Recent Posts - DAFNE Online

Sep 28, 2016

Simon 578 posts

Topic: DAFNE Online Mobile / Add favourites to the mobile app.

Hi Jenny,

If you go to a specific Carb Item within the app, you'll see a table row saying Favourite with a star next to it, just tap that to add to your favourites.

Sep 28, 2016

pmason 11 posts

Topic: Site Development / Targets for exercise

I have found now where I can Set Targets under the heading "Click here to edit your diary settings" on the diary page.
I was looking for a "Set Targets" heading on the diary page as you instructed Stew.
It would be nice to have the facility under Settings on your top line of all pages.

Sep 26, 2016

sarahg 29 posts

Topic: General Discussion / Nocturnal 400 sleep mask for diabetic retinopathy

Hi has anyone used or uses
The Noctura 400 Sleep Mask from PolyPhotonix treatment for diabetic retinopathy .
Cheers Sarah.

Sep 26, 2016

JennyMBarnwell 7 posts

Topic: DAFNE Online Mobile / Add favourites to the mobile app.

In the mobile app there is a button marked favourites, but when I click on that it says â€œpresently no itemsâ€œ. How do I add a favourite to this list?

Sep 26, 2016

pmason 11 posts

Topic: Site Development / Targets for exercise

Hi Simon,
I can see targets on the diary page under
BG COLOUR LEGEND
On Target
Below Target
Above Target

but no facility to "Set Targets"
I can set targets on my Phone App but these do not carry over to the online version.

Also, when I try to go to your link above you provided for Stew I get the message. "The page you were looking for doesn't exist".

Sep 26, 2016

pmason 11 posts

Topic: General Discussion / Multiple Page Entries Rejecting

When I try to "Add All" on the Multiple Entries Page it fails with one particular line being highlighted. However, there is No Error message to say what is wrong or what should be corrected. Where is the error message positioned?
The Ratio (QA-CP) edit part below the Ratio entry square is also highlighted but selecting any of these ratios still rejects.

It is most annoying when you have entered a day's worth of stats but cannot proceed. One then has to go back and enter them individually. Most time consuming. Mad

Ideally, if the error cannot be corrected, there should be the facility to process at least those entries that are correct with the invalid error line reported as to the error.

Sep 25, 2016

Alan Shepherd 5 posts

Topic: Questions for HCPs / Changed from Lantus to Tresiba

Thanks very much Becky for your comment. Interesting that your tests are all over the place too with the Tresiba and you're getting the morning highs. If there is one thing I really hate about diabetes it's setting my alarm for three in the morning for a blood test :-(. As you suggested I am going to organise a visit with the diabetic team during the week and will keep you posted. Thanks again! FYI my A1C was 6.2 on the Lantus with, admittedly, a few lows which I do not think were unmanageable, reluctant to give up on a 6.2 long term result.

Sep 25, 2016

beckymatulko 1 post

Topic: Questions for HCPs / Changed from Lantus to Tresiba

I have only recently done the DAFNE course and myself was having the same problems with highs in the morning after changing from Lantus to Tresiba. Anyway, they told me to change it as you would normally so 10-20% so maybe 1-2 units.

I personally don't think it's for me as my sugars have been everywhere since I've been on it! Hope this helps! If you're still unsure I'd ask your diabetic team Very Happy

Sep 25, 2016

Alan Shepherd 5 posts

Topic: Questions for HCPs / Changed from Lantus to Tresiba

Many thanks Jennifer for your comment. I have checked a few 3am bloods and it seems to be stable, even starting to go high at that stage. I have been looking at a few posts online and one suggested that because Tresiba insulin has such a flat line compared to Lantus that it is not dealing with this "dawn phenomenon" in the same way that the Lantus does. Lantus peaks five or six hours after injecting to deals with the pre-getting up rise in bloods. Think maybe it's time to go back to the Doc!! Thanks again for your help.

Sep 23, 2016

JenniferFlan... 1 post

Topic: Questions for HCPs / Changed from Lantus to Tresiba

Hi there I am most certainly not an expert but I do also have this problem and have been told to check my BG at about 3am in the mornings as you coukd be having night hypos, sleeping through them, then your kidneys throw out sugar which makes you go higher in the morning , I would just check a couple of 3am BG readings before uping your dose as you could make the problem worse , hope this helps â˜º

Sep 21, 2016

Alan Shepherd 5 posts

Topic: Questions for HCPs / Changed from Lantus to Tresiba

I have recently been moved over to Tresiba instead of Lantus as my background Insulin. I was experiencing a lot of hypo's (especially during the night) with the Lantus.
My previous Lantus dose was 32units before bed, my consultant has asked me to start of 16units also before bed of the Tresiba.
I am finding that my first blood test in the morning has usually jumped from between 5 & 8 the night before (without having eaten anything since 6pm) to between 12 & 16. A correction does of my humalog generally has me ok again within a couple of hours.

My question: should I increase my BI does before bed as I was taught to do with my lantus to counteract this? I understand that the Tresiba graph is a much flatter constant graph than that of the lantus so I am a bit puzzled as to why it is causing BG spikes during the night and not at other times.

Thanks in advance for any help on this topic.

Sep 21, 2016

Warwick 423 posts

Topic: General Discussion / Is the honeymoon over?

Have you seen this previously? During my honeymoon phase, I kept on having to regularly increase my basal insulin. The new level would last a couple of months, then I would need to increase again due to persistently high BGLs. I worked out that I was at the end of my honeymoon phase when I no longer had to do this.

Also bear in mind that some of us are affected by change of seasons and you may be the same. The amount of insulin required can change a lot as summer changes to autumn or winter to spring.

Sep 20, 2016

Yelekreb 11 posts

Topic: General Discussion / Is the honeymoon over?

Yes, the very helpful team at the local hopsital saw me quickly. Really I'm doing all the right things....which simply means applying the DAFNE principles! Pancreas still being random...why be dull.

Sep 20, 2016

Susanf 29 posts

Topic: General Discussion / Is the honeymoon over?

Hi, Have you spoken to your healthcare professionals to see what they suggest. Smile

Sep 13, 2016

HelenP 218 posts

Topic: General Discussion / free style libre sensor problem

Mans, Just had an email from the "educator" apparently the Medtronic sensors occasionally fail but they are working on changing the algorithm so that they fail less frequently. I suggest you try and get a replacement/refund. The company needs to know about the "fails". Helen

Sep 12, 2016

Mans 2 posts

Topic: General Discussion / free style libre sensor problem

Thanks for everybody.
I think the only alternative solution is to replace the sensor, I hope it will work this time. I will updating you with the latest.

Sep 12, 2016

HelenP 218 posts

Topic: General Discussion / free style libre sensor problem

OK Update...I rang Medtronic and after they quizzed me and verified my complaint by the data that was in my pump, they are replacing the sensor...it will be here within 24 hours. They did ask me to send them the old sensor but I had already thrown it out...so advice keep the sensor and send it in with the complaint.

Helen

Sep 12, 2016

HelenP 218 posts

Topic: General Discussion / free style libre sensor problem

I just had a second "fail...replace sensor". Tried four to five times to "reconnect" but nothing worked.

I am in the process of seeing what I can do. Ought we not be given a refund..."not fit for purpose"? Or at least a replacement.

Currently I purchase them on a 5 per month scheme for $AUD250. As they last six days If you have a fail it costs $50 but then if you use another sensor you will not have enough to last the month. Currently having it on for 6 days (the life of one sensor) have it off for sundays and replace on the Monday morning.

Helen

Sep 10, 2016

HelenP 218 posts

Topic: General Discussion / free style libre sensor problem

I use the Medtronic sensor and had a similar "fail". Tried everything but ended up replacing sensor...expensive exercise! Helen

Sep 10, 2016

Mans 2 posts

Topic: General Discussion / free style libre sensor problem

Hi,
Hi,
I used the free style libre for the first time since 7 days. It works fine and gives readings. Yesterday, I received the following message to replace the current sensor by new one. Accordingly, I replaced the old sensor with the new one, when the reader scan for new sensor, it gives following message
"Please check sensor. If it is loose from your skin, please remove the sensor and start a new one. If it is applied properly, try starting sensor again."
After that, the reader requesting new sensor to scan it, gives a normal message to wait for 60 minutes, when scan the sensor to get reading, it gives the earlier message and started 60 minutes waiting again. This happened until now 4 - 5 times with the same attitude. I am quite sure that new sensor is fixed well on the arm but i do not know what is going on? any clues? Thanks

Mans

Aug 29, 2016

marke 681 posts

Topic: General Discussion / NICE Guidance on Diabetes

hhmmm, seems medical staff are the same the world over :-( They mean well but think their training equips them to have understanding of stuff they don't fully grasp. As I said all you need is a firm attitude and they do as they are told usually ;-)

Aug 29, 2016

Warwick 423 posts

Topic: General Discussion / Hypo Awareness

No problem Richard. I just wanted to be sure rather than assume something that wasn't actually correct.

You keep a very detailed diary, so well done on that.

Is the above fairly typical for you with mainly high values or was that week different from usual?

Do you feel hypos occasionally or do you have no symptoms at all?

Would you be able to post your diary for this week? I think that your basal (or at least your night time basal) is correct.

Your blood sugars rise significantly between early morning and when you take breakfast about 10 am. There are two possibilities that I can think of to account for this:

1) You are suffering from Dawn Phenomenon which most T1Ds do suffer from. You will notice that most of your overnight (1 am readings) are pretty good, but during the night they rise and then keep on rising from 7ish in the morning until you have breakfast around 10.

2) Your basal insulin runs out overnight. This could well be a possibility as you are injecting very early evening, and then waiting until mid-morning to inject again so there is about a 16 hour interval between your evening dose and your morning one, and then only about 8 hours between morning and evening dose. Can I suggest that you change the timing of the basal insulin doses so they are almost exactly 12 hours apart? That would then allow me to see if it is the basal insulin running out, or the Dawn Phenomenon that is the issue.

What QA and basal insulin are you on? If you are on Lantus which generally lasts 18-24 hours, then it probably isn't the second possibility above, but if you are on something like Levemir which has a shorter action time, then it could well be.

Thanks,
Warwick.

Sep 28, 2016 Simon 578 posts	Topic: DAFNE Online Mobile / Add favourites to the mobile app. Hi Jenny, If you go to a specific Carb Item within the app, you'll see a table row saying Favourite with a star next to it, just tap that to add to your favourites.

Sep 28, 2016 pmason 11 posts	Topic: Site Development / Targets for exercise I have found now where I can Set Targets under the heading "Click here to edit your diary settings" on the diary page. I was looking for a "Set Targets" heading on the diary page as you instructed Stew. It would be nice to have the facility under Settings on your top line of all pages.

Sep 26, 2016 sarahg 29 posts	Topic: General Discussion / Nocturnal 400 sleep mask for diabetic retinopathy Hi has anyone used or uses The Noctura 400 Sleep Mask from PolyPhotonix treatment for diabetic retinopathy . Cheers Sarah.

Sep 26, 2016 JennyMBarnwell 7 posts	Topic: DAFNE Online Mobile / Add favourites to the mobile app. In the mobile app there is a button marked favourites, but when I click on that it says â€œpresently no itemsâ€œ. How do I add a favourite to this list?

Sep 26, 2016 pmason 11 posts	Topic: Site Development / Targets for exercise Hi Simon, I can see targets on the diary page under BG COLOUR LEGEND On Target Below Target Above Target but no facility to "Set Targets" I can set targets on my Phone App but these do not carry over to the online version. Also, when I try to go to your link above you provided for Stew I get the message. "The page you were looking for doesn't exist".

Sep 26, 2016 pmason 11 posts	Topic: General Discussion / Multiple Page Entries Rejecting When I try to "Add All" on the Multiple Entries Page it fails with one particular line being highlighted. However, there is No Error message to say what is wrong or what should be corrected. Where is the error message positioned? The Ratio (QA-CP) edit part below the Ratio entry square is also highlighted but selecting any of these ratios still rejects. It is most annoying when you have entered a day's worth of stats but cannot proceed. One then has to go back and enter them individually. Most time consuming. Ideally, if the error cannot be corrected, there should be the facility to process at least those entries that are correct with the invalid error line reported as to the error.

Sep 25, 2016 Alan Shepherd 5 posts	Topic: Questions for HCPs / Changed from Lantus to Tresiba Thanks very much Becky for your comment. Interesting that your tests are all over the place too with the Tresiba and you're getting the morning highs. If there is one thing I really hate about diabetes it's setting my alarm for three in the morning for a blood test :-(. As you suggested I am going to organise a visit with the diabetic team during the week and will keep you posted. Thanks again! FYI my A1C was 6.2 on the Lantus with, admittedly, a few lows which I do not think were unmanageable, reluctant to give up on a 6.2 long term result.

Sep 25, 2016 beckymatulko 1 post	Topic: Questions for HCPs / Changed from Lantus to Tresiba I have only recently done the DAFNE course and myself was having the same problems with highs in the morning after changing from Lantus to Tresiba. Anyway, they told me to change it as you would normally so 10-20% so maybe 1-2 units. I personally don't think it's for me as my sugars have been everywhere since I've been on it! Hope this helps! If you're still unsure I'd ask your diabetic team

Sep 25, 2016 Alan Shepherd 5 posts	Topic: Questions for HCPs / Changed from Lantus to Tresiba Many thanks Jennifer for your comment. I have checked a few 3am bloods and it seems to be stable, even starting to go high at that stage. I have been looking at a few posts online and one suggested that because Tresiba insulin has such a flat line compared to Lantus that it is not dealing with this "dawn phenomenon" in the same way that the Lantus does. Lantus peaks five or six hours after injecting to deals with the pre-getting up rise in bloods. Think maybe it's time to go back to the Doc!! Thanks again for your help.

Sep 23, 2016 JenniferFlan... 1 post	Topic: Questions for HCPs / Changed from Lantus to Tresiba Hi there I am most certainly not an expert but I do also have this problem and have been told to check my BG at about 3am in the mornings as you coukd be having night hypos, sleeping through them, then your kidneys throw out sugar which makes you go higher in the morning , I would just check a couple of 3am BG readings before uping your dose as you could make the problem worse , hope this helps â˜º

Sep 21, 2016 Alan Shepherd 5 posts	Topic: Questions for HCPs / Changed from Lantus to Tresiba I have recently been moved over to Tresiba instead of Lantus as my background Insulin. I was experiencing a lot of hypo's (especially during the night) with the Lantus. My previous Lantus dose was 32units before bed, my consultant has asked me to start of 16units also before bed of the Tresiba. I am finding that my first blood test in the morning has usually jumped from between 5 & 8 the night before (without having eaten anything since 6pm) to between 12 & 16. A correction does of my humalog generally has me ok again within a couple of hours. My question: should I increase my BI does before bed as I was taught to do with my lantus to counteract this? I understand that the Tresiba graph is a much flatter constant graph than that of the lantus so I am a bit puzzled as to why it is causing BG spikes during the night and not at other times. Thanks in advance for any help on this topic.

Sep 21, 2016 Warwick 423 posts	Topic: General Discussion / Is the honeymoon over? Have you seen this previously? During my honeymoon phase, I kept on having to regularly increase my basal insulin. The new level would last a couple of months, then I would need to increase again due to persistently high BGLs. I worked out that I was at the end of my honeymoon phase when I no longer had to do this. Also bear in mind that some of us are affected by change of seasons and you may be the same. The amount of insulin required can change a lot as summer changes to autumn or winter to spring.

Sep 20, 2016 Yelekreb 11 posts	Topic: General Discussion / Is the honeymoon over? Yes, the very helpful team at the local hopsital saw me quickly. Really I'm doing all the right things....which simply means applying the DAFNE principles! Pancreas still being random...why be dull.

Sep 20, 2016 Susanf 29 posts	Topic: General Discussion / Is the honeymoon over? Hi, Have you spoken to your healthcare professionals to see what they suggest.

Sep 13, 2016 HelenP 218 posts	Topic: General Discussion / free style libre sensor problem Mans, Just had an email from the "educator" apparently the Medtronic sensors occasionally fail but they are working on changing the algorithm so that they fail less frequently. I suggest you try and get a replacement/refund. The company needs to know about the "fails". Helen

Sep 12, 2016 Mans 2 posts	Topic: General Discussion / free style libre sensor problem Thanks for everybody. I think the only alternative solution is to replace the sensor, I hope it will work this time. I will updating you with the latest.

Sep 12, 2016 HelenP 218 posts	Topic: General Discussion / free style libre sensor problem OK Update...I rang Medtronic and after they quizzed me and verified my complaint by the data that was in my pump, they are replacing the sensor...it will be here within 24 hours. They did ask me to send them the old sensor but I had already thrown it out...so advice keep the sensor and send it in with the complaint. Helen

Sep 12, 2016 HelenP 218 posts	Topic: General Discussion / free style libre sensor problem I just had a second "fail...replace sensor". Tried four to five times to "reconnect" but nothing worked. I am in the process of seeing what I can do. Ought we not be given a refund..."not fit for purpose"? Or at least a replacement. Currently I purchase them on a 5 per month scheme for $AUD250. As they last six days If you have a fail it costs $50 but then if you use another sensor you will not have enough to last the month. Currently having it on for 6 days (the life of one sensor) have it off for sundays and replace on the Monday morning. Helen

Sep 10, 2016 HelenP 218 posts	Topic: General Discussion / free style libre sensor problem I use the Medtronic sensor and had a similar "fail". Tried everything but ended up replacing sensor...expensive exercise! Helen

Sep 10, 2016 Mans 2 posts	Topic: General Discussion / free style libre sensor problem Hi, Hi, I used the free style libre for the first time since 7 days. It works fine and gives readings. Yesterday, I received the following message to replace the current sensor by new one. Accordingly, I replaced the old sensor with the new one, when the reader scan for new sensor, it gives following message "Please check sensor. If it is loose from your skin, please remove the sensor and start a new one. If it is applied properly, try starting sensor again." After that, the reader requesting new sensor to scan it, gives a normal message to wait for 60 minutes, when scan the sensor to get reading, it gives the earlier message and started 60 minutes waiting again. This happened until now 4 - 5 times with the same attitude. I am quite sure that new sensor is fixed well on the arm but i do not know what is going on? any clues? Thanks Mans

Aug 29, 2016 marke 681 posts	Topic: General Discussion / NICE Guidance on Diabetes hhmmm, seems medical staff are the same the world over :-( They mean well but think their training equips them to have understanding of stuff they don't fully grasp. As I said all you need is a firm attitude and they do as they are told usually ;-)

Aug 29, 2016 Warwick 423 posts	Topic: General Discussion / Hypo Awareness No problem Richard. I just wanted to be sure rather than assume something that wasn't actually correct. You keep a very detailed diary, so well done on that. Is the above fairly typical for you with mainly high values or was that week different from usual? Do you feel hypos occasionally or do you have no symptoms at all? Would you be able to post your diary for this week? I think that your basal (or at least your night time basal) is correct. Your blood sugars rise significantly between early morning and when you take breakfast about 10 am. There are two possibilities that I can think of to account for this: 1) You are suffering from Dawn Phenomenon which most T1Ds do suffer from. You will notice that most of your overnight (1 am readings) are pretty good, but during the night they rise and then keep on rising from 7ish in the morning until you have breakfast around 10. 2) Your basal insulin runs out overnight. This could well be a possibility as you are injecting very early evening, and then waiting until mid-morning to inject again so there is about a 16 hour interval between your evening dose and your morning one, and then only about 8 hours between morning and evening dose. Can I suggest that you change the timing of the basal insulin doses so they are almost exactly 12 hours apart? That would then allow me to see if it is the basal insulin running out, or the Dawn Phenomenon that is the issue. What QA and basal insulin are you on? If you are on Lantus which generally lasts 18-24 hours, then it probably isn't the second possibility above, but if you are on something like Levemir which has a shorter action time, then it could well be. Thanks, Warwick.