Recent Posts - DAFNE Online

Jul 8, 2016

alturn 78 posts

Topic: General Discussion / High BG (probably caused by stress issues)

Thanks Warwick - BG of 25 must have been horrendous. I had ketones of 0.4 when at 15, and also lose weight rapidly when that high which means even less soft tissue for injections. Don't want to go that high.

Highest BG since has been 11.7, last few days mostly in 7-9 range which is a little bit high but not that unusual

I've increased my Levemir to 14&14 which seems to have helped, also now use my thighs where Levemir doesn't seem to be quite so effective.

The underlying stress cause isn't a short-term issue, so expect to be up-n-down. If BG goes up again, just have to accept that may have to increase BI and/or ratios.

J

Jul 8, 2016

Warwick 425 posts

Topic: General Discussion / High BG (probably caused by stress issues)

Stress will raise BGs, and I find a couple of days before I come down with a cold, I tend to go high. Just getting over a cold now, and my BGs hit 25 last week which is very unusual for me.

Have they settled down now?

Jul 3, 2016

JayBee 587 posts

Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity

I found big problems with DAFNE in regard to exercise because despite following the rules the best I could, often I'd go high (20+BG) after a work out, then aggressively drop when I corrected. This has made doing exercise extremely intimidating. I have had to resort to outside sources to help tackle understanding this problem (I have learnt a lot from a book called "Your Diabetes Science Experiment" by Ginger Vieira for example), which DAFNE does not even try to explain. This issue has been very challenging with my DSN team because they don't like that I'm not able to stick 100% to DAFNE. They don't have anything in place to tackle exercise effect on BGs phobia too.

Jul 2, 2016

Peter 109 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Speaking to an Abbott representative at the DAFNE Collaborative last week, he said that they are about to announce an App which will replace the current reader needed to see glucose levels. The first version will be Android only, but will replace the need to purchase the reader altogether for those who haven't made that investment yet. IOS version to follow.

Jun 27, 2016

michaelj 45 posts

Topic: Questions for HCPs / Noodles

I would go with the packet as manufacturers have to be accurate in what they state as far as values are concerned. Some will give you values for raw and cooked so make sure you pick the right one. Misleading information could, if it caused a problem, leave them open to all sorts of legal issues. I personally always use the manufacturers values. as there ar so many different types of pasta the Dafne book can at times only generalise.

Jun 24, 2016

MARION BEAVER 1 post

Topic: Questions for HCPs / Noodles

I'm confused ..I decided to cook some noodles and I noted on the packet ( 85g) that there was 10g of carbohydrates per 100 gram which should translate as 1 cp yet I note from the carbs list that I should allow 7 cp per 100g packet of uncooked noodles ...where am I going wrong?

Jun 23, 2016

alturn 78 posts

Topic: General Discussion / High BG (probably caused by stress issues)

MY BGs are currently running high (10-15), with ketones of 0.5 am, and 0.8 at lunch. I don't believe this is due to medical cause but a life-style issue. Averages over last few months were mostly in the 7.0 to 8.0 range.

If no improvement later, will consider treating as minor illness under DAFNE rules. Not got a great appetite and feeling a bit off-colour but suspect that is related to high BG. Also will raise with GP as had an appointment for another reason (think this takes priority). It seems I don't handle stress very well.

As the issue may not be resolved in a short period, has anyone any advice?

Jun 19, 2016

sjohno 37 posts

Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity

Hi Peter

I think the DAFNE curriculum & workbook for Physical activity is good as a stepping stone or a good basis of what you need to know about how to manage exercise BUT I think DAFNE needs to stress that every T1 is different and it doesn't necessarily work for everyone.

Thanks

Sarah

Jun 16, 2016

marke 686 posts

Topic: Carbohydrate Counting / CP free lunch

Warwick, sorry you cannot say that is not true and quote a book. We are ALL different and whilst it may not be true for you it may be true for some others. We can debate the breakdown of protein into sugars forever but that won't make it any more applicable to you or me. Personally I don't agree with low carb diets, but if people wish to practice them then its their prerogative to be misguided Wink

Jun 14, 2016

Peter 109 posts

Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity

Phil,

The only course material available at the moment is that loaded on the site (under the DAFNE Tools menu item). As is covered elsewhere there has been a delay in making the latest version available to be loaded here, but the DAFNE Chairman has promised to get that resolved soon. In the meantime, please use the available version for comment if you have nothing else. Thanks.

Jun 14, 2016

Phil Maskell 194 posts

Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity

Hi,

Do you have any new course material?

I did DAFNE way back in 2011 and was a full time couch potato so any exercise advice would have washed over me, I am now a keen cyclist (4st lighter too) so things have changed.

Phil

Jun 14, 2016

Warwick 425 posts

Topic: General Discussion / Hello

Hello Shirley,

Yes, that is the correct thing to do. I believe that the instructions for my insulin explicitly state that you shouldn't refrigerate insulin after removing it from the fridge. Insulin will spoil after about 30 days, so replace it if it is not yet consumed within that time frame.

If you are in a very hot environment, then investigate something similar to a Frio bag which will keep the insulin below 30 degrees Celsius. http://www.friouk.com/

Warwick.

Jun 14, 2016

Leigh On Sea 1 post

Topic: General Discussion / Hello

Hi

Can someone advise please. I store my insulin in the fridge until I need a new flexpen then I keep the pen in my handbag until it has run out.Is this the correct thing to do as I have heard of people having the insulin on there person all day then putting it in the fridge when get home from work.

Many thanks
Shirley

Jun 13, 2016

Peter 109 posts

Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity

A meeting has been set up to review the DAFNE curriculum & workbook for Physical activity. It was agreed that a Physical Activity sub-group be formed to meet in June 2016 to review this.

Prior to this meeting, the group have asked for graduate views on the exercise component in the current curriculum. In particular, it would be useful to know:

1. Have patients found this exercise session useful
2. Have any aspects of the advice have not worked for them
3. Are there aspects we should cover but have not

Please take this opportunity to provide your feedback so that the course can be improved, either by responding within this thread, or by e-mail to [email protected].

Please note that responses have been requested by 20th June.

Thanks.

Jun 13, 2016

neady23 4 posts

Topic: Carbohydrate Counting / CP free lunch

Thanks for the advice guys I'll check the book so, seeing as you are doing so well on it. I won't tell you what my last hbA1c was Crying or Very sad

Jun 13, 2016

Warwick 425 posts

Topic: Carbohydrate Counting / CP free lunch

It is impossible to practise a no-carb diet simply because almost all food contains some amount of carb. :-) Low-carb diets tend to have 50-80 grams of carbohydrate in the per day. This amount tends to allow for very stable blood sugars. There is a Facebook group called 'Type 1 Grit', for Type 1 Diabetics who follow the principles outlined in the book. Most of those who belong to the group and are practising low carb diets are enjoying HbA1cs of between 4.5 - 6 with few hypoglycaemic episodes. It is not for everyone, but it works well for some of us. It is well worth reading the book for yourself and deciding whether it is for you or not. I was fairly aghast when I first heard about it, but I came around to the idea and it certainly beats the BGL roller coaster that I experience on a high carb diet. I still use the DAFNE principles too because it is essential to have basal insulin at correct levels for anything to work.

The book is available for Kindle on Amazon.

Jun 13, 2016

neady23 4 posts

Topic: Carbohydrate Counting / CP free lunch

Warwick said:
A carb-free meal with protein will usually require a bolus taken with it. For myself, I usually need to dose the same as for carbs, so if I am having 40 grams of protein, then I would take the same amount of insulin. as if I was taking 40 gram of carbs.

I do take issue with the fact that we need carbs as part of our diet. That is not true. We need protein - essential amino acids - and we need fats - essential fatty acids - but there is no such thing as essential carbohydrates. There are many T1 diabetcs successful;y practising extremely low-carb diets. For the 'bible' on this, try reading Dr Bernstein's Diabetes Solution.

Hey Warwick, I have tried carb free I just can't get the dose right. I always hypo no matter how little insulin I take but will always rise if I take none. But I will try reading the book you recommend. I notice you say many practice low carb diet not no carb diet, therefore there are some carbs. I must give the book a read though would I get it on Amazon?

Jul 8, 2016 alturn 78 posts	Topic: General Discussion / High BG (probably caused by stress issues) Thanks Warwick - BG of 25 must have been horrendous. I had ketones of 0.4 when at 15, and also lose weight rapidly when that high which means even less soft tissue for injections. Don't want to go that high. Highest BG since has been 11.7, last few days mostly in 7-9 range which is a little bit high but not that unusual I've increased my Levemir to 14&14 which seems to have helped, also now use my thighs where Levemir doesn't seem to be quite so effective. The underlying stress cause isn't a short-term issue, so expect to be up-n-down. If BG goes up again, just have to accept that may have to increase BI and/or ratios. J

Jul 8, 2016 Warwick 425 posts	Topic: General Discussion / High BG (probably caused by stress issues) Stress will raise BGs, and I find a couple of days before I come down with a cold, I tend to go high. Just getting over a cold now, and my BGs hit 25 last week which is very unusual for me. Have they settled down now?

Jul 3, 2016 JayBee 587 posts	Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity I found big problems with DAFNE in regard to exercise because despite following the rules the best I could, often I'd go high (20+BG) after a work out, then aggressively drop when I corrected. This has made doing exercise extremely intimidating. I have had to resort to outside sources to help tackle understanding this problem (I have learnt a lot from a book called "Your Diabetes Science Experiment" by Ginger Vieira for example), which DAFNE does not even try to explain. This issue has been very challenging with my DSN team because they don't like that I'm not able to stick 100% to DAFNE. They don't have anything in place to tackle exercise effect on BGs phobia too.

Jul 2, 2016 Peter 109 posts	Topic: General Discussion / Cyborg Times (new BG meter) Speaking to an Abbott representative at the DAFNE Collaborative last week, he said that they are about to announce an App which will replace the current reader needed to see glucose levels. The first version will be Android only, but will replace the need to purchase the reader altogether for those who haven't made that investment yet. IOS version to follow.

Jun 27, 2016 michaelj 45 posts	Topic: Questions for HCPs / Noodles I would go with the packet as manufacturers have to be accurate in what they state as far as values are concerned. Some will give you values for raw and cooked so make sure you pick the right one. Misleading information could, if it caused a problem, leave them open to all sorts of legal issues. I personally always use the manufacturers values. as there ar so many different types of pasta the Dafne book can at times only generalise.

Jun 24, 2016 MARION BEAVER 1 post	Topic: Questions for HCPs / Noodles I'm confused ..I decided to cook some noodles and I noted on the packet ( 85g) that there was 10g of carbohydrates per 100 gram which should translate as 1 cp yet I note from the carbs list that I should allow 7 cp per 100g packet of uncooked noodles ...where am I going wrong?

Jun 23, 2016 alturn 78 posts	Topic: General Discussion / High BG (probably caused by stress issues) MY BGs are currently running high (10-15), with ketones of 0.5 am, and 0.8 at lunch. I don't believe this is due to medical cause but a life-style issue. Averages over last few months were mostly in the 7.0 to 8.0 range. If no improvement later, will consider treating as minor illness under DAFNE rules. Not got a great appetite and feeling a bit off-colour but suspect that is related to high BG. Also will raise with GP as had an appointment for another reason (think this takes priority). It seems I don't handle stress very well. As the issue may not be resolved in a short period, has anyone any advice?

Jun 19, 2016 sjohno 37 posts	Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity Hi Peter I think the DAFNE curriculum & workbook for Physical activity is good as a stepping stone or a good basis of what you need to know about how to manage exercise BUT I think DAFNE needs to stress that every T1 is different and it doesn't necessarily work for everyone. Thanks Sarah

Jun 16, 2016 marke 686 posts	Topic: Carbohydrate Counting / CP free lunch Warwick, sorry you cannot say that is not true and quote a book. We are ALL different and whilst it may not be true for you it may be true for some others. We can debate the breakdown of protein into sugars forever but that won't make it any more applicable to you or me. Personally I don't agree with low carb diets, but if people wish to practice them then its their prerogative to be misguided

Jun 14, 2016 Peter 109 posts	Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity Phil, The only course material available at the moment is that loaded on the site (under the DAFNE Tools menu item). As is covered elsewhere there has been a delay in making the latest version available to be loaded here, but the DAFNE Chairman has promised to get that resolved soon. In the meantime, please use the available version for comment if you have nothing else. Thanks.

Jun 14, 2016 Phil Maskell 194 posts	Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity Hi, Do you have any new course material? I did DAFNE way back in 2011 and was a full time couch potato so any exercise advice would have washed over me, I am now a keen cyclist (4st lighter too) so things have changed. Phil

Jun 14, 2016 Warwick 425 posts	Topic: General Discussion / Hello Hello Shirley, Yes, that is the correct thing to do. I believe that the instructions for my insulin explicitly state that you shouldn't refrigerate insulin after removing it from the fridge. Insulin will spoil after about 30 days, so replace it if it is not yet consumed within that time frame. If you are in a very hot environment, then investigate something similar to a Frio bag which will keep the insulin below 30 degrees Celsius. http://www.friouk.com/ Warwick.

Jun 14, 2016 Leigh On Sea 1 post	Topic: General Discussion / Hello Hi Can someone advise please. I store my insulin in the fridge until I need a new flexpen then I keep the pen in my handbag until it has run out.Is this the correct thing to do as I have heard of people having the insulin on there person all day then putting it in the fridge when get home from work. Many thanks Shirley

Jun 13, 2016 Peter 109 posts	Topic: General Discussion / Feedback requested on DAFNE curriculum & workbook for Physical activity A meeting has been set up to review the DAFNE curriculum & workbook for Physical activity. It was agreed that a Physical Activity sub-group be formed to meet in June 2016 to review this. Prior to this meeting, the group have asked for graduate views on the exercise component in the current curriculum. In particular, it would be useful to know: 1. Have patients found this exercise session useful 2. Have any aspects of the advice have not worked for them 3. Are there aspects we should cover but have not Please take this opportunity to provide your feedback so that the course can be improved, either by responding within this thread, or by e-mail to [email protected]. Please note that responses have been requested by 20th June. Thanks.

Jun 13, 2016 neady23 4 posts	Topic: Carbohydrate Counting / CP free lunch Thanks for the advice guys I'll check the book so, seeing as you are doing so well on it. I won't tell you what my last hbA1c was

Jun 13, 2016 Warwick 425 posts	Topic: Carbohydrate Counting / CP free lunch It is impossible to practise a no-carb diet simply because almost all food contains some amount of carb. :-) Low-carb diets tend to have 50-80 grams of carbohydrate in the per day. This amount tends to allow for very stable blood sugars. There is a Facebook group called 'Type 1 Grit', for Type 1 Diabetics who follow the principles outlined in the book. Most of those who belong to the group and are practising low carb diets are enjoying HbA1cs of between 4.5 - 6 with few hypoglycaemic episodes. It is not for everyone, but it works well for some of us. It is well worth reading the book for yourself and deciding whether it is for you or not. I was fairly aghast when I first heard about it, but I came around to the idea and it certainly beats the BGL roller coaster that I experience on a high carb diet. I still use the DAFNE principles too because it is essential to have basal insulin at correct levels for anything to work. The book is available for Kindle on Amazon.

Jun 13, 2016 neady23 4 posts	Topic: Carbohydrate Counting / CP free lunch Warwick said: A carb-free meal with protein will usually require a bolus taken with it. For myself, I usually need to dose the same as for carbs, so if I am having 40 grams of protein, then I would take the same amount of insulin. as if I was taking 40 gram of carbs. I do take issue with the fact that we need carbs as part of our diet. That is not true. We need protein - essential amino acids - and we need fats - essential fatty acids - but there is no such thing as essential carbohydrates. There are many T1 diabetcs successful;y practising extremely low-carb diets. For the 'bible' on this, try reading Dr Bernstein's Diabetes Solution. Hey Warwick, I have tried carb free I just can't get the dose right. I always hypo no matter how little insulin I take but will always rise if I take none. But I will try reading the book you recommend. I notice you say many practice low carb diet not no carb diet, therefore there are some carbs. I must give the book a read though would I get it on Amazon?