Recent Posts - DAFNE Online

May 13, 2016

Marsbar63 5 posts

Topic: General Discussion / Medical tattoos

Today have had a medical tattoo, the rod of Asclepius and diabetic 1 in writing below. Looks great on inside of left forearm. Not sure how popular med tats are but would definitely suggest younger type 1s give them a thought. I'm 52 and been type 1 for 26yrs and wish now that someone would have given me the idea of a med tat. If anyone see's this post the info I would give is, 1 be sure you want a tat 2 research different designs 3 find a quality tattooist to discuss ideas 4 be proud to let everyone see your tat and finally hope that no one ever has to see your tat in an emergency.

May 11, 2016

rimibar 4 posts

Topic: Site Development / Petition link on home page has been archived

Probably worth removing now Question

May 8, 2016

sjohno 37 posts

Topic: General Discussion / Chris Pennell Worcester Warriors T1 Professional Rugby Player

http://www.bbc.co.uk/sport/get-inspired/36225872

I've watched this and am amazed at how little or non insulin he takes!

sjohno

May 3, 2016

Simon 574 posts

Topic: DAFNE Online Mobile / iPhone 6

Cheers!

May 1, 2016

Simon 574 posts

Topic: DAFNE Online Mobile / iPhone 6

Also if you can please let us know which special characters you were using in your password (not the whole password for security reasons) so we can check to see if the app needs updating to work with them.

May 1, 2016

Simon 574 posts

Topic: DAFNE Online Mobile / iPhone 6

Hi rimibar,

It sounds like your issue has now been solved, would you be willing to change your App Store review to reflect this?

Thanks,

Simon

Apr 30, 2016

AMcD 38 posts

Topic: General Discussion / Feeling tired

Hi. Obviously check out all possible medical issues as it sounds like you are doing. It may sound counterintuitive if your feeling tired but regular exercise can give you a great boost and helps all round... you would be surprised the difference it can make...

Apr 29, 2016

HelenP 218 posts

Topic: General Discussion / Feeling tired

John,
I have just had my annual check up and i complained of being tired (going to bed at 8pm and waking at 4:30am. He checked my vitamin B (6 or 12 I can't remember) levels with a blood test. Apparently they can reduce especially if you are on Metformin and this contributes to tiredness levels...just a thought.

Helen

Apr 29, 2016

ClareSmith 4 posts

Topic: General Discussion / Blood Glucose Diary from 19 April to 29 April for Philippa Marks

Hi Philippa, I'm afraid I haven't been able to reduce my evening dose of QA insulin by 1 unit as previously advised as I've been having Hypos in the evenings. This is either because I've corrected my lunchtime QA dose by too much, or because I haven't had enough carbs before exercise. I'm trying not to over correct my QA dose by looking at my corrections in the past couple of weeks and the effect on my BG levels.

Best wishes

Clare

Apr 29, 2016

sjohno 37 posts

Topic: General Discussion / Feeling tired

Hi john m

My first thought was your BG's.

Could be you may need some iron supplements?

I would see your local GP just to check stuff out.

Good luck.

regards

sjohno

Apr 29, 2016

Garry 328 posts

Topic: General Discussion / Feeling tired

Are your BGs OK john m?
Regards
Garry

Apr 27, 2016

john m 15 posts

Topic: General Discussion / Feeling tired

I've been a diabetic for 40 years in the last few weeks been feeling really tired and drained what is causing it and what can I do ?

Apr 27, 2016

HelenP 218 posts

Topic: General Discussion / Pump death?

Update on the pump death...I went to my endocrinologist today and mentioned my upcoming cataract operations and cited the difficulty I was having reading the pump. He had a look and then showed me on a pump he has what mine ought to look like. The difference was amazing! I could easily read his but in the light of his rooms mine was difficult to read...even for him! So he has, on my behalf, requested a new pump based on the lack of screen contrast. If the health fund accepts that this is not "fit for purpose" then I will get a replacement within the month.

It appears that one of the more common faults that develop is a fading screen but because it fades gradually you tend not to notice until you see what one ought to look like or your medico sees the screen.

We will see. Helen

Apr 26, 2016

rimibar 4 posts

Topic: DAFNE Online Mobile / iPhone 6

marke said:
In theory the two should work the same and the authentication check is identical, I would suggest setting a simple password temporarily to see if it resolves the issue. I have also seen people add a space at the start of the username/password in the app that the website will not accept. So also try clearing both fields in the app and re-entering your credentials again. If you still experience issues please post the date and time you attempted to connect with the app so I can check in the logs to try to identify what is happening.

Hi Mark - it worked! Thanks. Very Happy

Apr 26, 2016

marke 643 posts

Topic: DAFNE Online Mobile / iPhone 6

In theory the two should work the same and the authentication check is identical, I would suggest setting a simple password temporarily to see if it resolves the issue. I have also seen people add a space at the start of the username/password in the app that the website will not accept. So also try clearing both fields in the app and re-entering your credentials again. If you still experience issues please post the date and time you attempted to connect with the app so I can check in the logs to try to identify what is happening.

Apr 25, 2016

rimibar 4 posts

Topic: DAFNE Online Mobile / iPhone 6

Hi everyone,

I'm a recent "graduate" of the DAFNE scheme. At the end of the week we were provided with a login for DAFNE online which works - for the website. I also downloaded the app and have discovered that the the username and password which work fine on this site, are refused by the app. I use a fairly complex password - could this be causing the problem Question

Are there characters which the app won't accept Question

Would much prefer to add my results through the app (suffer from geek-itis), so would appreciate some support with this.

Thanks

Richard

Apr 24, 2016

Peter 103 posts

Topic: General Discussion / My NHS Trust does not offer DAFNE

Paul,
The latest NICE guidelines for Type 1 Diabetes clearly state the need for Structured Education, with DAFNE specifically mentioned as an example of the type of course which should be offered:

Offer all adults with type 1 diabetes a structured education programme of proven benefit, for example the DAFNE (dose-adjustment for normal eating) programme. Offer this programme 6â€“12 months after diagnosis.

Full details of the guidance can be found here: https://www.nice.org.uk/guidance/ng17/chapter/1-Recommendations#education-and-information-2

I'd suggest that you take this to both your GP (as they hold the funds through the CCG) and your hospital team and ask both of them how they are going to meet the NICE guidance in your case. The other possibility is to make a Freedom of information request to the CCG asking how they intend to meet the new NICE guidance. The DAFNE Graduate Group. of which I am chairman, has been using this approach in cases where a DAFNE Center is threatening to withdraw. The questions could be used with your CCG, and they are obliged to provide answers within 20 working days. The direct approach to the providers will probably be quicker, but let me know if you'd like a copy of the questionnaire and details of how to make a FOI request.

Good luck.
Peter

Apr 22, 2016

JayBee 582 posts

Topic: General Discussion / My NHS Trust does not offer DAFNE

Find your nearest DAFNE course

Hope this helps spread some light on possibilities if your team can arrange a referral at all. Sad

I hope they can if they can't arrange to be a centre themselves.

Best wishes!

Apr 22, 2016

skillz 1 post

Topic: Carbohydrate Counting / 12 inch pizza carb

Bear in mind that the absorption of the carbs from pizza can be delayed if it's particularly cheesy/fatty.

Apr 20, 2016

paulfromskeg... 1 post

Topic: General Discussion / My NHS Trust does not offer DAFNE

Hi,

I was recently (December 2015) Diagnosed Type 1, and have had great support from the hospital and DSN. I have recently had a 3 hour introduction to carb counting which I found useful, but I have been told that my NHS trust does not offer DAFNE. As NICE seem to recommend DAFNE for all T1 diabetics, do I have the right to have them refer me to a neighbouring trust so that I can attend the course - Obviously travel and accommodation will be at my own expense, but I will cover that...

Any advice would be appreciated as I understand that this course will benefit me going forward.

Many thanks

Paul

Apr 19, 2016

franklin123 5 posts

Topic: General Discussion / Insulin pump problems

Thanks to u both ..helen and Andrew for your advice. Very useful. Regards.

May 13, 2016 Marsbar63 5 posts	Topic: General Discussion / Medical tattoos Today have had a medical tattoo, the rod of Asclepius and diabetic 1 in writing below. Looks great on inside of left forearm. Not sure how popular med tats are but would definitely suggest younger type 1s give them a thought. I'm 52 and been type 1 for 26yrs and wish now that someone would have given me the idea of a med tat. If anyone see's this post the info I would give is, 1 be sure you want a tat 2 research different designs 3 find a quality tattooist to discuss ideas 4 be proud to let everyone see your tat and finally hope that no one ever has to see your tat in an emergency.

May 11, 2016 rimibar 4 posts	Topic: Site Development / Petition link on home page has been archived Probably worth removing now

May 8, 2016 sjohno 37 posts	Topic: General Discussion / Chris Pennell Worcester Warriors T1 Professional Rugby Player http://www.bbc.co.uk/sport/get-inspired/36225872 I've watched this and am amazed at how little or non insulin he takes! sjohno

May 3, 2016 Simon 574 posts	Topic: DAFNE Online Mobile / iPhone 6 Cheers!

May 1, 2016 Simon 574 posts	Topic: DAFNE Online Mobile / iPhone 6 Also if you can please let us know which special characters you were using in your password (not the whole password for security reasons) so we can check to see if the app needs updating to work with them.

May 1, 2016 Simon 574 posts	Topic: DAFNE Online Mobile / iPhone 6 Hi rimibar, It sounds like your issue has now been solved, would you be willing to change your App Store review to reflect this? Thanks, Simon

Apr 30, 2016 AMcD 38 posts	Topic: General Discussion / Feeling tired Hi. Obviously check out all possible medical issues as it sounds like you are doing. It may sound counterintuitive if your feeling tired but regular exercise can give you a great boost and helps all round... you would be surprised the difference it can make...

Apr 29, 2016 HelenP 218 posts	Topic: General Discussion / Feeling tired John, I have just had my annual check up and i complained of being tired (going to bed at 8pm and waking at 4:30am. He checked my vitamin B (6 or 12 I can't remember) levels with a blood test. Apparently they can reduce especially if you are on Metformin and this contributes to tiredness levels...just a thought. Helen

Apr 29, 2016 ClareSmith 4 posts	Topic: General Discussion / Blood Glucose Diary from 19 April to 29 April for Philippa Marks Hi Philippa, I'm afraid I haven't been able to reduce my evening dose of QA insulin by 1 unit as previously advised as I've been having Hypos in the evenings. This is either because I've corrected my lunchtime QA dose by too much, or because I haven't had enough carbs before exercise. I'm trying not to over correct my QA dose by looking at my corrections in the past couple of weeks and the effect on my BG levels. Best wishes Clare

Apr 29, 2016 sjohno 37 posts	Topic: General Discussion / Feeling tired Hi john m My first thought was your BG's. Could be you may need some iron supplements? I would see your local GP just to check stuff out. Good luck. regards sjohno

Apr 29, 2016 Garry 328 posts	Topic: General Discussion / Feeling tired Are your BGs OK john m? Regards Garry

Apr 27, 2016 john m 15 posts	Topic: General Discussion / Feeling tired I've been a diabetic for 40 years in the last few weeks been feeling really tired and drained what is causing it and what can I do ?

Apr 27, 2016 HelenP 218 posts	Topic: General Discussion / Pump death? Update on the pump death...I went to my endocrinologist today and mentioned my upcoming cataract operations and cited the difficulty I was having reading the pump. He had a look and then showed me on a pump he has what mine ought to look like. The difference was amazing! I could easily read his but in the light of his rooms mine was difficult to read...even for him! So he has, on my behalf, requested a new pump based on the lack of screen contrast. If the health fund accepts that this is not "fit for purpose" then I will get a replacement within the month. It appears that one of the more common faults that develop is a fading screen but because it fades gradually you tend not to notice until you see what one ought to look like or your medico sees the screen. We will see. Helen

Apr 26, 2016 rimibar 4 posts	Topic: DAFNE Online Mobile / iPhone 6 marke said: In theory the two should work the same and the authentication check is identical, I would suggest setting a simple password temporarily to see if it resolves the issue. I have also seen people add a space at the start of the username/password in the app that the website will not accept. So also try clearing both fields in the app and re-entering your credentials again. If you still experience issues please post the date and time you attempted to connect with the app so I can check in the logs to try to identify what is happening. Hi Mark - it worked! Thanks.

Apr 26, 2016 marke 643 posts	Topic: DAFNE Online Mobile / iPhone 6 In theory the two should work the same and the authentication check is identical, I would suggest setting a simple password temporarily to see if it resolves the issue. I have also seen people add a space at the start of the username/password in the app that the website will not accept. So also try clearing both fields in the app and re-entering your credentials again. If you still experience issues please post the date and time you attempted to connect with the app so I can check in the logs to try to identify what is happening.

Apr 25, 2016 rimibar 4 posts	Topic: DAFNE Online Mobile / iPhone 6 Hi everyone, I'm a recent "graduate" of the DAFNE scheme. At the end of the week we were provided with a login for DAFNE online which works - for the website. I also downloaded the app and have discovered that the the username and password which work fine on this site, are refused by the app. I use a fairly complex password - could this be causing the problem Are there characters which the app won't accept Would much prefer to add my results through the app (suffer from geek-itis), so would appreciate some support with this. Thanks Richard

Apr 24, 2016 Peter 103 posts	Topic: General Discussion / My NHS Trust does not offer DAFNE Paul, The latest NICE guidelines for Type 1 Diabetes clearly state the need for Structured Education, with DAFNE specifically mentioned as an example of the type of course which should be offered: Offer all adults with type 1 diabetes a structured education programme of proven benefit, for example the DAFNE (dose-adjustment for normal eating) programme. Offer this programme 6â€“12 months after diagnosis. Full details of the guidance can be found here: https://www.nice.org.uk/guidance/ng17/chapter/1-Recommendations#education-and-information-2 I'd suggest that you take this to both your GP (as they hold the funds through the CCG) and your hospital team and ask both of them how they are going to meet the NICE guidance in your case. The other possibility is to make a Freedom of information request to the CCG asking how they intend to meet the new NICE guidance. The DAFNE Graduate Group. of which I am chairman, has been using this approach in cases where a DAFNE Center is threatening to withdraw. The questions could be used with your CCG, and they are obliged to provide answers within 20 working days. The direct approach to the providers will probably be quicker, but let me know if you'd like a copy of the questionnaire and details of how to make a FOI request. Good luck. Peter

Apr 22, 2016 JayBee 582 posts	Topic: General Discussion / My NHS Trust does not offer DAFNE Find your nearest DAFNE course Hope this helps spread some light on possibilities if your team can arrange a referral at all. I hope they can if they can't arrange to be a centre themselves. Best wishes!

Apr 22, 2016 skillz 1 post	Topic: Carbohydrate Counting / 12 inch pizza carb Bear in mind that the absorption of the carbs from pizza can be delayed if it's particularly cheesy/fatty.

Apr 20, 2016 paulfromskeg... 1 post	Topic: General Discussion / My NHS Trust does not offer DAFNE Hi, I was recently (December 2015) Diagnosed Type 1, and have had great support from the hospital and DSN. I have recently had a 3 hour introduction to carb counting which I found useful, but I have been told that my NHS trust does not offer DAFNE. As NICE seem to recommend DAFNE for all T1 diabetics, do I have the right to have them refer me to a neighbouring trust so that I can attend the course - Obviously travel and accommodation will be at my own expense, but I will cover that... Any advice would be appreciated as I understand that this course will benefit me going forward. Many thanks Paul

Apr 19, 2016 franklin123 5 posts	Topic: General Discussion / Insulin pump problems Thanks to u both ..helen and Andrew for your advice. Very useful. Regards.