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Nov 25, 2012
Kieran Pierce 6 posts

Topic: General Discussion / Whiskysmum - Dafne Diary - all comments welcomed (4)

Hi, definately agree with victorri on this one.

Let us know how you get on with it Smile
 
Nov 25, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pump approval

its all new to me as well, so far the experience hasn't been bad at all, I just feel fortunate to have the opportunity......
 
Nov 25, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Lantus

the 3 day rule is just that you need to wait that long, sometimes less, to see the effect of a Lantus change....

So I would get the risk of night time hypo away first, then think about fine tuning the dose...

Simon makes a good point, take more off the dose in the first instance, then you can always add on some more..... Cool
 
Nov 25, 2012
Derek Brown 32 posts

Topic: General Discussion / Insulin Pump approval

Thanks novorapidboi26,

I suppose list is a misleading term for it.

It's useful to know the workings behind the actual proceedings.
 
Nov 25, 2012
SA2010 69 posts

Topic: General Discussion / Hypo one day high the next day after similar meal - Delayed Activity impact / new pen?

Thanks James for looking into this.

I am not active and activity such as walking to the station, travelling on the underground etc does lead to significant drop in BG. For travelling from West London to UCLH and back for appointments I normally reduce QA dose by 30% for the meal before the travel and that has worked fine. On this day it was only a trip to Acton but the walking was the same so 30% reduction for QA at lunch time. I was back 3 hours before evening meal. May be there is a delayed effect on BG.

With regards to corrections I will review my corrections and see if there is evidence of needing higher correction doses for BGs of 15+ mmol/l.

I am also finding the QA and BI peak times is a factor (despite what people say, Lantus effect does peak for me after 7 hours) so I am trying to make sure QA + 3 hours does not coincide with BI + 7 hours and that was the reason for choosing 11am and 11pm for the BI doses. The hypo was 4 hours after end of the activity, 1 hour after the QA and 9 hours after the BI,

Simon
 
Nov 25, 2012
SA2010 69 posts

Topic: General Discussion / Lantus

Some input from me - I would go for 2 day wait between Lantus changes. But your issue I recall from other threads you posted is the level of lantus reduction. 10% to 20% reduction I believe gave 4 to 7 units in your case so if I was you I would leave the delay of 2 days minimum between changes but be more aggressive for how much you reduce the Lantus by. Not 2 units at a time but 4 units whilst 10% - 20% remains to be much more than 1 or 2 units.

simon
 
Nov 25, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Lantus

novorapidboi26 said:
If your having constant hypos in the middle of the night then keep reducing until you don't have them, then you can fine tune it with the 3 day rule.......

your priority at the moment is being safe and hypo free, the 3 day rule is in place so you can get accurate dose adjustment......



What is the 3 day rule?

Also would you do 1, 2 or 3?
 
Nov 25, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Hypo one day high the next day after similar meal - Delayed Activity impact / new pen?

I think you have basically covered all the bases, well done, now all you need to do is find out what the explanation is..........

I personally don't think a change of pen would give such a noticeable effect.......

the activity in the afternoon is definitely a good one!! Where you walking a lot?

We all know alcohol inhibits the liver, but I don't think one glass would do that much, however everyone is different. If it doesn't normally do this then its unlikely to be the wine......

It is known that insulin resistance does increase the higher your blood sugar is, but an easier way to deal with this, with manageable dose adjustment in mind for the future, is to give yourself more correction the higher you go........

If I am over 17mmol/l I need 1 unit of QA for every 1 mmol/l, as opposed to the normal correction of 1 unit for every 2.5mmol when I am below 10.....

changing ratios depending on BG would make the DAFNE approach impossible...... Very Happy

If you have seen an effect with beans then they should definitely be considered. Do a test to confirm the effect if any
 
Nov 25, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Lantus

If your having constant hypos in the middle of the night then keep reducing until you don't have them, then you can fine tune it with the 3 day rule.......

your priority at the moment is being safe and hypo free, the 3 day rule is in place so you can get accurate dose adjustment......
 
Nov 25, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Insulin Pump approval

I would be delighted to answer your questions if i can............

I don't actually know of any list as such............ I was aware that the our PCT had acquired funding for 18 pumps for the adult clinics and a further 18 for the children's clinic.....so I wasn't surprised when my consultant mentioned it to me, I had actually asked about it 6 months previously and the reaction was very different........

The next stage was to have a consultant meeting up at Monklands, the pump centre for Lanarkshire, I then had a further meeting with the pump nurse and dietician, this was just to asses that I was aware what I was getting in to and was competent enough. The pump team then have a meeting every month were they decide on who has greatest priority. They said I was an ideal candidate..........

However its not the same as it is normally would be as there is finding in place for 18 pumps, a lot more than would usually be in place, so I am quite fortunate. So there are definitely other people on the 'list' you could call it, but there probably wont be many folk that wont get one, as the consultants still made the decision at the beginning...

The time frame was 6 months............and that was just down to the busyness of the clinic........it was a few months to get the first meeting, then the rest of the appointments came quickly,..

I think there are 2 main ones that Monklands issue and they are the Medronic Paragigm an the Accu Ceck Combo I think...........
 
Nov 25, 2012
Derek Brown 32 posts

Topic: General Discussion / Insulin Pump approval

novorapidboi26, I'm hopefully being referred to the consultant very soon about an insulin pump. As your also in Lanarksire do you mind me asking a few nosey questions on your pump approval?

How many people were on the list when you were placed on it?

What timeframe did it take from being on the list to your pump date of jan/feb next year?

What models are available in Lanarkshire? I've looked at all the models out there online but don't have a source for availability through Lanarkshire PCT.

Cheers,

Derek
 
Nov 25, 2012
Simon 578 posts

Topic: DAFNE Online Mobile / How to upload diary from app to website

Hi Anna,

Have you been to the settings page of the app, and set diary upload to 'on'?

Also which iPhone are you using?

Simon
 
Nov 24, 2012
AnnaConstant... 5 posts

Topic: DAFNE Online Mobile / How to upload diary from app to website

thank you both for your replies. unfortunately it doesn't upload when entering a new entry.

Marke - is the android app different to the iphone app as i don't actually have a download button on the iphone app.

unfortunately i think i may just have to manually enter onto the website Sad
 
Nov 24, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Lantus

I know they say to make changes to lantus every three or four days or a week, but due to me having night hypos or waking to them I'm going to try reducing it each night. So if I have a night hypo or wake in the low 4s I'll reduce it again the next night until I'm OK.

What would you do in my situation:
1. do as I'm going to do
or
2. leave it for every three or four days or a week
or
3. do it a bit sooner than three/four days/1 week

Thanks in advance for any replies Smile
 
Nov 24, 2012
Ahmentep 99 posts

Topic: DAFNE Online Mobile / How to upload diary from app to website

Hi Marke,

Ignore that last comment, it was rubbish!

I was thinking at the time of the lack of synchronisation in that, when I enter details on one device they are not automatically downloaded to the other. It is the download button that I have to press.

Kind regards,

Roger
 
Nov 24, 2012
SA2010 69 posts

Topic: General Discussion / Hypo one day high the next day after similar meal - Delayed Activity impact / new pen?

Strange BG readings - an unexpected Hypo 22/11/12 @ 19:56 and the second day with similar evening meal unexpected high ! It seems that we are always getting readings we do not understand. Does not add up.

Could it be :

1. change of pen ? switched from NovoPen 3 Demi to NovoPen Echo as from lunch time on 22/11/2012. Only difference I noticed is that the Echo continues to release insulin at end of dose whilst end is pressed. Similar to what Solostar does for Lantus. The leaflet says count to 6 seconds - but maybe this is a new factor to take into account. The NovoPen 3 Demi hardly released any. Almost none.

2. Delayed effect of activity causing the hypo. An hour travel for eye check in the afternoon.?

3. A glass of red wine with meal? Hypo was one hour after meal so quite quick. The wine bottle was opened a few days earlier. Does this change how red wine behave? I have had red wine before with no significant impact to BG.

4. A thought: Is it possible that QA:CP ratios should be different depending on BG level? For the 2 evening meals pre meal BGs were 6.0 and 10.1. The accuracy of the Accu-Chek Expert is probably about 1 mmol as a repeated test for the 2nd day gave BG 9.3 (variation 9.3-10.1 for same time). Maybe ratios should be lower if BG below 7.0 and higher if above 8.0? Just a thought that it is not as simple as just having +/- QA corrections

Any views?

PS Also Beans were implicated in high BG reading on 21st November. Nuts and Beans always get implicated for me and perhaps should be counted - partially?.

Simon
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Hypos

Ahh I see thank you Smile
 
Nov 23, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Hypos

Well, yeah, there is no chewing, but I think its more to do with not having to be broken down in the stomach, it just gets digested almost instantly, and so the valuable carbs can be processed and distributed.

Its not exactly the same way, you would put 15g of carbs for your hypo as 0 + 1.5.

So the 0 lets you know and others/HCPs that you were not having any meal time carbs with insulin, but that you are just having carbs uncovered by insulin. Obviously writing it in CPs [Carbohydrate Portions] helps from a DAFNE point of view
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Hypos

novorapidboi26 said:
I also find liquid is much quicker at treating hypos....

If you could put in the carb amounts of the hypo treatment as 0+1.5 or 0+2 it will tell you and others that you had something to treat it.....

There is no doubt that timing of your BI, even when on a single dose can be experimented with, for example some folk take there dose in the morning for whatever reasons. For you however it looks like the dose it too much so I would keep your dose time the same until you get a morning BG within 1-2mmol/l of your pre bed test for more than 2 days in a row.....



Re liquid being quicker that's because your not having to chew something for ages.

Re put in the carb amounts of the hypo treatment - would this be the same way as I enter for meals? Supposing I'd had 20g or 30g carbs?
 
Nov 23, 2012
novorapidboi26 1,819 posts

Topic: Questions for HCPs / Hypos

If your getting hypos before your next meal that suggests the dose is too much for that meal......

If you had a hypo quite quick after the meal/injection then the dose timing could be a consideration, ie you may need to reduce the time between injecting and eating....
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: Questions for HCPs / Hypos

Hi novorapidboi26,
I've just posted some replies on my other "HYPOS" topic in the General Discussion section Smile
 
Nov 23, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Hypos

I used to have jelly babies, but I thought they were too many calories... Very Happy .....so moved to Asda's chosen by you ISOTONIC SPORTS DRINK....

I also find liquid is much quicker at treating hypos....

If you could put in the carb amounts of the hypo treatment as 0+1.5 or 0+2 it will tell you and others that you had something to treat it.....

There is no doubt that timing of your BI, even when on a single dose can be experimented with, for example some folk take there dose in the morning for whatever reasons. For you however it looks like the dose it too much so I would keep your dose time the same until you get a morning BG within 1-2mmol/l of your pre bed test for more than 2 days in a row.....
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Hypos

Hi novorapidboi26,
I've just posted some replies on my other "HYPOS" topic in the Questions for HCPs section Smile
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Hypos

novorapidboi26 said:
How do you treat your hypos, and can you put that information into the diary also please.... Wink




Thanks for your wee example from your diary Very Happy
 
Nov 23, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Hypos

novorapidboi26 said:
It would seem you need to continue to drop your background dose.....

You seem to be having a lot of hypos though, constantly, you must feel like its never ending......

How do you treat your hypos, and can you put that information into the diary also please.... Wink

I think that the lows your are experiencing are down to dose amount as opposed to timing. With a split dose of Lantus and with Levemir you can consider changing the times of dose to earlier/later in the evening.....but with a single dose, It wont make much difference I would imagine...



Yes I'm going to continue to drop my BI dose.

Exactly!!

I usually treat hypos with 4 x jelly babies or 4 x fruit pastilles then when BS is back up again if at home 1 x round bread with a smearing of jam just to give the bread some taste.
Yesterday though what happened no jelly babies eek so I had water with 3 x tspns of sugar which seemed to work a lot quicker. I HATE dextrose tablets!

Thanks for mentioning about the "dose amount as opposed to timing".