Recent Posts - DAFNE Online

Jan 21, 2010

Tony.P 16 posts

Topic: General Discussion / What meter are you using?

onetouch Ultra Easy

Jan 21, 2010

NiVZ 82 posts

Topic: General Discussion / What meter are you using?

OneTouch UltraSmart and UltraEasy

Jan 21, 2010

NiVZ 82 posts

Topic: General Discussion / What meter are you using?

Hello,

As some of you know, I've been having a go at writing software to get the readings from our meters and upload them to our online diaries with a few clicks.

Be interesting to know whats the most popular meter, and if I'm targeting my efforts at the ones which will be of most benefit.

I'd appreciate if you could leave a reply with the make and model of the meter you are using.

Thanks,

NiVZ

Jan 21, 2010

vic demain 87 posts

Topic: General Discussion / Help

Hi JamBenJak,

Everything that you say sounds so typical of the feelings one experiences from time to time as a diabetic. Difficult indeed to live with or understand. Sometimes we truly are not aware of the suffering we are causing during the mood swings.

I have been Type 1 for 30 years and struggle to get anywhere near correct levels, my daughter Type 1 for 16 years and she suffers worse than me, we try but it's difficult.

I don't have any answers for you but your husband needs to be made aware that it is his choice, he has a condition which isn't going to go away and he needs to choose how he wants to deal with it.

When diagnosed, my specialist said "you are going to inject yourself twice a day for the rest of your life", I told him "no way" so he said "ok then die".

I wonder what age your husband is and whether you have any children? He and you both need help and support, it seems as if he is struggling to accept the fact that he will need to change but it does get easier. Cant tell you that the mood swings will go though, depression is never far away.

Please go to your diabetic team at the hospital and ask for their help, GP's are often too busy.

Stick in there, you are obviously desperate to keep things together otherwise you wouldn't come on here asking for help. It's not an easy ride but has to be worth it.

Good luck.

Vic.

Jan 20, 2010

Pinkie 2 posts

Topic: General Discussion / Morning glucose rises

Hey ,
Thanks for the heads up on Dawn Phenomenon. Going to do a bit of research.... but sounds like my problem.
Will let you know how I get on.
Thanks for all the help!
P x

Jan 20, 2010

NiVZ 82 posts

Topic: Site Development / Meter Upload Development

Hello,

Just a quick update. With Mark and Simon's help we've now got it readng date/time, BG and comment (before/after meal) from the UltraSmart :-)

It's very rough and ready just now, but at least it's getting the data in a suitable format now. I've also made the program more 'modular' with the hope it will make it easy to add other meters in the future.

NiVZ

Jan 19, 2010

Sam 64 posts

Topic: General Discussion / Morning glucose rises

Hi P

Welcome to the site! I experienced what you are going through and still do but not as bad as it was a few months ago, read the posts in the General Forum "dawn phenomenon" you may find the answer/support there to give you an idea of what you can do but before you make any changes seek advice from your DAFNE educators and be recording your results religiously as that is the key to helping you too.
Have a read and keep in touch

Sam

Jan 19, 2010

Tony.P 16 posts

Topic: General Discussion / Morning glucose rises

Hi Pinkie,
I am new to this myself but your night time seems hi, maybe bring that down a little first?

Jan 19, 2010

Pinkie 2 posts

Topic: General Discussion / Morning glucose rises

Hi everyone -

I'm really new to this site and haven't had a chance to list all my readings as yet but I seem to be geting real high morning BG. Sometimes as high as 22! I've done tests throughout the night and things are fine - it just seems to surge out of control about 5 or 6 am as if there's been a glucose surge before I wake.

Anyone else had this problem and how do I deal with it?
Any help much appreciated!

Pinkie

Jan 19, 2010

vic demain 87 posts

Topic: General Discussion / Access to courses.

Hi Marke,
Thanks for the reply. My form was emailed in yesterday, soon after registration. Will try to find the links you mention.
Many thanks.
Vic.

Jan 19, 2010

marke 686 posts

Topic: General Discussion / Access to courses.

Vic,
The answer to this is not currently, however one of the reasons for having the DAFNE User Group ( DUG) and electing the DAFNE User Action Group (DUAG) is to try to do something about this. There is a forum on this site dedicated to the DUAG/DUG where you can find more information. You should have been given a form to join the DUG when you did your DAFNE course, ideally we would like more people to fill in these forms and join. All the info about the DUAG and DUG is in the forum, but
basically its the 'user' part of the DAFNE programme that will help influence the future of DAFNE and promote DAFNE both to Diabetics and Primary Care Trusts ( who
fund the DAFNE course). It is by 'pressuring' PCT's to run DAFNE that we can increase the opportunity of all Diabetics to benefit from the course.

Jan 19, 2010

marke 686 posts

Topic: DAFNE Graduate Group (DGG) / Press Release

For World Diabetes Day last November we did a press release that was sent to the national press and Diabetes UK balance. It is avaialble here for everyone to read.

Jan 18, 2010

maddog 2 posts

Topic: Questions for HCPs / GLUCOPHAGE

Hi i have been prescribed these Metformin tablets,and was told i should increase the dose up to 4 tablets a day.
These are supposed to decrease my appertite, and make me more sensative to insulin, so i should be able to reduce the amount of insulin i take per injection.
However nothing seems to be happening, have you any suggestions for me? should i carry on, or should i finish with them.

Jan 18, 2010

vic demain 87 posts

Topic: General Discussion / Access to courses.

Hi,

Please forgive me if this is an old topic, as I am new to this site today.

Having recently been fortunate enough to be offered a place on a DAFNE couse, my question is, is there anyway that someone who lives in an area which doesn't run courses, access a Dafne course?

My daughter, who is 29 years old, has been admitted to hospital with DKA on three occasions and is also keen to start a family. I feel that she would benefit enormously from attending a course but there are no plans in her area.

Regards.

Vic.

Jan 16, 2010

Sophie4 1 post

Topic: Carbohydrate Counting / Cherries

I have just finished my 2nd Dafne course and can confirm that you don't inject for them - although I guess if you eat a whole punnet you might want to reconsider that.

Jan 16, 2010

sanderaburns 5 posts

Topic: General Discussion / Coeliac as well as Diabetic?

Hi Shaun and Janys, well it seems we are few and far between, being Coeliac and Diabetic! I know of one other person whom i met on Facebook. I have sent e-mails to you both and look forward to chatting to you.
Sandra

Jan 15, 2010

hicksy 2 posts

Topic: General Discussion / Help

Hi, Im quite new to Dafne. I have been diabetic since I was 14 and I am now 24. At the start of being diagnosed I was sleeping a lot and also my sugars were up and down like a yo yo, therefore you have the mood swings and the sugar cravings when low. Its only now that I have started to look after myself more and eat more healthily. At the start you kind of feel everyone is watching what you eat and telling you what to do, like you don't have control but now I see that everyone should eat like a diabetic and I feel a lot better for it.
You should be getting support from the Gp. Sometimes it takes a kick up the bum so to speak, or he will just come to terms with it and see that its not that bad. Just keep with it Megan

Jan 15, 2010

hicksy 2 posts

Topic: General Discussion / Help

Hi, Im quite new to Dafne. I have been diabetic since I was 14 and I am now 24. At the start of being diagnosed I was sleeping a lot and also my sugars were up and down like a yo yo, therefore you have the mood swings and the sugar cravings when low. Its only now that I have started to look after myself more and eat more healthily. At the start you kind of feel everyone is watching what you eat and telling you what to do, like you don't have control but now I see that everyone should eat like a diabetic and I feel a lot better for it.
You should be getting support from the Gp. Sometimes it takes a kick up the bum so to speak, or he will just come to terms with it and see that its not that bad. Just keep with it Megan

Jan 15, 2010

JamBenJak 1 post

Topic: General Discussion / Help

Hi

Was wondering if anyone could help, although I am not actually a sufferer of Diabetes my husband is. He recently got diagnosed with Type I and to tell you the truth I don't know who he is anymore. He thinks he can carry on as if nothing has changed. His Doctor is not helpful and the support team are not supporting him at all.

All he seems to want to do is sleep, he can't get levels correct, and can be very argumentative and lazy. I am finding it very hard to live with him as I don't know what type of mood he is going to be in, I cannot even begin to imagine what he must be going through but I do feel he is not helping himself with what he eats (craves chocolate all the time). He goes without his Green Insulin pen for weeks on end and says he forgets to take the orange one. If he does take it its before food and he has been told to take it with food. He has also been smoking heavily, and doesn't seem to care what anyone else says.

I am at my wits end, and I don't know what to do anymore, can anyone help?

Thank you

Jan 13, 2010

john day 54 posts

Topic: Site Development / Deleting Multiple Diary Entries

Hi Simon..

I can support MarkW on this, as a result of using the BG summary report & digging down during a post Xmas/EOY review, I found quite a few data entry errors I had made which needed to be deleted/corrected.

Typically these were date errors (1 day out) causing 10 entries to be allocated to a single day although entered on 2 separate occasions. Also simple entry of BI value in QA box etc

You may feel I've just got thick fingers but I wondered if a Consistency Report could be produced which would advise apparently odd data values as an adjunct (say) to the Summary report or maybe better immediately with the entry errors . The user could chose/flag to ignore or correct if necessary.

There are lots of checks which could be made to highlight major oddities rather than normal variation but perhaps some are:

-Date entered is already on file
-Date missing from sequence already on file
-QA is much higher than usual (say 200% avg) at that time of day
-Usual BI entry missing

No doubt other users can add more checks if you think the report is a possibility.

Let us know what you think.

Thanks, John

Jan 21, 2010 Tony.P 16 posts	Topic: General Discussion / What meter are you using? onetouch Ultra Easy

Jan 21, 2010 NiVZ 82 posts	Topic: General Discussion / What meter are you using? OneTouch UltraSmart and UltraEasy

Jan 21, 2010 NiVZ 82 posts	Topic: General Discussion / What meter are you using? Hello, As some of you know, I've been having a go at writing software to get the readings from our meters and upload them to our online diaries with a few clicks. Be interesting to know whats the most popular meter, and if I'm targeting my efforts at the ones which will be of most benefit. I'd appreciate if you could leave a reply with the make and model of the meter you are using. Thanks, NiVZ

Jan 21, 2010 vic demain 87 posts	Topic: General Discussion / Help Hi JamBenJak, Everything that you say sounds so typical of the feelings one experiences from time to time as a diabetic. Difficult indeed to live with or understand. Sometimes we truly are not aware of the suffering we are causing during the mood swings. I have been Type 1 for 30 years and struggle to get anywhere near correct levels, my daughter Type 1 for 16 years and she suffers worse than me, we try but it's difficult. I don't have any answers for you but your husband needs to be made aware that it is his choice, he has a condition which isn't going to go away and he needs to choose how he wants to deal with it. When diagnosed, my specialist said "you are going to inject yourself twice a day for the rest of your life", I told him "no way" so he said "ok then die". I wonder what age your husband is and whether you have any children? He and you both need help and support, it seems as if he is struggling to accept the fact that he will need to change but it does get easier. Cant tell you that the mood swings will go though, depression is never far away. Please go to your diabetic team at the hospital and ask for their help, GP's are often too busy. Stick in there, you are obviously desperate to keep things together otherwise you wouldn't come on here asking for help. It's not an easy ride but has to be worth it. Good luck. Vic.

Jan 20, 2010 Pinkie 2 posts	Topic: General Discussion / Morning glucose rises Hey , Thanks for the heads up on Dawn Phenomenon. Going to do a bit of research.... but sounds like my problem. Will let you know how I get on. Thanks for all the help! P x

Jan 20, 2010 NiVZ 82 posts	Topic: Site Development / Meter Upload Development Hello, Just a quick update. With Mark and Simon's help we've now got it readng date/time, BG and comment (before/after meal) from the UltraSmart :-) It's very rough and ready just now, but at least it's getting the data in a suitable format now. I've also made the program more 'modular' with the hope it will make it easy to add other meters in the future. NiVZ

Jan 19, 2010 Sam 64 posts	Topic: General Discussion / Morning glucose rises Hi P Welcome to the site! I experienced what you are going through and still do but not as bad as it was a few months ago, read the posts in the General Forum "dawn phenomenon" you may find the answer/support there to give you an idea of what you can do but before you make any changes seek advice from your DAFNE educators and be recording your results religiously as that is the key to helping you too. Have a read and keep in touch Sam

Jan 19, 2010 Tony.P 16 posts	Topic: General Discussion / Morning glucose rises Hi Pinkie, I am new to this myself but your night time seems hi, maybe bring that down a little first?

Jan 19, 2010 Pinkie 2 posts	Topic: General Discussion / Morning glucose rises Hi everyone - I'm really new to this site and haven't had a chance to list all my readings as yet but I seem to be geting real high morning BG. Sometimes as high as 22! I've done tests throughout the night and things are fine - it just seems to surge out of control about 5 or 6 am as if there's been a glucose surge before I wake. Anyone else had this problem and how do I deal with it? Any help much appreciated! Pinkie

Jan 19, 2010 vic demain 87 posts	Topic: General Discussion / Access to courses. Hi Marke, Thanks for the reply. My form was emailed in yesterday, soon after registration. Will try to find the links you mention. Many thanks. Vic.

Jan 19, 2010 marke 686 posts	Topic: General Discussion / Access to courses. Vic, The answer to this is not currently, however one of the reasons for having the DAFNE User Group ( DUG) and electing the DAFNE User Action Group (DUAG) is to try to do something about this. There is a forum on this site dedicated to the DUAG/DUG where you can find more information. You should have been given a form to join the DUG when you did your DAFNE course, ideally we would like more people to fill in these forms and join. All the info about the DUAG and DUG is in the forum, but basically its the 'user' part of the DAFNE programme that will help influence the future of DAFNE and promote DAFNE both to Diabetics and Primary Care Trusts ( who fund the DAFNE course). It is by 'pressuring' PCT's to run DAFNE that we can increase the opportunity of all Diabetics to benefit from the course.

Jan 19, 2010 marke 686 posts	Topic: DAFNE Graduate Group (DGG) / Press Release For World Diabetes Day last November we did a press release that was sent to the national press and Diabetes UK balance. It is avaialble here for everyone to read.

Jan 18, 2010 maddog 2 posts	Topic: Questions for HCPs / GLUCOPHAGE Hi i have been prescribed these Metformin tablets,and was told i should increase the dose up to 4 tablets a day. These are supposed to decrease my appertite, and make me more sensative to insulin, so i should be able to reduce the amount of insulin i take per injection. However nothing seems to be happening, have you any suggestions for me? should i carry on, or should i finish with them.

Jan 18, 2010 vic demain 87 posts	Topic: General Discussion / Access to courses. Hi, Please forgive me if this is an old topic, as I am new to this site today. Having recently been fortunate enough to be offered a place on a DAFNE couse, my question is, is there anyway that someone who lives in an area which doesn't run courses, access a Dafne course? My daughter, who is 29 years old, has been admitted to hospital with DKA on three occasions and is also keen to start a family. I feel that she would benefit enormously from attending a course but there are no plans in her area. Regards. Vic.

Jan 16, 2010 Sophie4 1 post	Topic: Carbohydrate Counting / Cherries I have just finished my 2nd Dafne course and can confirm that you don't inject for them - although I guess if you eat a whole punnet you might want to reconsider that.

Jan 16, 2010 sanderaburns 5 posts	Topic: General Discussion / Coeliac as well as Diabetic? Hi Shaun and Janys, well it seems we are few and far between, being Coeliac and Diabetic! I know of one other person whom i met on Facebook. I have sent e-mails to you both and look forward to chatting to you. Sandra

Jan 15, 2010 hicksy 2 posts	Topic: General Discussion / Help Hi, Im quite new to Dafne. I have been diabetic since I was 14 and I am now 24. At the start of being diagnosed I was sleeping a lot and also my sugars were up and down like a yo yo, therefore you have the mood swings and the sugar cravings when low. Its only now that I have started to look after myself more and eat more healthily. At the start you kind of feel everyone is watching what you eat and telling you what to do, like you don't have control but now I see that everyone should eat like a diabetic and I feel a lot better for it. You should be getting support from the Gp. Sometimes it takes a kick up the bum so to speak, or he will just come to terms with it and see that its not that bad. Just keep with it Megan

Jan 15, 2010 hicksy 2 posts	Topic: General Discussion / Help Hi, Im quite new to Dafne. I have been diabetic since I was 14 and I am now 24. At the start of being diagnosed I was sleeping a lot and also my sugars were up and down like a yo yo, therefore you have the mood swings and the sugar cravings when low. Its only now that I have started to look after myself more and eat more healthily. At the start you kind of feel everyone is watching what you eat and telling you what to do, like you don't have control but now I see that everyone should eat like a diabetic and I feel a lot better for it. You should be getting support from the Gp. Sometimes it takes a kick up the bum so to speak, or he will just come to terms with it and see that its not that bad. Just keep with it Megan

Jan 15, 2010 JamBenJak 1 post	Topic: General Discussion / Help Hi Was wondering if anyone could help, although I am not actually a sufferer of Diabetes my husband is. He recently got diagnosed with Type I and to tell you the truth I don't know who he is anymore. He thinks he can carry on as if nothing has changed. His Doctor is not helpful and the support team are not supporting him at all. All he seems to want to do is sleep, he can't get levels correct, and can be very argumentative and lazy. I am finding it very hard to live with him as I don't know what type of mood he is going to be in, I cannot even begin to imagine what he must be going through but I do feel he is not helping himself with what he eats (craves chocolate all the time). He goes without his Green Insulin pen for weeks on end and says he forgets to take the orange one. If he does take it its before food and he has been told to take it with food. He has also been smoking heavily, and doesn't seem to care what anyone else says. I am at my wits end, and I don't know what to do anymore, can anyone help? Thank you

Jan 13, 2010 john day 54 posts	Topic: Site Development / Deleting Multiple Diary Entries Hi Simon.. I can support MarkW on this, as a result of using the BG summary report & digging down during a post Xmas/EOY review, I found quite a few data entry errors I had made which needed to be deleted/corrected. Typically these were date errors (1 day out) causing 10 entries to be allocated to a single day although entered on 2 separate occasions. Also simple entry of BI value in QA box etc You may feel I've just got thick fingers but I wondered if a Consistency Report could be produced which would advise apparently odd data values as an adjunct (say) to the Summary report or maybe better immediately with the entry errors . The user could chose/flag to ignore or correct if necessary. There are lots of checks which could be made to highlight major oddities rather than normal variation but perhaps some are: -Date entered is already on file -Date missing from sequence already on file -QA is much higher than usual (say 200% avg) at that time of day -Usual BI entry missing No doubt other users can add more checks if you think the report is a possibility. Let us know what you think. Thanks, John