Recent Posts - DAFNE Online

Mar 28, 2015

Vickyp 135 posts

I've just started using diasend, after my last appt with consultant so that they can check my levels without me phoning to read them out or emailing them...you do need a clinic code for that tho. Now I just phone to say I've uploaded and they get back to me if I need to make changes. The graphs etc are pretty good on diasend.

Mar 28, 2015

CurlyWurly 15 posts

Topic: General Discussion / Diasend

I got an email from mydiabetesmyway to invite me to take part in Diasend - has anyone else signed up for it?

Mar 28, 2015

Ellen 10 posts

Topic: General Discussion / insulin

Hello

I did the dafne course around a month ago after the course my blood sugars seemed to stabilise but now they are raising overnight, it seems to be that for a few weeks that amount of insulin works and then all of a sudden it seems as i need more and then this will work for a few weeks and then it needs changing again. Has anyone else experienced this? Also the diabetic nurse thinks i am on to much insulin for my bodyweight but i seem to keep needing more insulin, could this be because i am taking to much insulin and my body is not using it properly and that's why the doses are constantly changing?

Thanks

Mar 27, 2015

sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi guys

I to have not be brave enough to go swiming a yet but will igive it go soon. I have had one sensor fall off for no apparent reason but Abotts were great and send a replacement. As for the itchyness I have found that sometimes it is really really itchy , and then the itchyness goes away. The red marks do seem to take a while to go but I have found them not be painful, so have carried on using the sensors as it so cool to gym, and garden and check without having to stop.

Mar 27, 2015

Frazer 16 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Thanks Phil - I would be very interested in your swimming experiment. In view of what they said I would have thought that if the sensor stops working after swimming Abbott will refund you.

As to the other problem I would ask Abbott - their number is 008000 2255232.

Mar 27, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Following on from my recent comment about the mark and glue, I would be annoyed if I found they had changed the glue and I was allergic as I have got my HbA1c from 7.4 to 6.8 using the Libre and for the hour or so when I change the sensor I feel lost without it.

Even though its not perfect or 100% accurate I do like the knowledge of generally where by BG is Very Happy

Mar 27, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi,

Swimming wise I am going to wait until the last few days of my sensor (as they're a bit expensive to waste one on a test) and try it. If and when I go I will update my findings here Very Happy

Phil

P.S Have any other users found when they remove a sensor it leaves a nasty red circle for about a week, I didn't have this to start with, but last one has left quite a sore mark, bit like a lovebite Very Happy

P.P.S Following on from the mark, the next one I am using is sooo itchy, worried about itching near it and pulling it out, have they changed the glue? Am I allergic? Anybody else having issues?

Mar 27, 2015

Frazer 16 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Thanks for your responses Mark and Tom
I spoke to Abbott, they are sending the emails "in waves" on a first come first serve basis as the machines become available. Tom you must be further up the list than I am!
I checked the swimming question with them - did you see what I did there - Waves / Swimming - oh never mind!!
Mustn't be submerged for longer than 30 mins so as long as you take your arm out of the water there is no problem. Also you can't go lower than 1 meter in depth.

Mar 27, 2015

Tom_Sparrow 4 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Frazer said:
Thanks all who have been sharing their experiences with this. I don't know what planet I've been on but I have only just heard about this machine. It sounded too good to be true so I checked out the website this week. You still can't order one if you are a new customer so I rang Abbott. They said demand had been higher than expected and they want to ensure they can produce enough sensors to meet the demand of existing customers. It should be available to new customers soon - they didn't give a time frame. Enter your email address on the website and they will advise you when you can buy one.
The cost will of course be prohibitive to many which seems very unfair. I thought I might ask my employer if they would contribute, I am sure I could convince them that it would be in their interest as well as mine! The biggest advantage I can see with this system is not having to do all those finger pricks each day - bliss!!
I have a couple of questions if anyone can help. I am sure I read in the very small print on the website that you must take a reading at least every eight hours. I have been know to sleep for longer than this so what happens if there is a gap of more than 8 hours between readings?
Also, I swim once a week - I know the sensors are fine in the shower and bath but has anyone had any experience of what happens in the swimming pool?

Hi Frazer,

I just thought I'd let you know that I was having the same issues as you regarding the purchase of this new machine. However, I got an e-mail from Abbott a few days ago to say that they were ready to purchase (if you entered your details into their system as you mentioned) - and I actually received my new kit yesterday! Very Happy

However, they stated in the e-mail that demand was still exceptionally high so they were advocating that all new customers try to purchase the kit this week otherwise they may have to wait a while again, so you may want to try purchasing it again to see if you have any luck.

Fingers crossed that you are able to purchase one. I am only just trying out mine now but all good so far!

Thanks,
Tom

Mar 26, 2015

marke 655 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi,
With regards to the 8 hour limit, the sensor that sits on your arm can only hold 8 hours of data, so if you don't swipe it with the reader for longer than 8 hours the oldest readings a lost i.e those just before or just after you went to sleep. This wasn't a big issue for me since generally my readings are usually stable just before I go to bed. With regards to swimming, I would have to see if anyone else has an answer. I showered every day with it on and never had an issue but I didn't go swimming. My guess is if it is properly fixed and you can tell it is, then it should be ok. It would be interesting to hear first hand experience though Wink

Mar 26, 2015

DamianHalliw... 1 post

Topic: General Discussion / Background Insulin Update

I have just changed my background from lantus to humilin I and from 1 jab a day too 2 jabs a day dose anyone know If the overlap is good if I take every 8 hours with it taking upto 2 hours to start? I'm just really bad at working stuff out lol

Thanks in advance

Mar 26, 2015

Frazer 16 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Thanks all who have been sharing their experiences with this. I don't know what planet I've been on but I have only just heard about this machine. It sounded too good to be true so I checked out the website this week. You still can't order one if you are a new customer so I rang Abbott. They said demand had been higher than expected and they want to ensure they can produce enough sensors to meet the demand of existing customers. It should be available to new customers soon - they didn't give a time frame. Enter your email address on the website and they will advise you when you can buy one.
The cost will of course be prohibitive to many which seems very unfair. I thought I might ask my employer if they would contribute, I am sure I could convince them that it would be in their interest as well as mine! The biggest advantage I can see with this system is not having to do all those finger pricks each day - bliss!!
I have a couple of questions if anyone can help. I am sure I read in the very small print on the website that you must take a reading at least every eight hours. I have been know to sleep for longer than this so what happens if there is a gap of more than 8 hours between readings?
Also, I swim once a week - I know the sensors are fine in the shower and bath but has anyone had any experience of what happens in the swimming pool?

Mar 24, 2015

mum2westiesGill 502 posts

Topic: General Discussion / Android Phone & Dafne App

Hi,
Is there anyone else who is currently unable to upload BGs on an Android phone?

Mar 24, 2015

Warwick 434 posts

Topic: Carbohydrate Counting / white rice

When I was on 2 daily injections of BI and no QA, I had to avoid white rice as it would send my BGs sky high for hours before they finally came down. Brown rice, I had no such trouble.

It actually sounds like you are taking too much QA for the rice. What happens if you take less? I no longer know for myself as even after switching to a regime of BI and QA I avoid white rice. There are so many more nutrients in brown rice than white that I just don't feel I can go back. Unfortunately finding a restaurant that serves brown rice is near impossible.

Mar 24, 2015

Warwick 434 posts

Topic: General Discussion / washing hands ?

I always have hand sanitising gels on me, and use them. Mainly to avoid bacterial infections, but always to get readings as accurate as possible. I have heard from some people that some brands will raise the reading, so check the contents before buying. I've never had any trouble myself with the brands I have used. I'd tell yu the brands that I use, but I suspect that being in Australia, different brands are available here than in the UK.

Mar 23, 2015

glen4 44 posts

Topic: Carbohydrate Counting / white rice

You weigh the rice after its cooked? Rice is slow acting carbs so maybe lower your insulin dose? What's your readings 2-3 hours later?

Mar 22, 2015

SimonC 78 posts

Topic: Questions ? / Too Many Sticks!

Peter said:
If your doctor is complaining about the level of strip usage, I'd suggest you refer them to the new NICE National Clinical Guideline on the treatment which should provided to all Type 1 Diabetics in the UK. Whilst it is still in draft form at the moment, the final version is due to be published later this year (target August). The relevant recommendations for Blood Glucose Control, which is listed as a key priority for implementation is:

Support adults with type 1 diabetes to test at least 4 times a day, and up to 10 times a day if any of the following apply:
the target for blood glucose control, measured by HbA1c level (see recommendation 1.6.6), is not achieved
the frequency of hypoglycaemic episodes increases
there is a legal requirement to do so (such as before driving, in line with DVLA requirements)
during periods of illness
before and after sport
when planning pregnancy, during pregnancy and while breastfeeding
Given that these circumstances apply to most of us, this recommendation should be enough to persuade GPs of the need for a sensible quantity of test strops per day.

Peter - I think this is good, sound advice, and a very useful list of re the reasons why we need to test - all T1 should know this, and be able to quote it, as certainly in the UK, with more and more pressures being put on GP's to save money, there may be a tendency for them to look at the short term gains in saving on stuff such as strips and needles, without the bigger picture of much more costly saving in the longer term being made by using them.

Mar 22, 2015

ketostix pla... 25 posts

Topic: General Discussion / Urticaria&type1 vs tattoo

Thanks guy for your responses, much appreciated

Mar 22, 2015

Peter 103 posts

Topic: Questions ? / Too Many Sticks!

Should have said that the guidance can be found here: https://www.nice.org.uk/guidance/gid-cgwaver122/documents/type-1-diabetes-update-draft-nice-guideline2

Mar 22, 2015

Peter 103 posts

Topic: Questions ? / Too Many Sticks!

If your doctor is complaining about the level of strip usage, I'd suggest you refer them to the new NICE National Clinical Guideline on the treatment which should provided to all Type 1 Diabetics in the UK. Whilst it is still in draft form at the moment, the final version is due to be published later this year (target August). The relevant recommendations for Blood Glucose Control, which is listed as a key priority for implementation is:

Support adults with type 1 diabetes to test at least 4 times a day, and up to 10 times a day if any of the following apply:

the target for blood glucose control, measured by HbA1c level (see recommendation 1.6.6), is not achieved
the frequency of hypoglycaemic episodes increases
there is a legal requirement to do so (such as before driving, in line with DVLA requirements)
during periods of illness
before and after sport
when planning pregnancy, during pregnancy and while breastfeeding

Given that these circumstances apply to most of us, this recommendation should be enough to persuade GPs of the need for a sensible quantity of test strops per day.

Mar 22, 2015

Peter 103 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Update from my trip to US last month wearing a patch pump (Omnipod) is that the patch wasn't detected by the standard security monitors either in Heathrow or Atlanta. I'd imagine that the same wouldn't be true of the newer whole body scanners, but will have to wait for another trip to see what happens then.

I guess this could be another advantage for the Omnipod over a traditional pump for anyone travelling regularly.

Mar 22, 2015

meakin 1 post

Topic: Carbohydrate Counting / white rice

Does anybody have trouble with white rice.I've just been DAFNE trained and I am having a problem with rice.I am taking the correct QA insulin but I regular then suffer a low blood sugar after a couple of hours as if the insulin is working quicker than the rice is.Any suggestions please.

Mar 28, 2015 Vickyp 135 posts	Topic: General Discussion / Diasend I've just started using diasend, after my last appt with consultant so that they can check my levels without me phoning to read them out or emailing them...you do need a clinic code for that tho. Now I just phone to say I've uploaded and they get back to me if I need to make changes. The graphs etc are pretty good on diasend.

Mar 28, 2015 CurlyWurly 15 posts	Topic: General Discussion / Diasend I got an email from mydiabetesmyway to invite me to take part in Diasend - has anyone else signed up for it?

Mar 28, 2015 Ellen 10 posts	Topic: General Discussion / insulin Hello I did the dafne course around a month ago after the course my blood sugars seemed to stabilise but now they are raising overnight, it seems to be that for a few weeks that amount of insulin works and then all of a sudden it seems as i need more and then this will work for a few weeks and then it needs changing again. Has anyone else experienced this? Also the diabetic nurse thinks i am on to much insulin for my bodyweight but i seem to keep needing more insulin, could this be because i am taking to much insulin and my body is not using it properly and that's why the doses are constantly changing? Thanks

Mar 27, 2015 sarahg 29 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi guys I to have not be brave enough to go swiming a yet but will igive it go soon. I have had one sensor fall off for no apparent reason but Abotts were great and send a replacement. As for the itchyness I have found that sometimes it is really really itchy , and then the itchyness goes away. The red marks do seem to take a while to go but I have found them not be painful, so have carried on using the sensors as it so cool to gym, and garden and check without having to stop.

Mar 27, 2015 Frazer 16 posts	Topic: General Discussion / Cyborg Times (new BG meter) Thanks Phil - I would be very interested in your swimming experiment. In view of what they said I would have thought that if the sensor stops working after swimming Abbott will refund you. As to the other problem I would ask Abbott - their number is 008000 2255232.

Mar 27, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) Following on from my recent comment about the mark and glue, I would be annoyed if I found they had changed the glue and I was allergic as I have got my HbA1c from 7.4 to 6.8 using the Libre and for the hour or so when I change the sensor I feel lost without it. Even though its not perfect or 100% accurate I do like the knowledge of generally where by BG is

Mar 27, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi, Swimming wise I am going to wait until the last few days of my sensor (as they're a bit expensive to waste one on a test) and try it. If and when I go I will update my findings here Phil P.S Have any other users found when they remove a sensor it leaves a nasty red circle for about a week, I didn't have this to start with, but last one has left quite a sore mark, bit like a lovebite P.P.S Following on from the mark, the next one I am using is sooo itchy, worried about itching near it and pulling it out, have they changed the glue? Am I allergic? Anybody else having issues?

Mar 27, 2015 Frazer 16 posts	Topic: General Discussion / Cyborg Times (new BG meter) Thanks for your responses Mark and Tom I spoke to Abbott, they are sending the emails "in waves" on a first come first serve basis as the machines become available. Tom you must be further up the list than I am! I checked the swimming question with them - did you see what I did there - Waves / Swimming - oh never mind!! Mustn't be submerged for longer than 30 mins so as long as you take your arm out of the water there is no problem. Also you can't go lower than 1 meter in depth.

Mar 27, 2015 Tom_Sparrow 4 posts	Topic: General Discussion / Cyborg Times (new BG meter) Frazer said: Thanks all who have been sharing their experiences with this. I don't know what planet I've been on but I have only just heard about this machine. It sounded too good to be true so I checked out the website this week. You still can't order one if you are a new customer so I rang Abbott. They said demand had been higher than expected and they want to ensure they can produce enough sensors to meet the demand of existing customers. It should be available to new customers soon - they didn't give a time frame. Enter your email address on the website and they will advise you when you can buy one. The cost will of course be prohibitive to many which seems very unfair. I thought I might ask my employer if they would contribute, I am sure I could convince them that it would be in their interest as well as mine! The biggest advantage I can see with this system is not having to do all those finger pricks each day - bliss!! I have a couple of questions if anyone can help. I am sure I read in the very small print on the website that you must take a reading at least every eight hours. I have been know to sleep for longer than this so what happens if there is a gap of more than 8 hours between readings? Also, I swim once a week - I know the sensors are fine in the shower and bath but has anyone had any experience of what happens in the swimming pool? Hi Frazer, I just thought I'd let you know that I was having the same issues as you regarding the purchase of this new machine. However, I got an e-mail from Abbott a few days ago to say that they were ready to purchase (if you entered your details into their system as you mentioned) - and I actually received my new kit yesterday! However, they stated in the e-mail that demand was still exceptionally high so they were advocating that all new customers try to purchase the kit this week otherwise they may have to wait a while again, so you may want to try purchasing it again to see if you have any luck. Fingers crossed that you are able to purchase one. I am only just trying out mine now but all good so far! Thanks, Tom

Mar 26, 2015 marke 655 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi, With regards to the 8 hour limit, the sensor that sits on your arm can only hold 8 hours of data, so if you don't swipe it with the reader for longer than 8 hours the oldest readings a lost i.e those just before or just after you went to sleep. This wasn't a big issue for me since generally my readings are usually stable just before I go to bed. With regards to swimming, I would have to see if anyone else has an answer. I showered every day with it on and never had an issue but I didn't go swimming. My guess is if it is properly fixed and you can tell it is, then it should be ok. It would be interesting to hear first hand experience though

Mar 26, 2015 DamianHalliw... 1 post	Topic: General Discussion / Background Insulin Update I have just changed my background from lantus to humilin I and from 1 jab a day too 2 jabs a day dose anyone know If the overlap is good if I take every 8 hours with it taking upto 2 hours to start? I'm just really bad at working stuff out lol Thanks in advance

Mar 26, 2015 Frazer 16 posts	Topic: General Discussion / Cyborg Times (new BG meter) Thanks all who have been sharing their experiences with this. I don't know what planet I've been on but I have only just heard about this machine. It sounded too good to be true so I checked out the website this week. You still can't order one if you are a new customer so I rang Abbott. They said demand had been higher than expected and they want to ensure they can produce enough sensors to meet the demand of existing customers. It should be available to new customers soon - they didn't give a time frame. Enter your email address on the website and they will advise you when you can buy one. The cost will of course be prohibitive to many which seems very unfair. I thought I might ask my employer if they would contribute, I am sure I could convince them that it would be in their interest as well as mine! The biggest advantage I can see with this system is not having to do all those finger pricks each day - bliss!! I have a couple of questions if anyone can help. I am sure I read in the very small print on the website that you must take a reading at least every eight hours. I have been know to sleep for longer than this so what happens if there is a gap of more than 8 hours between readings? Also, I swim once a week - I know the sensors are fine in the shower and bath but has anyone had any experience of what happens in the swimming pool?

Mar 24, 2015 mum2westiesGill 502 posts	Topic: General Discussion / Android Phone & Dafne App Hi, Is there anyone else who is currently unable to upload BGs on an Android phone?

Mar 24, 2015 Warwick 434 posts	Topic: Carbohydrate Counting / white rice When I was on 2 daily injections of BI and no QA, I had to avoid white rice as it would send my BGs sky high for hours before they finally came down. Brown rice, I had no such trouble. It actually sounds like you are taking too much QA for the rice. What happens if you take less? I no longer know for myself as even after switching to a regime of BI and QA I avoid white rice. There are so many more nutrients in brown rice than white that I just don't feel I can go back. Unfortunately finding a restaurant that serves brown rice is near impossible.

Mar 24, 2015 Warwick 434 posts	Topic: General Discussion / washing hands ? I always have hand sanitising gels on me, and use them. Mainly to avoid bacterial infections, but always to get readings as accurate as possible. I have heard from some people that some brands will raise the reading, so check the contents before buying. I've never had any trouble myself with the brands I have used. I'd tell yu the brands that I use, but I suspect that being in Australia, different brands are available here than in the UK.

Mar 23, 2015 glen4 44 posts	Topic: Carbohydrate Counting / white rice You weigh the rice after its cooked? Rice is slow acting carbs so maybe lower your insulin dose? What's your readings 2-3 hours later?

Mar 22, 2015 SimonC 78 posts	Topic: Questions ? / Too Many Sticks! Peter said: If your doctor is complaining about the level of strip usage, I'd suggest you refer them to the new NICE National Clinical Guideline on the treatment which should provided to all Type 1 Diabetics in the UK. Whilst it is still in draft form at the moment, the final version is due to be published later this year (target August). The relevant recommendations for Blood Glucose Control, which is listed as a key priority for implementation is: Support adults with type 1 diabetes to test at least 4 times a day, and up to 10 times a day if any of the following apply: the target for blood glucose control, measured by HbA1c level (see recommendation 1.6.6), is not achieved the frequency of hypoglycaemic episodes increases there is a legal requirement to do so (such as before driving, in line with DVLA requirements) during periods of illness before and after sport when planning pregnancy, during pregnancy and while breastfeeding Given that these circumstances apply to most of us, this recommendation should be enough to persuade GPs of the need for a sensible quantity of test strops per day. Peter - I think this is good, sound advice, and a very useful list of re the reasons why we need to test - all T1 should know this, and be able to quote it, as certainly in the UK, with more and more pressures being put on GP's to save money, there may be a tendency for them to look at the short term gains in saving on stuff such as strips and needles, without the bigger picture of much more costly saving in the longer term being made by using them.

Mar 22, 2015 ketostix pla... 25 posts	Topic: General Discussion / Urticaria&type1 vs tattoo Thanks guy for your responses, much appreciated

Mar 22, 2015 Peter 103 posts	Topic: Questions ? / Too Many Sticks! Should have said that the guidance can be found here: https://www.nice.org.uk/guidance/gid-cgwaver122/documents/type-1-diabetes-update-draft-nice-guideline2

Mar 22, 2015 Peter 103 posts	Topic: Questions ? / Too Many Sticks! If your doctor is complaining about the level of strip usage, I'd suggest you refer them to the new NICE National Clinical Guideline on the treatment which should provided to all Type 1 Diabetics in the UK. Whilst it is still in draft form at the moment, the final version is due to be published later this year (target August). The relevant recommendations for Blood Glucose Control, which is listed as a key priority for implementation is: Support adults with type 1 diabetes to test at least 4 times a day, and up to 10 times a day if any of the following apply: the target for blood glucose control, measured by HbA1c level (see recommendation 1.6.6), is not achieved the frequency of hypoglycaemic episodes increases there is a legal requirement to do so (such as before driving, in line with DVLA requirements) during periods of illness before and after sport when planning pregnancy, during pregnancy and while breastfeeding Given that these circumstances apply to most of us, this recommendation should be enough to persuade GPs of the need for a sensible quantity of test strops per day.

Mar 22, 2015 Peter 103 posts	Topic: General Discussion / Travelling by plane with an insulin pump Update from my trip to US last month wearing a patch pump (Omnipod) is that the patch wasn't detected by the standard security monitors either in Heathrow or Atlanta. I'd imagine that the same wouldn't be true of the newer whole body scanners, but will have to wait for another trip to see what happens then. I guess this could be another advantage for the Omnipod over a traditional pump for anyone travelling regularly.

Mar 22, 2015 meakin 1 post	Topic: Carbohydrate Counting / white rice Does anybody have trouble with white rice.I've just been DAFNE trained and I am having a problem with rice.I am taking the correct QA insulin but I regular then suffer a low blood sugar after a couple of hours as if the insulin is working quicker than the rice is.Any suggestions please.