Recent Posts - DAFNE Online

Jul 3, 2012

DianeW 115 posts

Topic: General Discussion / macular edema

Hi, yes I've had an injection in the eye a few years ago and believe me, the thought of it is far worse than the actual injection. I was terrified but I honestly didn't feel a thing and I don't think I really suffered much pain etc afterwards. In my case they anaesthetise the eye with drops, put something on the eye to hold it open, I was sat in a normal chair, head back and it was done. The worst bit as I said is thinking about it, all I could do was imagine the needle coming for me but it's so quick and you just have to think about something else! But as I said honestly it was painless. Good luck!

Jul 2, 2012

John H 20 posts

Topic: General Discussion / Weight loss ?

Hello to you all, just a question to tap in to your knowledge and experience since doing DAFNE.
Has anybody suffered from mass weight loss? My wife states that I look like a toast rack. Although I continue to eat fairly well, and use the DAFNE routine, my physical frame seems to be fading fast!
Any ideas?

Jul 2, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Motion Sickness: Hypo cause or just symptom?

I personally don't get motion sickness, at least on land anyway, so I don't really know what to think......

I suppose i would also go with it being a symptom as you can sometimes feel sick when hypo, which could contribute....

I take it you feel OK if your behind the wheel? My wife is like that, its annoying...... Wink

Jul 1, 2012

JayBee 587 posts

Topic: General Discussion / Motion Sickness: Hypo cause or just symptom?

I haven't had a repeat today of a late lunch hypo. How strange. Maybe it was a hypo caused by motion sickness? Sad

Jul 1, 2012

krf 10 posts

Topic: General Discussion / macular edema

Hi there,
Has anyone out there had the injection into the eye for this condition. I was told last week that I need it and the thought of it is turning my stomach! If anyone has experienced this can you let me know what it is like.. The unknown is my biggest fear!

Cheers

Jul 1, 2012

sammyjack 4 posts

Topic: General Discussion / nightshift

I was very lucky that I had the option of changing and two very good bosses who were on side. I've seen the latest pump and although small and wireless etc, I can't get over the idea if having something attached to me.

Jul 1, 2012

Phil Maskell 194 posts

Topic: General Discussion / carb free foods

Hi,

Useful to know about nuts as low carb snack, I quite like wasabi peas too, a few good handfuls (or more Very Happy

) will raise my BG by about 2ish, never measure how many I eat though so not very scientific. May try brasil nuts instead.

Phil

Jul 1, 2012

thebatoutofhull 60 posts

Topic: General Discussion / carb free foods

novorapidboi26 said:
Nuts do have carbs, but because they are too slow for the quick acting insulin you don't need to consider them, however common sense should be used, if your having more than a handful you may want to consider a unit or two....

Whole bag 100grms of peanuts = 10 grms carbs. Pecans are not too bad and brasil nuts are much less. As a veggi I eat a fair few nuts. Brasil nuts crush easily and mixed with grated cheese can be used as a topping for a hotpot type dish.

Jul 1, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / nightshift

I think if you really have no choice about work/careers where night shift is needed and rotating shift are also needed then that would be a good time to ask about a pump as this would be the only thing that could help.......although when would you get the time to do all the testing and basal adjustment at the beginning.....?

Jul 1, 2012

sammyjack 4 posts

Topic: General Discussion / nightshift

I'm so pleased I found this thread! My dr took me off nights for that very reason, I did 2 days 2 nights then rest days and he said it was too many changes too quickly for my control to be good! One benefit of being type 1 I guess!

Jul 1, 2012

sammyjack 4 posts

Topic: General Discussion / nightshift

I'm so pleased I found this thread! My dr took me off nights for that very reason, I did 2 days 2 nights then rest days and he said it was too many changes too quickly for my control to be good! One benefit of being type 1 I guess!

Jul 1, 2012

JayBee 587 posts

Topic: General Discussion / Motion Sickness: Hypo cause or just symptom?

I spent a lot of yesterday suffering with motion sickness. My BGs went as you can see above. I don't usually drop in BG like I did then; I was genuinely surprised by the hypo's appearance but I've had hypos before when motion sick.

Considering I felt sick long before the hypo, it's got me wondering... Have you ever found a hypo to be caused by motion sickness?
I have had spells of it in the past but I'm not convinced that motion sickness is a cause, I think it's just a symptom of the hypo. Considering the effects sickness can have on BG though, it's got me wondering.

What do you think? Symptom or cause? Have you noticed an effect yourself?
If someone can provide a definite answer, I'd be mighty grateful. Smile

Edit: Sorry, just to add. I had no other symptoms with that hypo. Just the sickness. What fun. Sad

Jun 30, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / carb free foods

Nuts do have carbs, but because they are too slow for the quick acting insulin you don't need to consider them, however common sense should be used, if your having more than a handful you may want to consider a unit or two....

Jun 30, 2012

Phil Maskell 194 posts

Topic: General Discussion / carb free foods

tilly1 said:
According to Dafne, veggies (except potatoes), meat and nuts count as carb free. Christina

I would be careful, I reckon nuts have quite a few carbs

Jun 29, 2012

JayBee 587 posts

Topic: General Discussion / Targets

No problem. Smile

Jun 29, 2012

Alan M. 3 posts

Topic: DAFNE Online Mobile / Iphone App Suggestion

Hi,

Wasnt sure if I should have posted this in another topic but all the design suggestions appear to be for the mobile site rather than the app so apologies if this is on the wrong place!

One thing I would quit like to see is if you tilt your iphone on its side the app adjusts to be viewed that way. More specifically it would be great that when you did this the lay out changed to the same structure as the paper version of the diary (the times running along the top instead of down the side).
I feel that paper diary layout is the best for reviewing and comparing previouse days' blood results for making dosage adjustments. I know you can view your data this way by creating a report on the site but it would be a really handy option on the actual app.

Hope that makes sense!
Alan Very Happy

Jun 29, 2012

tilly1 3 posts

Topic: General Discussion / Hypos

I also suffer from hypo unawareness, I now test if I'm tired for no reason and usually I'm low, when I'm really low it takes up to an hour to feel normal again. I've been told if I keep my blood glucose levels higher (but within range) i should reset my body after a few months so I'll get a warning when I drop to say 4.0 instead of 1.1! If I'm out and not in a position to test I eat 1 - 2 cps just to make sure I don't pass out. I also test before driving if it's a few hours since eating. Tilly

Jun 29, 2012

tilly1 3 posts

Topic: General Discussion / Hypos

Yes you ca split Lantus, they now say that Lantus doesn't last 24 hours so is better in two doses according to daphne educators although my endo didn't see the point of splitting as it runs out at dinner time and my QA with dinner will hold me until I inject at 9.30. Whilst he is a supporter of Dafne he hasn't kept up to date with it. Splitting it is a real hassle though if you travel overseas.

Jun 29, 2012

tilly1 3 posts

Topic: General Discussion / carb free foods

According to Dafne, veggies (except potatoes), meat and nuts count as carb free. Christina

Jun 29, 2012

marke 686 posts

Topic: General Discussion / Any help please?

Hi Jackie, sorry for the delayed reply. When I say you are sensitive to insulin I mean your ratio is 0.5:1 where as a lot of people are 2:1 or sometime 3:1 in the mornings. This is typical, as I understand it, in the newly diagnosed because they are still producing 'some' insulin as the last of the islet cells bite the bullet. Do I feel 'normal' ? pretty much, but I am lucky in that I never seem to suffer adverse reactions to any drug. I've had a few over the last 10 years since my immune system went nuts and have not had a problem with anything. I was diagnosed at 34 and like you was probably told you were 'odd' for not developing Diabetes until that age. It IS possible you are reacting to the insulin you are on, its unusual but that doesn't mean its not possible.
With regards to the OPA, I ALWAYS see a consultant and a very good one he is to ! If your GP/registrar don't think its the insulin then they should investigate further not just dismiss your explination without providing an alternative explination.
As we said before if you can fill in the blanks in your diary it will help a lot. To pick up a pattern you need all the data Smile

it sounds like you have all the data it just needs adding in.

Jun 29, 2012

RuthW 5 posts

Topic: General Discussion / Pump life advice!

thanks for this Paul, had a quick look and it seems to be a great source of info about how to live with a pump - there is an article about how to simulate wearing a pump that caught my eye, a great idea! thanks, R

Jun 29, 2012

Paul Coker 1 post

Topic: General Discussion / Pump life advice!

RuthW said:
Hello, for the past 4-5 years my BG levels have been impossible to control, i am now on DAFNE and while that helps me to manage itm, it doesnt stop it in the first place. after being on continous BG monitoring the consultant at the hospital is recomending that i may need to transfer to the pump rather than keep going with injections. i have done a bit of research and am happy with the idea of this but would really like some info on what life is like with the pump. the consultant can tell me how it works etc but itd be really nice to have some actual feedback on how people work it into their life, eg does the pump effect anything like sleep position? or exercising? wearing tight clothes? on a crowded tube with people pushed up against you knocking you with their bags?
i know the benefits etc but as i don't know anyone with one any feedback would be good!
thanks
Ruth

Ruth

Please check this site it is a fantastic resource for people using an insulin pump http://www.insulin-pumpers.org.uk

Most people on the site are pump users with a wealth of knowledge, experience and a desire to help each other.

Paul

Jun 28, 2012

Podarcis 14 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

Yes, I agree with Novorapid that you should do both, Simon, and it is not too much extra work. Both calculation methods require the storing of the same data: band limits and a QA:BG ratio for each band, and that data can be used differently depending on the calculation method the user chooses to apply.

All you need is to have one additional radio button question, to allow the user to choose which calculation method he wants: "Apply your banded QA:BG corrective ratios to (1) the whole difference between BG and target; or (2) each band separately to accumulate a total." An if then else block can apply the user's chosen calculation method.

No doubt this question will need some help message to explain what is meant. Something like this, perhaps: "If you choose to apply the QA:BG corrective ratio to the whole difference, the corrective QA adjustment will be the difference between your actual BG and your target BG mutiplied by the QA:BG ratio of the band in which your actual BG falls. If you choose to apply the QA:BG corrective ratio to each band separately and accumulate a total, the corrective QA adjustment will be calculated in the same way if it is in the lowest band but differently if it is not in the lowest band. If it is in a higher band then the corrective QA adjustment will be the difference between your actual BG and the lower limit of the band in which it falls times the QA:BG ratio of that band, plus the sum of the BG adjustment needed in all lower bands times the QA:BG of each band, and this accumulated value will be your QA adjustment."

You should probably choose (1) as the default, because that is how anyone using the bands currently will already be doing it, as Novorapid demonstrates. But I would change my app settings to choose to use method (2), because I think that method (1) is unsound due to the discontinuity problem I have described.

Jul 3, 2012 DianeW 115 posts	Topic: General Discussion / macular edema Hi, yes I've had an injection in the eye a few years ago and believe me, the thought of it is far worse than the actual injection. I was terrified but I honestly didn't feel a thing and I don't think I really suffered much pain etc afterwards. In my case they anaesthetise the eye with drops, put something on the eye to hold it open, I was sat in a normal chair, head back and it was done. The worst bit as I said is thinking about it, all I could do was imagine the needle coming for me but it's so quick and you just have to think about something else! But as I said honestly it was painless. Good luck!

Jul 2, 2012 John H 20 posts	Topic: General Discussion / Weight loss ? Hello to you all, just a question to tap in to your knowledge and experience since doing DAFNE. Has anybody suffered from mass weight loss? My wife states that I look like a toast rack. Although I continue to eat fairly well, and use the DAFNE routine, my physical frame seems to be fading fast! Any ideas?

Jul 2, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Motion Sickness: Hypo cause or just symptom? I personally don't get motion sickness, at least on land anyway, so I don't really know what to think...... I suppose i would also go with it being a symptom as you can sometimes feel sick when hypo, which could contribute.... I take it you feel OK if your behind the wheel? My wife is like that, its annoying......

Jul 1, 2012 JayBee 587 posts	Topic: General Discussion / Motion Sickness: Hypo cause or just symptom? I haven't had a repeat today of a late lunch hypo. How strange. Maybe it was a hypo caused by motion sickness?

Jul 1, 2012 krf 10 posts	Topic: General Discussion / macular edema Hi there, Has anyone out there had the injection into the eye for this condition. I was told last week that I need it and the thought of it is turning my stomach! If anyone has experienced this can you let me know what it is like.. The unknown is my biggest fear! Cheers

Jul 1, 2012 sammyjack 4 posts	Topic: General Discussion / nightshift I was very lucky that I had the option of changing and two very good bosses who were on side. I've seen the latest pump and although small and wireless etc, I can't get over the idea if having something attached to me.

Jul 1, 2012 Phil Maskell 194 posts	Topic: General Discussion / carb free foods Hi, Useful to know about nuts as low carb snack, I quite like wasabi peas too, a few good handfuls (or more ) will raise my BG by about 2ish, never measure how many I eat though so not very scientific. May try brasil nuts instead. Phil

Jul 1, 2012 thebatoutofhull 60 posts	Topic: General Discussion / carb free foods novorapidboi26 said: Nuts do have carbs, but because they are too slow for the quick acting insulin you don't need to consider them, however common sense should be used, if your having more than a handful you may want to consider a unit or two.... Whole bag 100grms of peanuts = 10 grms carbs. Pecans are not too bad and brasil nuts are much less. As a veggi I eat a fair few nuts. Brasil nuts crush easily and mixed with grated cheese can be used as a topping for a hotpot type dish.

Jul 1, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / nightshift I think if you really have no choice about work/careers where night shift is needed and rotating shift are also needed then that would be a good time to ask about a pump as this would be the only thing that could help.......although when would you get the time to do all the testing and basal adjustment at the beginning.....?

Jul 1, 2012 sammyjack 4 posts	Topic: General Discussion / nightshift I'm so pleased I found this thread! My dr took me off nights for that very reason, I did 2 days 2 nights then rest days and he said it was too many changes too quickly for my control to be good! One benefit of being type 1 I guess!

Jul 1, 2012 sammyjack 4 posts	Topic: General Discussion / nightshift I'm so pleased I found this thread! My dr took me off nights for that very reason, I did 2 days 2 nights then rest days and he said it was too many changes too quickly for my control to be good! One benefit of being type 1 I guess!

Jul 1, 2012 JayBee 587 posts	Topic: General Discussion / Motion Sickness: Hypo cause or just symptom? I spent a lot of yesterday suffering with motion sickness. My BGs went as you can see above. I don't usually drop in BG like I did then; I was genuinely surprised by the hypo's appearance but I've had hypos before when motion sick. Considering I felt sick long before the hypo, it's got me wondering... Have you ever found a hypo to be caused by motion sickness? I have had spells of it in the past but I'm not convinced that motion sickness is a cause, I think it's just a symptom of the hypo. Considering the effects sickness can have on BG though, it's got me wondering. What do you think? Symptom or cause? Have you noticed an effect yourself? If someone can provide a definite answer, I'd be mighty grateful. Edit: Sorry, just to add. I had no other symptoms with that hypo. Just the sickness. What fun.

Jun 30, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / carb free foods Nuts do have carbs, but because they are too slow for the quick acting insulin you don't need to consider them, however common sense should be used, if your having more than a handful you may want to consider a unit or two....

Jun 30, 2012 Phil Maskell 194 posts	Topic: General Discussion / carb free foods tilly1 said: According to Dafne, veggies (except potatoes), meat and nuts count as carb free. Christina I would be careful, I reckon nuts have quite a few carbs

Jun 29, 2012 JayBee 587 posts	Topic: General Discussion / Targets No problem.

Jun 29, 2012 Alan M. 3 posts	Topic: DAFNE Online Mobile / Iphone App Suggestion Hi, Wasnt sure if I should have posted this in another topic but all the design suggestions appear to be for the mobile site rather than the app so apologies if this is on the wrong place! One thing I would quit like to see is if you tilt your iphone on its side the app adjusts to be viewed that way. More specifically it would be great that when you did this the lay out changed to the same structure as the paper version of the diary (the times running along the top instead of down the side). I feel that paper diary layout is the best for reviewing and comparing previouse days' blood results for making dosage adjustments. I know you can view your data this way by creating a report on the site but it would be a really handy option on the actual app. Hope that makes sense! Alan

Jun 29, 2012 tilly1 3 posts	Topic: General Discussion / Hypos I also suffer from hypo unawareness, I now test if I'm tired for no reason and usually I'm low, when I'm really low it takes up to an hour to feel normal again. I've been told if I keep my blood glucose levels higher (but within range) i should reset my body after a few months so I'll get a warning when I drop to say 4.0 instead of 1.1! If I'm out and not in a position to test I eat 1 - 2 cps just to make sure I don't pass out. I also test before driving if it's a few hours since eating. Tilly

Jun 29, 2012 tilly1 3 posts	Topic: General Discussion / Hypos Yes you ca split Lantus, they now say that Lantus doesn't last 24 hours so is better in two doses according to daphne educators although my endo didn't see the point of splitting as it runs out at dinner time and my QA with dinner will hold me until I inject at 9.30. Whilst he is a supporter of Dafne he hasn't kept up to date with it. Splitting it is a real hassle though if you travel overseas.

Jun 29, 2012 tilly1 3 posts	Topic: General Discussion / carb free foods According to Dafne, veggies (except potatoes), meat and nuts count as carb free. Christina

Jun 29, 2012 marke 686 posts	Topic: General Discussion / Any help please? Hi Jackie, sorry for the delayed reply. When I say you are sensitive to insulin I mean your ratio is 0.5:1 where as a lot of people are 2:1 or sometime 3:1 in the mornings. This is typical, as I understand it, in the newly diagnosed because they are still producing 'some' insulin as the last of the islet cells bite the bullet. Do I feel 'normal' ? pretty much, but I am lucky in that I never seem to suffer adverse reactions to any drug. I've had a few over the last 10 years since my immune system went nuts and have not had a problem with anything. I was diagnosed at 34 and like you was probably told you were 'odd' for not developing Diabetes until that age. It IS possible you are reacting to the insulin you are on, its unusual but that doesn't mean its not possible. With regards to the OPA, I ALWAYS see a consultant and a very good one he is to ! If your GP/registrar don't think its the insulin then they should investigate further not just dismiss your explination without providing an alternative explination. As we said before if you can fill in the blanks in your diary it will help a lot. To pick up a pattern you need all the data it sounds like you have all the data it just needs adding in.

Jun 29, 2012 RuthW 5 posts	Topic: General Discussion / Pump life advice! thanks for this Paul, had a quick look and it seems to be a great source of info about how to live with a pump - there is an article about how to simulate wearing a pump that caught my eye, a great idea! thanks, R

Jun 29, 2012 Paul Coker 1 post	Topic: General Discussion / Pump life advice! RuthW said: Hello, for the past 4-5 years my BG levels have been impossible to control, i am now on DAFNE and while that helps me to manage itm, it doesnt stop it in the first place. after being on continous BG monitoring the consultant at the hospital is recomending that i may need to transfer to the pump rather than keep going with injections. i have done a bit of research and am happy with the idea of this but would really like some info on what life is like with the pump. the consultant can tell me how it works etc but itd be really nice to have some actual feedback on how people work it into their life, eg does the pump effect anything like sleep position? or exercising? wearing tight clothes? on a crowded tube with people pushed up against you knocking you with their bags? i know the benefits etc but as i don't know anyone with one any feedback would be good! thanks Ruth Ruth Please check this site it is a fantastic resource for people using an insulin pump http://www.insulin-pumpers.org.uk Most people on the site are pump users with a wealth of knowledge, experience and a desire to help each other. Paul

Jun 28, 2012 Podarcis 14 posts	Topic: Site Development / Auto calculate QA from BG - let's get it right Yes, I agree with Novorapid that you should do both, Simon, and it is not too much extra work. Both calculation methods require the storing of the same data: band limits and a QA:BG ratio for each band, and that data can be used differently depending on the calculation method the user chooses to apply. All you need is to have one additional radio button question, to allow the user to choose which calculation method he wants: "Apply your banded QA:BG corrective ratios to (1) the whole difference between BG and target; or (2) each band separately to accumulate a total." An if then else block can apply the user's chosen calculation method. No doubt this question will need some help message to explain what is meant. Something like this, perhaps: "If you choose to apply the QA:BG corrective ratio to the whole difference, the corrective QA adjustment will be the difference between your actual BG and your target BG mutiplied by the QA:BG ratio of the band in which your actual BG falls. If you choose to apply the QA:BG corrective ratio to each band separately and accumulate a total, the corrective QA adjustment will be calculated in the same way if it is in the lowest band but differently if it is not in the lowest band. If it is in a higher band then the corrective QA adjustment will be the difference between your actual BG and the lower limit of the band in which it falls times the QA:BG ratio of that band, plus the sum of the BG adjustment needed in all lower bands times the QA:BG of each band, and this accumulated value will be your QA adjustment." You should probably choose (1) as the default, because that is how anyone using the bands currently will already be doing it, as Novorapid demonstrates. But I would change my app settings to choose to use method (2), because I think that method (1) is unsound due to the discontinuity problem I have described.