Recent Posts - DAFNE Online

Mar 29, 2015

Vickyp 137 posts

Topic: General Discussion / high bm can't get under control

Have you tested your basal rate?
Also, If I remember correctly a high on waking could be a sign if hypo through the night, may be worth doing some 3am tests.

I would do some basal testing over about 3-4 days to see if that is a cause of the highs and if not then would only increase ratio by 0.5...so a 1.5:1 ratio.

You may also need different ratios for throughout day, but again these would need individual testing. Remember only to change one thing at a time and leave for a few days to check for patterns, it also takes a good few days for lantus changes to show.

Mar 29, 2015

Morgiee 4 posts

Topic: General Discussion / high bm can't get under control

Their you go thanks

Mar 29, 2015

Vickyp 137 posts

Topic: General Discussion / high bm can't get under control

At the bottom of the post reply box there are a couple of boxes for date range of diary to include

Mar 29, 2015

Morgiee 4 posts

Topic: General Discussion / high bm can't get under control

Thanks for your reply I will how do I upload it to this thread? I'm on a mobile. Its mixed it started on mornings and just before bed now its happening nearly every bm. Thanks

Mar 29, 2015

Vickyp 137 posts

Topic: General Discussion / high bm can't get under control

If you share your diary it will be easier for us to see trends and maybe make suggestions. Remember exercise can put bm up due to the adrenaline.
What are your current ratios? Are the highs before meals or after etc...your diary should show all this x

Mar 29, 2015

Vickyp 137 posts

Topic: General Discussion / Diasend

I have the omnipod pump that I use with diasend, I have a cable that attaches to my PDM so I can download it. Not sure if diasend works for other meters? I know my optium won't.

Mar 29, 2015

Morgiee 4 posts

Topic: General Discussion / high bm can't get under control

Hi over the past two weeks now I've had too many high bm mainly on a morning and night but now during the day too. Prior to two weeks ago bm were under control and my latest hba1c is 7.2 I'm considering changing my ratio to 2:1 however the last time I did that I was running low as I was taking more insulin than I normally would. Today I had a bm if 8.6 before exercise and was 11.7 afterwards! I have a new Meyer as well. Any suggestions would be great. Thanks

Mar 29, 2015

Alan 49 284 posts

Topic: General Discussion / Diasend

I made a half-hearted attempt to use it, but it seems you have to download your BG readings directly from your meter. I don't think my meter can do that. Any guidance would be appreciated.

Mar 29, 2015

HelenP 218 posts

Topic: General Discussion / Diasend

I have been using Diasend for a couple of years now and 4 months ago gave my endocrinologist direct access to my data. The way it works with me is that if he (the endo) suggests changes he will then ask me to upload the data on a specific day, send him an email and he can access it and send me further suggestions. This was especially helpful when he suggested I change 16 of my settings!!!!!! He got back to me via email and made a few extra suggestions. They can also write notes on Diasend but we do it by email. Very efficient way to get advice. I was a little unsure at first as it seemed too "big brotherish" but I am now OK with it. It certainly helps when you go for an appointment that he has access to all the data. Previously I had to take in printed pages of data. My Endo is a numbers man and certainly is very good at analysing the data. Very hard to argue with data!

Helen

Mar 28, 2015

NuMo 28 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Haven't been on the Dafne site for some time so am late into this discussion.

I was asked to trial the Libre by my diabetes team and jumped at the chance. I loved it from the word go. So much information at your fingertips - without pain to said fingertips! The trends are especially useful. I am on very small margins, so a slight error in either direction can create a big impact. With the help of the trend arrows and the insulin indicator, I was able to keep within target for 3 of the 14 days. Quite something for me. It is also the fact that you get such a complete picture, not just snapshots. You can see exactly what has been going on between testings. I am with Peter in that I believe this gives more information for the DVLA than finger pricking.

I found the software very informative too. I am not very IT literate and for me there was a lot of information there. It is possible to enable auto save if you so wish. Also you get information on the amount of carbs taken and insight into possible areas of special interest. I especially liked the projected HBA1c as it showed mine as a potential improvement of nearly 20 points!

Like Phil Maskell, I am sensitive to the adhesive and used tegaderm for this. Unfortunately, I suspect this may have caused several misfunctions which, so far with this latest sensor, seem to have been sorted by using Cavilon spray instead. I hope this is helpful Phil.

Being as I said earlier not brilliant with IT, it did not occur to me to e-mail Abbot, so I phoned them instead and found them very courteous and helpful.

I get the impression from reading other's comments that the feeling is that Abbot has rushed this onto the market. This could well be so as there are several shortfalls that I think they are bound to pick up on in time. Firstly, the blood monitor. It uses the old Optium strips which take a large amount of blood to activate, and if, like me, your skin is getting calloused from frequent testing, that amount of blood can be very painful and also rather slow to gather. Which brings me onto the next point. If you fail to get enough blood into the strip at first attempt, you don't get another chance - it's a new strip and more blood. Huh. Then there's the insulin calculator. Quite a handy gadget, but perhaps not essential for Dafnies. Anyway, it doesn't work on a scan it needs blood. To me this rather negates the point of it. Maybe they aren't that confident yet of the interstitial readings, but there we are. I have stopped using it now as I rarely finger prick and use the gingerbread man indicator and my Dafne knowledge to work it out for myself.

Having said that, I would recommend this product. It offers greater freedom and is very easy for others to use when one is ill - I speak from experience here. My sugars have improved since using the Libre and I hope they will continue to do so. The cost is a definite factor, but I look on it as around Â£25 per week which in terms of cigarettes ... or perhaps, pints? I don't know. For me, I think it worth paying for the freedom and the greater control. That doesn't stop me wishing it was on the NHS, but well, we can all wish.

Good luck with your Libre

Mar 28, 2015

Amy1987 2 posts

Topic: General Discussion / insulin

Hi sorry I don't have any advice but just wanted to say that I am having the same problem with my blood sugars raising overnight! Last night i went to bed and my sugars were 7.9, this morning they were 13! My diabetic nurse is thinking of changing which background insulin I'm on as I've tried having more background before bed and it's not working! X

Mar 28, 2015

Vickyp 137 posts

Topic: General Discussion / Diasend

I've just started using diasend, after my last appt with consultant so that they can check my levels without me phoning to read them out or emailing them...you do need a clinic code for that tho. Now I just phone to say I've uploaded and they get back to me if I need to make changes. The graphs etc are pretty good on diasend.

Mar 28, 2015

CurlyWurly 15 posts

Topic: General Discussion / Diasend

I got an email from mydiabetesmyway to invite me to take part in Diasend - has anyone else signed up for it?

Mar 28, 2015

Ellen 10 posts

Topic: General Discussion / insulin

Hello

I did the dafne course around a month ago after the course my blood sugars seemed to stabilise but now they are raising overnight, it seems to be that for a few weeks that amount of insulin works and then all of a sudden it seems as i need more and then this will work for a few weeks and then it needs changing again. Has anyone else experienced this? Also the diabetic nurse thinks i am on to much insulin for my bodyweight but i seem to keep needing more insulin, could this be because i am taking to much insulin and my body is not using it properly and that's why the doses are constantly changing?

Thanks

Mar 27, 2015

sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi guys

I to have not be brave enough to go swiming a yet but will igive it go soon. I have had one sensor fall off for no apparent reason but Abotts were great and send a replacement. As for the itchyness I have found that sometimes it is really really itchy , and then the itchyness goes away. The red marks do seem to take a while to go but I have found them not be painful, so have carried on using the sensors as it so cool to gym, and garden and check without having to stop.

Mar 27, 2015

Frazer 16 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Thanks Phil - I would be very interested in your swimming experiment. In view of what they said I would have thought that if the sensor stops working after swimming Abbott will refund you.

As to the other problem I would ask Abbott - their number is 008000 2255232.

Mar 27, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Following on from my recent comment about the mark and glue, I would be annoyed if I found they had changed the glue and I was allergic as I have got my HbA1c from 7.4 to 6.8 using the Libre and for the hour or so when I change the sensor I feel lost without it.

Even though its not perfect or 100% accurate I do like the knowledge of generally where by BG is Very Happy

Mar 29, 2015 Vickyp 137 posts	Topic: General Discussion / high bm can't get under control Have you tested your basal rate? Also, If I remember correctly a high on waking could be a sign if hypo through the night, may be worth doing some 3am tests. I would do some basal testing over about 3-4 days to see if that is a cause of the highs and if not then would only increase ratio by 0.5...so a 1.5:1 ratio. You may also need different ratios for throughout day, but again these would need individual testing. Remember only to change one thing at a time and leave for a few days to check for patterns, it also takes a good few days for lantus changes to show.

Mar 29, 2015 Morgiee 4 posts	Topic: General Discussion / high bm can't get under control Their you go thanks

Mar 29, 2015 Vickyp 137 posts	Topic: General Discussion / high bm can't get under control At the bottom of the post reply box there are a couple of boxes for date range of diary to include

Mar 29, 2015 Morgiee 4 posts	Topic: General Discussion / high bm can't get under control Thanks for your reply I will how do I upload it to this thread? I'm on a mobile. Its mixed it started on mornings and just before bed now its happening nearly every bm. Thanks

Mar 29, 2015 Vickyp 137 posts	Topic: General Discussion / high bm can't get under control If you share your diary it will be easier for us to see trends and maybe make suggestions. Remember exercise can put bm up due to the adrenaline. What are your current ratios? Are the highs before meals or after etc...your diary should show all this x

Mar 29, 2015 Vickyp 137 posts	Topic: General Discussion / Diasend I have the omnipod pump that I use with diasend, I have a cable that attaches to my PDM so I can download it. Not sure if diasend works for other meters? I know my optium won't.

Mar 29, 2015 Morgiee 4 posts	Topic: General Discussion / high bm can't get under control Hi over the past two weeks now I've had too many high bm mainly on a morning and night but now during the day too. Prior to two weeks ago bm were under control and my latest hba1c is 7.2 I'm considering changing my ratio to 2:1 however the last time I did that I was running low as I was taking more insulin than I normally would. Today I had a bm if 8.6 before exercise and was 11.7 afterwards! I have a new Meyer as well. Any suggestions would be great. Thanks

Mar 29, 2015 Alan 49 284 posts	Topic: General Discussion / Diasend I made a half-hearted attempt to use it, but it seems you have to download your BG readings directly from your meter. I don't think my meter can do that. Any guidance would be appreciated.

Mar 29, 2015 HelenP 218 posts	Topic: General Discussion / Diasend I have been using Diasend for a couple of years now and 4 months ago gave my endocrinologist direct access to my data. The way it works with me is that if he (the endo) suggests changes he will then ask me to upload the data on a specific day, send him an email and he can access it and send me further suggestions. This was especially helpful when he suggested I change 16 of my settings!!!!!! He got back to me via email and made a few extra suggestions. They can also write notes on Diasend but we do it by email. Very efficient way to get advice. I was a little unsure at first as it seemed too "big brotherish" but I am now OK with it. It certainly helps when you go for an appointment that he has access to all the data. Previously I had to take in printed pages of data. My Endo is a numbers man and certainly is very good at analysing the data. Very hard to argue with data! Helen

Mar 28, 2015 NuMo 28 posts	Topic: General Discussion / Cyborg Times (new BG meter) Haven't been on the Dafne site for some time so am late into this discussion. I was asked to trial the Libre by my diabetes team and jumped at the chance. I loved it from the word go. So much information at your fingertips - without pain to said fingertips! The trends are especially useful. I am on very small margins, so a slight error in either direction can create a big impact. With the help of the trend arrows and the insulin indicator, I was able to keep within target for 3 of the 14 days. Quite something for me. It is also the fact that you get such a complete picture, not just snapshots. You can see exactly what has been going on between testings. I am with Peter in that I believe this gives more information for the DVLA than finger pricking. I found the software very informative too. I am not very IT literate and for me there was a lot of information there. It is possible to enable auto save if you so wish. Also you get information on the amount of carbs taken and insight into possible areas of special interest. I especially liked the projected HBA1c as it showed mine as a potential improvement of nearly 20 points! Like Phil Maskell, I am sensitive to the adhesive and used tegaderm for this. Unfortunately, I suspect this may have caused several misfunctions which, so far with this latest sensor, seem to have been sorted by using Cavilon spray instead. I hope this is helpful Phil. Being as I said earlier not brilliant with IT, it did not occur to me to e-mail Abbot, so I phoned them instead and found them very courteous and helpful. I get the impression from reading other's comments that the feeling is that Abbot has rushed this onto the market. This could well be so as there are several shortfalls that I think they are bound to pick up on in time. Firstly, the blood monitor. It uses the old Optium strips which take a large amount of blood to activate, and if, like me, your skin is getting calloused from frequent testing, that amount of blood can be very painful and also rather slow to gather. Which brings me onto the next point. If you fail to get enough blood into the strip at first attempt, you don't get another chance - it's a new strip and more blood. Huh. Then there's the insulin calculator. Quite a handy gadget, but perhaps not essential for Dafnies. Anyway, it doesn't work on a scan it needs blood. To me this rather negates the point of it. Maybe they aren't that confident yet of the interstitial readings, but there we are. I have stopped using it now as I rarely finger prick and use the gingerbread man indicator and my Dafne knowledge to work it out for myself. Having said that, I would recommend this product. It offers greater freedom and is very easy for others to use when one is ill - I speak from experience here. My sugars have improved since using the Libre and I hope they will continue to do so. The cost is a definite factor, but I look on it as around Â£25 per week which in terms of cigarettes ... or perhaps, pints? I don't know. For me, I think it worth paying for the freedom and the greater control. That doesn't stop me wishing it was on the NHS, but well, we can all wish. Good luck with your Libre

Mar 28, 2015 Amy1987 2 posts	Topic: General Discussion / insulin Hi sorry I don't have any advice but just wanted to say that I am having the same problem with my blood sugars raising overnight! Last night i went to bed and my sugars were 7.9, this morning they were 13! My diabetic nurse is thinking of changing which background insulin I'm on as I've tried having more background before bed and it's not working! X

Mar 28, 2015 Vickyp 137 posts	Topic: General Discussion / Diasend I've just started using diasend, after my last appt with consultant so that they can check my levels without me phoning to read them out or emailing them...you do need a clinic code for that tho. Now I just phone to say I've uploaded and they get back to me if I need to make changes. The graphs etc are pretty good on diasend.

Mar 28, 2015 CurlyWurly 15 posts	Topic: General Discussion / Diasend I got an email from mydiabetesmyway to invite me to take part in Diasend - has anyone else signed up for it?

Mar 28, 2015 Ellen 10 posts	Topic: General Discussion / insulin Hello I did the dafne course around a month ago after the course my blood sugars seemed to stabilise but now they are raising overnight, it seems to be that for a few weeks that amount of insulin works and then all of a sudden it seems as i need more and then this will work for a few weeks and then it needs changing again. Has anyone else experienced this? Also the diabetic nurse thinks i am on to much insulin for my bodyweight but i seem to keep needing more insulin, could this be because i am taking to much insulin and my body is not using it properly and that's why the doses are constantly changing? Thanks

Mar 27, 2015 sarahg 29 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi guys I to have not be brave enough to go swiming a yet but will igive it go soon. I have had one sensor fall off for no apparent reason but Abotts were great and send a replacement. As for the itchyness I have found that sometimes it is really really itchy , and then the itchyness goes away. The red marks do seem to take a while to go but I have found them not be painful, so have carried on using the sensors as it so cool to gym, and garden and check without having to stop.

Mar 27, 2015 Frazer 16 posts	Topic: General Discussion / Cyborg Times (new BG meter) Thanks Phil - I would be very interested in your swimming experiment. In view of what they said I would have thought that if the sensor stops working after swimming Abbott will refund you. As to the other problem I would ask Abbott - their number is 008000 2255232.

Mar 27, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) Following on from my recent comment about the mark and glue, I would be annoyed if I found they had changed the glue and I was allergic as I have got my HbA1c from 7.4 to 6.8 using the Libre and for the hour or so when I change the sensor I feel lost without it. Even though its not perfect or 100% accurate I do like the knowledge of generally where by BG is