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15,864 posts found
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Mar 11, 2014
Louise1988
69 posts
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Topic: General Discussion / Type 1 as a disability Like you, I've never seen it as a disability. However, there are certainly some scenarios where it would be deemed as a disability - education (needing more time for exams, if hypo occurs). I guess you could argue you'd be entitled to a concession for the gym. Worth trying I guess, you don't get if you don't ask. |
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Mar 11, 2014
Phil Maskell
194 posts
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Topic: General Discussion / Type 1 as a disability Hi,I have never really thought of Type 1 as a disability more a pain in the arse/arm/leg  Would people on here class it as a disability? I have just moved to a new house walking distance from a leisure centre and am trying to get a bit fitter and they have concessionary card that makes most things half price or free, this card is open to low income/benefits and disabilities, I just need a letter from GP or hospital, it feels wrong to even ask. What are other peoples opinions? Do I get some benefit out of being diabetic? Exercise costs me a fortune as it is in sugar eg. sports drinks/gels/bars etc... Phil |
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Mar 11, 2014
Warwick
425 posts
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Topic: General Discussion / miss I think leave your evening BI so that you take it at dinner time, but if you are seeing similar results to Saturday and Sunday, then increasing your morning BI by an additional 2 units would seem warranted.Have you changed your BI pen recently? Just wondering if your BI has gone bad recently. If you are in Victoria like I am, then the recent heat could certainly do that. Cheers, Warwick. |
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Mar 11, 2014
mihaela
7 posts
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Topic: General Discussion / miss 
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Mar 10, 2014
Justinjroberts
9 posts
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Topic: Questions for HCPs / How to avoid High glucose when travelling Dear Peter,Just wondering how did you manage to borrow a CGMS for 6 weeks. I would have happily tried anything to keep my BG under control while travelling. I can see how it would be a great help and avoid having to test continuously to avoid rapid fluctuations, also it is not always possible to keep testing. With regard to DAFNE, how dose it work as I have always been told to avoid testing between meals and only test when I want to eat, exercising, driving or when ill? And correct at meal times, my concern however was that I had such high levels which was making me unwell I had no option to test and correct, which worryingly still did not bring it back down. |
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Mar 10, 2014
marke
686 posts
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Topic: DAFNE Online Mobile / Android App - Correction for high BG Hi, there ARE differences but I'm not 100% sure what they are. Basically the iPhone app is still being developed and updated by Simon. However Keith no longer has time to develop/update the Android App so its falling behind the iPhone version. The auto-correction has only ever been implemented on the iPhone as far as I know ( I use an iPhone not an Android). Until we can find someone else to develop the Android App nothing much will change unfortunately. Both were developed by individuals in their own time and are not professionally funded. |
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Mar 10, 2014
Jas
1 post
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Topic: DAFNE Online Mobile / Android App - Correction for high BG Hi Guys,I just switched phones from an iPhone to an Android phone and in general terms the functionality of the app on the iphone and android is the same (although it did take a few days to figure out the differences, it took me 3 days to figure out how to edit an entry  )One thing that i still have not been able to figure out hence my post is an auto correction of QA when my BG is high, on the iphone app this was automatically calculated, but this does not seem the case for the android app? Is that intentional or am i missing something in the settings to enable this? Also does anyone know if all the functionality in the two apps is essentially the same or are there some differences? thanks Jas |
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Mar 10, 2014
Justinjroberts
9 posts
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Topic: Questions for HCPs / How to avoid High glucose when travelling Thanks for your thoughts, and when I visit my HCP in April I will certainly ask about the CGMS. Regarding my insulin my QI is Novorapid and my BI is Humalin I! I was on Lantus but had some problems last Autumn and had to split the doe to morning and evening and was also having to check my glucose levels and correct with Novorapid around 5.30am every morning, at that time of day my Novorapid worked on a ratio of lowering of 1 to 1 so one unit of Novorapid would only reduce my glucose levels by 1. I have only been on the Humalin I for three weeks after spending a week on a DAFNE course, having last been on the course 11 years ago. |
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Mar 10, 2014
Garry
328 posts
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Topic: Questions for HCPs / How to avoid High glucose when travelling Welcome to the forum Justinjroberts May I ask which QA insulin you use? Regards Garry |
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Mar 10, 2014
mihaela
7 posts
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Topic: General Discussion / miss maybe ill do my night bi at 8pm every afternoon and increase my morning bi to 10? |
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Mar 10, 2014
mihaela
7 posts
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Topic: General Discussion / miss yes im not getting sick at all and im a bit dissapointed with my bg lately i dont know anymore |
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Mar 10, 2014
Warwick
425 posts
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Topic: General Discussion / miss Hello Mihaela,Are you getting advice from your DAFNE coordinator to change your BI, or have you changed it yourself? Either way, I think that the reasoning for changing it is good, but a little weird that the results seem to be getting worse since changing it. With the continual rise between eating dinner and going to bed, it does look like a case of your BI running out, and it is obvious that you have made two changes there - the first to take your evening BI at dinner time instead of bed time, and secondly to increase your morning BI. Both are excellent things to try. Unfortunately, and unusually, this has resulted in higher BGs across the board, which is very unexpected. Is there any chance that you are coming down sick at the moment, as that would explain the rise in BGs. If so, then follow the sick day rules in your DAFNE handbook (There is a link to it at the top right of this page) BI changes need to stay constant for three days to allow the body to adjust to the new doses, so stick with it, and hopefully we'll see some good progress soon. Please keep posting your diary to this forum thread, and I'll keep an eye out to see if there is anything else I can suggest. If you are getting sick, then hopefully you will start getting better soon. Best regards, Warwick. |
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Mar 9, 2014
Warwick
425 posts
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Topic: General Discussion / help needed reading my bg results! Hello Hannah,In general, to change BI, we look at the difference between your before-bed readings and your first morning reading. If the BI is correct, then there should be a difference of less than 1.5 between those two readings. So we have: Sunday: 11.2 -> 9.9 - Perfectly acceptable. Monday: 5.3 -> 12.0 - A jump of more than 6. Tuesday:14.9 -> 7.3 after taking 2 units of QA. We can't really tell what happened here as you took QA (which you were correct in doing), but we can't tell whether the BI was appropriate when that happens. Wednesday: 13.0 -> 12.6 - Perfectly acceptable, although at 13.0, 2 units of QA should have been taken to drop that to the desirable range. Thursday: 10.2 -> 10.4 - Perfectly acceptable. Friday: 10.8 -> 10.3 - Perfectly acceptable. Saturday: 4.6 -> 9.2 with 2 CPs. so again can't tell as the CPs will affect that morning reading. So apart from the Monday evening to Tuesday morning reading where there is an inexplicable jump of 6, it is fairly clear that your BI is actually spot on. Perhaps you forgot to record eating some CPs on Monday evening? There is quite a bit of red in the diary though. If you are above 8.0, then it is a good idea to use QA to correct. For example, there are a few places in the diary, where a correction of QA would have been a good move, but was not taken. E.g: Sunday 2/3 at 13.29 and 23.39, Wednesday 23:32, Thursday 07.30 and 22.45, Friday 07:45 and 22:47, Saturday 08.24 and 12.48, and Sunday 09.51 and 14.21. It is curious that your BGs dropped from 16.1 at 14.21 to 4.8 at 20.52 without any QA at all on Sunday 09/03. That would usually indicate that your BI is way out, but everywhere else, your BI looks to be the right dose. Did you not take QA to correct that 16.1 reading at 14.21 on Sunday 09/03? You should always correct for a reading of 13 and above unless you have eaten in the previous two hours as the risk of DKA increases for readings of 13 and above. If you don't know how much a unit of QA will drop your BGs by, then start with 3, and then use trial and error to see if that is a suitable value. So for example, if you are 11.0, having one unit of QA will hopefully drop you to about 8.0. Two units of QA would hopefully drop you to 5.0 by your next meal depending on what QA you are on, and its profile. Best regards, Warwick. |
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Mar 9, 2014
hannahlaw
4 posts
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Topic: General Discussion / help needed reading my bg results! Some input on my bg readings would be appreciated on patterns etc and should I change my BI or change the dose I take? Im on Lantus! Thanks in advanceHannah x |
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Mar 9, 2014
mihaela
7 posts
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Topic: General Discussion / miss normal |
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Mar 9, 2014
Peter
109 posts
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Topic: Questions for HCPs / How to avoid High glucose when travelling In my experience the biggest problems with traveling are caused by time zone differences and dietary differences at the destination. These typically make long distance travel more different than short haul. Based on your DAFNE centre I'm assuming your travel was from UK and so neither of the factors mentioned should have had a large impact. The other possibility may be stress arising from whatever business activities you were undertaking whilst abroad. I certainly find it more difficult to maintain good control whilst traveling, but never to the extent you're describing. If I were to triple my QA I would end up in hospital, but I do find that it's very easy to eat more carbs. than usual at all meals, so do ensure that you are applying the DAFNE principles correctly to each meal. Also do you stick to the same routine whist away e.g. same time of day for BI injection(s), same time difference between QA and eating? For me the latter is always more of a challenge when traveling as when cooking at home I know in advance both when the food will arrive and how many carbs. there will be, allowing insulin to be taken in advance. Neither of these are certain when traveling which results in more post-meal corrections which, in my case, are nothing like as efficient as insulin taken 15-30 minutes before eating.I spent 2 days in Prague last week, and had a couple of readings above 10, but corrected those as usual. This week it's Atlanta, which certainly brings timezones into play, and portion sizes are the usual challenge whilst eating I've been regularly traveling on business for many years, so it can be done without the extreme measures you suggest.The best solution would be CGMS or a pump. Suggest you discuss that with your HCP at your next visit. However, from personal experience, neither of the solutions are easy to get hold of. However, I'm certain that you should not be having to think about not traveling or not eating whilst away. DAFNE should be giving you the tools to cope. If it is such a concern for you, then talk to the HCPs and push for a pump or perhaps for loan of a CGMS during your next trip to see if that helps. I was lucky enough to have a CGMS on loan for a period of 6 weeks, and learnt more in that time about the management of the condition than I had in the previous 40 years. Good luck. |
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Mar 9, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / Targets - too many BGs out of target Hi,What can I do to get more BGs within my target ranges: Breakfast, lunch, dinner - 4 - 7 Bedtime - 8 - 12 Was thinking of tweaking my ratios: Current ratios for breakfast, lunch & tea - 1:1 (1u to every 10g carbs) |
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Mar 9, 2014
novorapidboi26
1,819 posts
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Topic: General Discussion / mihaela's as glen says, try and take your BI at the same time every day to ensure full coverage over the whole day.....it looks at though you need to test your BI also, as you aren't eating a lot anyway, at least at the start of the week......you should start with the overnight BI...........as starting the day with good numbers means you can carry out another BI test during the day without worrying about higher numbers, as you cant correct when testing your BI.... |
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Mar 8, 2014
Justinjroberts
9 posts
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Topic: Questions for HCPs / How to avoid High glucose when travelling I have just returned form a couple of short business trips: Dublin last week and Amsterdam the previous week. For both trip I was only away from early Wednesday morning returning Thursday evening. On both occasions my blood glucose level hit 10 15 13 10 12 10 while in Amsterdam, then 15 18 13 12 11 10 14 16 12 15 when in Dublin, prior to my travelling my levels where normal 5 and 6 with a 1 to 1 ratio. When in Dublin I doubled and tripled my fast acting insulin and it still had no affect, instead of taking 10 I would take 30 and still it stayed high. I always find I need to up my dosage when eating in hotels and restaurants , however it always goes back to normal and I have never before experienced such a run of very high levels. I would be interested to hear any comments as I can only think on either not travelling or eating nothing while away. The whole experience was utterly unpleasant and made it very difficult to work normally due to the extreme tiredness the high levels caused. |
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Mar 8, 2014
Vickyp
137 posts
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Topic: Carbohydrate Counting / reliable metre readings Hi Brian, I got replacement strips from Abbott, I was sent a letter about it. I didn't notice any lows that I didn't actually feel. The meter in PDM does read lower than my optium meter, but is well within the 20% tolerance between meters! and the new strips haven't shown much difference!I spoke to my pharmacist and they had a blank look on their face but said that they have new strips....July 2015...so a month early! Abbott sent me 600 strips so by the time those run out (2.5 months) the pharmacy should have new ones with dates after August 2015! I am not sure about cgm, I feel the lows before they are too low and rarely go higher than 10. I may have to get a cgm if I get pregnant! Vicky x |
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Mar 8, 2014
dunkers7
24 posts
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Topic: Questions for HCPs / stress Sometimes it can cause both hypos and hypers!The pattern I've found when I go for a 5k run in the evening seems unusual: * BG drops initially, usually by 10 when testing immediately post exercise, assuming no food/drink during the run * 2 hours later, BG goes back up to almost the level it was before I started the run! (I think this is due to the adrenaline) * Overnight, BG will drop by 10 unless I have negatively corrected my levemir for exercise, or eaten some carbs before bed. My BG going back up confused me initially, but it turns out that's just what consistently happens in my case. Only way to know for sure what stress does to your BG is to test it. |
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Mar 8, 2014
Alan 49
284 posts
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Topic: Questions for HCPs / stress As glen4 says: an adrenaline rush can cause high blood-sugars. The adrenaline triggers the liver to release glucagon (?) into the blood because the body assumes you're going to require extra energy. When I go swimming, my BG is always higher afterwards. My HCP explained that going to a swimming bath and meeting people you know etc, can cause the adrenaline rush. |
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Mar 8, 2014
youone
102 posts
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Topic: Carbohydrate Counting / reliable metre readings
hi The tests finally came through with the Secondary diabetes diagnosis, your mind must be at rest now you have a understanding of whats happening, a rare type of diabetes, i'm sure the doctors will look after you. maybe a CGM would help with them lows giving you a warning before it happens. the USA seems to be well ahead of us in D devices, Our advantage is we don't pay in full for our pumps etc. I'm glad for you, its always more a worry not knowing what you've got. I got this post, its QA with abbott regarding the recent recall. since your a omnipod user it maybe useful to you. although it's mainly for the USA users On Friday, I had the opportunity to speak with Jessica Sachariason, the Public Affairs Manager for Abbott Diabetes Care. I relayed to her the different complaints and concerns that I had heard, and I also asked her a series of questions that I felt Abbott had not yet addressed. However, she had to go back and get the "proper" answers to meet Abbott's legal department's requirements, so the answers are somewhat formal and stilted. That being said, I feel a bit better knowing that Abbott has now heard at least some of the complaints and issues that arose from this recall. ~*~ What was the issue that caused the erroneous low blood sugars? Was this a technical defect or was it a quality control issue? Why does the Freedom meter work but not the PDM or the older meters? The root cause has been determined to be a strip manufacturing process error, which only expresses when a strip is used with a non-applied voltage meter (FreeStyle, FreeStyle Flash, and the FreeStyle meter built into the Omnipod system). The manufacturing error causes a decreased response in the system glucose readings. Meters, such as the FreeStyle Freedom, with applied voltage are not impacted and do not express a decreased response in the system glucose readings. What has been done to resolve this issue? Abbott has implemented additional quality control processes. At Abbott, the health and safety of patients is our highest priority. The replacement test strips provided to OmniPod users have undergone additional quality testing to ensure they produce accurate results. Going forward, all test strips will receive this testing. How long had Abbott known about the defect? Does this stem from the November 2013 recall of your test strips? Following the conclusion of the investigation linked to the November recall, Abbott expanded the recall. Abbott contacted the FDA and promptly initiated a product recall in affected markets and has communicated with all affected parties. How will customers know they are getting accurate test strips moving forward? Strip vials with expiration dates of August 2015 or after are strips that are safe for you to use with your OmniPod. Strips with expiration dates before August 2015 should not be used with your OmniPod, but can be used safely with a FreeStyle Freedom meter. Are you working with pharmacies to prevent old test strips from going to customers who don’t have the Freedom meter? Are pharmacy stocks being replaced with the new test strips? When is it safe to reorder test strips? Approximately 99 percent of the U.S. customer base who use Abbott’s FreeStyle family of meters are not impacted as they do not use FreeStyle Flash or FreeStyle Blood Glucose Meter systems. In regards to the question about the replacement strips for OmniPod users, the 400 replacement test strips will be about a 2 – 3 month supply of strips. This amount should cover the customer until the customer’s next visit to the pharmacy to replenish their next test strip supply. Due to these factors, there is no action required by doctors, pharmacies, and suppliers. If an HCP, pharmacy or supplier has a question, they should contact Abbott’s diabetes care customer service and a representative will provide support. As mentioned above, strip vials with expiration dates of August 2015 or after are strips that are safe for you to use with your OmniPod. Strips with expiration dates before August 2015 should not be used with your OmniPod, but can be used safely with a FreeStyle Freedom meter. |
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Mar 6, 2014
Vickyp
137 posts
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Topic: Questions for HCPs / stress Katrin3014 I've had hypos during periods of stress; as far as aware generally it causes hypers but in some individuals it can cause hypos |