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Oct 31, 2014
Moray Nairn
3 posts
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Topic: General Discussion / Insulin Pumps As far as I know, the Cellnovo pump is only available as part of clinical trials. The company has had "issues" in getting the NHS to approve it due to the increased cost. I'd choose it in a flash if it was available |
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Oct 31, 2014
Moray Nairn
3 posts
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Topic: General Discussion / Cyborg Times (new BG meter) Thanks for the blog Mark. I've been very interested in the LIbre since it was first rumoured to be in development some years ago. The main issue which everyone is worrying about is, unfortunately, very unlikely to be resolved under the current climate. Namely, inclusion of Libre sensors on the NHS drug tarriff.For every clinical product (whether a drug, a device or a test) manufacturers have to submit evidence on the clinical and cost-effectiveness of their new item to EMEA (European Medicines Agency) and/or MHRA (Medicines and Healthcare Products Regulatory Agency). It's more complicated than that actually, but for simplicity, it's relatively easy for a device (like a blood glucose sensor) to obtain a CE mark. It just needs to prove that it is fit for purpose - ie, it does what it says it does and measures blood glucose. It doesn't need to show that it performs better than other devices, or that it is cheaper or more useful. It just does what it does. Great. Now your product is licensed. However, the NHS has limited funding (as we all know...) so it doesn't allow use of every licensed item available. It carries out its own judgements about what gives best value for money. The way this works is complicated, but to simplify drastically, it's at this point that someone makes a decision about whether a particular drug or device offers incremental benefit to patients. in other words, if a new drug or device comes along, and it outperforms the competition for the same price, it will be approved. If it performs to the same level as the competition but is cheaper, then it will be approved. If it is less effective than the competition then it won't be approved. The complicated situation is where it outperforms the competition but is more expensive. This is what happens with most new products - the extra performance is a result of the years of R&D which pharmaceutical and device manufacturers put into product development, so although they create something better, they need to recoup costs by pricing their new item above the older competitors. There are other factors too, such as generic vs proprietary versions of drugs, but let;s leave that out for now. For the Libre, while we all think that it's likely to be really exciting and make out lives a lot easier, the authorities will ask - does it perform better at a specific clinical outcome than the competition? If the outcome is point estimation of glucose, then the answer may be no. It probably performs as well. Bearing in mind Mark's comments about variability between the Libre and the fingerprick blood tests, I'm sure the range will be within the required limits for product registration (all meters have a threshold of variability from hospital based gold-standard assay testing which they have to keep within). The key for us will be to get the NHS to understand that while the Libre is no more effective in measuring glucose than traditional tests and is a lot more expensive, it offers improvements in quality of life and confidence around perception of control. These may be too soft outcomes for the accountants to jump to add it to the tarriff however, and the sooner that clinical trials can be done on long term glucose control using the LIbre, the better. If we can show that after 5 years of continuous testing, HbA1c is kept below targets more consistently than with standard testing, and that overall NHS costs are lower because of a reduction in diabetes-related complications / hypoglycaemia / DKA then the authorities will start to take notice. Not surpringly, Abbott have rushed this to market, having only achieved their CE certification in Septemener, I think. They are actively pursuing the license for use in children which is where they will hope to breakthrough as an innovative "first in class" product. At present it is only licensed for use in adults >18 years. Some other points about the system. it is being actively piloted by a number of individuals around the country to gather the kind of user data that Abbott have failed to collect so far, so I do hope that they take note of your comments, Mark. I had heard that the sensor takes a few days to calibrate readings more closely to those which you get from glucose testing, and some users have said that the results improve in consistency towards the end of the 14 day cycle. I'm very interested to see what level of tweaking Abbott make to the technology over time. They may have a massive mountain to climb if patients hold back from trying it out in the expectation that it will get suddenly cheaper in a short period, though that won't happen until the company start to accrue a user-base and some income to offset their expenditure. Thanks Mark. |
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Oct 31, 2014
Garry
328 posts
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Topic: General Discussion / QA ratios on the weekend Upping your Background Insulin for the weekend is unlikely to help and you may find that it upsets your Monday/Tuesday/Wednesday results as most of us find BI changes are notoriously slow to show an impact.Far better to adjust your QA insulin ratios for the weekend. Regards Garry |
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Oct 30, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) Thank you very much for this.Evening meal on the 29th was minced beef casserole (minced beef,onions, tinned carrots & tinned peas all thrown in), pastry ( the ready rolled puff pastry) & mashed potatoes (a small portion) If I can I will try to do another test tonight Not got to the daytime testing yet eeeeek! |
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Oct 30, 2014
novorapidboi26
1,818 posts
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Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) As long as you feel comfortable at a higher level then you still do a basal test, it will still show what that dose of BI is doing.......16.4 is a wee bit high, but you done it anyway, so valuable data none the less.......what was your evening meal on the 29th? I can make out pasta, mash and pastry also with the mention of minced beef, which could have been fatty, which in turn may have extended the digestion time of the whole meal which may have already been quite high in carbs already.... I believe this meal may have had an effect past the time of your basal test commencing, 22:59, as it was only 4h 15 m...... When I test my background, I would be looking to get 2 consecutive days minimum with a small carb dinner on both nights with no food or insulin after dinner....... this will give you the most reliable results from which to make a dose change from............try again tonight maybe.....? DAFNE teaches to only analyse one thing at a time, which is right, but you can also try doing carb free basal testing during the day if you have time..... |
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Oct 30, 2014
BeccyB
50 posts
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Topic: General Discussion / Insulin Stacking That's really useful Gemsa, thanks!I tend to eat little and often and worry about how much insulin is still in my system when I test my BG so this will come in very handy |
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Oct 30, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) Some more of my diaryAny help in identifying trends or any other help ie with targets & ratios will be greatly appreciated. Overnight basal testing has been done on 21/10 - 22/10 & 29/10 - 30/10 - don't know if I should have done the one on 29/10 becasue I was higher than my bedtime target Using Accu-Chek Avia Expert meter - current targets: for everything 4 - 7 - this corrects me to about 5.5 bedtime 8 - 12 - this corrects me to 10 |
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Oct 30, 2014
BeccyB
50 posts
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Topic: General Discussion / Cyborg Times (new BG meter) Mine's on it's way! Am really excited about the potential (and the excuse to build a fantastic spreadsheet to analyse all my results, but I'll be in the minority there I knowI normally get £100 from grandparents for xmas so that's another couple of sensors, I never thought I'd be wanting to spend xmas money on glucose testing kit! Only thing I'm concerned about is getting obsessed with the numbers and resisting the temptation to keep giving tiny correction jabs - may have to consider a pump if that starts!! Will let you all know how it goes.... |
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Oct 30, 2014
NilesCrane
5 posts
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Topic: General Discussion / Insulin Pumps I like the idea of the patch pumps and the Omnipod seems popular I was wondering if anyone has the Cellnovo pump and if so how does it rate? |
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Oct 29, 2014
stephenbrowne
37 posts
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Topic: General Discussion / Cyborg Times (new BG meter) Hi, I have really appreciated all the helpful contributions and information on this forum. I'm in the early days of learning about this newsystem.My consultant thought I might find this system helpful as I need to do about 10 blood test a day on my pump. I've been on the system for 48 hours now and have found it very helpful in showing trends especially with exercise. I can scan through a shirt, cardigan and even winter coat. When I first started injectons 47 years ago I was advised to use industrial spirit to sterilise the skin before injections but abandoned this practice quickly as it caused thickening of the skin. I have always used aqueous disinfectants to clean the skin e.g. for inserting pump cannula - Boots anti viral foam hand cleanser is great. However when I applied the first Frestyle libre sensor I didn't use the spirit swab but an antiseptic wet wipe. This was a mistake as it was very difficult to remove the applicator without the sensor coming adrift. I managed to get the sensor to stick with Bostic adhesive in the end! I'll use the spirit swab next time. I'm seeing my diabetes nurse next week to discuss the system further. One can record one's insulin bolus doses down to 1 unit and a health worker witht the secret code can enable you to record down to 0.5units but as my pump does doses down to 0.1 unit increments I'm able only to record to the nearest 1 unit at present.. |
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Oct 29, 2014
Vickyp
135 posts
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Topic: Carbohydrate Counting / Jelly Babies Oh the tropical flavour are my favourite dextro energy too Neville COL! |
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Oct 29, 2014
Vickyp
135 posts
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Topic: General Discussion / Insulin Pumps I haven't gone through security. But as far as aware no issues with it, it's safe to go through the walk-through scanners but you can say you have an insulin pump and don't want to go through that and they will manually scan you |
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Oct 29, 2014
NilesCrane
5 posts
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Topic: General Discussion / Insulin Pumps
Thanks Vicky. have you had any problem going thru security at the airport? |
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Oct 29, 2014
Vickyp
135 posts
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Topic: General Discussion / Insulin Pumps I love the omnipod...waterproof, tubeless, can be placed in lots of different areas. Cons: if don't use the minimum insulin required in the 3 days then it is wasted, PDM is difficult to read in bright sunlight. |
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Oct 29, 2014
NilesCrane
5 posts
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Topic: General Discussion / Insulin Pumps Hi everyoneI'm considering going on to a pump and the Omnipod seems a good option could anyone provide some pros and cons of this device. |
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Oct 29, 2014
Neville COL
23 posts
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Topic: Carbohydrate Counting / Jelly Babies I m a major consumer of Dextro Energy tablets personally(especially tropical flavour ones!): bit easier to transport than jelly babies, and easy to work out how many if a bit low. For those really low moments (rare, but they do happen) I m a fan of Lucozade Sport: all v old school but I know where I am with em! Never been keen on jelly babies as a sweet any way...! |
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Oct 28, 2014
sarahg
29 posts
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Topic: General Discussion / Cyborg Times (new BG meter) Hi I have started my kit yesterday, with out a huge amount of success. First sensor appeared to be faulty, as it continually read low, for the first 6 hours. I then contacted abbots who advised to wait a few more hours for the sensor to settle down,and if it did not start to function correctly, wait a total of 24 hours, before speaking to them again, which I have done and was then told that the sensor did appear to be faulty. Thankfully abbots have said they will replace this sensor, and requested me to return this sensor back to them. Getting the sensor off because it had only been for round 25 hours, was a bit of a pain, as the sticker part was still very sticky, hopefully the new one will be easier to remove if it lasts the 14 days . This one does appear to be giving similar results of my normal blood machine which is cool. |
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Oct 28, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / Accu-chek Aviva Expert Meter & Corrections For anybody who uses the accu-chek aviva expert meter. How do you remember your correction doses so that you can add the corrections separately in the BG diary? |
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Oct 28, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) Hi NRB,Thanks for your reply & help. The 5 units of am lantus taken at 1439 on Thursday was because I had forgotten it earlier so becasue it was taken nearly 4 hours late I reduced it by 2 units. I did one overnight basal test on 21/10 - 22/10 at 0301 it was 10.5 as seen in my diary. I was going to test again on 22/10 but had a hypo as you can see at bedtime so had to abandon it grrrrr! |
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Oct 28, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) Hi Vickyp,Thanks for your reply. The 6u would be 3u for food then the other 3 units would be correction dose. I use the accu-chek aviva expert meter & correction doses are built in ie it does show the correction dose seperate but then on the final screen where you confirm the dose it's all built in which makes it difficult to remember when you come to make enteries in the bg diary. Like you say it maybe the cause of the hypo at 1436. My correction is 1 unit drops me by 3mmol. Yes agree to some more basal testing. Re why I took QA after a hypo at my hypo check it's because I was agreeing with what my meter advised me to take. Like you say because I was below my bedtime target I needn't have confirmed it with my meter - that had crossed my mind |
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Oct 28, 2014
Alan 49
280 posts
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Topic: Carbohydrate Counting / Jelly Babies I've bought a couple of bags of Bassett's jelly babies and they're really nice - a treat as well as a treatment! |
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Oct 28, 2014
Alan 49
280 posts
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I think this device will be really useful for holidaying abroad - when you're in a different environment, eating different foods and doing different things. As I understand it, swimming in a pool won't affect the sensor either. |
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Oct 28, 2014
novorapidboi26
1,818 posts
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Topic: Site Development / A bug? Chrome Version 38.0.2125.104 |
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Oct 28, 2014
marke
655 posts
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Topic: Site Development / A bug? still does it for me ! What browser are you using and what version is it. It could be a bug with the broswer compatibility. I will need to check how it does it since we wrote it about 4 yearsago and it has never intentionally been changed :-) |
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Oct 28, 2014
marke
655 posts
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Topic: General Discussion / Cyborg Times (new BG meter) Hi, I think the check-up idea is what most of us will do who can't afford the running costs. I had to bite my tongue (yes I know, hard to believe) when I met up with the Abbott Rep and DSN last week to report to them on my experiences with the device. The DSN after saying that the NHS won't pay for it was trying to say that it sounds a lot but people spend more on their mobile phones etc each month. This is true but I have also paid into the NHS via taxes for more years than I care to mention so asking me to pay on top for a new device seemed a bit rich :-(I pointed out that when other companies release similiar devices which they are bound to do, the price will get pushed down. I understand that Abbott and any company need to recoupe their costs for development etc, but eventually the price of the sensors must come down. In the meantime we will jsut have to use them intermittently. |