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Jun 29, 2012
marke 681 posts

Topic: General Discussion / Any help please?

Hi Jackie, sorry for the delayed reply. When I say you are sensitive to insulin I mean your ratio is 0.5:1 where as a lot of people are 2:1 or sometime 3:1 in the mornings. This is typical, as I understand it, in the newly diagnosed because they are still producing 'some' insulin as the last of the islet cells bite the bullet. Do I feel 'normal' ? pretty much, but I am lucky in that I never seem to suffer adverse reactions to any drug. I've had a few over the last 10 years since my immune system went nuts and have not had a problem with anything. I was diagnosed at 34 and like you was probably told you were 'odd' for not developing Diabetes until that age. It IS possible you are reacting to the insulin you are on, its unusual but that doesn't mean its not possible.
With regards to the OPA, I ALWAYS see a consultant and a very good one he is to ! If your GP/registrar don't think its the insulin then they should investigate further not just dismiss your explination without providing an alternative explination.
As we said before if you can fill in the blanks in your diary it will help a lot. To pick up a pattern you need all the data Smile it sounds like you have all the data it just needs adding in.
 
Jun 29, 2012
RuthW 5 posts

Topic: General Discussion / Pump life advice!

thanks for this Paul, had a quick look and it seems to be a great source of info about how to live with a pump - there is an article about how to simulate wearing a pump that caught my eye, a great idea! thanks, R
 
Jun 29, 2012
Paul Coker 1 post

Topic: General Discussion / Pump life advice!

RuthW said:
Hello, for the past 4-5 years my BG levels have been impossible to control, i am now on DAFNE and while that helps me to manage itm, it doesnt stop it in the first place. after being on continous BG monitoring the consultant at the hospital is recomending that i may need to transfer to the pump rather than keep going with injections. i have done a bit of research and am happy with the idea of this but would really like some info on what life is like with the pump. the consultant can tell me how it works etc but itd be really nice to have some actual feedback on how people work it into their life, eg does the pump effect anything like sleep position? or exercising? wearing tight clothes? on a crowded tube with people pushed up against you knocking you with their bags?
i know the benefits etc but as i don't know anyone with one any feedback would be good!
thanks
Ruth



Ruth

Please check this site it is a fantastic resource for people using an insulin pump http://www.insulin-pumpers.org.uk

Most people on the site are pump users with a wealth of knowledge, experience and a desire to help each other.

Paul
 
Jun 28, 2012
Podarcis 14 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

Yes, I agree with Novorapid that you should do both, Simon, and it is not too much extra work. Both calculation methods require the storing of the same data: band limits and a QA:BG ratio for each band, and that data can be used differently depending on the calculation method the user chooses to apply.

All you need is to have one additional radio button question, to allow the user to choose which calculation method he wants: "Apply your banded QA:BG corrective ratios to (1) the whole difference between BG and target; or (2) each band separately to accumulate a total." An if then else block can apply the user's chosen calculation method.

No doubt this question will need some help message to explain what is meant. Something like this, perhaps: "If you choose to apply the QA:BG corrective ratio to the whole difference, the corrective QA adjustment will be the difference between your actual BG and your target BG mutiplied by the QA:BG ratio of the band in which your actual BG falls. If you choose to apply the QA:BG corrective ratio to each band separately and accumulate a total, the corrective QA adjustment will be calculated in the same way if it is in the lowest band but differently if it is not in the lowest band. If it is in a higher band then the corrective QA adjustment will be the difference between your actual BG and the lower limit of the band in which it falls times the QA:BG ratio of that band, plus the sum of the BG adjustment needed in all lower bands times the QA:BG of each band, and this accumulated value will be your QA adjustment."

You should probably choose (1) as the default, because that is how anyone using the bands currently will already be doing it, as Novorapid demonstrates. But I would change my app settings to choose to use method (2), because I think that method (1) is unsound due to the discontinuity problem I have described.
 
Jun 28, 2012
jax8008 5 posts

Topic: General Discussion / Any help please?

Hi RichFeed

Thanks for your reply and comments, the most particular one that interested me was you saying how you felt when you transferred onto Novorapid. I had wondered if it was possibly the insulin that was making me feel 'not right' and it was something that I mentioned to my GP, who said that he didn't think that it was. It is something that I am going to mention when I go back to see the Consultant in 3 months time. That and I am going to try having a carb free day (here come the veggies and sugar free jelly!!) to see if I notice any difference there as I will not have any rapid acting insulin.

Thank you Garry too and I am aiming to keep a much more rigid entry on Dafne so that I can get a clearer picture......I've done it in the past but it doesn't show anything clear to be able to change, in that there was no set pattern to having hypos.

Many thanks again for your comments they have really helped.

Jackie Smile
 
Jun 28, 2012
novorapidboi26 1,819 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

I was actually under the impression that it was only me who used such a method of correction...........

Do others use it?

To come to these corrective ratios I, made sure my BI and QA were right, then recorded how much my correction dropped me when at different levels......so using the standard between 2-3mmol/l for every 1 unit.........

So for me being at 17.2 would require the most insulin, if I go by the observations I made.........

So it all depends on what each individual observes when testing I suppose.....that's how I have arrived at these values.....

There would be know evidence that i possess that would suggest that my resistance would change at the same rate as my blood sugar returned to normal........its a fine line being 16.9 and taking 7.6 units and being 17.1 and taking 11.6 I agree, but for me so far it has worked....

So my final word would be that people need to test and record to see how the behave......

Implementing my method would be easier from an equation point of view I would imagine, so if your can be done, surely both can be put in place.....?

Sorry Simon for suggesting you should do both...... Sad

 
Jun 28, 2012
Garry 328 posts

Topic: General Discussion / Any help please?

If you make an error entering data into your diary it is very easy to edit an entry.
Hover the cursor over the time of the entry you want to change and it will underline...click it and you are in edit mode.

Note from the bottom of the diary page: -

To edit or delete an entry, click on the time for that entry. You can now delete more than one entry at a time by selecting the checkbox to the left of each entry's time and clicking the button above.

Hope this helps you add in the additional data for your record keeping.

Regards
Garry
 
Jun 28, 2012
Simon 578 posts

Topic: Site Development / Auto calculate QA from BG - let's get it right

I'll go with the consensus on this one - if at the moment people use novorapidboi's method by applying one qa:BG ratio to the whole correction dependent on the current BG then I'll go with that, whereas if people use the banded method that Podacris describes then ill go with that.

The aim of this is to aid people in their own calculations, rather than forcing a new (and potentially not well understood method) on them, which could be dangerous.
 
Jun 28, 2012
Simon 578 posts

Topic: Site Development / Targets range

Yep, Alan is right... The targets set in the app and site are separate... In the future I will try and sync target settings in the app up to the site as well.
 
Jun 28, 2012
RichFreed 51 posts

Topic: General Discussion / Any help please?

Hi Jax I'm a new Grad of DAFNE and am by no means an expert. I see in you diary and by your comments that you are correcting inbetween meals. At my course we learned that this was to be avoided. Was something I was doing prior and now do not do at all, it makes it so much clearer to analyse the diary to make ratio changes. Also we were taught to record corrections as QA 'normal dose'+ or-'correction' eg 5+2 or 5-1. It's difficult to analyse otherwise.

One of the other grads on one day of the course had a truley scary high reading after breakfast, one which they (and definitely myself given the same reading), would dose up for. However they didn't (DAFNE rules) and low and behold (and almost unbelievably) Lunch time they were at the low end of the target range with no intervention.

When I became a reformed T1 last November (no testing for 18 years to speak of) the first thing they did was get me on new insulin (Levemir and Novorapid) - For the first month or 2 I did not feel at all 'right', felt weird, in a daze, dizzy sometimes, felt like I was high when I wasn't and was basically exhausted etc etc. It was obviosly a shock to body going from 18 years of Actrapid and Protophane but lukily its passed. Could this be a side effect, I don't know, I'd be talking to my specialists if it continued.

Also with the unbelievable amounts of testing I've done over the last 6months I've learned not to trust the extreme readings from the test meters eg the Accu-Chek mobile while a brilliant design and is actually the one I like to use, gives me low readings lower than actual (by as much as 1mmol - so a 3.1 is usually closer to 3.8 - 4.0 for me) and high readings higher than actual while the Optium Exceed gives me readings that are much more accurate (when they test me at hospital the Optium always agrees with their reading + or - 0.1) - The upshot of it is, if I get an extreme reading I always re-check (after rewashing my hands) and usually with the other much more accurate Optium Exceed (Freestyle Optium is it's new name).
 
Jun 27, 2012
jax8008 5 posts

Topic: General Discussion / Any help please?

Hi

I didn't take offence, I was just explaining the reasons why I'm testing so frequently......can I ask if you feel 'normal' most of the time? This is what gets me, there were only a couple of other people on the DAFNE course and none of them felt as I do so I'm just curious to know how other diabetics 'feel'.

I was diagnosed 3 and a half years ago, at the age of 46! I've carb counted from day one and quite ocd about it, also with correcting I wont correct until after the 2 hours or longer if necessary. Sorry about the erratic input, as I said earlier I didn't fill all the carbs in as I was in a bit of a rush to get the blood test results down to show at my opa. I saw the registrar today, gonna see the Consultant next time, 3 months time! Yeah I seem to need to eat little and often and feel very rubbish if I dont. When you say that I'm sensitive to insulin what do you mean by that?

I do thank you for your replies as its good to hear from someone who is also diabetic, rather than professionals who don't know everything about the day-to-day living with diabetes.
 
Jun 27, 2012
marke 681 posts

Topic: General Discussion / Any help please?

hi, sorry I didn't mean to suggest that you shouldn't test OR record the tests. Better to much than to little ! I was just pointing out they you shouldn't do something like apply a correction dose for one of these readings, that was all. Looking at your diary it seems that you are sensitve to insulin, have you been a diabetic for a while ? Have you always been this sensitve to insulin, It also seems unless you have missed out data there are a number of days where you didn't eat any carbs, is this normal ? Personally would feel pretty rubbish if I didn't eat anything but thats just me Very Happy
One last thing, if you don't see a consultant at the hospital who do you see ? I always see a consultant so I'm curious
 
Jun 27, 2012
jax8008 5 posts

Topic: General Discussion / Any help please?

Hi

Thanks for your reply and your comments. The reason that I missed the BI out is that I rushed to input info before I went to hospital.....I always have my BI around 11 at night, 9 units of Levemir. I test a lot because I'm always feeling 'not right' (am I going high or low? symptoms are very similar) so want to know why, although I do have to test before driving which is usually 6 times a day, maybe I shouldn't add them to my DAFNE ones and stick to just noting the ones prior to eating and 2 hours after, would you say that would be better? I understand that its not an exact science with food,their GI and timing of insulin injection but surely I shouldn't be feeling like I'm having diabetic warning signs for 6 hours of a waking day?

I've not long since got home after my ordeal at my OPA. My Hba1c is 46% which I thought was good but the doc says that it shows I'm running at the low end. She had no answers to what I was asking, until she walked out to get a blood form and I was in tears when she came back in......she then listened to me, basically admitting that I shouldn't be feeling like I do but has no idea why I'm feeling like it. Advised me for further blood tests and to seek further advice from Diabetic Specialist Nurse......then to see the Consultant in 3 months!! I shall have to make more of an effort to go back to making a complete and full diary of foodstuffs I'm eating exactly.

 
Jun 27, 2012
marke 681 posts

Topic: General Discussion / Any help please?

There are a few things to say aboutthese results. The most important being you don't reecord your BI insulin most of the time. This is important and it is important that you take it at around the same time every day. What type of BI is it , latus or Levemir maybe ? The second is you test an awful lot quite often with 2 hours of eating. This is not necessarily a good idea since high readings at this point could be down to the timing of your injection ( before or after food) and the GI of the food. That is why it is recommended that you test before meals generally 4 times a day. I'm not criticising you for testing so much its just that high readings can cause oyu to get stressed which will compound the high readings.
Is your reduced level of warning signs what is causing you to test so much ? If you want to help restore your warning signs you should run a bit high for a few days maybe a bit longer to help restore them.
These are just initial impressions, hopefully I and others can look at the readings in more detail and come up with some suggestions
 
Jun 27, 2012
mark1882 1 post

Topic: General Discussion / High morning readings

Hi I have had high morning reading that seem to vary wildly (11-1Cool

Cant seem to get a correlation between my night time long term Levemir + Novarapid adjustments

Anyone have similar problems

I can control the other times reasonably well as long as I'm aware of carb value of what I'm eating
 
Jun 27, 2012
jax8008 5 posts

Topic: General Discussion / Any help please?

I've attached 10 days worth of results.....I'm thorough and a bit ocd with my carb counting so I haven't added all my carb:insulin ratios. I am at a complete loss as to why I'm having all these hypos and also feeling very tired. Last night I even had a carb-free meal of 3xegg omelette with fresh tomatoes although I did have a glass of milk so had 1 unit of insulin to cover that..... my bg went from 6.4 before eating to 10.3 in 30 minutes after eating and was still 10.4 before bed and I hadn't even eaten or drank anything else.

I've actually got OPA this afternoon and its because of inputting my results that I have noticed the hypos, which the night time ones are of particular concern as I luckily woke up with them. The others I didn't get any warning signs at all until it was too late. I'm feeling really down at the minute because of it all.....I'm feeling drained all the time, my little girl is getting a bum deal as I'm constantly tired and irritable I feel like its really getting on top of me now and don't know what to do. I keep getting told by professionals that I've got good control but I still feel like poo..... Crying or Very sad

I hope someone can shed some light.

Thanks

Jackie
 
Jun 26, 2012
Margaret 2 posts

Topic: General Discussion / Pump life advice!

Thank you Helen, for sharing your experiences with us, you gave me very interesting points to think about.
 
Jun 25, 2012
Alan 49 284 posts

Topic: Site Development / Targets range

Hello Annette
I think the graphs use the DAFNE Online targets which are autoomatically set to the DAFNE recommended targets. You can amend these targets by going to the BG Diary and then scrolling down and clicking on Edit Diary Settings (or something similar to this). You can then amend whatever Target you like.

 
Jun 25, 2012
Annette Bell 72 posts

Topic: Site Development / Targets range

Hi!
I was printing off my graphs for my diabetic clinic check today and realised that the BG targets on them don't actually reflect the targets I have entered on my iPod app. My upper target is 8 at all times of the day and my lower is 4 (apart from driving) as this seems to suit me best for correctional purposes. The target bands on the graph, however, vary through the day and tend to be lower than 8. This makes my results look a lot worse than they are, when my HbA1c is 6.2. Is there a way of personalising the target bands in the graphs?
 
Jun 25, 2012
Annette Bell 72 posts

Topic: Site Development / Injection site list

JennyNZ said:
Hi there. I've just started using the on line diary, too and think its great but was going to ask the same question - being able to record 2 different injection sites. I think the graphs are great - I always thought I was great at site rotation until I started using your programme and realised how much I was favouring sites. one thing - you only have one "buttocks" could you make that "left" and "right" as well? thanks



Yes! I have been thinking exactly the same as you for some time now. There should be left & right buttocks just as there are left & right thighs etc. Also, I too use 2 different areas when giving BI & QA at the same time so 2 injection site boxes would be much better. (I enter my results on my iPod app)