Recent Posts - DAFNE Online

Nov 18, 2012

mum2westiesGill 502 posts

How often can ratios be changed?

If I was on a 1:10 or 1.5: 10.......ratio do I have to wait for 3 or 4 days before I change it again?

Gill

Nov 18, 2012

tcmonkey80 41 posts

Topic: Questions for HCPs / insulin pump

Hi, how does the insulin pump work out corrections?

Nov 18, 2012

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Thanks RichFreed, I do feel better knowing that I am doing things correctly. It feels very strange not having any injections but cant say I really miss them Smile

.
I to am not completely sure how the pump works out corrections, I will have to learn to trust the pump, I don't even trust my sat nav he he

Nov 18, 2012

RichFreed 51 posts

Topic: General Discussion / Insulin pump

Yep doing BG with no carbs will calculate the correction assuming you have all of those relevant variables set in the Bolus wizard setup.

The correction philosophy of the pump calcs don't really make sense to me to tell you the truth. When you enter a lower than target BG it will try to correct you up to the very bottom of your target range & if you are higher than your range it will try to correct down to the top of your range only. I had my range originally set to 5.7-5.7 to get around that issue but it would always warn me I was outside of my target range for any BG other than 5.7 so to compromise I changed to 5.0-5.7.

I've only ever injected/inserted the cannula into my belly, I tried the thigh once but 70units into one spot and feeling the tissue between my fingers expanding was to freaky for me I afraid.

I also purchased their CGM unit - in Australia Medtronic have a deal where you get what they call a starter pack for less that $400au (should be about Â£250 in UK)which gets you the transmitter device + 5 sensors.

Nov 18, 2012

SA2010 69 posts

Topic: General Discussion / Insulin Pens for NovoRapid & Lantus

Just came across the 'NovoPen 'Echo' whilst googling for discussions on memory lapses for taking insulin dose. Could not remember if I took my dose this morning. The echo appears to have memory of the last dose and how long ago it was so will try to get it prescribed to replace my NovoPen 3 Demi pen. The echo copes with half unit doses so should be ok for me. Anyway just thought I would share this bit of information with you all.

Whilst looking into Pens and with previous discussions on the Lantus Solostar pen accuracy of doses (it continues to release insulin after reaching zero), I came across the ClickStar pen for use with Lantus. Has anyone migrated from Solostar to ClickStar? Is it a better pen? Is it more recent ?

Nov 18, 2012

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Hi RichFreed, I have the same pump as yourself, I too always use the Bolus wizard.
So if i enter my BG then say 0 carbs the machine will work out the amount i need? so in theroy I just select ACT?
I have also noticed I am having trouble keeping my sugar levels down when my canual is in my thigh, is this something you have experienced?

Nov 18, 2012

RichFreed 51 posts

Topic: General Discussion / Insulin pump

2.5 what?

I use a Medtronic Minimedipad Paradigm I usually use the Bolus wizard which asks 2 key questions.
1. BG (optional - if I have taken a reading)
2. Grams of carbs being taken.

If I ignore question 1 it will calculate insulin with no correction. If I do answer question 1 it will calculate insulting with +|- corrections.

I was high for the first few days while figuring out the Basal Rates. I'm still struggling a little with morning highs but I'm nearly there (struggled with them prior to pumping too)

Nov 17, 2012

Gibsjoh 2 posts

Topic: General Discussion / Levemir

I have been using Novorapid and Levemir for many years, a few months ago I did my morning bg test and could not understand why it was so high, had a day of not eating a lot as bg always high, next morning same again checked Levemir pen and noticed when I removed needle cover it was wet removed the vial and twisted the top which came away in my hand checked another vial and it had a crack in it. This morning bgs high again checked Levemir vial and yes a crack looked at another one it also had a crack in the vial. That has been four faulty Levemir vials in the last six months and no problems with the NovoRapid vials. If you start getting crazy bg readings for no apparent reason check your insulin vials.

Nov 17, 2012

Leigh Gilmore 4 posts

Topic: General Discussion / Insulin Pump approval

Hi, I was recently added to the Lothian waiting list and was told to expect to wait "up to four years" as a worst case scenario, although they are hoping that funding will be increased and so I won't have to wait that long. I'm counting the days already as I too am affected by dawn phenomenon and am hating getting up for a 4am injection every day.

Nov 17, 2012

mum2westiesGill 502 posts

Topic: General Discussion / Injection sites

I inject QA humalog into my stomach in like a smiley face rotation then BI lantus into thighs sometimes left and sometimes right.

Nov 17, 2012

tcmonkey80 41 posts

Topic: General Discussion / Insulin pump

Hey, well i have been on insulin for 3 days now, and they feel like the longest 3 days of mylife.
I feel I don't completely understand the pumo, i enter all the information and the pump does it magic. Only thing I am unsure about is, if my pump says 2.5 and i have just had say 40g do i enter what the pump is telling me or do i add on the carb count?
I have felt that today I have been stupidly high on BG levels and i hadnt been this high on injections for a very long time Sad

Nov 17, 2012

tcmonkey80 41 posts

Topic: General Discussion / I did it :)

Hey Nick,

I completed DAFNE in September 2011, various appointment over the year to be told there is funding available.
I had to wait a total of 3 months from the day I had been approved.

Hope that helps? For the record though this was for a 2nd hand pump and not a brand new one, so not sure if that had made things move along quicker

Fingers crossed the wait isnt too long Smile

Nov 17, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Injection sites

could it not be that your stomch has a slower absorbtion through over use nd that your thighs and other sites are normal........
you may even be able yo reduce your dose

i cant imagine just injecting in one place, it would br a mess

Nov 17, 2012

Alan 49 284 posts

Topic: General Discussion / Injection sites

I always inject into the stomach, so (unfortunately) I have a fairly extensive area to vary the actual site. I find that when eating out, I can discreetly inject at the table, which is far more convenient than trooping off to the loo,

A couple of years ago I tried injecting my dinner-time QA dose into my thigh. My pre-bed test was OK, but I had a nighttime hypo and my wife had to sort me out. I assumed that I had mis-calculated my carbs and injected to much Humalog but I overlooked the fact that my pre-bed test ruled that out. A day or so later, I tried the thigh injection before dinner again - and again I had a nighttime hypo. There seemed to be an obvious connection, so I contacted my HCP, who told me that by injecting in the thigh, I still had some of my QA dose lurking about in my body when I went to bed, leading to the hypos later on.

Consequently, I always inject in the stomach.

Nov 17, 2012

Alan 49 284 posts

Topic: General Discussion / Petition for government funding

Why not do both?

Nov 17, 2012

vic demain 87 posts

Topic: General Discussion / Petition for government funding

Alternatively all people passionate about this idea could make an appointement to go visit their MP in one of their local clinics and raise their awareness and ask them to raise the matter in the HOC and to lobby their constituency Health Authority for support.

Nov 16, 2012

Johnnyw 3 posts

Topic: General Discussion / Whiskysmum - Dafne Diary - all comments welcomed (4)

Hi agree with victorri about BG possibly being too high, but also looks like your evening meal ratio my be a bit high, as your fast acting may well be working for 5 hours and you seem to be eating 8ish and testing 3 to 3.5 hours later at 11ish then going low later on. Love to know how you manage to drop to 2.2 and get away without getting hyper later in the day (you must be doing something right).
If it were me I think I would try 1:1 (1:10 carbs) first, see the effect and then adjust the lantus.

Good luck in what ever you do

Nov 16, 2012

DianeW 115 posts

Topic: Questions for HCPs / corrections after a hypo

If i knew i had had a hypo in the night and i woke up at 22, i would correct, i would not want to run that high, let alone how rotten i would feel. But it begs the question: at what level do you feel comfortable to run at if you go by DAFNE post hypo no correct rule at breakfast, also bearing in mind your BG risrs on waking anyway due to adrenaline.

Nov 16, 2012

Peter 109 posts

Topic: Questions for HCPs / corrections after a hypo

Gemsa, The idea of rebound hyperglycemia (i.e. the 22.1 in the morning being caused by an untreated hypo overnight) has been discredited recently. There is some information here (http://www.dafneonline.co.uk/forums/1/topics/963) and there was a further presentation specifically on this at this topic at the DAFNE Collaborative in June this year. I would suggest that the 22 was in reaction to the food eaten late the night before. I know for me that measuring BG at 22:37 only 20 minutes after eating (and hopefully taking the correct insulin dose) would tell me little about the BG level that I would see 2 or 3 hours later. In my case I was diagnosed 40+ years ago, and now have insulin resistance, and so it takes time for any insulin dosage to start working on food. You probably don't have the same degree of resilience, but I would still suggest that you look more at the carb. counting the night before rather than a "phantom" hypo overnight.

Nov 16, 2012

JayBee 587 posts

Topic: General Discussion / Petition for government funding

I saw this on twitter and signed it straight away... even got some non-diabetic pals to sign it too. I hope it's successful! ^_^

Nov 16, 2012

Peter 109 posts

Topic: General Discussion / Petition for government funding

Thanks to those who have completed the petition already. This is an initiative of the DUAG (the DAFNE User Action Group) which we're working on to try and promote the value of structured educations courses for both type 1 and type 2 diabetics. For most of us using this site this means DAFNE specifically which DUAG would like to see being readily available to everyone who wants it across the whole of the UK rather than the current "postcode lottery" where we have great centres and teams in some areas and nothing at all elsewhere.

As Alan says above the target is to get 100,000 signatures at which time the subject "should" be raised for debate in the House of Commons. So only roughly 99,400 signatures to go Smile

However, there are over 10,00 users of this site alone, so we "only" need for everyone to sign, and get 9 others to do so and we'll be there. So as well as signing yourself, please encourage your partners, friends, family etc. to do so. As a reminder the link is http://epetitions.direct.gov.uk/petitions/41345

Many thanks, and, if you have any comments on the text or the idea in general then please raise them here and we can discuss.

Nov 16, 2012

victorri 12 posts

Topic: General Discussion / Is there any way to sync my diary between app and this site??

I've just completed my course today. I'm tring to enter my info but I keeps coming up the my date and time lengths are invalid but I'm doing it as it says to do. Can any one help please?

Nov 16, 2012

victorri 12 posts

Topic: General Discussion / Petition for government funding

Signed my name too. I'm going to post it on my Facebook too.

Nov 18, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Ratios How often can ratios be changed? If I was on a 1:10 or 1.5: 10.......ratio do I have to wait for 3 or 4 days before I change it again? Gill

Nov 18, 2012 tcmonkey80 41 posts	Topic: Questions for HCPs / insulin pump Hi, how does the insulin pump work out corrections?

Nov 18, 2012 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Thanks RichFreed, I do feel better knowing that I am doing things correctly. It feels very strange not having any injections but cant say I really miss them . I to am not completely sure how the pump works out corrections, I will have to learn to trust the pump, I don't even trust my sat nav he he

Nov 18, 2012 RichFreed 51 posts	Topic: General Discussion / Insulin pump Yep doing BG with no carbs will calculate the correction assuming you have all of those relevant variables set in the Bolus wizard setup. The correction philosophy of the pump calcs don't really make sense to me to tell you the truth. When you enter a lower than target BG it will try to correct you up to the very bottom of your target range & if you are higher than your range it will try to correct down to the top of your range only. I had my range originally set to 5.7-5.7 to get around that issue but it would always warn me I was outside of my target range for any BG other than 5.7 so to compromise I changed to 5.0-5.7. I've only ever injected/inserted the cannula into my belly, I tried the thigh once but 70units into one spot and feeling the tissue between my fingers expanding was to freaky for me I afraid. I also purchased their CGM unit - in Australia Medtronic have a deal where you get what they call a starter pack for less that $400au (should be about Â£250 in UK)which gets you the transmitter device + 5 sensors.

Nov 18, 2012 SA2010 69 posts	Topic: General Discussion / Insulin Pens for NovoRapid & Lantus Just came across the 'NovoPen 'Echo' whilst googling for discussions on memory lapses for taking insulin dose. Could not remember if I took my dose this morning. The echo appears to have memory of the last dose and how long ago it was so will try to get it prescribed to replace my NovoPen 3 Demi pen. The echo copes with half unit doses so should be ok for me. Anyway just thought I would share this bit of information with you all. Whilst looking into Pens and with previous discussions on the Lantus Solostar pen accuracy of doses (it continues to release insulin after reaching zero), I came across the ClickStar pen for use with Lantus. Has anyone migrated from Solostar to ClickStar? Is it a better pen? Is it more recent ?

Nov 18, 2012 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Hi RichFreed, I have the same pump as yourself, I too always use the Bolus wizard. So if i enter my BG then say 0 carbs the machine will work out the amount i need? so in theroy I just select ACT? I have also noticed I am having trouble keeping my sugar levels down when my canual is in my thigh, is this something you have experienced?

Nov 18, 2012 RichFreed 51 posts	Topic: General Discussion / Insulin pump 2.5 what? I use a Medtronic Minimedipad Paradigm I usually use the Bolus wizard which asks 2 key questions. 1. BG (optional - if I have taken a reading) 2. Grams of carbs being taken. If I ignore question 1 it will calculate insulin with no correction. If I do answer question 1 it will calculate insulting with +\|- corrections. I was high for the first few days while figuring out the Basal Rates. I'm still struggling a little with morning highs but I'm nearly there (struggled with them prior to pumping too)

Nov 17, 2012 Gibsjoh 2 posts	Topic: General Discussion / Levemir I have been using Novorapid and Levemir for many years, a few months ago I did my morning bg test and could not understand why it was so high, had a day of not eating a lot as bg always high, next morning same again checked Levemir pen and noticed when I removed needle cover it was wet removed the vial and twisted the top which came away in my hand checked another vial and it had a crack in it. This morning bgs high again checked Levemir vial and yes a crack looked at another one it also had a crack in the vial. That has been four faulty Levemir vials in the last six months and no problems with the NovoRapid vials. If you start getting crazy bg readings for no apparent reason check your insulin vials.

Nov 17, 2012 Leigh Gilmore 4 posts	Topic: General Discussion / Insulin Pump approval Hi, I was recently added to the Lothian waiting list and was told to expect to wait "up to four years" as a worst case scenario, although they are hoping that funding will be increased and so I won't have to wait that long. I'm counting the days already as I too am affected by dawn phenomenon and am hating getting up for a 4am injection every day.

Nov 17, 2012 mum2westiesGill 502 posts	Topic: General Discussion / Injection sites I inject QA humalog into my stomach in like a smiley face rotation then BI lantus into thighs sometimes left and sometimes right.

Nov 17, 2012 tcmonkey80 41 posts	Topic: General Discussion / Insulin pump Hey, well i have been on insulin for 3 days now, and they feel like the longest 3 days of mylife. I feel I don't completely understand the pumo, i enter all the information and the pump does it magic. Only thing I am unsure about is, if my pump says 2.5 and i have just had say 40g do i enter what the pump is telling me or do i add on the carb count? I have felt that today I have been stupidly high on BG levels and i hadnt been this high on injections for a very long time

Nov 17, 2012 tcmonkey80 41 posts	Topic: General Discussion / I did it :) Hey Nick, I completed DAFNE in September 2011, various appointment over the year to be told there is funding available. I had to wait a total of 3 months from the day I had been approved. Hope that helps? For the record though this was for a 2nd hand pump and not a brand new one, so not sure if that had made things move along quicker Fingers crossed the wait isnt too long

Nov 17, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Injection sites could it not be that your stomch has a slower absorbtion through over use nd that your thighs and other sites are normal........ you may even be able yo reduce your dose i cant imagine just injecting in one place, it would br a mess

Nov 17, 2012 Alan 49 284 posts	Topic: General Discussion / Injection sites I always inject into the stomach, so (unfortunately) I have a fairly extensive area to vary the actual site. I find that when eating out, I can discreetly inject at the table, which is far more convenient than trooping off to the loo, A couple of years ago I tried injecting my dinner-time QA dose into my thigh. My pre-bed test was OK, but I had a nighttime hypo and my wife had to sort me out. I assumed that I had mis-calculated my carbs and injected to much Humalog but I overlooked the fact that my pre-bed test ruled that out. A day or so later, I tried the thigh injection before dinner again - and again I had a nighttime hypo. There seemed to be an obvious connection, so I contacted my HCP, who told me that by injecting in the thigh, I still had some of my QA dose lurking about in my body when I went to bed, leading to the hypos later on. Consequently, I always inject in the stomach.

Nov 17, 2012 Alan 49 284 posts	Topic: General Discussion / Petition for government funding Why not do both?

Nov 17, 2012 vic demain 87 posts	Topic: General Discussion / Petition for government funding Alternatively all people passionate about this idea could make an appointement to go visit their MP in one of their local clinics and raise their awareness and ask them to raise the matter in the HOC and to lobby their constituency Health Authority for support.

Nov 16, 2012 Johnnyw 3 posts	Topic: General Discussion / Whiskysmum - Dafne Diary - all comments welcomed (4) Hi agree with victorri about BG possibly being too high, but also looks like your evening meal ratio my be a bit high, as your fast acting may well be working for 5 hours and you seem to be eating 8ish and testing 3 to 3.5 hours later at 11ish then going low later on. Love to know how you manage to drop to 2.2 and get away without getting hyper later in the day (you must be doing something right). If it were me I think I would try 1:1 (1:10 carbs) first, see the effect and then adjust the lantus. Good luck in what ever you do

Nov 16, 2012 DianeW 115 posts	Topic: Questions for HCPs / corrections after a hypo If i knew i had had a hypo in the night and i woke up at 22, i would correct, i would not want to run that high, let alone how rotten i would feel. But it begs the question: at what level do you feel comfortable to run at if you go by DAFNE post hypo no correct rule at breakfast, also bearing in mind your BG risrs on waking anyway due to adrenaline.

Nov 16, 2012 Peter 109 posts	Topic: Questions for HCPs / corrections after a hypo Gemsa, The idea of rebound hyperglycemia (i.e. the 22.1 in the morning being caused by an untreated hypo overnight) has been discredited recently. There is some information here (http://www.dafneonline.co.uk/forums/1/topics/963) and there was a further presentation specifically on this at this topic at the DAFNE Collaborative in June this year. I would suggest that the 22 was in reaction to the food eaten late the night before. I know for me that measuring BG at 22:37 only 20 minutes after eating (and hopefully taking the correct insulin dose) would tell me little about the BG level that I would see 2 or 3 hours later. In my case I was diagnosed 40+ years ago, and now have insulin resistance, and so it takes time for any insulin dosage to start working on food. You probably don't have the same degree of resilience, but I would still suggest that you look more at the carb. counting the night before rather than a "phantom" hypo overnight.

Nov 16, 2012 JayBee 587 posts	Topic: General Discussion / Petition for government funding I saw this on twitter and signed it straight away... even got some non-diabetic pals to sign it too. I hope it's successful! ^_^

Nov 16, 2012 Peter 109 posts	Topic: General Discussion / Petition for government funding Thanks to those who have completed the petition already. This is an initiative of the DUAG (the DAFNE User Action Group) which we're working on to try and promote the value of structured educations courses for both type 1 and type 2 diabetics. For most of us using this site this means DAFNE specifically which DUAG would like to see being readily available to everyone who wants it across the whole of the UK rather than the current "postcode lottery" where we have great centres and teams in some areas and nothing at all elsewhere. As Alan says above the target is to get 100,000 signatures at which time the subject "should" be raised for debate in the House of Commons. So only roughly 99,400 signatures to go However, there are over 10,00 users of this site alone, so we "only" need for everyone to sign, and get 9 others to do so and we'll be there. So as well as signing yourself, please encourage your partners, friends, family etc. to do so. As a reminder the link is http://epetitions.direct.gov.uk/petitions/41345 Many thanks, and, if you have any comments on the text or the idea in general then please raise them here and we can discuss.

Nov 16, 2012 victorri 12 posts	Topic: General Discussion / Is there any way to sync my diary between app and this site?? I've just completed my course today. I'm tring to enter my info but I keeps coming up the my date and time lengths are invalid but I'm doing it as it says to do. Can any one help please?

Nov 16, 2012 victorri 12 posts	Topic: General Discussion / Petition for government funding Signed my name too. I'm going to post it on my Facebook too.