn't mean they are not out to get you. The older you get the more people you see slip off this mortal coil in questionable circumstances. Many of the circumstances will appear questionable only because of the ignorance of the layman, but many more are questionable because things were done, or not done which should not, or should have, been done. Please forgive this rant. I am so frustrated that we all seem so helpless when it comes to getting our healthcare systems to work properly. Kind regards, Roger

May 8, 2012 Podarcis 14 posts	Topic: Site Development / Auto calculate QA from BG - let's get it right I think that what Simon means by "right" is not that the calculation will always return our BG to its target level (if only!) but simply that any change to the app will support all of the users in ways that they find helpful. Those that prefer to do BG correction adjustments in their head, or on notepaper, can simply leave the new facility disabled. It would continue to do exactly what it does at present. For myself, I have found that rigorously applying the full DAFNE formula [QA = CP * QA:CP + (BG - target) * QA:BG] gives me much better BG control than anything I have had before. The best way of obtaining this rigor is to get the app to make the calculation for you. Less brain strain too. I would love for the app to make this calculation automatically, according to the parameters I have specified as being suitable for me. It would definitely be very helpful.

May 8, 2012 thebatoutofhull 60 posts	Topic: Site Development / Have "amber" colour for just-over BG A graph is easier and quicker to understand than a list of numbers. It is instant. My GP follows a graph quickly. It is her I want to get my information across to. I want to show her I am improving or not improving my control by comparing two or more graphs. Even if my control improves significantly the target charts can still look the same. So maybe we leave it as it is. I have 2 ideas. 1) Can some one tell me how I should use the current graphs/charts to effect change with a view to improve my diabetes management? I normally use the tables but there must be a reason for the graphs. 2) Lets have a new chart. A pie chart like the target chart but with no fixed section markers to adhere to. A Blood Glucose pertentage chart. Simply 1m/mol through to 40m/mol. Done over a fixed period of time. It would not under mine the DAFNE charting system but it would state the FACTS as a percentage. It could be a rainbow of colours graduating dependant on BG results. It could work beautifully in tandem with the target chart. The BG% chart would be a great motivational tool balanced by the structured target chart. Let me know what you think. Is there any mileage in this?

May 8, 2012 Podarcis 14 posts	Topic: Site Development / Have "amber" colour for just-over BG Mark - I understand what you are saying about medical evidence. But, you must accept, there is also no medical evidence that contradicts the common-sense view that a BG that often goes into the 7.5-10.5 zone but rarely above 10.5 is less likely to lead to complications than one that often goes above 10.5. What is more, I very much doubt that any evidence will be found if it were investigated, because the common-sense view is almost certainly right. And that is why most of us feel it would be a useful addition to the DAFNE Online web site records and the phone apps. Good for you that you're prepared to support us even if you have reservations, and I hope you find support when you do take it forward. We should consider this fact, that IS recognised by medical authorities, that there is a danger, as my Diabetes Nurse tells me, that keeping BG too low leads to hypo unawareness (something I have suffered from and am trying to overcome with the aid of DAFNE). She is quite happy for me to have a significant number of BG readings slightly above the target range (but not way above), and it is that fact that prompted me to make this "yellow" suggestion. It would support me in trying to achieve what my nurse is advising me to do.

May 8, 2012 novorapidboi26 1,819 posts	Topic: Site Development / Have "amber" colour for just-over BG marke makes good points there............ there would be no point changing things and opening up a can of worms just so folk using the online diary can have something more appealing to look at and make them feel better about their control.......it would be easier to remove the colour coding would it not.........the main concern is the 7, 14, 30 and 90 day averages........ ............[obviously minimal spiking is good too......] I initially thought it would be a good idea, but I can see the points made by marke make sense........

May 8, 2012 marke 681 posts	Topic: Site Development / Have "amber" colour for just-over BG Well I can raise the issue at a DAFNE User Action Group meeting with regards to the DAFNE Course but that is NOT the same as this site which is not part of the DAFNE Programme and is run outside of it. That said we have to abide by the rules set down by the DAFNE Programme to a degree. I think I am guilty of confusing people here, apologies for that. People seem to be approaching this from a different angle to me. I will try to explain again what I mean. Currently the graphs in the Diary pages shown anything outside the 'standard' DAFNE range as red. This is because years of research into Diabetes and DAFNE have shown that if you keep your BG within that range you substantially reduce the chances of you having complications. This research is what I refer to as 'evidence'. There has been no research, as far as I am aware, on the risk of complications in a range above this say 7.5 - 11, this is the range people are suggesting should be shown in yellow. If we as a site show this range in yellow we are suggesting to people that there is less danger being in this range than the red range, however there is no evidence to back this up. A number of posts seem to be looking at this from a 'one off' point of view i.e if I have one reading above 7.5 then its not a problem since I can correct to bring it back in range. I agree for a one off that is ok however at what point do the number of readings in the yellow range constitute a 'red' situation i.e an increased risk of complications. This is the root of my concern, NOT one off readings but the average being outside the range. In addition everyone is different so an average of 8.0 for some people could be a 'red' situation where as for others it could be fine. This is why I am not convinced that this is a good idea and would not be comfortable with it being implemented without consultation with Medical experts rather than just graduates which is what we all are. If people can come up with a good reasoned arguement to justify this I am happy to take it to the DUAG and DAFNE Programme even if I don't personnally agree with it. However I think it needs more discussion with a wider range of people on the site to produce a good concensus.

May 8, 2012 novorapidboi26 1,819 posts	Topic: Site Development / Auto calculate QA from BG - let's get it right Exactly, everyone is different, although I do believe you would still follow the same behavior, so the higher you are the more you would need............. Its worth working out and recording what 1 unit is doing at varying levels..........

May 8, 2012 Phil Maskell 194 posts	Topic: Site Development / Auto calculate QA from BG - let's get it right Hi NRB, From your corrections if you were 17 you would correct 10 or 11 units to get to 6 or 7mmol? For me I would be flaked out at that, shows how different people are Phil

May 8, 2012 thebatoutofhull 60 posts	Topic: Site Development / Have "amber" colour for just-over BG Thank you for your reply. So how can we argue the case for change? I clearly see benefits for me, but understand my opinion may not be shared by others. marke said: There IS scope for change and innovation, the DAFNE programme is constantly evolving. I am on the DAFNE User Action Group committee that tries to do this. However as I said change needs to be backed up by evidence not opinion, opinion drives the change by getting research to provide evidence. Yes the majority of people on this site would probably support change however this is NOT the majority of the people who have done the DAFNE course its the minority. I am happy to discuss the idea of banding with the DAFNE Programme team but I'm sure their position would be the same as me, it would only be done after research to understand the effect it hasa on peoples control. Thats not to say Simon won't add it to the site, it merely would not be supported by DAFNE until they have gathered evidence of its benefit. It may well benefit some people on this site but may just confuse others and the DAFNE Programme is for all.

May 8, 2012 marke 681 posts	Topic: Site Development / Have "amber" colour for just-over BG There IS scope for change and innovation, the DAFNE programme is constantly evolving. I am on the DAFNE User Action Group committee that tries to do this. However as I said change needs to be backed up by evidence not opinion, opinion drives the change by getting research to provide evidence. Yes the majority of people on this site would probably support change however this is NOT the majority of the people who have done the DAFNE course its the minority. I am happy to discuss the idea of banding with the DAFNE Programme team but I'm sure their position would be the same as me, it would only be done after research to understand the effect it hasa on peoples control. Thats not to say Simon won't add it to the site, it merely would not be supported by DAFNE until they have gathered evidence of its benefit. It may well benefit some people on this site but may just confuse others and the DAFNE Programme is for all.