Recent Posts - DAFNE Online

May 4, 2015

AMcD 38 posts

Topic: General Discussion / Carb petition

McDonald's display all Carbs and other information on the back of the paper tray mat that comes with every eat in order.... bring your magnifying glass though it's in very small text!! Andy

May 4, 2015

AMcD 38 posts

Topic: General Discussion / Pumps

Just started on a pump after 25 years of MDIs. Using a medtronic mini med pump. Easy to use. Has a built in bolus wizard which picks up your BM from the meter that comes with the pump automatically. Input your carbs with a few easy clicks and it will apply preprogrammed ratios and BM targets and calculate corrections. Only on it 2 weeks but so far so good. Has good option also for reducing basal rate which is excellent if you have planned exercise. Very simple to use. Andy

May 4, 2015

keith bohanna 5 posts

Topic: Questions for HCPs / Morning Bloods climb steadily

Thanks Warwick. I went ahead on raising basal and now monitoring to see how it impacts over 2 or 3 days. I was using a different system for logging my diary but have now switched to the Dafne software so I can do as you suggested in future :-)

May 1, 2015

Warwick 423 posts

Topic: General Discussion / CGMS

Hi Tracey, I've only worn one once, and it was painless. If the pain doesn't subside, then I'd strongly suggest removing it and trying a different site.

May 1, 2015

Warwick 423 posts

Topic: Questions for HCPs / Morning Bloods climb steadily

Hello Keith,

Are you able to share your diary with this thread? (See the "Include my Blood Glucose Diary entries between..." fields below.

It is always difficult to make suggestions without seeing this, knowing what kind of insulins you are on, when you are injecting, whether you are exercising etc.

It does sound like your basal could be increased, but I'd want to see your diary before actually stating that.

Thanks,
Warwick.

Apr 30, 2015

Alan 49 284 posts

Topic: General Discussion / Freestyle Libre

Have a look at the 'Cyborg Times' topic in this 'General Discussion' forum - there are lots of user-comments about the Libre there.

Apr 30, 2015

SignyS 1 post

Topic: General Discussion / Freestyle Libre

I can only dream of one Laughing

Do let us know how you get on with it Very Happy

Apr 30, 2015

Type1Bri 11 posts

Topic: General Discussion / Freestyle Libre

Hi Everybody

I ordered my Freestyle Libre on Tuesday this week and wondered if there are any other users on here??

Hopefully chat soon

Apr 30, 2015

keith bohanna 5 posts

Topic: Questions for HCPs / Morning Bloods climb steadily

Confused right now. Almost every day for the last 2 weeks I have seen my pre-breakfast blood sugars be within range, eaten a normal measured carbo intake and taken normal insulin against that. So established routine. But within 2 hours seen my blood sugar rise to 12 to 15.

This morning with a pre-breakfast blood sugar a little high I took 12 units of Humalog (I am on 3:1 ratio) and ate nothing, just had a cafetiere of coffee.

06:14 - 11.4 (took 12 units Humalog)
07:34 - 9.8
08:43 - 10.6
09:43 - 11.9
10:48 - 12.4

So with standard nighttime Lantus taken yesterday my sugars briefly lower and then start climbing with no carbo intake. Even if the Humalog is peaking after 2 hours why might the steady climb be happening?

How do I go about making sense of this? Thanks! Should say I am going to eat nothing and take no further insulin to see how this plays out until 1pm

> 10:53
Just added 10:48 reading and as it continues to climb going to take 9 units of Humalog so that I have the prospect of eating lunch without spiking it further.

Seems that I will need to increase night time Lantus dose to counter this?

Apr 28, 2015

Tracey F 2 posts

Topic: General Discussion / CGMS

Today I got a CGMS monitor fitted.(continuous glucose monitoring system). It was so so painful when inserted . This was at 10am. It's now 8.45pm and I am in real pain where the monitor has been inserted (at the front of my waist). Has anyone else experienced this and will this pain subside? I've to keep it in for 6 days but am on the verge of pulling it out as it's becoming unbearable. Is this normal? Help .

Apr 27, 2015

marke 681 posts

Topic: General Discussion / DiAthlete - an inspiration

On Saturday we did a DAFNE Online presentation at Addenbrooke's Hospital Cambridge for their patient day. However we were just the warm up act for the next speaker who was billed as the 'inspirational speaker'. I must admit to being a bit dubious when I saw this on the agenda, but no they were right Shocked

. The speaker was Gavin Griffiths who is also known as diAthlete and his story should be an inspiration to us all. He was diagnosed as Type 1 at 8 years old and like most of us spent the next 8-9 years being told what he could not do and got increasingly frustrated by this. Unlike most of us, he decided he was going to prove all these people wrong. His first way of doing this was to run 29 miles in 3 hours for charity. He then just took on more and more challenging tasks. Probably the biggest of which was to run from John O'Groats to Lands End, 30 miles for 30 days. As he said to us, Eddie Izzard does it and the whole of the UK media are there, a Type 1 diabetic does it and hardly anyone cares ( not even the national Diabetes Charity, but lets not go there). He has plans for bigger challenges yet and listening and chatting to him just shows you what you can achieve if you DON'T let all those people who tell you Type 1 limits you !! Respect !

Please check out his website http://www.diathlete.org and look out for him. One of the things we chatted about was the medical exemption card fiasco and he is fighting the fines made for not having a valid card. He was one of those fined for not having one despite moving from juvenile care ( where you don't need one) to adult care and never being told he actually needed one. He has got the fine refunded for people and is now fighting to get back the cost of the prescriptions that he should not have had to pay for. As with his running challenges, he is not letting people discriminate against him just because he is T1 !! Respect Again.

The only bad thing I can say about him, is his life's ambition was to play for Crystal Palace, which just proves no one is perfect Wink

Apr 27, 2015

sawestall27 2 posts

Topic: Carbohydrate Counting / Pineapple

I find if I eat only fruit salad for lunch, I only need half the insulin calculated for the number of carbs eaten.

Apr 26, 2015

Simon 578 posts

Topic: General Discussion / 15 Years of DAFNE

2017 will mark 15 years since the DAFNE course was first rolled out. Lead Educator Sally Woolgar has asked us all for help in publicising this significant event.

Firstly, if anyone works in the media and would be willing to collaborate with us to work up an awareness/publicity campaign then please get in touch with Sally directly via email.

Secondly, if there are any members who would be willing to contribute stories on
1. how DAFNE has helped them manage a particular situation â€“ e.g. sport/work/pregnancy/illness/anything else
2. continues to help manage everyday life
3. the difference 5 days makes â€“ life before and after DAFNE.
4. how DAFNE online helps e.g. the chat room/shared experiences and support

Our idea is to compile a portfolio of peoples stories and information about the programme that can be sent to media outlets newspapers, magazines etc. to try and get as many stories in the media as we can. The greater variety of stories we have the better, short or long. Sometimes we think we are not extra ordinary enough to interest others but that isnâ€™t the case, people are interested in other people, not really in dry research data. I would also like to share the stories across the educator networks, the NHS can be a difficult place to work, we all need some good news to remind us why we do what we do.

Please share your stories here or directly by emailing them to Sally

Apr 26, 2015

Warwick 423 posts

Topic: Questions for HCPs / Question

Hmmm, I only just downloaded the app this afternoon so I'm not sure how that works. I guess the readings have to be in the web site to be displayed, but not sure if there is a way of uploading them from the app or whether they stay local on the device. Just to confirm, are you using the correct format - DDMMYY? So 260415 for today for example?

Apr 26, 2015

Sarah M 4 posts

Topic: Questions for HCPs / Question

No, I have them all on my app but when I ask it to update onto the site it just says there is no readings

Apr 26, 2015

Warwick 423 posts

Topic: Questions for HCPs / Question

Do you get an error message at all?

Apr 26, 2015

Sarah M 4 posts

Topic: Questions for HCPs / Question

Can't seem to add them ðŸ˜£

Apr 26, 2015

Monique 2 posts

Topic: General Discussion / Carb petition

Hello everyone,

I've seen on a few sites petitions to make hypo sized bottles of lucozade. And it got me thinking how much easier would it be for us all if takeout menus,mcds ect displayed the amount of carbs next to an item?? I know a lot of places now display calories. Has anyone seen a petition for this or now how to go about starting one?? thankyou

Apr 26, 2015

Warwick 423 posts

Topic: Questions for HCPs / Question

Are you able to share your diary with this forum? Just use the "Include my Blood Glucose Diary entries between..." fields below the "Post Reply" button.

if your BGs when you wake are within 1.5 mmol/L of where they were before bed, then BI is probably within target, and the culprit is likely to be the QA ratios as you mention. But if they differ largely, then BI adjustment may be required.

Apr 26, 2015

Sarah M 4 posts

Topic: Questions for HCPs / Question

Still happening, now trying the ratio adjustment

Apr 26, 2015

Warwick 423 posts

Topic: Questions for HCPs / Question

Hi Sarah,

It is unlikely to be the BI increase that has done this. It could be a one-off random result, your body fighting an infection, menstruation, stress...

Is it still happening or was it just an issue that particular day?

May 4, 2015 AMcD 38 posts	Topic: General Discussion / Carb petition McDonald's display all Carbs and other information on the back of the paper tray mat that comes with every eat in order.... bring your magnifying glass though it's in very small text!! Andy

May 4, 2015 AMcD 38 posts	Topic: General Discussion / Pumps Just started on a pump after 25 years of MDIs. Using a medtronic mini med pump. Easy to use. Has a built in bolus wizard which picks up your BM from the meter that comes with the pump automatically. Input your carbs with a few easy clicks and it will apply preprogrammed ratios and BM targets and calculate corrections. Only on it 2 weeks but so far so good. Has good option also for reducing basal rate which is excellent if you have planned exercise. Very simple to use. Andy

May 4, 2015 keith bohanna 5 posts	Topic: Questions for HCPs / Morning Bloods climb steadily Thanks Warwick. I went ahead on raising basal and now monitoring to see how it impacts over 2 or 3 days. I was using a different system for logging my diary but have now switched to the Dafne software so I can do as you suggested in future :-)

May 1, 2015 Warwick 423 posts	Topic: General Discussion / CGMS Hi Tracey, I've only worn one once, and it was painless. If the pain doesn't subside, then I'd strongly suggest removing it and trying a different site.

May 1, 2015 Warwick 423 posts	Topic: Questions for HCPs / Morning Bloods climb steadily Hello Keith, Are you able to share your diary with this thread? (See the "Include my Blood Glucose Diary entries between..." fields below. It is always difficult to make suggestions without seeing this, knowing what kind of insulins you are on, when you are injecting, whether you are exercising etc. It does sound like your basal could be increased, but I'd want to see your diary before actually stating that. Thanks, Warwick.

Apr 30, 2015 Alan 49 284 posts	Topic: General Discussion / Freestyle Libre Have a look at the 'Cyborg Times' topic in this 'General Discussion' forum - there are lots of user-comments about the Libre there.

Apr 30, 2015 SignyS 1 post	Topic: General Discussion / Freestyle Libre I can only dream of one Do let us know how you get on with it

Apr 30, 2015 Type1Bri 11 posts	Topic: General Discussion / Freestyle Libre Hi Everybody I ordered my Freestyle Libre on Tuesday this week and wondered if there are any other users on here?? Hopefully chat soon

Apr 30, 2015 keith bohanna 5 posts	Topic: Questions for HCPs / Morning Bloods climb steadily Confused right now. Almost every day for the last 2 weeks I have seen my pre-breakfast blood sugars be within range, eaten a normal measured carbo intake and taken normal insulin against that. So established routine. But within 2 hours seen my blood sugar rise to 12 to 15. This morning with a pre-breakfast blood sugar a little high I took 12 units of Humalog (I am on 3:1 ratio) and ate nothing, just had a cafetiere of coffee. 06:14 - 11.4 (took 12 units Humalog) 07:34 - 9.8 08:43 - 10.6 09:43 - 11.9 10:48 - 12.4 So with standard nighttime Lantus taken yesterday my sugars briefly lower and then start climbing with no carbo intake. Even if the Humalog is peaking after 2 hours why might the steady climb be happening? How do I go about making sense of this? Thanks! Should say I am going to eat nothing and take no further insulin to see how this plays out until 1pm > 10:53 Just added 10:48 reading and as it continues to climb going to take 9 units of Humalog so that I have the prospect of eating lunch without spiking it further. Seems that I will need to increase night time Lantus dose to counter this?

Apr 28, 2015 Tracey F 2 posts	Topic: General Discussion / CGMS Today I got a CGMS monitor fitted.(continuous glucose monitoring system). It was so so painful when inserted . This was at 10am. It's now 8.45pm and I am in real pain where the monitor has been inserted (at the front of my waist). Has anyone else experienced this and will this pain subside? I've to keep it in for 6 days but am on the verge of pulling it out as it's becoming unbearable. Is this normal? Help .

Apr 27, 2015 marke 681 posts	Topic: General Discussion / DiAthlete - an inspiration On Saturday we did a DAFNE Online presentation at Addenbrooke's Hospital Cambridge for their patient day. However we were just the warm up act for the next speaker who was billed as the 'inspirational speaker'. I must admit to being a bit dubious when I saw this on the agenda, but no they were right . The speaker was Gavin Griffiths who is also known as diAthlete and his story should be an inspiration to us all. He was diagnosed as Type 1 at 8 years old and like most of us spent the next 8-9 years being told what he could not do and got increasingly frustrated by this. Unlike most of us, he decided he was going to prove all these people wrong. His first way of doing this was to run 29 miles in 3 hours for charity. He then just took on more and more challenging tasks. Probably the biggest of which was to run from John O'Groats to Lands End, 30 miles for 30 days. As he said to us, Eddie Izzard does it and the whole of the UK media are there, a Type 1 diabetic does it and hardly anyone cares ( not even the national Diabetes Charity, but lets not go there). He has plans for bigger challenges yet and listening and chatting to him just shows you what you can achieve if you DON'T let all those people who tell you Type 1 limits you !! Respect ! Please check out his website http://www.diathlete.org and look out for him. One of the things we chatted about was the medical exemption card fiasco and he is fighting the fines made for not having a valid card. He was one of those fined for not having one despite moving from juvenile care ( where you don't need one) to adult care and never being told he actually needed one. He has got the fine refunded for people and is now fighting to get back the cost of the prescriptions that he should not have had to pay for. As with his running challenges, he is not letting people discriminate against him just because he is T1 !! Respect Again. The only bad thing I can say about him, is his life's ambition was to play for Crystal Palace, which just proves no one is perfect

Apr 27, 2015 sawestall27 2 posts	Topic: Carbohydrate Counting / Pineapple I find if I eat only fruit salad for lunch, I only need half the insulin calculated for the number of carbs eaten.

Apr 26, 2015 Simon 578 posts	Topic: General Discussion / 15 Years of DAFNE 2017 will mark 15 years since the DAFNE course was first rolled out. Lead Educator Sally Woolgar has asked us all for help in publicising this significant event. Firstly, if anyone works in the media and would be willing to collaborate with us to work up an awareness/publicity campaign then please get in touch with Sally directly via email. Secondly, if there are any members who would be willing to contribute stories on 1. how DAFNE has helped them manage a particular situation â€“ e.g. sport/work/pregnancy/illness/anything else 2. continues to help manage everyday life 3. the difference 5 days makes â€“ life before and after DAFNE. 4. how DAFNE online helps e.g. the chat room/shared experiences and support Our idea is to compile a portfolio of peoples stories and information about the programme that can be sent to media outlets newspapers, magazines etc. to try and get as many stories in the media as we can. The greater variety of stories we have the better, short or long. Sometimes we think we are not extra ordinary enough to interest others but that isnâ€™t the case, people are interested in other people, not really in dry research data. I would also like to share the stories across the educator networks, the NHS can be a difficult place to work, we all need some good news to remind us why we do what we do. Please share your stories here or directly by emailing them to Sally

Apr 26, 2015 Warwick 423 posts	Topic: Questions for HCPs / Question Hmmm, I only just downloaded the app this afternoon so I'm not sure how that works. I guess the readings have to be in the web site to be displayed, but not sure if there is a way of uploading them from the app or whether they stay local on the device. Just to confirm, are you using the correct format - DDMMYY? So 260415 for today for example?

Apr 26, 2015 Sarah M 4 posts	Topic: Questions for HCPs / Question No, I have them all on my app but when I ask it to update onto the site it just says there is no readings

Apr 26, 2015 Warwick 423 posts	Topic: Questions for HCPs / Question Do you get an error message at all?

Apr 26, 2015 Sarah M 4 posts	Topic: Questions for HCPs / Question Can't seem to add them ðŸ˜£

Apr 26, 2015 Monique 2 posts	Topic: General Discussion / Carb petition Hello everyone, I've seen on a few sites petitions to make hypo sized bottles of lucozade. And it got me thinking how much easier would it be for us all if takeout menus,mcds ect displayed the amount of carbs next to an item?? I know a lot of places now display calories. Has anyone seen a petition for this or now how to go about starting one?? thankyou

Apr 26, 2015 Warwick 423 posts	Topic: Questions for HCPs / Question Are you able to share your diary with this forum? Just use the "Include my Blood Glucose Diary entries between..." fields below the "Post Reply" button. if your BGs when you wake are within 1.5 mmol/L of where they were before bed, then BI is probably within target, and the culprit is likely to be the QA ratios as you mention. But if they differ largely, then BI adjustment may be required.

Apr 26, 2015 Sarah M 4 posts	Topic: Questions for HCPs / Question Still happening, now trying the ratio adjustment

Apr 26, 2015 Warwick 423 posts	Topic: Questions for HCPs / Question Hi Sarah, It is unlikely to be the BI increase that has done this. It could be a one-off random result, your body fighting an infection, menstruation, stress... Is it still happening or was it just an issue that particular day?