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15,864 posts found
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Sep 19, 2012
JuliaM
5 posts
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Topic: General Discussion / Dafne app Just noticed there is an update to app that fixes issues saving on ios4....... I will let u know! thanks
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Sep 19, 2012
JuliaM
5 posts
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Topic: General Discussion / diary keeping help! Hi phil and sarah - altho i am currently havin hassle with the comments not saving- see post just left- i do find the app vg. BUT sarah i know exactly what u mean! It is a big faff! My dafne nurse sugg that if i could ONE complete week rather than the very odd entries from time to time that would be much more helpful. Of cors i know this but it gave me permission to focus on the short term recording for a week and that was somehow easier psychologically than feeling it was always such a drag. My next goal is to try and actually have a weekly slot eg sun eve where i review that week of results- otherwise its no point! So then once ive identified one problem area to work on eg bfast then i focus just on fillin in the night and morn qa/bg/cp and not the whole lot. So it helps to be 'on a mission' for just one bit of my day instead of all! |
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Sep 19, 2012
JuliaM
5 posts
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Topic: General Discussion / Dafne app None of my comments are bein saved when i have tyoed hem in below a record and pressed save. When i go back to that entry the bg and cp and time are all here but not the comment. It is v annoying and im considering goin back to pen and paper diary! Anyone else have this problem? |
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Sep 19, 2012
Phil Maskell
194 posts
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Topic: General Discussion / diary keeping help! I was going to sugest the smart phone app, but you have that.Does your BG meter record previous readings? Could you leave them on the meter and enter them in the app for 10 mins in the evening or something. I would guess it would have to be same day to remember CP and Insulin, if I'm hypo and out on my bike I will do a test then add that to the phone when I get back using the time from the meter. In general I have got in the habit of testing filling this in on the phone as it now calcs the QA + Correction based on the CP and BG, so it saves me having to think about ratios etc... Phil |
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Sep 19, 2012
Alan 49
284 posts
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Topic: General Discussion / Diabetic jokes Romance is in the air:There once was a diabetic called Hector Whose control was in the 'bad' sector, So after much thought Twas DAFNE he sought Now he loves her and will never reject her. There once was a diabetic called Jack Whose approach to diabetes was slack He was sent on a course With DAFNE, of course Now he says that he'll never look back. There was a diabetic from Penzance Whose control was much left to chance So then DAFNE took over He thought 'I just love her' So this was the start of a romance. A diabetic from across the Atlantic Had control that made him quite frantic, To DAFNE he was sent A week with her he spent Now he loves her - it's really romantic. |
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Sep 19, 2012
sarahl84
5 posts
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Topic: General Discussion / diary keeping help! Hi all, i need motivation to keep a record of my readings!!! I was diagnosed in 1986 & so I should really know better but to be honest i've never been great at keeping record of BG & insulin intake, i start off well then after a few weeks i slip back & i've got myself into a rut again & need your tips to get me back on track as I think my control is now starting to suffer had a few unexplained hi readings. At my last appointment in June my HBA1C had gone upto 7.4 & the consultant did encourage me to keep a record. I have the DAFNE app on my smartphone to keep the diary...i just need to use it! Any tips...think it's basically laziness on my part. So I've started to use the app (again) today but just want some tips/encouragment to keep using it...before i go back the hospital & the consultant tells me off lol. Hope you can help me
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Sep 17, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / Result. Ah, a CGM (Continuous Glucose Monitor) I believe that was, some of the pumps available now can pair up with these CGMs to work side by side without virtually any input from the user.............really expensive though to run all the time, that's why they get used just to see whats happening to blood sugar over night etc, lets them fine tune the basal requirement.....Enjoy your break from the web......
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Sep 17, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / Let's hear your story! I done DAFNE in January 2009 after unofficially following the principals under instruction from my Dietician for about a year, who at the time was pushing for people to attend the course.Previous to this I had never heard of MDI/Basal-Bolus and was using a mixed Insulin since 1999. I would say I was in a bad way in terms of control. I had recently split from a long term relationship, was skint, and wasn't eating well, so if I didn't eat, I didn't inject. Now on MDI you can get away with this, but not mixed. I was always high and my immune system was very low, made obvious by cuts never healing and bouts of thrush.... So when I finally got on DAFNE and started learning how to control my blood sugars it literally changed my life completely. I almost instantly felt better, more energy, and got my appetite back. It was unbelievable how easy it was and that I had been missing out all this time. I dont think I could say what my favorite aspect of the course was, I suppose if I had to choose it would be the interaction with other diabetics in the same boat as you, that really did make a difference in my opinion. I think all type 1 diabetics should be given this course, I realize funding is an issue for some PCTs but at the very least they should be made aware of the basics. Newly diagnosed patients will get the information much easier than the older generations. Its the older generations that need to be educated as they are stuck in their ways.... I went from an HbA1c of 11.7% pre DAFNE, to an HbA1c of 8.2 post DAFNE, it really does improve things significantly. I have only managed to get down to 8% since then, this is because of weekends and I believe mid meal spiking. No doubt its many other things. But I will be going on a pump soon because of this... It has been a few years now since DAFNE, but I would say my control has got better over time, as it takes that long to get to know your body and refine your methods and techniques that work best for you, and even when you have reached a point of good methods and techniques you still have to battle against the unpredictability of life in general, which can give you dodgy results with no explanation... I try to visit the site on a daily basis so as to read the forum and discuss our conditions, help each other. I also have used the online diary quite a lot, however recently I have not had a lot of time to do so with work and a new baby. But the diary is very useful for record keeping, giving you a guess at your HbA1c and helping with making adjustments. Its also used a lot in the forums too when people need some fresh eyes to look for issues/solutions. DAFNE is only the foundation to build your treatment on, but its a mighty strong one that's for sure...... 
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Sep 17, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / Result. So Vic, did you actually use the pump for a year then?I was using the flexibility of the pump to describe why a split dose of BI is better for most folk, as our livers dont secrete a constant level of glucose all day, it changes, and most noticeably between day and night...... the pump definitely isn't for everyone though, i agree, at least in terms of getting used to it being there etc......
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Sep 17, 2012
vic demain
87 posts
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Topic: General Discussion / Let's hear your story! Have a look at the "results" thread and you will see 3 peoples experiences. |
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Sep 16, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right
Over to you then Simon, Annette as a developer myself I am guessing Simon will probably ask you for the logs when you add a carb entry, but on iOs I am not sure how to get these so I will leave this to Simon  Phil |
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Sep 16, 2012
Phil Maskell
194 posts
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Topic: General Discussion / Let's hear your story! Hi,I did DAFNE at Nottingham QMC in November 2005, my reason being I was self adjusting my insulin like DAFNE without any clue really. My HbA1C was 11 ish at times which I got down to about 9 before DAFNE, after DAFNE it is now 7 ish, last one was 7.2. Sorry still do my HbA1Cs in old format I have recently found that I have been on a low carb diet pre holiday and my control is so much better I am hoping for a 6 ish in my next HbA1C Another big reason for doing DAFNE and trying to get things under better control was I had a bad case of retinopathy, having laser on a weekly basis in both eyes, followed by an Avastin injection in one eye. Since doing DAFNE and getting better control and having the injection and laser I have gone from weekly eye checks with laser to 12 monthly checks now, as touch wood I have had no more significant growth. Overall I think DAFNE has improved my control greatly, I can now inject and correct if needed with confidence a mistake I used to make before DAFNE was to correct high BG at any time not just at meals and would then hypo and then over correct, yo-yoing a lot. I used to have an excel spreadsheet on my old phone before the days of the iPhone and am a software developer with the intention of developing something like the DAFNE Online app, but too lazy in my spare time to get round too it! I think the iPhone app is a great thing and big improvement over my excel spreadsheet, I use the app for every blood test and injection, between 5 and 10 a day depending on exercise and hypos. Further to the app I have found this forum invaluable for support and having had diabetes for over 25 years and try to pass on anything I found useful along the way. I hope this information is what you wanted, ask me any more questions if you would like to know anything else. Phil |
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Sep 16, 2012
Annette Bell
72 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Yep I'm on same as you, but on the iPod touch. |
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Sep 16, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Annette what version of the app are you on? What device and iOs version? The carb function works fine on mine.I am on the latest 1.6.2 on later iOs 5.1 I think (too lazy to go fetch my phone to check) on an iPhone 4 Simon I hope this info helps Phil |
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Sep 16, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Annette what version of the app are you on? What device and iOs version? The carb function works fine on mine.I am on the latest 1.6.2 on later iOs 5.1 I think (too lazy to go fetch my phone to check) on an iPhone 4 Simon I hope this info helps Phil |
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Sep 16, 2012
pfordmartin
5 posts
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Topic: General Discussion / Let's hear your story! Hello everyone. I am a freelance writer working on a feature piece about DAFNE for JDRF’s Countdown magazine. I’m looking for a few DAFNE participant stories to share in the piece. I’d greatly appreciate you sharing your experiences to help our US readers learn more about this program. You can either post to this thread or private message me. Following is an idea of what I'm looking for...you can contribute as much or as little as you'd like:When did you take the course? What was your favorite aspect of it? Overall impressions (good and bad)? How was your control after completing DAFNE? If it’s been some time since you finished DAFNE, how is your control today? Do you use the DAFNE Online site and tools frequently? How do they help (or not)? And anything else you think is worth sharing! Thanks in advance for your contributions. I’m looking forward to hearing your stories! Best, Paula Ford-Martn  EDIT: If you'd also like to share your diagnosis date and what brought you to DAFNE (how you were doing with diabetes control before the course), I'd love to hear about that too.
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Sep 15, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / Result. I am recommending the BI adjustment, this is because BI should be used for long slow periods of change and the QA for short fast changes..........but both can be used in combination, but I would imagine only athletes and the like would need to think about it that deep...... When I went to DAFNE, nearly all were on it, I was on it, but its just not flexible enough for the majority if not all people in my opinion, there could be debate from the Lantus camp obviously, but I just cant see why people would favour, to me its just people are too familiar with it and fear change..... most folk would agree that that the insulin pump is the best form of treatment, provided you can use it properly, and the pump has many BI dose, one for every hour if needed, the ultimate flexibility, that's my angle on it anyway......so having a split BI dose is the very least folk should be doing,................
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Sep 14, 2012
Simon
578 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Ah I see what you mean Phil - apologies for misunderstanding; I'll work on that for the next update.Also Anette; I'll look at the carbs problem you mention; if anybody else has experienced it then can you let me know? Thanks! |
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Sep 14, 2012
Annette Bell
72 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Yes, I've tested it too & it still suggesting minus amounts for QA even though I'm not having any CP's therefore no QA at bedtime, before driving etc. Also, the new add your own Carb content items doesn't allow me to save them. I've tried adding one & as soon as I say "done" it deletes everything I've put in apart from the category. When I look in the list it's just listed as "carb item" with no value - which isn't a lot of good really!
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Sep 14, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Just tested, if I add a before driving with say 4.2 and no CP so therefore no QA it still suggests QA of 0-2 in my case.What would would be nice to help fix this is allow nulls for ratio (not make it mandatory) then you could ignore calculations on these types e.g Hypo or Driving where you wouldn't correct. With DAFNE you're only supposed to correct at meal times. This would then allow hypo CP or extra CP before driving without the corrections coming up. Hope this makes sense? Phil |
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Sep 14, 2012
Simon
578 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right Yep 1.6.2 is the latest |
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Sep 14, 2012
novorapidboi26
1,819 posts
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Topic: General Discussion / Result. Absolutely, well spotted..........
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Sep 14, 2012
Phil Maskell
194 posts
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Topic: Site Development / Auto calculate QA from BG - let's get it right
Is this in app store yet or still in the pipeline? I'm on 1.6.2 Phil |
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Sep 14, 2012
Phil Maskell
194 posts
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Topic: General Discussion / Result.
Shouldn't you be reducing insulin if your more active and increase it if your less active, just so people don't reduce/increase wrongly
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