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Feb 11, 2015
Julieblu1 1 post

Topic: Carbohydrate Counting / Fruit juice V fruit

Encouraged by my very healthy son I've just bought a juicer. It's been mentioned by some of my friends that Juiced fruits are higher in CPs than whole fruit. Due to the fact that no effort/ energy goes into drinking fruit juice a opposed to chewing an apple for example. Anyone have any experience of this? How do I work out CPs for fruit juice?
 
Feb 11, 2015
HelenH 9 posts

Topic: General Discussion / Kit bags

http://www.bagsetc.co.uk/item/my/cosmetic-bag-with-organiser/95~0689~a38/blue-green-sanke

Hope this works - this is the blue version currently on website for £7.50 - I also bought the red & Black as they were so cheap. Interiors are detachable so can mix & match. Also nice enough to carry as a mini handbag.
Bagsetc.co.uk for online shopping or stores around country.

Love it!
 
Feb 11, 2015
Phil Maskell 194 posts

Topic: General Discussion / "Smart" insulin

Sounds great, but we've been promised so much since the Tomorrows World days in the 80s that have come to nothing, even if it works it will be decades before we see anything!

Still hoping though Very Happy
 
Feb 11, 2015
Jezzer 2 posts

Topic: Questions for HCPs / Metformin - lots of questions

I have been a T1 for 39 years - I have a number of questions regarding Metformin.....
Within the last 5 months I have been taking 500mg Metformin in the evening only to help my Insulin sensitivity.
Just under 1 month ago - I increased my dose to morning and evening as I was struggling with my daytime control so saw this as good step to take. However, it has caused me to have very bad flatulence in the evening and throughout the night and my feet have started to smell bad Crying or Very sad
1. Are these normal side effects ?
2. Can I have a morning dose instead of an evening dose (seeing as it is through the day that my control needs to be assisted more than through the night) ? (The flatulence starts almost as soon as I have taken my evening dose).
3. Can I drop or increase the dose if things start to go wrong ?
4. I am due to move to insulin pump therapy later this year - will I still need to take Metformin if I am on this therapy ?
 
Feb 10, 2015
Jenny 27 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Thank you.
 
Feb 10, 2015
HelenP 218 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Hi,

I have travelled multiple times with the pump.

I usually pack everything I could possibly need for the entire trip in my carryon luggage: second pump (we can borrow a "travel" pump from the manufacturers) and a second meter included (never needed either). Always carry a spare battery...have needed that!I I always only carry the diabetes stuff as carryon. Makes things easier if they do decided to go through it. Handbags with the usual stuff and a small bag with the diabetes stuff. Also have all the paperwork (Drs letter to verify what I need, this includes a complete list of everything). Carry insulin in a Frio pack but I have been warned not to activate the gel until I am through the security check as the wallet contains more than 100mL of "liquid". I now do this routinely as I would hate to have to jettison the pack at that point.

The checkin at departure usually wants a fair description of the contents of the bag but is usually happy with just the paperwork. The security check is much more thorough. I have been asked to take the pump off and let them examine it, (I never disconnect it) and I tell them it is fine to go through the walk through but not the grand, bag examining X-ray. Occasionally I have also been "wanded" all over. Once I was asked to take the battery out and the cartridge to prove there were no drugs inside...but that was once (Singapore) and I refused and a superior came, assessed the situation and waved me through.

When booking I always ask for an aisle seat with the aisle on my right side...this is the hip I then wear my pump on. Once had a passenger sitting next to me who could not leave my tubing alone...kept tugging on it! Very disconcerting. I always insist that my bag with the diabetes stuff be in the locker immediately above my head. Some airlines will attempt to move a small bag if they think they can jam more luggage into the overhead lockers. When quizzed I tell them I may need it mid flight and I need to be able to access it immediately (bit of an exaggeration but there you go).

I certainly watch the BGs but have never had an incident with the pressure although I am aware of the possibility. Regularly cross the equator where the turbulence can be bad but still no effect that I have noticed. As I tend to get nervous when flying I probably run higher than normal anyway.

I know someone who has a "pump holiday" when ever she travels overseas and goes back to MDIs. She says she feels more in control and does not then have to cope with time changes, long sleep ins etc when away. Once, I changed the time but as I was not using 24 hour times ended up with evening basals in the morning etc etc...I now run it all the time on 24 hour time.

Have a great trip. Helen
 
Feb 10, 2015
Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

From what I've been told by Abbot about ordering, they have been well over subscribed and are struggling to produce enough sensors, I wanted to buy 4 so I knew I had plenty and cut down on carriage/waiting in, website only lets you order 2 and won't let you order another 2 for 14 days. This supply issue might be why people are having issues ordering?

As for the device, I have had a few teething problems, but I love it, I work in IT so am a techie numbers guy and love allows knowing (although not overly accurate) where my BG is, I don't care about the software or the accuracy, its a general number, am I 4 going down or 15 going up?

2 years ago my HbA1c was 12% recently with effort I have got this to 7.9%, even with Xmas in between (always an issue BG wise) my latest was 6.8% Very Happy

 
Feb 10, 2015
JamesW 24 posts

Topic: General Discussion / "Smart" insulin

http://www.bbc.co.uk/news/health-31291722

Hopefully the link will be viewable to all.

By way of a precis....

<snip>
Scientists are hopeful that "smart" insulins which are undergoing trials could revolutionise the way diabetes is managed.

Instead of repeated blood tests and injections throughout the day to keep blood sugar in check, a single dose of smart insulin would keep circulating in the body and turn on when needed.
</snip>
 
Feb 9, 2015
Jenny 27 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Thanks.

It was this blog where I read about the pressure change thing:

http://asweetlife.org/feature/what-you-should-know-about-flying-with-an-insulin-pump/

I don't know how reliable it is.

Hope your trip goes well.
 
Feb 9, 2015
Peter 109 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Sarah, Thanks but I find it very strange given that there's a section in their help guide specifically about the subscription: http://www.freestylelibre.co.uk/help/subscription.html
 
Feb 9, 2015
sarahg 29 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Guys I did ask about this just before Christmas and was told it was not set up yet,must say can't wait for it to be set up as I am not that great a remembering to order them.
 
Feb 9, 2015
Peter 109 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Has anybody found out the cost the annual subscription yet. I can find it described on the Abbott website, but it doesn't appear as an option in the "shop". I'm wondering whether to have to have bought a meter and some sensors first, and then they'll tell you what the annual cost is???
 
Feb 9, 2015
Peter 109 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Jenny,

I'll be trying it for the first time (after having the pump for 3 months) later this month. The advice I've received is solely about getting through security and amounts to turning up with plenty of time (3 hours recommended!!) and having a letter from your doctor saying that you're using a pump.

I guess there are two other factors that will come into play: the type of pump you're using and the destination you're travelling to. In my case I have a patch pump, so can't remove it prior to the security check, although the PDM (controller) will go through the scanner along with my phone, tablet etc. Remember that you must be able to power on any electrical device to prove it's not be tampered with, so taking the battery out sounds odd. \

I would imagine that for most non third world countries where pump usage is increasing that the security staff will be used to it. This will be especially true for the US where most type 1's seem to have a pump. I'll be able to confirm that, after my trip there in 2 weeks. Elsewhere in the world it may be more of a challenge, but if you have problems my advice would always be to ask for the supervisor and explain the situation. They will be able to override any difficulties you may have had with the front line staff.

I've not heard of any problems with pressure changes. The manuals with mine certainly don't say that it's necessary to turn it off at take-off.

Good luck.
 
Feb 9, 2015
Jenny 27 posts

Topic: General Discussion / Travelling by plane with an insulin pump

Hello.

I wondered if anyone has any advice on travelling by plane with an insulin pump. I've been on a plane as a person with diabetes and always get really scared at the security check and hand luggage scanner. But I haven't been on a plane since being on a pump (3 years).

My diabetes nurse says the pump must not pass through the X-ray scanner but I have checked with the pump manufacturer and the info says that it can, provided that the battery has been removed.

So I wondered if anyone with experience could fill me in on what is likely to happen at that point. Also if anyone has tips on flying that would be good to. I read in a blog that someone recommended disconnecting the pump for take off and landing because it can give more insulin than you expect due to the pressure change.

Thanks
 
Feb 9, 2015
Sharon McNally 1 post

Topic: Carbohydrate Counting / Coca Cola Life

I moved over to this Coke Life because it doesn't contain Aspartame. OK, I don't like it as much as Diet Coke with Lime but at least it gives me that hit of FIZZ I crave at lunchtimes. As I have only just finished DAFNE I am behaving myself and limiting my intake to just one can a day (2 CP's).
 
Feb 8, 2015
Stew B 125 posts

Topic: General Discussion / Any ideas for Research needed around DAFNE?

Thanks for your reply above Peter.

It's clearly an issue for a different thread, but I would say that as someone who graduated 7 years ago and who still uses DAFNE as taught, I would appreciate an "updating" session on things which have changed (improved) since my course, and a chance to review of whether any bad habits etc. have inadvertently crept into my day-to-day practice. It would also be good to meet up with some fellow graduates.

Stew
 
Feb 7, 2015
mum2westiesGill 502 posts

Topic: General Discussion / Kit bags

HelenH glad you've got sorted. Have you got a link for the one you got please?
 
Feb 6, 2015
HelenH 9 posts

Topic: General Discussion / Kit bags

Eventually settled for a "make up" bag from bags etc (shops + also website) has removable brush holders &/or mesh bags + various pockets inside. Holds novopen, Meter, finger pricker, strips, hypo-treatments, mobile, tissues and still room left. Usual price £15 - got mine half price! Several colours available - ideal & cheap!
 
Feb 4, 2015
LeanneHR 2 posts

Topic: General Discussion / Any ideas for Research needed around DAFNE?

Hi there,

I did DAFNE around 2 years ago and it has changed the way I mannage my diabetes in a massive way. I did find that in the classroom environment it was a lot simpler to get your QA and CP intake almost perfect. It is a different story once you hit the real world again, it would be great if there was a online follow up support system that you could email for advice. This website isn't the best for a forum... I have the DAFNE App for my readings etc but it would be good to have something a bit more user friendly as a forum like a DAFNE Twitter or FB... Just for diabetes ☺️

Thanks
 
Feb 4, 2015
Fudge 2 posts

Topic: DAFNE Online Mobile / Can a ipad app talk to the iPhone?

Thanks Simon. All working well now. Very Happy
 
Feb 2, 2015
Peter 109 posts

Topic: General Discussion / Input on new draft NICE Guideline on Diagnosis and Management of Type 1 Diabetes in Adults

I have another request from the DAFNE Executive for you input please.

NICE are in the process of updating their National Clinical Guideline on the treatment which should provided to all Type 1 Diabetics in the UK. This will be the first major update since 2004. The update will be published later this year (target in August) and will define the care we should be receiving in the next 10 years, and is therefore critical to all of us. The draft version has now been published for review. It covers a total of 183 recommendations in the following areas:

  • Diagnosis
  • Care process and support
  • Education programmes and self-care
  • Blood glucose control
  • Insulin therapy
  • Referral for islet or pancreas transplantation
  • Impaired awareness of hypoglycaemia
  • Ketone monitoring and management of diabetic ketoacidosis
  • Associated illness
  • Arterial risk control
  • Inpatient management
  • Management of complications

The revised recommendations range from the number of test strips which should be made available per day (at least 4 and up to 10 in some circumstances) to the preferred basal regime (twice-daily insulin detemir) and needle selection (choose needles with the lowest acquisition cost to use with pre-filled and reusable insulin pen injectors).

Within the Guideline encouragingly there are multiple mentions of DAFNE (e.g. Offer all adults with type 1 diabetes a structured education programme of proven benefit, for example the DAFNE programme). As a result the DAFNE Executive are stakeholders of the programme and are currently putting together a response to this draft and they have asked for input from graduates.

The whole Guideline runs to over 600 pages (excluding appendices)! There is also a summary available which covers all the recommendations, but excludes the scientific evidence justifying each. This is "only" 81 pages long. Both can be found here: Nice Type 1 Draft Guideline.

Any feedback you have can be submitted by responding to me directly at [email protected] or by replying to this topic. All suggestions will be passed to the DAFNE Executive for consideration in their response.

Finally, note your feedback is required urgently. Unfortunately the deadline I've been given for sending responses to the DAFNE Executive means that I need your comments within one week i.e. by the end of Monday 9th February. Sorry for the short notice with such lengthy documents.

Many thanks.