Recent Posts - DAFNE Online

Nov 22, 2014

Peter 109 posts

Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management

mstarosta said:
Hi, is there any relevance to Australia for completing a submission or is this really only relevant to the UK?

This is an enquiry into Structured Education for diabetics in the UK. So any input you gave would not be directly relevant. However, if you'd like to respond on how the DAFNE course has been transferred and welcomed outside the UK it could be helpful. Who knows?

Nov 21, 2014

Tom_Sparrow 4 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Sarah,

Yes this is what I presumed. I actually received an email from Abbott the other day to explain that their current production levels haven't been able to meet the high demand for the Freestyle Libre, so it looks like it'll be in the new year before I can start trying it out Sad

Stephen - it seems like I was a month too late in ordering my test pack! Hopefully I will be able to start in the new year Smile

Nov 20, 2014

Simon 578 posts

Topic: DAFNE Online Mobile / iPhone 6

Hi,

Thanks for bringing this to my attention and apologies for the inconvenience. The reason for changing the way you enter BG, QA, BI and CP was to use Apple system keyboards rather than the custom one I created for earlier versions of the app. This is because by using system keyboards they will handle rotation of the device and different screen sizes a bit nicely.

I'm currently out of the country with the day job but will take a look at fixing the issues when I get back at the weekend.

If you're having issues with the QA calc could you email me with what you entered, what you expect to see and what was actually calculated so I can try and reproduce this. [email protected]

Once again, apologies for the inconvenience.

Nov 20, 2014

marke 686 posts

Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management

You can also get a copy of the form on this thread Case_study_guidance_form.docx which is hosted on this site and doesn't use tracking information. Not that I'm suspicious but I don't like Diabetes UK tracking my web movements, but hey maybe it's jsut me ;-)

Nov 20, 2014

AUSTEN74 4 posts

Topic: DAFNE Online Mobile / iPhone 6

Annette Bell said:
Is anyone else having problems with the latest update? I have an iPhone 6 and occasionally, when I input my BG results it adds a load of 0's e.g. I put 8.3 in and it came up as 8.30000000001! Also I seem to have to tap QA at least twice to get it to calculate any corrections properly. They don't come up straight away like they used to. It also suggested a correction for the 8.3 result which was only just above my upper target & wouldn't normally correct for. It just doesn't seem to be right.

Hi Yes I have noticed these issues with the new update for the Iphone 6 - I also notice that when you enter the BM total it no longer gives you it in big numbers above the keyboard and only gives you the blue/green/red indicator when you have finished entering the total.

Nov 19, 2014

Annette Bell 72 posts

Topic: DAFNE Online Mobile / iPhone 6

Is anyone else having problems with the latest update? I have an iPhone 6 and occasionally, when I input my BG results it adds a load of 0's e.g. I put 8.3 in and it came up as 8.30000000001! Also I seem to have to tap QA at least twice to get it to calculate any corrections properly. They don't come up straight away like they used to. It also suggested a correction for the 8.3 result which was only just above my upper target & wouldn't normally correct for. It just doesn't seem to be right.

Nov 19, 2014

mstarosta 5 posts

Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management

Hi, is there any relevance to Australia for completing a submission or is this really only relevant to the UK?

Nov 19, 2014

sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi guys I did manage to make an order today, but not for the year subscription, as not set up as yet. .however I was asked if I was already using the kit and a existing customer. It appears that new customers may have to wait. Which is a real shame for everyone wanting to try the super bit of kit. Hope the guys a Abbotts can sort supply out for everyone real soon

Nov 19, 2014

stephenbrowne 37 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Tom,
I suppose it must be about a month ago that I ordered my starter pack online and had to give Abbott my details of course. This gives you an "account". The starter pack lasts for 28 days and I will come to the end of this by next Monday 24 Nov. I managed to order another couple of sensors and will be able to start this next Monday. I have used Freestyle Lite blood glucose testing sticks before and still use their beta ketone testing sticks for which I can now use the Freestyle libre scanner/blood testing meter. However I'm still checking pre-meal sugars with Bayer Contour Next strips and meter as this "talks" to my Medtronic insulin pump by Wi-fi . Often the Freestyle libre result is the same or very close to the Contour Next finger prick result though if there have been rapid changes in blood sugar there may be perhaps 1 mmol/l difference - I'm so sensitive to insulin doses that I try to be as accurate as possible to get the insulin bolus right. The Freestyle libre has certainly helped me to anticipate and correct hypos in advance.
I do hope you are able to make some headway in your attempt to obtain a starter pack before Christmas.
Best wishes,
Stephen

Nov 19, 2014

Rafa 99 posts

Topic: Questions for HCPs / Dawn Phenomenon

I have a struggle with morning readings myself. I decided to just try and cut out my carbs at night and so far it seems to have worked. I would now eat 2 or 3 max cps and leave it at that. So far it has worked out.

Nov 19, 2014

Tom_Sparrow 4 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Sarah and Stephen,

Thank you for your responses. It does seem strange that the website wouldn't let me order a starter pack just because I'm not an exisiting customer Confused

Have either of you used abbott's products before? (or have an online account with them?)

Stephen - when you say you have been on the system for 3 weeks, do you mean you've had an online account with them for 3 weeks, or you have been using the freestyle libre for 3 weeks?

Look forward to hearing how you get on Sarah.

Thanks, Tom Smile

Nov 18, 2014

Peter 109 posts

Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management

Time is running out for submissions which must be made before the end of the month. Please take the time to tell the parliamentarians about the impact that DAFNE has had for you. Thanks.

Nov 18, 2014

stephenbrowne 37 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Sorry to hear of your problems with obtaining it, Tom. I've been on the system for over 3 weeks and have found it an enormous help and well worth the expense. I recently ordered my next month's supply which took almost 1 week to arrive but there was no problem with getting the order accepted even though I have not signed up to an ongoing subscription yet; I felt I should give it a fair trial before commiting myself to 12 months subscription. I do hope Sarah will be able to shed light on the current situation.
Every good wish, SB

Nov 18, 2014

sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Tom

Sorry to hear, that you are having trouble will getting your order I have been using the kit for 3 weeks now, and still finding it very good, I was thinking of doing there subscription, so I will see what they say when I phone tomorrow, I will let you know if I can order more. I wonder if the kit has proved more popular than they thought

Nov 18, 2014

Tom_Sparrow 4 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Guys,

A huge thanks to all of those who have provided in-depth reviews on your experiences with the Freestyle Libre monitor. It's been very helpful (so helpful that I am in the process of trying to get one myself!) However, when I've tried to purchase my Abbott Freestyle Libre starter pack it is telling me that because I'm not an existing customer I won't be able to order one until the new year Sad

I am just wondering if anybody knows a way around this, or if this has been the case for other people, as I am dying to get started!

Thank you.

Nov 18, 2014

Stew B 125 posts

Topic: Questions for HCPs / Sleep

Me too!

Stew

Nov 17, 2014

Warwick 425 posts

Topic: Questions for HCPs / Sleep

I tend to have a rubbish night's sleep if I have an overnight hypo. I feel quite wretched in the morning.

Nov 17, 2014

GWM 10 posts

Topic: Questions for HCPs / The Art of Diabetes Biomedical Science.

Hi,

I am artist with T1DM looking to make artworks in response to diabetic biomedical science and I am looking for a HCP institution to collaborate with me on the project.

You can see examples of my work on my website where there is short animation I have made about diabetes, blood tests and carbohydrate counting using the round protective lancet caps from blood test kits amassed over several years of tests.

Animation: http://garethwmorgan.com/?page_id=1669

There is also an outline of my artworks in response to diabetic biomedical science proposal. If you'd like to help me on this or have an any suggestions how I can get the project up and running please let me know.

Many thanks,
Gareth

Nov 17, 2014

mum2westiesGill 502 posts

Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary)

Some more of my diary

Any help in identifying trends or any other help ie with targets & ratios will be greatly appreciated.

Also any help in saying whether I should be reducing or increasing my basal

Nov 16, 2014

Peter 109 posts

Topic: General Discussion / Insulin Pumps

I started on Omnipod last week after >40 years of injections. Still learning about it and adjusting basal and bolus levels but initial feedback is very positive. I've seen a 30% decrease in insulin usage (TDD), so that will counter some of the additional costs, and having to dispose of any unused insulin every 3 days when the pod is changed. On that subject I expect to reduce the amount I fill the pod with, once I have a clearer idea of amount I'm using in 3 days.

The only problems I'd mention are:

integral meter in PDM uses original Abbott Freestyle (not Lite) strips. As far as I can see it's no longer possible to buy a standalone meter that uses these strips, so any fallback (which was advised in my training) requires carrying another meter and strips
no means of recording correction carbs due to hypo
no means of adding text comments to any entries. As a result I'm still using dafneonline app to record bolus, BS and carb data with comments
no access to data stored in PDM except through provided PC software and pdf format export

Is it worth having? Yes so far. The real test will be with HBA1c readings and improved hypo awareness in future.

Nov 16, 2014

Peter 109 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Maybe we need to start a campaign to make personal data available in useable formats? I just started with an OmniPod last week and one complaint I have so far is that their fancy software which displays the data on a PC will only export to pdf. Whilst their graphs and reports are pretty good, the other thing you can easily do is to record comments about what's been eaten, what exercise taken etc. I'm still doing that in the dafneonline app, but am struggling to combine that data which can be exported in csv format, with the pdf from the pump.

To my mind the data gathered by these devices belongs to the user not the manufacturer and should therefore be made readily available outside of their applications.

Nov 14, 2014

Bananaman 34 posts

Topic: Questions for HCPs / Sleep

I have had problems with high and low blood glucose, can this cause problems with sleep even hours after correction?


Nov 22, 2014 Peter 109 posts	Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management mstarosta said: Hi, is there any relevance to Australia for completing a submission or is this really only relevant to the UK? This is an enquiry into Structured Education for diabetics in the UK. So any input you gave would not be directly relevant. However, if you'd like to respond on how the DAFNE course has been transferred and welcomed outside the UK it could be helpful. Who knows?

Nov 21, 2014 Tom_Sparrow 4 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Sarah, Yes this is what I presumed. I actually received an email from Abbott the other day to explain that their current production levels haven't been able to meet the high demand for the Freestyle Libre, so it looks like it'll be in the new year before I can start trying it out Stephen - it seems like I was a month too late in ordering my test pack! Hopefully I will be able to start in the new year

Nov 20, 2014 Simon 578 posts	Topic: DAFNE Online Mobile / iPhone 6 Hi, Thanks for bringing this to my attention and apologies for the inconvenience. The reason for changing the way you enter BG, QA, BI and CP was to use Apple system keyboards rather than the custom one I created for earlier versions of the app. This is because by using system keyboards they will handle rotation of the device and different screen sizes a bit nicely. I'm currently out of the country with the day job but will take a look at fixing the issues when I get back at the weekend. If you're having issues with the QA calc could you email me with what you entered, what you expect to see and what was actually calculated so I can try and reproduce this. [email protected] Once again, apologies for the inconvenience.

Nov 20, 2014 marke 686 posts	Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management You can also get a copy of the form on this thread Case_study_guidance_form.docx which is hosted on this site and doesn't use tracking information. Not that I'm suspicious but I don't like Diabetes UK tracking my web movements, but hey maybe it's jsut me ;-)

Nov 20, 2014 AUSTEN74 4 posts	Topic: DAFNE Online Mobile / iPhone 6 Annette Bell said: Is anyone else having problems with the latest update? I have an iPhone 6 and occasionally, when I input my BG results it adds a load of 0's e.g. I put 8.3 in and it came up as 8.30000000001! Also I seem to have to tap QA at least twice to get it to calculate any corrections properly. They don't come up straight away like they used to. It also suggested a correction for the 8.3 result which was only just above my upper target & wouldn't normally correct for. It just doesn't seem to be right. Hi Yes I have noticed these issues with the new update for the Iphone 6 - I also notice that when you enter the BM total it no longer gives you it in big numbers above the keyboard and only gives you the blue/green/red indicator when you have finished entering the total.

Nov 19, 2014 Annette Bell 72 posts	Topic: DAFNE Online Mobile / iPhone 6 Is anyone else having problems with the latest update? I have an iPhone 6 and occasionally, when I input my BG results it adds a load of 0's e.g. I put 8.3 in and it came up as 8.30000000001! Also I seem to have to tap QA at least twice to get it to calculate any corrections properly. They don't come up straight away like they used to. It also suggested a correction for the 8.3 result which was only just above my upper target & wouldn't normally correct for. It just doesn't seem to be right.

Nov 19, 2014 mstarosta 5 posts	Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management Hi, is there any relevance to Australia for completing a submission or is this really only relevant to the UK?

Nov 19, 2014 sarahg 29 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi guys I did manage to make an order today, but not for the year subscription, as not set up as yet. .however I was asked if I was already using the kit and a existing customer. It appears that new customers may have to wait. Which is a real shame for everyone wanting to try the super bit of kit. Hope the guys a Abbotts can sort supply out for everyone real soon

Nov 19, 2014 stephenbrowne 37 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Tom, I suppose it must be about a month ago that I ordered my starter pack online and had to give Abbott my details of course. This gives you an "account". The starter pack lasts for 28 days and I will come to the end of this by next Monday 24 Nov. I managed to order another couple of sensors and will be able to start this next Monday. I have used Freestyle Lite blood glucose testing sticks before and still use their beta ketone testing sticks for which I can now use the Freestyle libre scanner/blood testing meter. However I'm still checking pre-meal sugars with Bayer Contour Next strips and meter as this "talks" to my Medtronic insulin pump by Wi-fi . Often the Freestyle libre result is the same or very close to the Contour Next finger prick result though if there have been rapid changes in blood sugar there may be perhaps 1 mmol/l difference - I'm so sensitive to insulin doses that I try to be as accurate as possible to get the insulin bolus right. The Freestyle libre has certainly helped me to anticipate and correct hypos in advance. I do hope you are able to make some headway in your attempt to obtain a starter pack before Christmas. Best wishes, Stephen

Nov 19, 2014 Rafa 99 posts	Topic: Questions for HCPs / Dawn Phenomenon I have a struggle with morning readings myself. I decided to just try and cut out my carbs at night and so far it seems to have worked. I would now eat 2 or 3 max cps and leave it at that. So far it has worked out.

Nov 19, 2014 Tom_Sparrow 4 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Sarah and Stephen, Thank you for your responses. It does seem strange that the website wouldn't let me order a starter pack just because I'm not an exisiting customer Have either of you used abbott's products before? (or have an online account with them?) Stephen - when you say you have been on the system for 3 weeks, do you mean you've had an online account with them for 3 weeks, or you have been using the freestyle libre for 3 weeks? Look forward to hearing how you get on Sarah. Thanks, Tom

Nov 18, 2014 Peter 109 posts	Topic: General Discussion / Parliamentary Inquiry into Education and Support for Self Management Time is running out for submissions which must be made before the end of the month. Please take the time to tell the parliamentarians about the impact that DAFNE has had for you. Thanks.

Nov 18, 2014 stephenbrowne 37 posts	Topic: General Discussion / Cyborg Times (new BG meter) Sorry to hear of your problems with obtaining it, Tom. I've been on the system for over 3 weeks and have found it an enormous help and well worth the expense. I recently ordered my next month's supply which took almost 1 week to arrive but there was no problem with getting the order accepted even though I have not signed up to an ongoing subscription yet; I felt I should give it a fair trial before commiting myself to 12 months subscription. I do hope Sarah will be able to shed light on the current situation. Every good wish, SB

Nov 18, 2014 sarahg 29 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Tom Sorry to hear, that you are having trouble will getting your order I have been using the kit for 3 weeks now, and still finding it very good, I was thinking of doing there subscription, so I will see what they say when I phone tomorrow, I will let you know if I can order more. I wonder if the kit has proved more popular than they thought

Nov 18, 2014 Tom_Sparrow 4 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Guys, A huge thanks to all of those who have provided in-depth reviews on your experiences with the Freestyle Libre monitor. It's been very helpful (so helpful that I am in the process of trying to get one myself!) However, when I've tried to purchase my Abbott Freestyle Libre starter pack it is telling me that because I'm not an existing customer I won't be able to order one until the new year I am just wondering if anybody knows a way around this, or if this has been the case for other people, as I am dying to get started! Thank you.

Nov 18, 2014 Stew B 125 posts	Topic: Questions for HCPs / Sleep Me too! Stew

Nov 17, 2014 Warwick 425 posts	Topic: Questions for HCPs / Sleep I tend to have a rubbish night's sleep if I have an overnight hypo. I feel quite wretched in the morning.

Nov 17, 2014 GWM 10 posts	Topic: Questions for HCPs / The Art of Diabetes Biomedical Science. Hi, I am artist with T1DM looking to make artworks in response to diabetic biomedical science and I am looking for a HCP institution to collaborate with me on the project. You can see examples of my work on my website where there is short animation I have made about diabetes, blood tests and carbohydrate counting using the round protective lancet caps from blood test kits amassed over several years of tests. Animation: http://garethwmorgan.com/?page_id=1669 There is also an outline of my artworks in response to diabetic biomedical science proposal. If you'd like to help me on this or have an any suggestions how I can get the project up and running please let me know. Many thanks, Gareth

Nov 17, 2014 mum2westiesGill 502 posts	Topic: General Discussion / BG diary help please (2) (mum2westiesGill diary) Some more of my diary Any help in identifying trends or any other help ie with targets & ratios will be greatly appreciated. Also any help in saying whether I should be reducing or increasing my basal

Nov 16, 2014 Peter 109 posts	Topic: General Discussion / Insulin Pumps I started on Omnipod last week after >40 years of injections. Still learning about it and adjusting basal and bolus levels but initial feedback is very positive. I've seen a 30% decrease in insulin usage (TDD), so that will counter some of the additional costs, and having to dispose of any unused insulin every 3 days when the pod is changed. On that subject I expect to reduce the amount I fill the pod with, once I have a clearer idea of amount I'm using in 3 days. The only problems I'd mention are: integral meter in PDM uses original Abbott Freestyle (not Lite) strips. As far as I can see it's no longer possible to buy a standalone meter that uses these strips, so any fallback (which was advised in my training) requires carrying another meter and strips no means of recording correction carbs due to hypo no means of adding text comments to any entries. As a result I'm still using dafneonline app to record bolus, BS and carb data with comments no access to data stored in PDM except through provided PC software and pdf format export Is it worth having? Yes so far. The real test will be with HBA1c readings and improved hypo awareness in future.

Nov 16, 2014 Peter 109 posts	Topic: General Discussion / Cyborg Times (new BG meter) Maybe we need to start a campaign to make personal data available in useable formats? I just started with an OmniPod last week and one complaint I have so far is that their fancy software which displays the data on a PC will only export to pdf. Whilst their graphs and reports are pretty good, the other thing you can easily do is to record comments about what's been eaten, what exercise taken etc. I'm still doing that in the dafneonline app, but am struggling to combine that data which can be exported in csv format, with the pdf from the pump. To my mind the data gathered by these devices belongs to the user not the manufacturer and should therefore be made readily available outside of their applications.

Nov 14, 2014 Bananaman 34 posts	Topic: Questions for HCPs / Sleep I have had problems with high and low blood glucose, can this cause problems with sleep even hours after correction?