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Feb 12, 2010
vic demain 87 posts

Topic: General Discussion / Is life expectancy limited for diabetics?

Hi Mike,

Firstly can I say that having watched both parents die from cancer and still living around cancer, I would not swap my diabetes for it at all. Personally, I think to lump the two together is little short of ridiculous. Yes diabetes is a major illness but not remotely as life threatening as cancer.

I have lived with diabetes for 30 years without understanding it until November 2009, when I was lucky enough to be invited onto a DAFNE course. My control for those 30 years has been at best up and down. I have lost count of the times, I was told to improve my control by some well meaning person but the truth is I didn't know how.

You are fortunate in that you have a choice. You have been given the tools during your course to allow you to control your illness. You can grasp those tools and live a healthy lifestyle or you can ignore them and live life to the full for how long? With diabetes you may eventually lose a limb or your eyesight, god forbid, with cancer you wont, very often, get away with your life.

Diabetes is tough but it doesn't have to be life threatening does it?

You are in control of your situation my friend.
 
Feb 12, 2010
Paul G Wales 8 posts

Topic: General Discussion / Ratios tryed them all

hi john i think ou are right ! i was on 52 BI and a 3:5 ratio before dafne (of my own concoction) so i will laugh if i end up back there < my bloods were better this morning so today will be a good test of the BI and my Ratio thanks for the advice... Paul
 
Feb 12, 2010
John Roscoe 14 posts

Topic: General Discussion / Ratios tryed them all

Paul, Thanks for sharing your diary I do think the key to your high blood sugars is related to your BI. I suggest that you continnue with splitting your BI but try to keep the injections 12 hours apart (I think that is what the general recommendation is) however the main thing is that I think you need to increase the dose possibly to 25 each time. If you do make the change make sure you test a bit more frequently just incase it does send you hypo. If you are not confident at making the increase in one step then approach it gradually. Good luck.
Cheers
John
 
Feb 12, 2010
Simon 578 posts

Topic: General Discussion / Is life expectancy limited for diabetics?

Hi Mike,

I'd add to Peter's comments too - you mention that a radio show stated that most diabetics die from the complications. I know when I was diagnosed a large proportion of diabetics (90%+ I think) were Type 2, and Type 1s were definitely in the minority. Type 2 diabetes is often diagnosed as a result of finding complications, which means they are already there and affecting the person, e.g. neuropathy, retinopathy, heart problems etc., whereas people with Type 1 are diagnosed with the symptoms of high blood sugar (chronic thirst, tiredness, etc.). The good news there is that Type 1 people can guard against and avoid the complications by keeping their blood sugars under control - something DAFNE definitely helps with.

I guess the bottom line here is don't worry too much - the media seems to lump all people with diabetes together which is simply not fair - we are all different, with different types, different regimes, complications and lifestyles. If you take care of yourself and look after your blood sugars you should live a long, happy and complication free life.

Simon
 
Feb 11, 2010
Mike Dagley 12 posts

Topic: General Discussion / Is life expectancy limited for diabetics?

Thanks Peter,
It is reassuring to hear that. I am a worrier despite being an optimist - some combination! Sounds like you are doing well with your long experience. How long since you took up DAFNE? Did you notice a difference? I think I am too new to really spot the difference although I appreciate the scrutiny that DAFNE offers.
 
Feb 11, 2010
Peter 109 posts

Topic: General Discussion / Is life expectancy limited for diabetics?

Mike,
Diabetes UK award a medal to all diabetics reaching the milestone of living with the condition for 50 years. The number of medals they award has increased significantly over the years showing the benefits of better insulin regimes, blood glucose control etc. and over the last 10 years, DAFNE. In my case I have just over 6 years until I'm due for the Diabetes UK medal, so I would suggest that you shouldn't be worrying yet and following DAFNE will definitely reduce the risk of complications occurring for you.
 
Feb 11, 2010
Mike Dagley 12 posts

Topic: General Discussion / Is life expectancy limited for diabetics?

Hi there,
I am a new DAFNE graduate from course 23 in Manchester. I have been diagnosed type 1 just under a year and must say that it has gone pretty well. I have had great help from the hospital team. I am learning all the time and want to make the most of the online help. Being new to this I am unsure of quite a lot of things. Though I have had good advice - from what I can make out - some of what I have been told by non-expert medics has occasionally been contradictory. Nothing serious though. Anyway, my question is perhaps a bit morbid - and I am not sure how to ask it really. Do diabetics have a reduced life expectancy? I hate asking it as it seems a negative thing to dwell on. But now I am diabetic 11 months I am starting to get used to it and to reflect on what is happening to me. I am a natural optimist so like to think bad things cannot happen to me. That's a laugh. I have had a very positive approach since diagnosis as I have been previously blessed with good health and so wanted to tackle my new condition with good humour and a positive approach. I love being active and have felt confident about keeping fit and active for the rest of my life. However the wind was taken out of sails a bit when half-listening to a recent Radio 4 programme on cancer. One person compared cancer to diabetes and seemed to be saying something on the lines of " diabetics usually die of complications linked to their condition". This is a likely misquote but it dipped my mood somewhat. I want to believe that my health is not overly compromised by diabetes as long as I am prepared to work hard at controlling my BGs and exercising and eating well etc. This radio quote just worried me into thinking that whatever I do that I am 'doomed' by this condition sooner or later. Of course we all have to die of something - but short of an accident or something is that the way it is likely to go for a diabetic. Apologies for the question but does any positive evidence exist out there? Promise not to be so low energy next time. Cheers MD
 
Feb 11, 2010
Karl 83 posts

Topic: General Discussion / Ratios tryed them all

Can you share with me also
 
Feb 11, 2010
Paul G Wales 8 posts

Topic: General Discussion / Ratios tryed them all

thanks John ive shared my diary with you , thanks for your reply ,before i went on the Dafne i had my own Dafne ideas that id been living on i thought i was on 3 0r 3.5 ration and my background was 52 units lanctus my hba1c was 8 .5 but that was after great summer working away in Ibiza , so im guessing it would have been lower , HCP at Dafne asked me to cut my BI and started me at 1:1 and worked up but nothing touched the BG
im now trying 3.5 :1 ive split my back ground now as well , i realised after dafne i am insulin resistant for sure LOL . ill stick with it anfd keep trying , thansk again P
 
Feb 11, 2010
John Roscoe 14 posts

Topic: General Discussion / Ratios tryed them all

Hi Paul,
It is difficult to actually work out what's going on looking at the figures because the CP values BG, and times don't seem to relate maybe it is just the way I am reading them. However have you thought about increasing your BI?
Cheers
John
 
Feb 11, 2010
john day 54 posts

Topic: Site Development / Online BG Diaries

Hello All.. a bit slow to resp.sond on this one as pc is dead so here today courtesy of the locla library!

After some thought, my choice has changed to be for the auto calculation using he CP and QA values (excluding correction doses!) . This would enable a quick visual check that the mental calculation at mealtime had been correct & consistent. Any entry values could also be amended subsequently if entered incorrectly. This approach would also be a little quicker then drop down method.

Having said that, the 'last used' approach was my next selection so let's see how it goes... certainly better than entering oneself!

Thanks for the mods, john




 
Feb 11, 2010
tsavage1990 11 posts

Topic: General Discussion / First illness since dafne

what's really strange is ive only had two hi levels and most of the time my body's decided it doesnt want to follow the rules and keep going hypo. still though, DAFNE's helping. thanks for your support Smile x
 
Feb 11, 2010
AmandaWalker 1 post

Topic: General Discussion / Restaurants with carbohydrate info

Hello, I am new to DAFNE a recent graduate and during the course I did a bit of investigation in to this subject. Cafe rouge has loads of info inc carb values so do McD's and KFC if you like that sort of thing. Zizzi is good too for info.
We had a discussion and someone suggested that if you were going out you could look up the restaurant website and have a few ideas of what you might want to eat to get the carb values. Good in essence but not an exact science as individual restaurants, even chains can't give exactly the same size portions.
All info like this is a great help but if you can judge by eye roughly what you are eating it is probably a good habit to get in to.
Also I was in Pret the other day and managed to get in to thier website on my blackberry to look up the carb value of my sandwich.
 
Feb 11, 2010
Paul G Wales 8 posts

Topic: General Discussion / Ratios tryed them all


05/02 Time 23:03 [23:03] first time on 2.5 teatime
CP 10
BG 14.9
QA 22+4
BI 40
Ratio (QA:CP) 2.5
Type DINNR
Sat
06/02 Time 11:42 18:22 23:19 [11:42] first time on 2.5 -AM
CP 5.5 9 -
BG 8.6 13.7 15.7
QA 14+1 22+2 -
BI - 40 -
Ratio (QA:CP) 2.5 2.5 -
Type BFAST DINNR BED
Sun
07/02 Time 10:30 18:41 23:05 [10:30] firstime on x3
CP 5 5 -
BG 13.1 12.0 14.8
QA 15+2 15+2 -
BI 0 40 -
Ratio (QA:CP) 3 3 -
Type BFAST DINNR OTHER
Mon
08/02 Time 10:30 19:05 23:13 [23:13] had enough of this LOL
CP 5 4 -
BG 10.0 11.0 16.1
QA 15+1 12+2 8
BI 0 40 -
Ratio (QA:CP) 3 3 -
Type BFAST DINNR BED
Tue
09/02 Time 01:03 09:37 12:42 13:33 18:44 23:59 [09:37] yippee but still not a pattern
[18:44] split lanctus to see if any different
CP - 5 0 4 4 -
BG 14.6 5.4 14.6 12.9 12.6 15.4
QA - 15 0 12+2 10+2 6
BI - - 0 0 20 -
Ratio (QA:CP) - 3 - 3 3 -
Type OTHER BFAST OTHER LUNCH DINNR OTHER
Wed
10/02 Time 10:05 12:20 17:22 19:19 23:59 [23:59] maybe i need an insulin Tanker??
CP 5 4 0 7 -
BG 9.7 14.6 12.6 14.0 12.0
QA 15+1 12+3 - 24+2 -
BI 20 0 - 20 -
Ratio (QA:CP) 3 3 3 3.5 -
Type BFAST DINNR OTHER DINNR BED
 
Feb 10, 2010
laurals11 11 posts

Topic: General Discussion / Diaries

I print inside pages from here

http://www.diabetes-support.org.uk/info/?page_id=122

not exactly DAFNE terms CHO not CP, Basal & Bolus not QA & BI
made my own cover using Dafne logo
Laura
 
Feb 10, 2010
marke 681 posts

Topic: Questions for HCPs / Hypo recognition.

Clare,
Thanks from me too for clarifying the issue. Its good to have input from HCP's as well as us 'diabetics'. Hopefully all our users appreciate that HCP's are all very busy people and its a great help when we get their input.
 
Feb 10, 2010
marke 681 posts

Topic: Carbohydrate Counting / Carb Links section added

Just wanted to let you know that we have added a new section to the 'Carb Counter' area called Carb Links. It is a list of websites that contain carbohydrate information. Users can add their own entries as and when they find sites that provide good information. Over time hopefully we we build up a comprehensive list of sites that will be a useful reference for carb info on the net.
 
Feb 10, 2010
marke 681 posts

Topic: General Discussion / Restaurants with carbohydrate info

Hi,
I have now added a new section to the carb counting area called carb links. The idea is we can all add entries for sites we find that provide carb info. Over time hopefully we will buiild up a comprehensive list of sites that provide this information so that we can all benefit.
 
Feb 10, 2010
Debs Ledger 9 posts

Topic: General Discussion / Exercise and high BG

Hi,

I had this problem on Sunday! I have started to excercise for the first time since I was diagnosed (almost 5yrs ago). I woke up on a 9.9, a bit high I know, then went swimming & did 20 lengths, I started to feel a little unwell so got out & tested & I was 20.0, when I got home I tested for keytones & was ++......not good! I hadn't eaten before the swim so didn't have any insulin. I had my breakfast & had extra to bring my levels down! I am now worried about how I am going to manage this as I am very sensitive to insulin & if I inject before I know I will have a hypo but I don't want to end up that high again.

Debs x
 
Feb 10, 2010
qprfcmark 3 posts

Topic: General Discussion / Lantus Lasting 24 hours?

Thanks Sam & Karen for your experiences/advice. I'm talking to the Diabetic Nurse who ran DAFNE in Bedford so will keep you informed of outcome. Anyone with any other experiences regarding this please leave a message. Regards Mark.
 
Feb 10, 2010
Karen Westwood 38 posts

Topic: General Discussion / First illness since dafne

Poor you! Don't forget to use your sick day rules and hopefully you will be feeling much better soon.

Take care

Karen
x
 
Feb 10, 2010
Karen Westwood 38 posts

Topic: General Discussion / Lantus Lasting 24 hours?

Hi Mark,

Pre DAFNE I was taking one injection of lantus in the evening and due to similar problems that you are having I decided to split my lantus to morning and evening and this seems to have done the trick.

Good luck in getting yourself sorted out.

Karen
x
 
Feb 10, 2010
vic demain 87 posts

Topic: Questions for HCPs / Hypo recognition.

Clare,

Thanks for the information and help. Results have been better - not so many low's - but the occasional double figure reading which is a worry. Difficult to run at the top end of guideline as I always seem to fall within the blue or red zones. Happy to share my diary if it will help. Possibly the more worrying matter for me, was the signals of hypo when 8-9 only for a hypo to come on an hour later.

Great to get help from the HCP's, keep up the good work.

Regards, Vic.