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15,847 posts found
Jan 17, 2009
Phil Child
3 posts
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Topic: General Discussion / Introductions HelloI am Phil and I changed my life when I attended my DAFNE course in August 2006. I have been a type 1 diabetic since November 1952. (No that's not a mis-type). I hold a Nabarro medal for contending with diabetes for over 50 years. In fact, I have two as Diabetes UK just send you one in a jiffy bag. When my consultant complained that Diabetes UK should have made a fuss and a presentation - they sent me another - in another jiffy bag. Hey Ho! Life with diabetes has changed a great deal since 1952. Initially I remember testing my urine with clinitest (there was no patient blood testing kits available until the 1980s). All my food was measured on a small set of scales, but as Lizzzie says, the regime was regulated by fixed doses of insulin and no in-depth knowledge of our condition. My school days were dreadful. I wanted to play every type of sport, but the consequence was literally spending most of my afternoons in a hypo state. Then along came DAFNE. It has changed my life. I can work out what I am eating and regulate my insulin doses to suit. I still get the odd hypo, but that's usually because I have made a mistake. I cannot blame anyone, or anything else. My HBA1C is coming steadily down so I know I am improving. Slowly but surely! |
Jan 15, 2009
Lizzie
87 posts
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Topic: Site Development / Site attendance HiJust offering some feedback - hope this is the right thread. The site is very good but I have a few minor issues. Firstly when you reply to messages the black box around the message is quite severe. Also, it says you can use "BBCode" to reply to messages. There is a link for more information and I think I get it but some people may be less confident and techie terms like BBCode might intimidate them. Maybe it could be changed to say something like 'please click here to find out how to add formatting'. |
Jan 14, 2009
Lizzie
87 posts
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Topic: General Discussion / Introductions HiMy name is Lizzie. I attended DAFNE in June last year at St Thomas's Hospital in London. I have been diabetic for 16 years, most of which I spent ignoring my diabetes. I had no education at diagnosis and resented the restrictive regime I was on so I rebelled, eating whatever I wanted. I had not been taught how to change my own insulin so I always took the same set amount. For years I did not take a blood test or see a doctor. I had an arrangement with the chemist where I rang them to order insulin, without involving the doctor. My family never mentioned my diabetes - they didn't want to appear clingy. After university I moved to London and started taking an interest in my own health again. At first I was so scared that all I could do was inject loads of insulin, I was really scared of complications and high blood sugars. I hypo-ed all the time and my emotions were on a rollercoaster. Then I saw a poster in my surgery advertising DAFNE and asked my dietitian about it. I got onto a course and it really changed my life. For the first time I was told after 15 years how to deal with hypos, adjust my insulin and what all the test results meant. And for the first time I met other diabetics - I was not alone. I still struggle with my weight and my blood sugars but now at least I have some more confidence that I can deal with this thing, and do not fly into a blind panic at the sight of a high reading. I am learning every day about my condition, and I want to help others so they do not have bad experiences like mine. |
Jan 12, 2009
marke
681 posts
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Topic: General Discussion / Introductions DAFNE Graduate From: Ashford William Harvey HospitalI attended DAFNE in March 2008. I had heard about it from Diabetes UK and as soon as my consultant mentioned it I jumped at the chance. I have been diagnosed for about 10 years and when I was first diasgnosed I lived in Southampton. The clinic there was full of people in wheelchairs with one leg and that made me vow, it would never happen to me !! I take my condition serously and want to manage it actively. Sadly that doesn't mean I'm always well behaved :-) But at least I know how bad I'm being :-) I believe passionately that all Diabetics should get the chance to have Diabetes education and receive the same help I have with my condition. I'm sure there are many many people missing out on a wonderful experience of receiving education AND finding others like themselves. Hopefully this website will provide a small contribution to achieving this aim. |
Jan 12, 2009
marke
681 posts
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Topic: Site Development / Site attendance All,With regard to rising up the google rankings, its not that easy. Google operates a reference ranking system. What does this mean ? Basically the more other websites reference your site via links, the higher your ranking. So to get oursevles high up on the google list we need to get as many people as possible to add us to their website. We will gradually move up the listings. The only other way, is google 'ads' i.e pay and since we are a voluntary setup thats not really an option |
Jan 12, 2009
Brian Trench
17 posts
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Topic: General Discussion / Introductions Brian Trench0 topics, 1 posts (view all | monitored posts) DAFNE Graduate From:Harrogate District Hospital Hi everybody, Following Simon's lead and to test this functionality my introduction is as follows........ I am Brian and attended the DAFNE Course in Harrogate in Nov 2007. I was diagnosed a Type 1 in Jan 68 and have been through numerous dose adjustments and regime changes. My ultimate aim has always been to find a solution to insulin injections. When pump therapy started in Harrogate some 2-3 years ago I rushed to the presentation but found that I had to convert to a basal bolus regime in the first instance. The next update placed me on the DAFNE Course. I have to say it was a real eye opener by placing the carbohydrate/insulin and activity into a realistic framework. All our Course agreed that it provided that fundamental appreciation that had not been given previously. I do still, however, await my turn to move onto the pump program and am advised that I am 'on the list'. I served 33 years in the Royal Air Force as a logistician but at no time did my diabetes affect or impact on my Service career. I was able to travel extensively around the world and even served in both Germany and Australia. Now retired and self teaching my IT skills (and it shows) I remain committed to help and assist others with my diabetic experiences. User since January 2, 2009 |
Jan 12, 2009
Brian Trench
17 posts
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Topic: Site Development / Site attendance Hi SimonThank you for your message 12 Jan 09 at 1254A. I am using this reply system as suggested to ensure my understanding of the system is on line! The amplification of the terms forum, topics and posts is welcomed and to my mind justifies some entry onto the 'heading' page by way of an introduction so that others may also benefit from this clarification. Many thanks for your prompt replies! Brian |
Jan 11, 2009
Simon
578 posts
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Topic: Site Development / Bug Fixes 11th Jan Hi,I've been working today on fixes and updates, some requested by the users, some found by myself, as follows:
Thanks, Simon |
Jan 7, 2009
digth
19 posts
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Topic: Site Development / Site attendance Hi SimonI've just updated my settings. On the settings page I am still listed as a DAFNE User; whereas here in the forum I am listed as a DAFNE HCP. Could I be listed as the same in both? Also any chance of a 3rd category - DAFNE management or DAFNE admin as I'm neither a User or a HCP. Thanks Gill |
Jan 6, 2009
Simon
578 posts
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Topic: Site Development / Settings Bug - Fixed Thanks for Brian Trench for informing me about this one:Basically if you clicked the settings link after logging in you were told that you were not authorized to visit that area on the site. This was an error on our part (of course users should be able to access their own settings) and it has now been fixed. You can all now visit the settings link in the navigation bar to update your profiles. This highlights the importance of testing and feedback - if you find any more issues like this (where something doesn't work as expected) then let us know via the Contact DAFNE Online link below. Thanks again to Brian. Simon |
Jan 6, 2009
Simon
578 posts
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Topic: Site Development / Site attendance Thanks for the feedback on the colour of the navigation bar at the top Gill - I've changed from green to blue to hopefully make the text more legible after a number of users raised this. Let me know what you all think of the change.Yes - planning on adding more content from the handbook - it would be good to know which sections are in demand from the Graduate/HCP community! Simon |
Jan 6, 2009
digth
19 posts
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Topic: Site Development / Site attendance Hieventually managed to log on. The site looks great and is easy to navigate. The only suggetsion I have is to use a different colour font on the naviagtion bar as the green is difficult to read against the orange background. I will send details of the site and how to log on to a few DAFNE Educators and hopefully they will feedback also. Are you going to add more content from the DANFE Handbook and the CP list? Well done Simon and Mark! Gill |
Jan 4, 2009
Simon
578 posts
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Topic: Site Development / Performance? Hi Everyone,Just a quick note to assess the performance of our Webserver - when browsing the site are pages loading quickly, or are they annoyingly slow to load? If so is this at certain times/certain pages or all the time? Thanks, Simon |
Jan 4, 2009
Simon
578 posts
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Topic: Site Development / Site attendance Thanks to Robert for being our most active (and only!) poster so far, its great to see you are testing the site out.With regard to getting the site out there - I'll certainly be investigating ways of getting us to the top of the Google charts as current Graduates may indeed search for us there. I'll also be sitting down with selected members of DAFNE Central (those that were at the meeting where we all met in Sheffield last year) to discuss ways of getting in touch with current and new graduates as well as those who are interested in the course. I'm hoping that we can get in touch with all the lead educators of each DAFNE Centre, and they can pass on the site info as well as centre code to all DAFNE Graduates and HCPs in their area... Watch this space! If anyone has info on how to rise up the Google rankings, or other means of getting the message out there for the first release in February, let us know here! Thanks again Robert for your testing so far! Simon |
Jan 3, 2009
TGLP
3 posts
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Topic: Site Development / Site attendance So by the time I got past all the european and Australian DAFNE references I found ADDENBROOKES Cambridge on Page 13.....Still nothing to write home about as it was a history thing. So maybe a thought to get this site higher upthe Google chart...which I suppose you already have in mind!! would be a good idea...but maybe a better support system over the next comming weeks from our guests to see what they think"!Can't find a problem as yet from a simple user and it still ticks my boxes...will get the wife to view it tomorrow if I can and see what she says.. Good work guys Robert |
Jan 3, 2009
TGLP
3 posts
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Topic: Site Development / Site attendance Simon Is there a number counter set to see the times peopel are attending the site.....I wonder if you could tell if they would be part of your invited group or if there may be some one who could lookin Gooogle for "DAFNE". In fact, would that work yet on Google...I should try!!Suprised that no one has left a message yet!. Working good so far! Robert |
Jan 3, 2009
Simon
578 posts
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Topic: General Discussion / Testers - Please Note (Ignore) Hi all,I just wanted to clarify the signup/login process as I realise it may cause some confusion. As we are in testing mode the whole site is protected via a username and password, which is the same for all users and has been supplied to you via email. If you can read this you've already input these details. This is in place to ensure that only the testing group has access to the pre-release site, and will disappear in the full version released later this year. You also need to create your own unique username, via the Signup link in the bar at the top of the page. This is to create your own personal identity on the site, which will allow you to login and post messages on the forums as well as view other areas of the site intended for DAFNE Graduates. After creating this username and password, you will be automatically be emailed by the site with a link you must follow which will activate your account. When (and only when) your account has been activated you can Login to the site and post messages on the forums and view other pages in the site. Note we are currently having issues with some of the automated emails being picked up by some users spam/junk mail filters. If you are expecting an email after signing up, please also check your junk email folder. We are working with our hosting company to rectify this. If you have any questions/problems then dont hesitate to get in touch with us via the contact link near the bottom of the page. Thanks, Simon |
Jan 1, 2009
TGLP
3 posts
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Topic: General Discussion / Site first impressions On behalf of the attending DAFNE Grads who attended the Sheffield meeting, I would to say that the work you computer guys have put in seems to be very good indeed. I'm sure there is far more work that we can all see infront of us. So a big congratulations to you all.My Log on and registration sequence went well with little confusion (Well none actually) and the "finding the way round the site" activity is also well laid out and you can find your destination easily enough...as time goes on I'm sure there may be things to suggest...but not yet...!! Thanks one and all and I hope you get some good feedback. I will try to give you some! Robert Miller. |
Jan 1, 2009
Simon
578 posts
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Topic: General Discussion / Introductions Hi everyone, when you get signed up to the site take some time to introduce yourself here...I'm Simon and I attended the DAFNE Course in Sheffield in July 2007, and I was diagnosed with Type 1 in May 2006 whilst studying for my finals at university (great timing!). I got involved with development of DAFNE Online after seeing how great it was to interact with other people with diabetes over the DAFNE week, and could see the value of sharing stories/experiences/supporting each other - hence this site! If you want to find out more about me, click my username to the left of this post. You can also add your own 'bio' using the settings link in the top right of the page. |
Dec 29, 2008
Simon
578 posts
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Topic: General Discussion / Welcome to the General Forum Hi,Thanks for taking your time to look at this topic - and welcome to the DAFNE Online forums. The forums here are for all users of the site to express opinions, ask questions, and generally get things off their chest. The general forum is for anything and everything - whether DAFNE related or not, so feel free to post about anything (keep it clean though!) Thanks for reading and happy posting! Simon |
Dec 29, 2008
Simon
578 posts
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Topic: Site Development / Welcome to the Site Development Forum Hi,Thank you for visiting the site development forum. The aim of this message board is to facilitate collaboration between you, the users and the development team to make DAFNE Online a great tool for people with Type 1 Diabetes. Please feel free to express any views you have about the site, including its content, layout, graphics and any other areas you feel are important, whether negative or positive. The development team will present questions here from time to time asking for guidance on the development of the site - so look out for these and make your opinion heard. We need your help to make DAFNE Online a fantastic tool for people who have attended the course, people who want to, and the health care professionals that support the DAFNE Course across the UK. Thank you all in advance for your help! Simon |
Dec 29, 2008
Simon
578 posts
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Topic: Carbohydrate Counting / Welcome to the Carb Counting Board Hi,The aim of this message board is to give users of DAFNE Online a place to share experiences with Carbohydrate Counting. If you have a specific question regarding estimating the number of carbohydrate portions (CPs) within particular foods or meals, or want to share your Carb Counting stories with other users, then here is the place to post. Thanks for reading and happy posting! Simon |