Recent Posts - DAFNE Online

Apr 28, 2009

Carl 5 posts

Topic: DAFNE Online Mobile / Mobile site released

Wow, this works really well. I've just made my first "mobile" diary entry on my Nokia E51. This is going to be so convenient when out and about.

The mobile home page, diary and carb counter look good on the E51 using IE and Opera Mini.

Smile

Thanks for all your hard work!

Apr 28, 2009

Becky 7 posts

Topic: General Discussion / DAFNE in peril at the Wirral

I have sent an e-mail to both e-mail addresses & I also copied in my local MP. He said that once I hear back from the complaints team he'll see how he can help.

Apr 28, 2009

Simon 574 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Although I did the course in Sheffield I now live under the care of Arrowe Park so have sent them a letter of complaint - here's hoping they realise that the DAFNE Course is an important tool in the care of people with Type 1 like ourselves. If I hear anything back I'll let you know...

Apr 28, 2009

Becky 7 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Woo Claire - you go girl! xXx

Apr 28, 2009

Claire Hough 12 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Hi guys, I have emailed them as well - will let you know if I get a response.

Can't believe they're going to withdraw funding - why would they do that? DAFNE is brilliant and every type 1 should go on it!

Apr 27, 2009

Crispo 5 posts

Topic: Site Development / Online BG Diaries

Hi Simon,

Many thanks for the update mate. Loving the online diary action!!!

Cheers,
Paul

Apr 25, 2009

Simon Heller 46 posts

Topic: Questions ? / How to attend a DAFNE Clinic after moving house

There are some GPs who know a lot about diabetes (although few who are DAFNE trained) and who could support DAFNE graduates but I agree with marke, that the remark that 'young and healthy' people don't need to see a specialist doesn't suggest that this GP is one of them. I think there are relatively few DAFNE clinics on the South coast but Salisbury is not too far away and Gill Thompson, national clinical director of the DAFNE collaborative may give you a list. I think you have a right to politely but firmly insist that you seek specialist support, particularly as you recognise the need to optimise your glycaemic control prior to becoming pregnant. Any GP will realise that this alone needs specialist support.

Apr 25, 2009

Simon 574 posts

Topic: General Discussion / "Balance" letter about injecting in public

Well it seems the rest of Balance readers share our shock and dismay at this nurses views on injecting in public. 2 pages of this months letters section are devoted to people's reactions to the letter mentioned at the top of this post, and I am pleased to say that not one of them supports the point of view expressed by this nurse.

Apr 25, 2009

Simon 574 posts

Topic: General Discussion / "Diabetes set off course" Balance letter

It seems that we share the views of the vast majority of the balance-reading population. This months letters section, for the most part, highlights the strengths of the DAFNE course, and how much of a positive impact it has had on people's lives - both during and after the week itself.

Very encouraging!

Apr 24, 2009

Simon 574 posts

Topic: Site Development / Online BG Diaries

Hi Paul,

I've just added this functionality for you now - you can now add negative corrections to QA, BI and CP field.

Thanks,

Simon

Apr 23, 2009

marke 655 posts

Topic: Questions ? / How to attend a DAFNE Clinic after moving house

moving diabetes care to primary care pah ! Whoops better be careful what I say, I might upset somw HCP's ;-) I'm not a HCP in case you hadn't guessed that already but I totally agree that the approach that you are 'young and healthly' so don't need to see a specialist is rubbish. you won't stay healthly without help, although the 'young' bit I'm afraid you can't do anything about.
It would be nice if you could link up with another DAFNE centre, however there aren't any on our list, DAFNE Central would know better and hopefully someone from there will answer. You don't say where in Hampshire, its a big county. There is a Centre in Salisbury and there
are ones in London that may be not too far if you are in North Hampshire. At the very least I think you should be seen by a Diabetes Care team at your local hospital. There is definitely one in Southampton because I was under there before I moved.
You can always email us using the contact link at the bottom of pages on the website with your address and we can pass this on to DAFNE
Central to see if they can help.

Apr 23, 2009

natv25 2 posts

Topic: Questions ? / How to attend a DAFNE Clinic after moving house

I have recently moved from London (where I atended a DAFNE course at the Central Middlesex Hospital in Jan 07)to Hampshire and have registered with a Doctor here. I gave my DAFNE notes to the DR which included a recommendation that I attend the DAFNE clinics at a nearby hsopital. My doctor told me that because I was "young and Healthy" I did not need to see a specialist. I am not happy with this response.

Before moving to the area my HbA1c was 7.9% and I am hoping to start a family with in the next 2 years. I know my HbA1c needs to be lower and therfore want to attend a clinic regularly.

Does anyone know any way I can attend a DAFNe clinic? Can I contact the hospital myslef or I do I need to be referred by my Doctor?

Apr 23, 2009

Crispo 5 posts

Topic: Site Development / Online BG Diaries

Hi Simon,

Would it also be possible to enter minus vaues into the QA field for times when a unit of insulin is dropped i.e. 4-1 for when exercise is planned or a hypo was experienced earlier before that meal?

Thanks,
Paul

Apr 21, 2009

Carl 5 posts

Topic: Site Development / Online BG Diaries

Simon,

Thanks very much for doing this. AWESOME job! Smile

Carl

Apr 21, 2009

Simon Heller 46 posts

Topic: Questions ? / Type 2 & DAFNE

Another comment from an HCP. I have managed to slip a couple of people with Type 2 diabetes into a DAFNE course and both enjoyed it and have used it to maintain tight glucose control and their weight. The issue is that DAFNE is teaching the skills of insulin replacement and dose adjustment with a philosophy of eating freely. In Type 2 diabetes, control of BP and cholesterol are equally important and don't get big coverage on a DAFNE course. I agree with suggestions above that where the need is for skills in insulin adjustment and someone with Type 2 diabetes is up for taking 5 injections for insulin (relatively unusual) then they can use DAFNE skills to control both blood glucose and weight. However Gill is right that there has never been a trial to prove that people with Type 2 diabetes can do as well as people with Type 1 so there is a nervousness among HCPs in referring them.

Apr 21, 2009

digth 16 posts

Topic: Questions ? / Type 2 & DAFNE

Hi Lizzie

sorry that you have been offended by my posting.

There was absolutely no deliberate thought in the use of 'disrupted'

Type 1 and Type 2 diabetes are essentially different conditions with essentially different treatment pathways, in general Type 2 care pathways involve lifestyle management.

This merely reflected the feedback from DAFNE Educators and applied to different needs of individuals with Type 2 diabetes not covered in the DAFNE curriculum, which was developed for people with Type 1 diabetes and in no way was intended to be interpreted that people with insulin resistance behave inappropriately.

The term disrupted refers to these differing lifestyle requirements and medical needs of the individual(s) with Type 2 diabetes which results in some areas of the DAFNE curriculum being inappropriate for the individual with Type 2 diabetes and the educator having to more spend time ensuring that the different needs of all individual are met.

Apr 20, 2009

marke 655 posts

Topic: DAFNE Online Mobile / Mobile site released

works fine on a HTC TYTN II using Internet explorer !

Apr 20, 2009

Simon 574 posts

Topic: Site Development / Online BG Diaries

Prompted by Carl's (and others) request, there is now an 'XML Export' link displayed above your BG diary, next to it you'll find a link to a nicely formatted printable view of your currently displayed results (I used this recently to take my recent results to a review appointment).

Let us know if there is any other functionality you'd like to see in the online diaries.

Thanks,

Simon

Apr 20, 2009

Zandrew 4 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Thanks! It looks really useful. I'm running a DAFNE course in May and will promote the new tool! It would be great to build up the database with more entries....

Apr 20, 2009

Lizzie 87 posts

Topic: Questions ? / Type 2 & DAFNE

Digth - what is you and your colleagues' feelings about type 1 insulin resistant diabetics like me who also have high insulin requirements? I went on a DAFNE course last year which was the best thing I have ever done for my diabetes. I do not feel I "disrupted" the learning of other group members - could you please clarify what you mean by using that word? To me it implies some degree of deliberate thought, in the sense of a child disrupting other childrens learning by misbehaving. I must say I am a little hurt by your use of that word as I would never want to disrupt anyone and I do not feel that I did.

Apr 18, 2009

Simon 574 posts

Topic: DAFNE Online Mobile / Mobile site released

Hi,

We have released a first draft of mobile capabilities for the site. Currently the mobile capabilities are fairly limited' you can login and logout from the site, and when logged in you can browse the Carbohydrate Portion lists as well as search for a specific food item.

As there are many different mobile devices on the market, all with slightly different web browsing functions, we need you to test out the site on your own mobile devices and provide feedback on how the site looks and functions on them.

To get started, point your mobile web browser at www.dafneonline.co.uk - it should automatically detect that you are visiting from a mobile device and show you the mobile login screen. If, however the normal site home page is displayed, let us know what device you are using here, so we can research how to implement the mobile functions for your particular device.

You can log in to the mobile site with your usual username and password, and browse/search the CP lists by 'clicking' on the appropriate links.

As always, we value your feedback so please let us know, either on this or other posts, or via email what you think of the mobile site, as well as which other parts of the main site you would like to see 'going mobile'

Thanks,

Simon

Apr 18, 2009

Becky 7 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Thanks for the e-mail addresses. I'll get something sent to them this weekend.

Apr 17, 2009

marke 655 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Becky, sounds like you ARE upset by this decison. In which case what you need to do as someone who comes under the PCTâ€™s catchment area is to email them on the address below and ask for an explanation as to why they are withdrawing funding for DAFNE and pointing out all the benefits. Also get anyone else who you know to do the same. If any of you are prepared to email the local paper about it as well even better.

The address on the PCTâ€™s website to email is [email protected]

If you donâ€™t get any response from that address, email [email protected]

This is the Patient Advice and Liaison Service and its their job to help you with complaints and contact the right people.

The more people that complain the better the chances they may be 'encouraged' to change their decision.

Apr 17, 2009

Becky 7 posts

Topic: General Discussion / DAFNE in peril at the Wirral

Hi! I did DAFNE at Arrowe Park & I know of a few others that have done it there also. I am totally disgusted with the decision to withdraw DAFNE from Arrowe Park & feel as if the PCT are letting me & other DAFNE trained type 1's down. My HbA1c has come right down from around 9% to 6.8% & my general health has improved as a result. I had the "it'll never happen to me" attitude towards my diabetes & complications before I did DAFNE. Now, I am a better diabetic, a more educated diabetic & perhaps most importantly a heathier diabetic. Does Wirral PCT want type 1's to be ill & suffer with more complications? I believe that my life has been saved by DAFNE. Do the people in charge of the purse strings at Wirral PCT want it on their conscience if diabetics in their care suffer??

Apr 17, 2009

marke 655 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

The search function is now implemented in the carb counting pages and the ability to add your own items now works properly ! No one told us it didn't and unfortunately in our test environment it DID work. Anyway it all works now, you may have to enable javascript to get it to work though. If you don't know what this means, chances are it WILL work for you.

Apr 28, 2009 Carl 5 posts	Topic: DAFNE Online Mobile / Mobile site released Wow, this works really well. I've just made my first "mobile" diary entry on my Nokia E51. This is going to be so convenient when out and about. The mobile home page, diary and carb counter look good on the E51 using IE and Opera Mini. Thanks for all your hard work!

Apr 28, 2009 Becky 7 posts	Topic: General Discussion / DAFNE in peril at the Wirral I have sent an e-mail to both e-mail addresses & I also copied in my local MP. He said that once I hear back from the complaints team he'll see how he can help.

Apr 28, 2009 Simon 574 posts	Topic: General Discussion / DAFNE in peril at the Wirral Although I did the course in Sheffield I now live under the care of Arrowe Park so have sent them a letter of complaint - here's hoping they realise that the DAFNE Course is an important tool in the care of people with Type 1 like ourselves. If I hear anything back I'll let you know...

Apr 28, 2009 Becky 7 posts	Topic: General Discussion / DAFNE in peril at the Wirral Woo Claire - you go girl! xXx

Apr 28, 2009 Claire Hough 12 posts	Topic: General Discussion / DAFNE in peril at the Wirral Hi guys, I have emailed them as well - will let you know if I get a response. Can't believe they're going to withdraw funding - why would they do that? DAFNE is brilliant and every type 1 should go on it!

Apr 27, 2009 Crispo 5 posts	Topic: Site Development / Online BG Diaries Hi Simon, Many thanks for the update mate. Loving the online diary action!!! Cheers, Paul

Apr 25, 2009 Simon Heller 46 posts	Topic: Questions ? / How to attend a DAFNE Clinic after moving house There are some GPs who know a lot about diabetes (although few who are DAFNE trained) and who could support DAFNE graduates but I agree with marke, that the remark that 'young and healthy' people don't need to see a specialist doesn't suggest that this GP is one of them. I think there are relatively few DAFNE clinics on the South coast but Salisbury is not too far away and Gill Thompson, national clinical director of the DAFNE collaborative may give you a list. I think you have a right to politely but firmly insist that you seek specialist support, particularly as you recognise the need to optimise your glycaemic control prior to becoming pregnant. Any GP will realise that this alone needs specialist support.

Apr 25, 2009 Simon 574 posts	Topic: General Discussion / "Balance" letter about injecting in public Well it seems the rest of Balance readers share our shock and dismay at this nurses views on injecting in public. 2 pages of this months letters section are devoted to people's reactions to the letter mentioned at the top of this post, and I am pleased to say that not one of them supports the point of view expressed by this nurse.

Apr 25, 2009 Simon 574 posts	Topic: General Discussion / "Diabetes set off course" Balance letter It seems that we share the views of the vast majority of the balance-reading population. This months letters section, for the most part, highlights the strengths of the DAFNE course, and how much of a positive impact it has had on people's lives - both during and after the week itself. Very encouraging!

Apr 24, 2009 Simon 574 posts	Topic: Site Development / Online BG Diaries Hi Paul, I've just added this functionality for you now - you can now add negative corrections to QA, BI and CP field. Thanks, Simon

Apr 23, 2009 marke 655 posts	Topic: Questions ? / How to attend a DAFNE Clinic after moving house moving diabetes care to primary care pah ! Whoops better be careful what I say, I might upset somw HCP's ;-) I'm not a HCP in case you hadn't guessed that already but I totally agree that the approach that you are 'young and healthly' so don't need to see a specialist is rubbish. you won't stay healthly without help, although the 'young' bit I'm afraid you can't do anything about. It would be nice if you could link up with another DAFNE centre, however there aren't any on our list, DAFNE Central would know better and hopefully someone from there will answer. You don't say where in Hampshire, its a big county. There is a Centre in Salisbury and there are ones in London that may be not too far if you are in North Hampshire. At the very least I think you should be seen by a Diabetes Care team at your local hospital. There is definitely one in Southampton because I was under there before I moved. You can always email us using the contact link at the bottom of pages on the website with your address and we can pass this on to DAFNE Central to see if they can help.

Apr 23, 2009 natv25 2 posts	Topic: Questions ? / How to attend a DAFNE Clinic after moving house I have recently moved from London (where I atended a DAFNE course at the Central Middlesex Hospital in Jan 07)to Hampshire and have registered with a Doctor here. I gave my DAFNE notes to the DR which included a recommendation that I attend the DAFNE clinics at a nearby hsopital. My doctor told me that because I was "young and Healthy" I did not need to see a specialist. I am not happy with this response. Before moving to the area my HbA1c was 7.9% and I am hoping to start a family with in the next 2 years. I know my HbA1c needs to be lower and therfore want to attend a clinic regularly. Does anyone know any way I can attend a DAFNe clinic? Can I contact the hospital myslef or I do I need to be referred by my Doctor?

Apr 23, 2009 Crispo 5 posts	Topic: Site Development / Online BG Diaries Hi Simon, Would it also be possible to enter minus vaues into the QA field for times when a unit of insulin is dropped i.e. 4-1 for when exercise is planned or a hypo was experienced earlier before that meal? Thanks, Paul

Apr 21, 2009 Carl 5 posts	Topic: Site Development / Online BG Diaries Simon, Thanks very much for doing this. AWESOME job! Carl

Apr 21, 2009 Simon Heller 46 posts	Topic: Questions ? / Type 2 & DAFNE Another comment from an HCP. I have managed to slip a couple of people with Type 2 diabetes into a DAFNE course and both enjoyed it and have used it to maintain tight glucose control and their weight. The issue is that DAFNE is teaching the skills of insulin replacement and dose adjustment with a philosophy of eating freely. In Type 2 diabetes, control of BP and cholesterol are equally important and don't get big coverage on a DAFNE course. I agree with suggestions above that where the need is for skills in insulin adjustment and someone with Type 2 diabetes is up for taking 5 injections for insulin (relatively unusual) then they can use DAFNE skills to control both blood glucose and weight. However Gill is right that there has never been a trial to prove that people with Type 2 diabetes can do as well as people with Type 1 so there is a nervousness among HCPs in referring them.

Apr 21, 2009 digth 16 posts	Topic: Questions ? / Type 2 & DAFNE Hi Lizzie sorry that you have been offended by my posting. There was absolutely no deliberate thought in the use of 'disrupted' Type 1 and Type 2 diabetes are essentially different conditions with essentially different treatment pathways, in general Type 2 care pathways involve lifestyle management. This merely reflected the feedback from DAFNE Educators and applied to different needs of individuals with Type 2 diabetes not covered in the DAFNE curriculum, which was developed for people with Type 1 diabetes and in no way was intended to be interpreted that people with insulin resistance behave inappropriately. The term disrupted refers to these differing lifestyle requirements and medical needs of the individual(s) with Type 2 diabetes which results in some areas of the DAFNE curriculum being inappropriate for the individual with Type 2 diabetes and the educator having to more spend time ensuring that the different needs of all individual are met.

Apr 20, 2009 marke 655 posts	Topic: DAFNE Online Mobile / Mobile site released works fine on a HTC TYTN II using Internet explorer !

Apr 20, 2009 Simon 574 posts	Topic: Site Development / Online BG Diaries Prompted by Carl's (and others) request, there is now an 'XML Export' link displayed above your BG diary, next to it you'll find a link to a nicely formatted printable view of your currently displayed results (I used this recently to take my recent results to a review appointment). Let us know if there is any other functionality you'd like to see in the online diaries. Thanks, Simon

Apr 20, 2009 Zandrew 4 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Thanks! It looks really useful. I'm running a DAFNE course in May and will promote the new tool! It would be great to build up the database with more entries....

Apr 20, 2009 Lizzie 87 posts	Topic: Questions ? / Type 2 & DAFNE Digth - what is you and your colleagues' feelings about type 1 insulin resistant diabetics like me who also have high insulin requirements? I went on a DAFNE course last year which was the best thing I have ever done for my diabetes. I do not feel I "disrupted" the learning of other group members - could you please clarify what you mean by using that word? To me it implies some degree of deliberate thought, in the sense of a child disrupting other childrens learning by misbehaving. I must say I am a little hurt by your use of that word as I would never want to disrupt anyone and I do not feel that I did.

Apr 18, 2009 Simon 574 posts	Topic: DAFNE Online Mobile / Mobile site released Hi, We have released a first draft of mobile capabilities for the site. Currently the mobile capabilities are fairly limited' you can login and logout from the site, and when logged in you can browse the Carbohydrate Portion lists as well as search for a specific food item. As there are many different mobile devices on the market, all with slightly different web browsing functions, we need you to test out the site on your own mobile devices and provide feedback on how the site looks and functions on them. To get started, point your mobile web browser at www.dafneonline.co.uk - it should automatically detect that you are visiting from a mobile device and show you the mobile login screen. If, however the normal site home page is displayed, let us know what device you are using here, so we can research how to implement the mobile functions for your particular device. You can log in to the mobile site with your usual username and password, and browse/search the CP lists by 'clicking' on the appropriate links. As always, we value your feedback so please let us know, either on this or other posts, or via email what you think of the mobile site, as well as which other parts of the main site you would like to see 'going mobile' Thanks, Simon

Apr 18, 2009 Becky 7 posts	Topic: General Discussion / DAFNE in peril at the Wirral Thanks for the e-mail addresses. I'll get something sent to them this weekend.

Apr 17, 2009 marke 655 posts	Topic: General Discussion / DAFNE in peril at the Wirral Becky, sounds like you ARE upset by this decison. In which case what you need to do as someone who comes under the PCTâ€™s catchment area is to email them on the address below and ask for an explanation as to why they are withdrawing funding for DAFNE and pointing out all the benefits. Also get anyone else who you know to do the same. If any of you are prepared to email the local paper about it as well even better. The address on the PCTâ€™s website to email is [email protected] If you donâ€™t get any response from that address, email [email protected] This is the Patient Advice and Liaison Service and its their job to help you with complaints and contact the right people. The more people that complain the better the chances they may be 'encouraged' to change their decision.

Apr 17, 2009 Becky 7 posts	Topic: General Discussion / DAFNE in peril at the Wirral Hi! I did DAFNE at Arrowe Park & I know of a few others that have done it there also. I am totally disgusted with the decision to withdraw DAFNE from Arrowe Park & feel as if the PCT are letting me & other DAFNE trained type 1's down. My HbA1c has come right down from around 9% to 6.8% & my general health has improved as a result. I had the "it'll never happen to me" attitude towards my diabetes & complications before I did DAFNE. Now, I am a better diabetic, a more educated diabetic & perhaps most importantly a heathier diabetic. Does Wirral PCT want type 1's to be ill & suffer with more complications? I believe that my life has been saved by DAFNE. Do the people in charge of the purse strings at Wirral PCT want it on their conscience if diabetics in their care suffer??

Apr 17, 2009 marke 655 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs The search function is now implemented in the carb counting pages and the ability to add your own items now works properly ! No one told us it didn't and unfortunately in our test environment it DID work. Anyway it all works now, you may have to enable javascript to get it to work though. If you don't know what this means, chances are it WILL work for you.