Recent Posts - DAFNE Online

Oct 18, 2014

sjohno 37 posts

Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary)

May I suggest that you change your injection sites i.e. try arms and legs and give your stomach a rest. Is your stomach lumpy?

Oct 18, 2014

mum2westiesGill 502 posts

Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary)

"BG diary help please (mum2westiesGill diary)"

Carrying on from my above topic I've finally gone for it & split my lantus/BI on Wed 15/10. I was taking 14u at 10pm ish but I'm now taking 7u at 10pm ish & 7u at 10am ish.

Any help in identifying trends or any help will be greatly appreciated.

TIA

Oct 18, 2014

SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Marke

Please do continue with your review/blog - I find it very interesting, and yes would like one, but not sure I can afford to buy one myself and fund the sensors - I do think they should be available on the NHS as the data collected by them is of a greater value than just the moment snapshot that finger pricking gets (yes useful, but with obvious limitations), and so they could help reduce longer term complications as the data can be used to greater effect by the HCP's.

I suspect that Abbott would give the reader away free - If the sensors were on the NHS.

I can see that there does need to be some further work done be Abbott re the readings and advising users on the differences between BG and Interstitial Glucose and the relationship - and everyone needs to get Gov dept such as the DVLA to accept leaps forward.

Anyway - keep up the good work - and get your consultant to spread the word - esp to East Berks who seem stuck in the 1980's and really don't appear to embrace anything new.

Oct 17, 2014

CurlyWurly 15 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Looks like it went on sale to the public today!

Oct 17, 2014

CurlyWurly 15 posts

Topic: General Discussion / Cyborg Times (new BG meter)

At least this Christmas most adults (T1 diabetics anyway) won't struggle when asking Santa for something - I'm tempted to do that but just a bit concerned about funding the ongoing cost of the sensors.

Oct 16, 2014

Peter 109 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Mark, I remain convinced that you are testing equipment which will be standard in a few years time. It's as big a change as the move from urine testing to blood glucose monitoring and as such it will take time for the cost to reduce, for the technology to improve and for the likes of the DVLA to "accept" the readings. On the latter point, when I get one (no if in this sentence) then I will not be testing with a monitor before driving and will be happy to argue the case with the DVLA. In my opinion its clear that knowledge of the rate and direction of change in BG gives far more useful information than a slightly more accurate single reading with no information about direction of change.

Anyway, please continue with the updates, even though they're making me jealous javascript:emoticon(' Laughing

')

In terms of questions, do Abbott give any advice on injecting in the same arm as the sensor is attached?

Oct 16, 2014

sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi mark thanks for your review of this kit. I am very interested in this . As I think I would be in a position to self fund this, as it appears to be cheaper than the other CGM out there which just seem to be out of my price range for self funding
I have looked into the other sites about the kit, it appears that the DVLA would not accept results which if this is correct is a real shame, as with the testing regime now in place it would really help out with the extra testing I am finding I now iam doing.
I think that with out funding these new technologies will be out of reach for many, which is a real shame and it does appear to be a post code lottery as to what you get funding on and what kit you can and can't get. Wishing you the best of luck with kit

Oct 16, 2014

marke 681 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Day 9:
Not a lot to add apart from Abbott have no responded to emails and so I am asking them a load of detailed questions, if you have any
questions let me know and I will add them to my list. I will update people as and when I get answers. The results from the sensor today are a lot closer to my One Touch readings and are generally well within + or - 20%. The most interesting thing from the last few days is that the biggest spike in my BG is after breakfast in the mornings, perhaps I need to change the cereal I eat ? I will try and see what happens.

Oct 15, 2014

marke 681 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Day 8:
Nothing much to report today and judging by the number of people reading this thread there doesn't seem to be much interest in this type of meter. I would have thought that a CGM meter would appeal to DAFNE graduates given the information it provides but it seems not. I will report on any 'interesting' developments over the next week or so until my sensor shuts down, so the information is there in case people consider getting one in future.

Oct 15, 2014

marke 681 posts

Topic: General Discussion / IBG STAR - reliable readings??

Hi, sort of. The BG star plugged into the bottom of an older iPhone ( the 4 series iPhones) and you installed an app on the phone to access the plugin and act as a meter. The major problem with this is that apple promptly changed the connector on the bottom of the iphone when they released the iPhone 5 which meant you had problems connecting the 'meter'. It was an interesting idea but fatally flawed I believe. That said the accuracy of the meter is independent of how it displays the results i.e via an iPhone app or via its own display.

Oct 15, 2014

Alan 49 284 posts

Topic: General Discussion / IBG STAR - reliable readings??

I know nothing about smart phones - so you'll have to bear with me on this one. Is there now a smart phone that also functions as a BG mater?

Oct 15, 2014

mum2westiesGill 502 posts

Topic: General Discussion / BG diary help please (mum2westiesGill diary)

Hi mdaddison,
Thank you for your reply.

Is there anyone else apart from glen4 & mdaddison who thinks I would be best to try doing a split with my lantus?

Oct 14, 2014

marke 681 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Days (6 and 7):
Sorry no post yesterday as I spent the evening being entertained by a musical performance at the O2 Very Happy

, however as the saying goes 'a funny thing happened on the way to the forum'... When I tested my BG with my meter at the O2 it said 5.8 when I scanned the sensor with the reader it said 11.2 woah !! sorry thats a huge difference ? One for which I have no explination and worries me slightly. If I trusted the sensor and adjusted accordingly I could have been in trouble. I intend to feed this back to Abbott to try to understand what happened. Today the readings are back in tolerance with my normal meter. If it happens again when I am at home I have dug out a range of meters that I have strips for so I can do a comparision between them all to get an idea of what the correct reading might be by the law of averages.
On another related subject, I was at a Diabetes meeting this evening and a lady said she had phoned Abbott and had been quoted a cost of Â£160 for the meter and Â£57 for the sensor ! I will follow this up with Abbott. For one thing I would never pay for a meter, companies give them away to get you to use their strips/sensors which is where they make money. Second Â£57 is different to Â£48, this could be a VAT issue or jsut an adjustment of price. I will try to find out.
More news tommorow, hopefully Very Happy

Oct 14, 2014

mdaddison 1 post

Topic: General Discussion / BG diary help please (mum2westiesGill diary)

glen4 said:
Your ratios at mid afternoon and your evening meal don't seem high enough! Try taking more insulin!? What about splitting your bi? Its evenly spread throughout the day. It seems to be short lived(running out in the daytime)!

I'd agree with those options. DAFNE advice is to ONLY make one change at a time and I would probably start with splitting the background (if you want to) as that is the basis on which everything else is built. It clearly usage appears to be petering off mid morning onwards. If you get a comfortable split BI then you may need to be less drastic with any changes to your ratios - they may even be right if you let the BI change settle in for a couple of days.

Oct 14, 2014

mum2westiesGill 502 posts

Topic: General Discussion / Kit bags

Don't know if this would be any good
http://www.pouchforall.co.uk/

Oct 14, 2014

mum2westiesGill 502 posts

Topic: General Discussion / BG diary help please (mum2westiesGill diary)

A few more days of my diary.

Can anyone see any trends?

Any help in identifying trends and/or advice on how to improve my control would be greatly appreciated

Should I be altering my ratios & if so how many to alter at once?

Should I be altering my background?

Thank you

Oct 14, 2014

mum2westiesGill 502 posts

Topic: General Discussion / Kit bags

Ditto to what Warwick has just said :-)

Oct 14, 2014

Warwick 423 posts

Topic: General Discussion / Kit bags

Posting, because I want to be notified if you find one :-)

Oct 13, 2014

HelenH 9 posts

Topic: General Discussion / Kit bags

I use an Accu-chec Aviva Expert BG Meter. I want to buy a kit bag to hold this, strips, multiclix fingerpricker, Novopen, needles etc. Any recommendations? None of those I've found online mention my meter.

Oct 13, 2014

Alan 49 284 posts

Topic: General Discussion / sugar in urine

Why would sugar in your urine affect you getting a C1 licence?

Oct 13, 2014

Mike_C 1 post

Topic: General Discussion / sugar in urine

doesn't your urin contain sugar when your blood glucose is above ~10mmols? How is your control?

Oct 12, 2014

marke 681 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Day 5 ( sorry must have hibernated through day 4):
Well not a huge amount to report, however something that has been raised on other threads that is relevant here. That is that the meter seems to give readings different to my one touch i.e yesterday lunch time the one touch read 8.6 but the sensor said 11.0 , however this lunchtime the meter said 2.6 but the sensor said 3.8 both are low but the meter reading if correct means I really hypo treatment where as the sensor reading is suggesting I need to 'think' about eating something at least in the way I tend to react to lows. Either meter could be out of range but I have no way of telling which it is. At the moment I tend to 'trust' my one touch meter, since I have had it a few years and my HBa1C is within suggested range ( it was 7.0 last time). However the one touch is just giving me 4 readings a day so there is a huge difference in the amount of data collected. I know this is a big issue for a lot of people so If Abbott start talking to me I will ask the questions. On a normal meter you can get test solutions to verify to some degree the restults you get. How can this be done for a sensor that is inserted into your arm, all the meter ( reader) is doing is collecting data from the sensor. Its the sensor that needs the testing and how can you do that with it in your arm ? I will try to find out.
Until next time, Na-Nu, Na-Nu Very Happy

Oct 12, 2014

marke 681 posts

Topic: General Discussion / New Glucose testing system

Hi Alan, Firstly Abbott need to make a profit on these devices or they won't make any more, they are a business and like all the others are in it to make a profit. But getting back to the point Smile

, I'm not sure how often the device measures but the best granularity I can export is readings 15min apart. Its impossible to tell if the device records more than this and the meter and software only give access to 15min intervals. Reducing the rate that readings are taken won't make a difference I think because the limitation is the reliabilty of the sensor. This is attatched to the flesh and has a pin that sits under the skin, Abbott say the sensor is limited to 14 days because after that the readings become less reliable i.e not within the legal range that all BG measuring devices have to confirm to ( which are pretty lose anyway). I don't know if this is because the technology is new or its just not capable of working for long periods. I do know that there are other devices at the trial stage that are designed to last longer, however these have not got past the trial stage as yet so may never become available. I think the issue with all these devices is accuracy of reading long term, not the rate that they take readings at,

Oct 18, 2014 sjohno 37 posts	Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) May I suggest that you change your injection sites i.e. try arms and legs and give your stomach a rest. Is your stomach lumpy?

Oct 18, 2014 mum2westiesGill 502 posts	Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) "BG diary help please (mum2westiesGill diary)" Carrying on from my above topic I've finally gone for it & split my lantus/BI on Wed 15/10. I was taking 14u at 10pm ish but I'm now taking 7u at 10pm ish & 7u at 10am ish. Any help in identifying trends or any help will be greatly appreciated. TIA

Oct 18, 2014 SimonC 78 posts	Topic: General Discussion / Cyborg Times (new BG meter) Marke Please do continue with your review/blog - I find it very interesting, and yes would like one, but not sure I can afford to buy one myself and fund the sensors - I do think they should be available on the NHS as the data collected by them is of a greater value than just the moment snapshot that finger pricking gets (yes useful, but with obvious limitations), and so they could help reduce longer term complications as the data can be used to greater effect by the HCP's. I suspect that Abbott would give the reader away free - If the sensors were on the NHS. I can see that there does need to be some further work done be Abbott re the readings and advising users on the differences between BG and Interstitial Glucose and the relationship - and everyone needs to get Gov dept such as the DVLA to accept leaps forward. Anyway - keep up the good work - and get your consultant to spread the word - esp to East Berks who seem stuck in the 1980's and really don't appear to embrace anything new.

Oct 17, 2014 CurlyWurly 15 posts	Topic: General Discussion / Cyborg Times (new BG meter) Looks like it went on sale to the public today!

Oct 17, 2014 CurlyWurly 15 posts	Topic: General Discussion / Cyborg Times (new BG meter) At least this Christmas most adults (T1 diabetics anyway) won't struggle when asking Santa for something - I'm tempted to do that but just a bit concerned about funding the ongoing cost of the sensors.

Oct 16, 2014 Peter 109 posts	Topic: General Discussion / Cyborg Times (new BG meter) Mark, I remain convinced that you are testing equipment which will be standard in a few years time. It's as big a change as the move from urine testing to blood glucose monitoring and as such it will take time for the cost to reduce, for the technology to improve and for the likes of the DVLA to "accept" the readings. On the latter point, when I get one (no if in this sentence) then I will not be testing with a monitor before driving and will be happy to argue the case with the DVLA. In my opinion its clear that knowledge of the rate and direction of change in BG gives far more useful information than a slightly more accurate single reading with no information about direction of change. Anyway, please continue with the updates, even though they're making me jealous javascript:emoticon('') In terms of questions, do Abbott give any advice on injecting in the same arm as the sensor is attached?

Oct 16, 2014 sarahg 29 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi mark thanks for your review of this kit. I am very interested in this . As I think I would be in a position to self fund this, as it appears to be cheaper than the other CGM out there which just seem to be out of my price range for self funding I have looked into the other sites about the kit, it appears that the DVLA would not accept results which if this is correct is a real shame, as with the testing regime now in place it would really help out with the extra testing I am finding I now iam doing. I think that with out funding these new technologies will be out of reach for many, which is a real shame and it does appear to be a post code lottery as to what you get funding on and what kit you can and can't get. Wishing you the best of luck with kit

Oct 16, 2014 marke 681 posts	Topic: General Discussion / Cyborg Times (new BG meter) Day 9: Not a lot to add apart from Abbott have no responded to emails and so I am asking them a load of detailed questions, if you have any questions let me know and I will add them to my list. I will update people as and when I get answers. The results from the sensor today are a lot closer to my One Touch readings and are generally well within + or - 20%. The most interesting thing from the last few days is that the biggest spike in my BG is after breakfast in the mornings, perhaps I need to change the cereal I eat ? I will try and see what happens.

Oct 15, 2014 marke 681 posts	Topic: General Discussion / Cyborg Times (new BG meter) Day 8: Nothing much to report today and judging by the number of people reading this thread there doesn't seem to be much interest in this type of meter. I would have thought that a CGM meter would appeal to DAFNE graduates given the information it provides but it seems not. I will report on any 'interesting' developments over the next week or so until my sensor shuts down, so the information is there in case people consider getting one in future.

Oct 15, 2014 marke 681 posts	Topic: General Discussion / IBG STAR - reliable readings?? Hi, sort of. The BG star plugged into the bottom of an older iPhone ( the 4 series iPhones) and you installed an app on the phone to access the plugin and act as a meter. The major problem with this is that apple promptly changed the connector on the bottom of the iphone when they released the iPhone 5 which meant you had problems connecting the 'meter'. It was an interesting idea but fatally flawed I believe. That said the accuracy of the meter is independent of how it displays the results i.e via an iPhone app or via its own display.

Oct 15, 2014 Alan 49 284 posts	Topic: General Discussion / IBG STAR - reliable readings?? I know nothing about smart phones - so you'll have to bear with me on this one. Is there now a smart phone that also functions as a BG mater?

Oct 15, 2014 mum2westiesGill 502 posts	Topic: General Discussion / BG diary help please (mum2westiesGill diary) Hi mdaddison, Thank you for your reply. Is there anyone else apart from glen4 & mdaddison who thinks I would be best to try doing a split with my lantus?

Oct 14, 2014 marke 681 posts	Topic: General Discussion / Cyborg Times (new BG meter) Days (6 and 7): Sorry no post yesterday as I spent the evening being entertained by a musical performance at the O2 , however as the saying goes 'a funny thing happened on the way to the forum'... When I tested my BG with my meter at the O2 it said 5.8 when I scanned the sensor with the reader it said 11.2 woah !! sorry thats a huge difference ? One for which I have no explination and worries me slightly. If I trusted the sensor and adjusted accordingly I could have been in trouble. I intend to feed this back to Abbott to try to understand what happened. Today the readings are back in tolerance with my normal meter. If it happens again when I am at home I have dug out a range of meters that I have strips for so I can do a comparision between them all to get an idea of what the correct reading might be by the law of averages. On another related subject, I was at a Diabetes meeting this evening and a lady said she had phoned Abbott and had been quoted a cost of Â£160 for the meter and Â£57 for the sensor ! I will follow this up with Abbott. For one thing I would never pay for a meter, companies give them away to get you to use their strips/sensors which is where they make money. Second Â£57 is different to Â£48, this could be a VAT issue or jsut an adjustment of price. I will try to find out. More news tommorow, hopefully

Oct 14, 2014 mdaddison 1 post	Topic: General Discussion / BG diary help please (mum2westiesGill diary) glen4 said: Your ratios at mid afternoon and your evening meal don't seem high enough! Try taking more insulin!? What about splitting your bi? Its evenly spread throughout the day. It seems to be short lived(running out in the daytime)! I'd agree with those options. DAFNE advice is to ONLY make one change at a time and I would probably start with splitting the background (if you want to) as that is the basis on which everything else is built. It clearly usage appears to be petering off mid morning onwards. If you get a comfortable split BI then you may need to be less drastic with any changes to your ratios - they may even be right if you let the BI change settle in for a couple of days.

Oct 14, 2014 mum2westiesGill 502 posts	Topic: General Discussion / Kit bags Don't know if this would be any good http://www.pouchforall.co.uk/

Oct 14, 2014 mum2westiesGill 502 posts	Topic: General Discussion / BG diary help please (mum2westiesGill diary) A few more days of my diary. Can anyone see any trends? Any help in identifying trends and/or advice on how to improve my control would be greatly appreciated Should I be altering my ratios & if so how many to alter at once? Should I be altering my background? Thank you

Oct 14, 2014 mum2westiesGill 502 posts	Topic: General Discussion / Kit bags Ditto to what Warwick has just said :-)

Oct 14, 2014 Warwick 423 posts	Topic: General Discussion / Kit bags Posting, because I want to be notified if you find one :-)

Oct 13, 2014 HelenH 9 posts	Topic: General Discussion / Kit bags I use an Accu-chec Aviva Expert BG Meter. I want to buy a kit bag to hold this, strips, multiclix fingerpricker, Novopen, needles etc. Any recommendations? None of those I've found online mention my meter.

Oct 13, 2014 Alan 49 284 posts	Topic: General Discussion / sugar in urine Why would sugar in your urine affect you getting a C1 licence?

Oct 13, 2014 Mike_C 1 post	Topic: General Discussion / sugar in urine doesn't your urin contain sugar when your blood glucose is above ~10mmols? How is your control?

Oct 12, 2014 marke 681 posts	Topic: General Discussion / Cyborg Times (new BG meter) Day 5 ( sorry must have hibernated through day 4): Well not a huge amount to report, however something that has been raised on other threads that is relevant here. That is that the meter seems to give readings different to my one touch i.e yesterday lunch time the one touch read 8.6 but the sensor said 11.0 , however this lunchtime the meter said 2.6 but the sensor said 3.8 both are low but the meter reading if correct means I really hypo treatment where as the sensor reading is suggesting I need to 'think' about eating something at least in the way I tend to react to lows. Either meter could be out of range but I have no way of telling which it is. At the moment I tend to 'trust' my one touch meter, since I have had it a few years and my HBa1C is within suggested range ( it was 7.0 last time). However the one touch is just giving me 4 readings a day so there is a huge difference in the amount of data collected. I know this is a big issue for a lot of people so If Abbott start talking to me I will ask the questions. On a normal meter you can get test solutions to verify to some degree the restults you get. How can this be done for a sensor that is inserted into your arm, all the meter ( reader) is doing is collecting data from the sensor. Its the sensor that needs the testing and how can you do that with it in your arm ? I will try to find out. Until next time, Na-Nu, Na-Nu

Oct 12, 2014 marke 681 posts	Topic: General Discussion / New Glucose testing system Hi Alan, Firstly Abbott need to make a profit on these devices or they won't make any more, they are a business and like all the others are in it to make a profit. But getting back to the point , I'm not sure how often the device measures but the best granularity I can export is readings 15min apart. Its impossible to tell if the device records more than this and the meter and software only give access to 15min intervals. Reducing the rate that readings are taken won't make a difference I think because the limitation is the reliabilty of the sensor. This is attatched to the flesh and has a pin that sits under the skin, Abbott say the sensor is limited to 14 days because after that the readings become less reliable i.e not within the legal range that all BG measuring devices have to confirm to ( which are pretty lose anyway). I don't know if this is because the technology is new or its just not capable of working for long periods. I do know that there are other devices at the trial stage that are designed to last longer, however these have not got past the trial stage as yet so may never become available. I think the issue with all these devices is accuracy of reading long term, not the rate that they take readings at,