Recent Posts - DAFNE Online

Mar 6, 2014

glen4 46 posts

Rafa said:
Was out for a run a few weeks back and was 7.7 then when i came back i was 9.1. Anyway came under some stress then for an hour or so and checked my BG and i was 18.8.

Yeah I've had that before! I've been 8.0 before my run. I've covered 8 miles in warm weather fairly quickly! Then to my amazement I've been 16.4!? I've expected it to be lower or around the 4.0-5.0 range! A couple of HCP'S have said it could be an adrenaline rush!? It varies from person to person! It doesn't happen every time! Did you get a rapid/sharp fall later in the day?

Mar 5, 2014

dunkers7 24 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

Sheila, do you use Background Insulin? I wonder if you could be taking too much BI but not enough QA?

Could maybe try a carb free meal to check?

If taking too much BI but not enough QA, I would be expected that you to see rising blood glucose after meals, followed by a steady drop?

I ask because I now know I have been taking too much BI and am seeing similar behaviour. Also now starting to see I'll need a QA:CP ratio change as the BI drops.

Mar 5, 2014

Garry 328 posts

Topic: Questions for HCPs / new to dafne

Tuesday 04/03 - your corrections have not worked...as you may be insulin resistent at the moment.
Do you have a cold coming on today?
I personally find that two days before I get an infection, my BGs start to drift off.
That may be what is happening for you too.
Anyway, I see lots of green in your diary and that's good. OK a few bumps along the way...but if you use the graph facility after you have entered data it helps you see an averaged result for each time of day and assists in seeing the trends better.
I notice that Thursday 27/02 and Friday 28/02 both show your BI dose. I take it only one 10u was taken?
We need get the data right as in the background, the diary can help you total your daily intake of QA and BI using the Show Summary View hyperlink at the very top of the diary page. This is of help if you need apply sick day rules at any time.
You are on the right track. Frustrating I know, for things not to pan out immediately, but that's the way it is.
So many factors are in the mix in your body - hormones, food types and their associated GIs, exercise and hormone released during exercise, illness.....I could carry on!
You are doing fine. Tuning in progress...until the temperature changes and then like a piano you are out of tune again!
Just stick at it.
Regards
Garry

Mar 4, 2014

glen4 46 posts

Topic: General Discussion / mihaela's

You don't seem to have a set time/routine for your BI in the evening! Maybe try injecting the BI at tea-time? Around 1800hrs maybe? Smile

Mar 4, 2014

mihaela 7 posts

Topic: General Discussion / mihaela's

normal

Mar 4, 2014

hannahlaw 4 posts

Topic: Questions for HCPs / new to dafne

Ive uploaded my diary since reducing my background to 10u but I still seem to run high and not in target despite my corrections! Should I up my bi to 12u? I dont want to be running high and out of target
Thanks for your reply also Garry. I hope to get some more advice based on my results above
Cheers hannah x

Mar 4, 2014

MicheleW 2 posts

Topic: General Discussion / BG drop

Thank you very much for your reply Warwick, I greatly appreciate all the information you have given. I will continue to monitor my levels and see if it happens again!

Mar 4, 2014

Garry 328 posts

Topic: Questions for HCPs / new to dafne

Welcome hannahlaw Smile

Some consultants suggest dropping BI by 20% to ensure that you see the result. Your HCP team are of the same mindset.
Please give it time. Don't make changes on the back of one overnight result. You dinner may have been slowly digested and, and, and....lots of things get in the way. The body is a mighty complex thing and takes time to adjust.
As Warwick suggested, a minimum of 3 days with consistent results to review to help you decide.
Regards
Garry

Mar 4, 2014

hannahlaw 4 posts

Topic: Questions for HCPs / new to dafne

Hi warwick.

This is my diary the week I was on my dafne course and because my hypo was at 2.2 it took me ages to get back out of it plus I dont always have a breakfast and although I may sit on target or near enough on target at night I always seem to creep up during the day with a carb free breakfast then find myself correcting alot and thats why the dafne team and I decided to drop bi by 4 units as was suggesting I had too much insulin if that makes sense?
Last night I went to my bed at 5.3 and woke up this morning at 11.7 which would suggest I dont have enough bi to keep me stable through the night?? Last night being my 4th night of reducing my bi I think tonight I will change to 12 units and continue for the next week to see the difference in my resulys when waking in the am!
Thanks for your reply. Will upload diary in a few days and see if it makes a difference!
Hannah x

Mar 4, 2014

Warwick 425 posts

Topic: General Discussion / BG drop

Hi Michele,

There are a few possibilities. If your meal was really high GI, then you may have already absorbed all the carbs you had for dinner, but your QA is still working with not enough carbs to use it up on without dropping your blood glucose.

If you have exercised previously in the day, or even the day before, then it is known that hypos can occur for up to 48 hours after that exercise, especially strenuous exercise.

Stress tends to send BGs higher, so if you suddenly relaxed, then your stress-induced insulin resistance may have disappeared and dropped your BGs as a result.

Alcohol can lead to hypos as the liver is occupied with breaking it down, and only once it has done that can it get on with its normal function.

And sometimes it just happens for no apparent reason, If it is happening regularly, then that is cause for concern, but if it is a once-off, then I wouldn't worry about it.

Mar 4, 2014

Warwick 425 posts

Topic: Questions for HCPs / new to dafne

Hi Hannah, and welcome to DAFNE.

I suspect that your Friday BI dose actually happened on Saturday, otherwise you took 10 units of BI twice only a couple of hours apart and with no hypos afterwards, that seems unlikely :-)

Lantus isn't particularly responsive to changes and can take up to three days before you see a pattern change. Can I ask why it was dropped by 4 units? The golden rules of DAFNE suggest changing BI by only 10% or 1-2 units at a time. 10% of 14 is 1.4, so you would usually only be looking to drop it by 1-2 units to 12 or 13. It may be though that there was a really good reason for dropping it by more than that.

Based on your diary, I don't think that you need to split based on what is shown so far. I would suggest increasing BI to 12 or 13 units though and leaving it for three days to see what happens.

I am on Lantus myself, and I split it about a year ago. The reason I did that was that previously I was on a before bed once daily BI injection, but I found that my BGs would rise between having a meal and going to bed. Increasing my QA ratio caused me to have hypos, so it became apparent that my BI was running out early, hence the need to split the dose.

There isn't enough data yet in your diary since you dropped the BI to tell if this is happening with you. It will be interesting to see your diary a week after increasing the BI to 12 or 13.

If you do decide to split it, it needs to be done carefully to avoid hypos or hypers. Basically, it involves dropping a unit from your evening BI injection and adding it to the morning injection, You keep doing that until you are happy with the splits. You don't necessarily need to do half and half. If you find that 12 units of BI are what you need each day, you could have two lots of 6, or one of 4 in the morning and one of 8 at night depending on your needs.

Cheers,
Warwick.

Mar 3, 2014

HelenP 218 posts

Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps.

Thanks Susan, I have heard of the Calorie King before but as I had no need did not pay much attention. I am finding the whole iPad thing a tad daunting but I will persevere. Grandchildren in hysterics sort of daunting! Son-in-law will have me sorted before he goes home next Saturday! #1 grandson has contracted to teach me how to use the App in a morning. Granddaughter (older/wiser?) thinks it will take much longer. Thanks for your help. Helen

Mar 3, 2014

susanh 20 posts

Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps.

Hi Helen,

The DAFNE Online App has links to the Australian DAFNE CP List (in the Settings, just choose your CP List Country as Australia).

Beyond that, a quick search of the App Store will show you that there are definitely lots of carb counting apps out there but unfortunately for us in Australia, many of them are US or UK-based so we find that the foods and/or values can be quite different. Our dietitians often recommend the Calorie King app (only on Apple devices) as it is one of the most comprehensive carb counting apps around, and it is Australian. You could also look up the Traffic Light Guide app (also known as the Australian Carb Counter; available with Apple & Android) as this is also Aussie-based.

I'm sure the other grads will have some more suggestions for you too!

Cheers,
Susan

Mar 2, 2014

hannahlaw 4 posts

Topic: Questions for HCPs / new to dafne

Ive just completed dafne this week and it seems I was on too much BI (14u lantus) at night and would drop or hypo! So reduced BI to 10u and it seems im climbing from night to morning plus with a carb free b/fast I still climb yet the rest of the day im near enough on target and my corrections work. We were discussing changing my BI to split insulin do you think its still to early to tell from looking at my diary? Any help would be grateful

Hannah x

Mar 2, 2014

HelenP 218 posts

Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps.

Hi,

I have just been given an iPad Mini and my son in law is anxious to set me up.

I really have NO idea (I do not own a Smart Phone) but he tells me that there must be Apps that would help with the diabetes. We tried to find stuff but I was not able to recognise what I wanted. I am looking for an App that will allow me to go to a known restaurant (e.g. MacDonalds) and get carb values for what i order. Similarly for non chain restaurants but also in everyday situations. I think I will use this mainly when travelling.

Any ideas/recommendations? Not interested in recording BGs etc as I am on a pump but would love access to reliable carb values.

Helen

Mar 2, 2014

HelenP 218 posts

Topic: Questions for HCPs / adjusting insulin for an operation

Just a warning. I was admitted to a medical ward (blood infection) and allowed to run my own insuliin/pump. But after a couple of days of BGs being well under 10, when I had a shower and left the pump on the bed (usual practice) a nurse confiscated it. Took quite some time to get it back. The Dr thought she was doing the right thing and although the pump was written on the original admission notes the administration of the insulin was left to me and not listed on my medications. Conscientious nurse decided that as they were not administering insulin I could not have my pump!

Be aware be very awareâ€¦they are out to get you!!!!!

Additionally I have had five ops and not run into any problems with any of them. I really think you are the expert and if you are told something that you know is nonsense do what you can to challenge it. Best of luck. Helen

Mar 2, 2014

MicheleW 2 posts

Topic: General Discussion / BG drop

At 19.20 (2.5hours after a meal) my BG reading was 7.7 but an hour later it was 2.7 and I hadn't done any exercise in that hour. Any ideas why it dropped so rapidly please?

Feb 28, 2014

yogababe 4 posts

Topic: Questions for HCPs / adjusting insulin for an operation

Hi SueA
Thanks for you reply. Reassuring to know that I'm not the only one confused by the nonsense pre-assessment advice they dish out. I might write to the hospital about it so they can change their stupid handouts.

I think I will stick to my plan then. especially as it worked for you. Did they allow you home the same day or did they make you stay over? Six years ago (pre DAFNE) when I had another operation, they totally panicked and made me stay in for three days until I discharged myself. I feel more confident now and unless there is a real medical need I want to be back home in my bed, not put onto a ward of incontinent, rambling old biddies as I was last time. Not at all conducive to a healthy recovery!!

Will post up how it goes in case it can benefit anyone else

Feb 28, 2014

SueA 9 posts

Topic: Questions for HCPs / adjusting insulin for an operation

Hi yogabebe
I had a minor operation last year that required a full anaesthetic,I was a day patient. Like you I was not filled with confidence after the pre-op assessment.
The experience on the day was much better and I was looked after well, everyone was aware of the diabetes. I did as you have suggested and took my BI as usual with no quick acting as I wasn't eating. Because I am overcautious I did a trial run of fasting a couple before to check my BI, as I was worried about having a hypo on the day and then having to eat and so not being able to have the op. On the day of the op my blood sugars were high before and after.
all the best for the op

Feb 28, 2014

Vickyp 137 posts

Topic: Carbohydrate Counting / reliable metre readings

Thanks for asking Brian, tests were very weird, didn't have hypo during tests...had one almost everydat afterwards for a week or so!! Saw endo on Wednesday and he says that the tests show I am still making insulin, although cpeptide on low end of range, and I don't have antibodies against the insulin...so he thinks the hypos are due to my natural insulin as they occur when i have the pump switched off
Finally the diagnosis is Secondary Diabetes. I am a rare case and hesis using me as a case study to discuss wuth other doctors as they haven't seen anything like it before!

Feb 27, 2014

youone 102 posts

Topic: Carbohydrate Counting / reliable metre readings

Vickyp said:
Yeah I received letter today, but had already phoned Abbott who are sending me 6 boxes of strips. When I tested my strips with control solution they were fine, however my diabetes nurse has told me to go back to optium meter until strips arrive, to be on safe side, and manually put bs into PDM.

That's good news, the information seems to be freely available on the PP sites Facebook etc.
Sorry to be forgetful ,how did your tests go?
Hopefully very well
Brian

Feb 27, 2014

yogababe 4 posts

Topic: Questions for HCPs / adjusting insulin for an operation

Ha ha - quick phone call to my endo. There speaks someone from Australia not the UK. Best I can get is the number for the diabetes nurse at the hospital where I will be having my operation - and that was only after I kicked up a fuss and said I wanted some sensible advice from someone who has knowledge of the condition.
But basically I think I will stick to my original plan of not changing my background insulin (because the operation will definitely send my sugars high) and not taking any quick acting insulin because I won't be eating.

Good tip about the spare insulin - will hide some about my person. I also hate it when you get some hamfisted nurse testing your blood sugars - as I test myself at least four times a day I'm fairly confident I can a) do it myself and b) do it less painfully!

Thanks for the response!

Feb 27, 2014

Vickyp 137 posts

Topic: Carbohydrate Counting / reliable metre readings

Yeah I received letter today, but had already phoned Abbott who are sending me 6 boxes of strips. When I tested my strips with control solution they were fine, however my diabetes nurse has told me to go back to optium meter until strips arrive, to be on safe side, and manually put bs into PDM.

Feb 27, 2014

SueA 9 posts

Topic: General Discussion / Tresiba

Dear Joza
So sorry to hear of your troubles. Sad

I asked about doses as I have just started using it and have to go back to Dafne basics to get the dose right. I have since read that people tend to need less compared to say Lantus. I have done some internet research and it would seem that Tresiba has been approved for use in England and Wales for use with type 1 and type 2 diabetics, but not in Scotland. It seems to help those who experience hypos at night. I found this information on the Diabetes UK website. The consultant who prescribed it for me is an NHS consultant and it was dispensed in the hospital. I have a lot of confidence in this consultant. So I am not sure why you were told that it has not yet been passed for type 1 diabetics.
Before I was referred to a consultant I contacted Diabetes UK as I was being given conflicting information by My GP, I have since changed GPs, Diabetes Uk were really helpful and easy to talk to. I am in my 50's and find it easier to talk than write especially if I am feeling a bit muddled and there are a number of things to consider. Hope things start getting better soon SueA

Feb 27, 2014

joza 4 posts

Topic: General Discussion / Tresiba

Dear SueA,
Not too sure if you meant to contact me or Brian. Anyway, I use 4 units less than Levemire, but think I might have to adjust the Humalog because since being on Tresiba most of my readings are high. Can't imagine what is going on. Last week I spoke to my NHS consultant and asked about Tresiba. He said it had not been passed for Type 1 only Type 2 on multiple injections. Didn't make sense to me, but there was to be a review in June. Tonight I will increase Tresiba by 1 unit to see if it helps. I seem to have got myself into a bit of a mess and might have to go back to London and see the Endocronologist who prescribed it for me. Hhhmmm. Good luck anyway, I am sure it will work wonders for you. Joza

Mar 6, 2014 glen4 46 posts	Topic: Questions for HCPs / stress Rafa said: Was out for a run a few weeks back and was 7.7 then when i came back i was 9.1. Anyway came under some stress then for an hour or so and checked my BG and i was 18.8. Yeah I've had that before! I've been 8.0 before my run. I've covered 8 miles in warm weather fairly quickly! Then to my amazement I've been 16.4!? I've expected it to be lower or around the 4.0-5.0 range! A couple of HCP'S have said it could be an adrenaline rush!? It varies from person to person! It doesn't happen every time! Did you get a rapid/sharp fall later in the day?

Mar 5, 2014 dunkers7 24 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! Sheila, do you use Background Insulin? I wonder if you could be taking too much BI but not enough QA? Could maybe try a carb free meal to check? If taking too much BI but not enough QA, I would be expected that you to see rising blood glucose after meals, followed by a steady drop? I ask because I now know I have been taking too much BI and am seeing similar behaviour. Also now starting to see I'll need a QA:CP ratio change as the BI drops.

Mar 5, 2014 Garry 328 posts	Topic: Questions for HCPs / new to dafne Tuesday 04/03 - your corrections have not worked...as you may be insulin resistent at the moment. Do you have a cold coming on today? I personally find that two days before I get an infection, my BGs start to drift off. That may be what is happening for you too. Anyway, I see lots of green in your diary and that's good. OK a few bumps along the way...but if you use the graph facility after you have entered data it helps you see an averaged result for each time of day and assists in seeing the trends better. I notice that Thursday 27/02 and Friday 28/02 both show your BI dose. I take it only one 10u was taken? We need get the data right as in the background, the diary can help you total your daily intake of QA and BI using the Show Summary View hyperlink at the very top of the diary page. This is of help if you need apply sick day rules at any time. You are on the right track. Frustrating I know, for things not to pan out immediately, but that's the way it is. So many factors are in the mix in your body - hormones, food types and their associated GIs, exercise and hormone released during exercise, illness.....I could carry on! You are doing fine. Tuning in progress...until the temperature changes and then like a piano you are out of tune again! Just stick at it. Regards Garry

Mar 4, 2014 glen4 46 posts	Topic: General Discussion / mihaela's You don't seem to have a set time/routine for your BI in the evening! Maybe try injecting the BI at tea-time? Around 1800hrs maybe?

Mar 4, 2014 mihaela 7 posts	Topic: General Discussion / mihaela's normal

Mar 4, 2014 hannahlaw 4 posts	Topic: Questions for HCPs / new to dafne Ive uploaded my diary since reducing my background to 10u but I still seem to run high and not in target despite my corrections! Should I up my bi to 12u? I dont want to be running high and out of target Thanks for your reply also Garry. I hope to get some more advice based on my results above Cheers hannah x

Mar 4, 2014 MicheleW 2 posts	Topic: General Discussion / BG drop Thank you very much for your reply Warwick, I greatly appreciate all the information you have given. I will continue to monitor my levels and see if it happens again!

Mar 4, 2014 Garry 328 posts	Topic: Questions for HCPs / new to dafne Welcome hannahlaw Some consultants suggest dropping BI by 20% to ensure that you see the result. Your HCP team are of the same mindset. Please give it time. Don't make changes on the back of one overnight result. You dinner may have been slowly digested and, and, and....lots of things get in the way. The body is a mighty complex thing and takes time to adjust. As Warwick suggested, a minimum of 3 days with consistent results to review to help you decide. Regards Garry

Mar 4, 2014 hannahlaw 4 posts	Topic: Questions for HCPs / new to dafne Hi warwick. This is my diary the week I was on my dafne course and because my hypo was at 2.2 it took me ages to get back out of it plus I dont always have a breakfast and although I may sit on target or near enough on target at night I always seem to creep up during the day with a carb free breakfast then find myself correcting alot and thats why the dafne team and I decided to drop bi by 4 units as was suggesting I had too much insulin if that makes sense? Last night I went to my bed at 5.3 and woke up this morning at 11.7 which would suggest I dont have enough bi to keep me stable through the night?? Last night being my 4th night of reducing my bi I think tonight I will change to 12 units and continue for the next week to see the difference in my resulys when waking in the am! Thanks for your reply. Will upload diary in a few days and see if it makes a difference! Hannah x

Mar 4, 2014 Warwick 425 posts	Topic: General Discussion / BG drop Hi Michele, There are a few possibilities. If your meal was really high GI, then you may have already absorbed all the carbs you had for dinner, but your QA is still working with not enough carbs to use it up on without dropping your blood glucose. If you have exercised previously in the day, or even the day before, then it is known that hypos can occur for up to 48 hours after that exercise, especially strenuous exercise. Stress tends to send BGs higher, so if you suddenly relaxed, then your stress-induced insulin resistance may have disappeared and dropped your BGs as a result. Alcohol can lead to hypos as the liver is occupied with breaking it down, and only once it has done that can it get on with its normal function. And sometimes it just happens for no apparent reason, If it is happening regularly, then that is cause for concern, but if it is a once-off, then I wouldn't worry about it.

Mar 4, 2014 Warwick 425 posts	Topic: Questions for HCPs / new to dafne Hi Hannah, and welcome to DAFNE. I suspect that your Friday BI dose actually happened on Saturday, otherwise you took 10 units of BI twice only a couple of hours apart and with no hypos afterwards, that seems unlikely :-) Lantus isn't particularly responsive to changes and can take up to three days before you see a pattern change. Can I ask why it was dropped by 4 units? The golden rules of DAFNE suggest changing BI by only 10% or 1-2 units at a time. 10% of 14 is 1.4, so you would usually only be looking to drop it by 1-2 units to 12 or 13. It may be though that there was a really good reason for dropping it by more than that. Based on your diary, I don't think that you need to split based on what is shown so far. I would suggest increasing BI to 12 or 13 units though and leaving it for three days to see what happens. I am on Lantus myself, and I split it about a year ago. The reason I did that was that previously I was on a before bed once daily BI injection, but I found that my BGs would rise between having a meal and going to bed. Increasing my QA ratio caused me to have hypos, so it became apparent that my BI was running out early, hence the need to split the dose. There isn't enough data yet in your diary since you dropped the BI to tell if this is happening with you. It will be interesting to see your diary a week after increasing the BI to 12 or 13. If you do decide to split it, it needs to be done carefully to avoid hypos or hypers. Basically, it involves dropping a unit from your evening BI injection and adding it to the morning injection, You keep doing that until you are happy with the splits. You don't necessarily need to do half and half. If you find that 12 units of BI are what you need each day, you could have two lots of 6, or one of 4 in the morning and one of 8 at night depending on your needs. Cheers, Warwick.

Mar 3, 2014 HelenP 218 posts	Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps. Thanks Susan, I have heard of the Calorie King before but as I had no need did not pay much attention. I am finding the whole iPad thing a tad daunting but I will persevere. Grandchildren in hysterics sort of daunting! Son-in-law will have me sorted before he goes home next Saturday! #1 grandson has contracted to teach me how to use the App in a morning. Granddaughter (older/wiser?) thinks it will take much longer. Thanks for your help. Helen

Mar 3, 2014 susanh 20 posts	Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps. Hi Helen, The DAFNE Online App has links to the Australian DAFNE CP List (in the Settings, just choose your CP List Country as Australia). Beyond that, a quick search of the App Store will show you that there are definitely lots of carb counting apps out there but unfortunately for us in Australia, many of them are US or UK-based so we find that the foods and/or values can be quite different. Our dietitians often recommend the Calorie King app (only on Apple devices) as it is one of the most comprehensive carb counting apps around, and it is Australian. You could also look up the Traffic Light Guide app (also known as the Australian Carb Counter; available with Apple & Android) as this is also Aussie-based. I'm sure the other grads will have some more suggestions for you too! Cheers, Susan

Mar 2, 2014 hannahlaw 4 posts	Topic: Questions for HCPs / new to dafne Ive just completed dafne this week and it seems I was on too much BI (14u lantus) at night and would drop or hypo! So reduced BI to 10u and it seems im climbing from night to morning plus with a carb free b/fast I still climb yet the rest of the day im near enough on target and my corrections work. We were discussing changing my BI to split insulin do you think its still to early to tell from looking at my diary? Any help would be grateful Hannah x

Mar 2, 2014 HelenP 218 posts	Topic: DAFNE Online Mobile / Advice: iPad (mini) Apps. Hi, I have just been given an iPad Mini and my son in law is anxious to set me up. I really have NO idea (I do not own a Smart Phone) but he tells me that there must be Apps that would help with the diabetes. We tried to find stuff but I was not able to recognise what I wanted. I am looking for an App that will allow me to go to a known restaurant (e.g. MacDonalds) and get carb values for what i order. Similarly for non chain restaurants but also in everyday situations. I think I will use this mainly when travelling. Any ideas/recommendations? Not interested in recording BGs etc as I am on a pump but would love access to reliable carb values. Helen

Mar 2, 2014 HelenP 218 posts	Topic: Questions for HCPs / adjusting insulin for an operation Just a warning. I was admitted to a medical ward (blood infection) and allowed to run my own insuliin/pump. But after a couple of days of BGs being well under 10, when I had a shower and left the pump on the bed (usual practice) a nurse confiscated it. Took quite some time to get it back. The Dr thought she was doing the right thing and although the pump was written on the original admission notes the administration of the insulin was left to me and not listed on my medications. Conscientious nurse decided that as they were not administering insulin I could not have my pump! Be aware be very awareâ€¦they are out to get you!!!!! Additionally I have had five ops and not run into any problems with any of them. I really think you are the expert and if you are told something that you know is nonsense do what you can to challenge it. Best of luck. Helen

Mar 2, 2014 MicheleW 2 posts	Topic: General Discussion / BG drop At 19.20 (2.5hours after a meal) my BG reading was 7.7 but an hour later it was 2.7 and I hadn't done any exercise in that hour. Any ideas why it dropped so rapidly please?

Feb 28, 2014 yogababe 4 posts	Topic: Questions for HCPs / adjusting insulin for an operation Hi SueA Thanks for you reply. Reassuring to know that I'm not the only one confused by the nonsense pre-assessment advice they dish out. I might write to the hospital about it so they can change their stupid handouts. I think I will stick to my plan then. especially as it worked for you. Did they allow you home the same day or did they make you stay over? Six years ago (pre DAFNE) when I had another operation, they totally panicked and made me stay in for three days until I discharged myself. I feel more confident now and unless there is a real medical need I want to be back home in my bed, not put onto a ward of incontinent, rambling old biddies as I was last time. Not at all conducive to a healthy recovery!! Will post up how it goes in case it can benefit anyone else

Feb 28, 2014 SueA 9 posts	Topic: Questions for HCPs / adjusting insulin for an operation Hi yogabebe I had a minor operation last year that required a full anaesthetic,I was a day patient. Like you I was not filled with confidence after the pre-op assessment. The experience on the day was much better and I was looked after well, everyone was aware of the diabetes. I did as you have suggested and took my BI as usual with no quick acting as I wasn't eating. Because I am overcautious I did a trial run of fasting a couple before to check my BI, as I was worried about having a hypo on the day and then having to eat and so not being able to have the op. On the day of the op my blood sugars were high before and after. all the best for the op

Feb 28, 2014 Vickyp 137 posts	Topic: Carbohydrate Counting / reliable metre readings Thanks for asking Brian, tests were very weird, didn't have hypo during tests...had one almost everydat afterwards for a week or so!! Saw endo on Wednesday and he says that the tests show I am still making insulin, although cpeptide on low end of range, and I don't have antibodies against the insulin...so he thinks the hypos are due to my natural insulin as they occur when i have the pump switched off Finally the diagnosis is Secondary Diabetes. I am a rare case and hesis using me as a case study to discuss wuth other doctors as they haven't seen anything like it before!

Feb 27, 2014 youone 102 posts	Topic: Carbohydrate Counting / reliable metre readings Vickyp said: Yeah I received letter today, but had already phoned Abbott who are sending me 6 boxes of strips. When I tested my strips with control solution they were fine, however my diabetes nurse has told me to go back to optium meter until strips arrive, to be on safe side, and manually put bs into PDM. That's good news, the information seems to be freely available on the PP sites Facebook etc. Sorry to be forgetful ,how did your tests go? Hopefully very well Brian

Feb 27, 2014 yogababe 4 posts	Topic: Questions for HCPs / adjusting insulin for an operation Ha ha - quick phone call to my endo. There speaks someone from Australia not the UK. Best I can get is the number for the diabetes nurse at the hospital where I will be having my operation - and that was only after I kicked up a fuss and said I wanted some sensible advice from someone who has knowledge of the condition. But basically I think I will stick to my original plan of not changing my background insulin (because the operation will definitely send my sugars high) and not taking any quick acting insulin because I won't be eating. Good tip about the spare insulin - will hide some about my person. I also hate it when you get some hamfisted nurse testing your blood sugars - as I test myself at least four times a day I'm fairly confident I can a) do it myself and b) do it less painfully! Thanks for the response!

Feb 27, 2014 Vickyp 137 posts	Topic: Carbohydrate Counting / reliable metre readings Yeah I received letter today, but had already phoned Abbott who are sending me 6 boxes of strips. When I tested my strips with control solution they were fine, however my diabetes nurse has told me to go back to optium meter until strips arrive, to be on safe side, and manually put bs into PDM.

Feb 27, 2014 SueA 9 posts	Topic: General Discussion / Tresiba Dear Joza So sorry to hear of your troubles. I asked about doses as I have just started using it and have to go back to Dafne basics to get the dose right. I have since read that people tend to need less compared to say Lantus. I have done some internet research and it would seem that Tresiba has been approved for use in England and Wales for use with type 1 and type 2 diabetics, but not in Scotland. It seems to help those who experience hypos at night. I found this information on the Diabetes UK website. The consultant who prescribed it for me is an NHS consultant and it was dispensed in the hospital. I have a lot of confidence in this consultant. So I am not sure why you were told that it has not yet been passed for type 1 diabetics. Before I was referred to a consultant I contacted Diabetes UK as I was being given conflicting information by My GP, I have since changed GPs, Diabetes Uk were really helpful and easy to talk to. I am in my 50's and find it easier to talk than write especially if I am feeling a bit muddled and there are a number of things to consider. Hope things start getting better soon SueA

Feb 27, 2014 joza 4 posts	Topic: General Discussion / Tresiba Dear SueA, Not too sure if you meant to contact me or Brian. Anyway, I use 4 units less than Levemire, but think I might have to adjust the Humalog because since being on Tresiba most of my readings are high. Can't imagine what is going on. Last week I spoke to my NHS consultant and asked about Tresiba. He said it had not been passed for Type 1 only Type 2 on multiple injections. Didn't make sense to me, but there was to be a review in June. Tonight I will increase Tresiba by 1 unit to see if it helps. I seem to have got myself into a bit of a mess and might have to go back to London and see the Endocronologist who prescribed it for me. Hhhmmm. Good luck anyway, I am sure it will work wonders for you. Joza