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May 22, 2009
Simon 578 posts

Topic: DAFNE Online Mobile / DAFNE On Line Mobile

Hi Mike,

Thank you for your feedback - it is always good to hear something nice. Our aim from the start has been to empower DAFNE Graduates and other people with Type 1 to better control the condition using the power of the internet. Glad to hear we are helping you in this respect with the CP List access.

If there's anything else we can do then please don't hesitate to ask.

Simon
 
May 22, 2009
MIke P 8 posts

Topic: General Discussion / Does Dafne work?

I am responding to the basic question as to whether DAFNE works. It has for me.

I am a first year Type 1 and recently spent 6 weeks in Australia. Without DAFNE training I do not know how I would have coped with:

• the long air journeys;
• preparation for the trip and insulin care;
• having my time zones turned upside down and changed as I crossed the continent;
• eating out most days;
• hot and humid weather;
• and having a very varied activity level.

So in terms of how I see the value of DAFNE, it has provided me with an improved understanding of my condition; a rules set; a support structure; a learned ability to analyse and understand my BG patterns; and the means to correct and control BG levels independently with confidence and without my previous anxiety.

I realise that I am lucky that as a chartered engineer, the course helped me so much, in that DAFNE has placed diabetes management a level down as an essential lifestyle activity, as opposed to dominating my world.
 
May 22, 2009
MIke P 8 posts

Topic: DAFNE Online Mobile / DAFNE On Line Mobile

I'd like to thank the DAFNE team for implementing the mobile access to the web information. It's great to be able to get roving access to the handbook and carb counter so easily and especially for it to be repurposed for use via mobile telephones. I know we could access the site before using our phone's web browser but it's the format that really makes the difference.

In the past, I so often found myself guessing at CPs - now I can now look them up if in doubt, in a few seconds. I really appreciate this new functionality. Many thanks.
 
May 21, 2009
Lizzie 87 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Stefan - why would you need the full version? I think it would be more useful to think which features you like or value, see if any are missed off the mobile version, and ask specifically for those. I would rather have a cut down version which will display on my phone instead of seeing a blank screen or an error message because my phone can't display the page.

Also, it doesn't hurt to say 'please' and 'thankyou'. This site is run by people in their spare time, there is no reason why they would do any of this for us. I for one am very grateful.
 
May 20, 2009
marke 681 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

what do we mean by the full version ?
If you mean the same as the internet version , its because most phones can't handle the full version and will not display the pages. It really depends on the phone you have and what browser it has. I have a windows mobile phone with several browsers on. Skyfire didplays the 'full' site because it is a full browser that can handle it, opera mobile and IE both display the cutdown 'mobile' site because thats what they can handle. What phone do you have ? We can then investigate if it can handle the 'full' version of the site.
 
May 20, 2009
Simon 578 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Hi Stefan,

Thanks for your feedback. At the moment the site automatically detects whether users are browsing using a mobile device or desktop browser. We'll look into how to override this so that you can see the full site on your mobile.

Watch this space.

Simon
 
May 20, 2009
Novvo 2 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Why can't we have the full version on mobile other sites do.
 
May 19, 2009
Claire Hough 12 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

I tend to follow food labels and just use the book as a back up when something doesn't have a food label or for foods like fruit / veg / potatoes etc. I would say that food labels are a bit more reliable as different brands etc are all different sizes and ingredients which then affects the carbs. For example, I now know that a packet of supermarket sandwiches tends to be 4.5 - 5 CPs whereas if I just counted it as two pieces of bread I would only count it as 2 or 3 CPs. As Mark said it is all trial and error really.

I have also learned from recent experience that I need to count a grapefruit as 1CP and my salad that I have for lunch every day as 2CPs, whereas previously I would not have counted either of these two things as any CPs! I don't know whether this is just me or the same for everyone?

Claire
 
May 19, 2009
Lizzie 87 posts

Topic: Questions for HCPs / Dieting

I would advise you to speak to a doctor, nurse or dietitian. They can talk with you and find a diet that's right for you. Every person is different and I don't think a generalised diet sheet would be much help.
 
May 19, 2009
Claire Hough 12 posts

Topic: Questions for HCPs / Dieting

Hi guys, Weight Watchers is brilliant and fits in really well with DAFNE. I followed it online where you get an online diary to record everything you eat, or you can go to meetings for additional support. It's good because you are weighing most of your food anyway for DAFNE so doesn't take too much extra work. I lost a stone last year! Claire
 
May 18, 2009
Lizzie 87 posts

Topic: General Discussion / "Diabetes set off course" Balance letter

I am insulin resistant and for me DAFNE was a lifeline. Yes it was hard and I did feel isolated. But in fifteen years, nobody had ever told me how to adjust my own insulin, treat a hypo or deal with illness. I had never met another diabetic. I don't even know if my doctors were aware of my insulin resistance before I found out my ratio on DAFNE - they certainly never mentioned it to me.
 
May 18, 2009
John 6 posts

Topic: Questions for HCPs / Eye photos

Marke, the eye infirmary is literally that, a hospital that does nothing but eyes. I have no criticism of the eye infirmary whatsoever and if anyone gets the chance to have their eye care at such a hospital I can fully recommend it.
I am not concerned, other than to have wasted my time and NHS money getting the photos at the optician.
 
May 17, 2009
Simon Heller 46 posts

Topic: Questions for HCPs / Eye photos

I am pretty sure that any eye photos requested by the PCT and taken by local opticians are supervised by the eye specialists as this is govt policy. However the point about the lack of explanations and the anxiety raised by 'slight changes' is important and should be dealt with. In Sheffield the local specialist teams can access both the photos and the report and discuss them at a clinic visit. I would ask the people at the Diabetic clinic to try and get hold of these so you can have a proper explanation. Ideally you should be able to look at the photos together and have them explained.
Simon H
 
May 17, 2009
marke 681 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

The answer I'm afraid is your own experiences. Both are guidelines and are not set in stone since there are a number of factors involved.
I'm afraid you can only use them as a guideline and then see what happens. I would also recommend the following books:

food and diet counter - Dr Wynnie Chan - ISBN: 978-0-600-60709-0
Carb Counter - Collins Gem - ISBN: 0-00-717601-5

Both have lots of carb values in, they suggest that orange juice has 22g of carb for 250ml and apples has 24.8 of carb for 250ml. Hopes this helps.
 
May 17, 2009
marke 681 posts

Topic: General Discussion / Introductions

Richard,
I'm glad you are finding the website useful as you say the more graduates we get signed up the better ! All views are welcome both positive and negative. Making all sides aware of issues can only improve DAFNE as a whole and help ensure that those who control it are aware of issues and can hopefully do something about them.

Welcome on board !
 
May 17, 2009
marke 681 posts

Topic: General Discussion / "Diabetes set off course" Balance letter

Jenny,
There was another topic discussing the 'suitability' of Type 2's and insulin resistant diabetics for DAFNE and to degree your and
Paul's experience seem to back it up. I think we all agree that every diabetic is different and no solution fits all, however it seems that
people that are insulin resistant find it a lot harder to follow DAFNE 'rules'. Recently I have had to take steriods and they have been
making me insulin resistant and screwed up my Blood sugars so I can empathise with your experiences.
I don't think this makes DAFNE not a good course, I think it underlines that HCP's need to think very carefully about including people
who are insulin resistant. I'm not suggesting they are excluded, merely that both sides understand the additional complications for
following the course for people who are insulin resistant.
Its still intereesting to hear your experiences and like I said to Paul, if you don't feel happy about DAFNE you have just as much right to express this view as we do to praise it. The course can only improve if all points of view are taken into account.
 
May 17, 2009
Bex 1 post

Topic: Carbohydrate Counting / Useful link for looking up CPs

i've only just completed a DAFNE course and i'm finding the book and my food lables are telling me contrary ideas - which should I follow?

plus, the book only has orange juice, are all other juices the same CP values - i prefer apple juice and my local bottles have no nutritional values on them!?!
 
May 17, 2009
marke 681 posts

Topic: Questions for HCPs / Eye photos

John,
What do you mean by the eye infirmary ? Are they linked to your diabetes clinic ? It sounds like the local trust is doing its own independent standalone system that as your say sounds VERY badly run. A letter saying you have slight changes is totally unacceptable without any details of what this means and a chance to disuss it with someone. I wouldn't be happy with an optician checking my eyes either.

In kent we have a very good eye service provided to the PCT by the local Diabetes Charity. It is staffed by Diabetic Eye specialists and has a number of mobile eye screening vans that visit GP's. When ever I have my eyes done, I have a chat with the person doing it and they show me the pictures on screen and explain what they are seeing. The pictures are still checked back at base and I get a letter about it, but I
do get chance to understand what the pictures mean. I am lucky I guess.

I would suggest that if you are concerned you call the Diabetes UK Careline. We had a presentation last week from Diabetes UK on what
care to expect and I know this is an area they are concerned about and will be interested to hear about the 'service' you are receiving.
 
May 15, 2009
richard_g 14 posts

Topic: General Discussion / Introductions

Hi,

I've also just signed up after the Northumbria NHS refesher course. The refresher course was a useful reminder and it has encouraged me to get out the diary again. DAFNE's great as it gives you much more control and freedom and the website is a great addition. Particularly as the latest course notes are now on line. Having had a quick flick through the forums I'm somewhat suprised at some of the news and views being expressed but if the site can bring issues to everyone's attention it can only be a good thing. Hopefully we will get more contributions as more Dafne graduates are made aware of the Website.

Richard
 
May 15, 2009
Simon 578 posts

Topic: Questions for HCPs / BG Diary at Clinic

Hi John,

Agree with your points above. It would be good to get a view from your dietician of whether or not they could access such a feature.

HCP = Healthcare Professional, a catch-all term for DAFNE Doctors, Specialist Nurses and Dieticians (apologies if I've missed anyone out of that list). If you look to the left of the forums you can see whether a user is a HCP, or in your case, a DAFNE Graduate.

Thanks,

Simon
 
May 15, 2009
John 6 posts

Topic: Questions for HCPs / BG Diary at Clinic

Thanks Simon
Printing out goes against saving the planet.
3. is definitely a big no, it's just too private. I'll talk to my dietician about her access at the next clinic.
She does have very sophisticated computer access so I'd guess it's on the interweb as well.
John
Ps what is HCP and have I got one?
 
May 14, 2009
Simon 578 posts

Topic: Questions for HCPs / BG Diary at Clinic

Hi John,

We don't actually have any Dieticians/Nurses in the online team per se - myself and MarkE are both DAFNE Graduates and take care of the running and development of the site. We also have support from DAFNE Central up in Northumbria. I agree that it would be nice to share your diary with dieticians/nurses at reviews. There are a number options here:

1. There is already a print layout defined so you can print out your results and take them on paper. See the "Printable view of currently displayed results" link above the diary display on this site.
2. We can set it up so you can allow specific users to view your diary. You would have to know the username/email of your HCP to do this.
3. You could share the diary via the foirums for all users to see and comment on, in a similar way to you do don the actual course using the overhead projector.

Options 2 and 3 don't exist yet so we'd have to assess feasibility/time needed to do them if there was enough demand. One question to the community though: Do HCP's have internet access during reviews/clinics?

EDIT: Also, would HCPs be comfortable doing something like this?

Thanks,

Simon
 
May 14, 2009
John 6 posts

Topic: Questions for HCPs / BG Diary at Clinic

Do any of the dieticians, nurses etc in the online team know if the (great) online BG Diary can be used in review sessions at clinic? I think it would be great if my specialist dietician at clinic could look through this online diary and discuss it with me.
Also what about the same person viewing it, with permission, when I'm not there - say in response to a problem I've telephoned about?

I'm new(today) to this so don't have many results (or red BGs) to show, but it's so easy I can see it being very useful
 
May 14, 2009
John 6 posts

Topic: Questions for HCPs / Dieting

Hey, what is a diet sheet? I could do with losing a few kilos, so if anyone finds something useful maybe it could be posted here? Never heard of diet sheets though.
 
May 14, 2009
John 6 posts

Topic: Questions for HCPs / Eye photos

Hi Lizzie, I've just had photos done at the request of the local healthcare trust. However it seems unrelated to the Eye Infirmary consultant I see every year, nor my GP, nor my diabetic clinic.
Furthermore the feedback letter from the local healthcare trust says some slight 'changes' were detected, but not if good or bad, and what is most shocking is that this was the first time they have done such photos, so how on earth do they detect any changes. I found it upsetting and prefer to talk to the consultant at my eye infirmary who tells me there and then what he has seen.
My local healthcare trust relies on local opticians having the right equipment to take the photos but to be honest I don't trust local opticians, especially when it's not my own, to get it right. Why can't the diabetic clinic have this equipment and talk to me at the clinic about the photo they could take there and then?