Recent Posts - DAFNE Online

Jul 3, 2009

marke 655 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Ian, I have spoken to DAFNE Central and they suggest they can provide them if necessary however they would prefer you to get them from your DAFNE Educator. Why ? Because like all parts of the NHS they are under resourced and over worked. I do have the order form that I can send you to obtain copies from DAFNE Central, if this is your only option email admin at dafneonline.co.uk and we will send them to you.

Jul 3, 2009

NiVZ 82 posts

Topic: General Discussion / Diaries

Hi Phil,

Sounds good. Can you send in to nivz78 [at] yahoo.co.uk

I'll send you a copy of what I've done if you want. Might be interesting to 'splice' them together ;o)

NiVZ

Jul 3, 2009

Phil Kane 4 posts

Topic: General Discussion / Diaries

I could send you a copy of same for you to look at if interested.
Philip

Jul 3, 2009

ianmac 3 posts

Topic: General Discussion / DAFNE in peril at the Wirral

if the powers in charge thought about it they would see that in the long run the DAFNE course may save a lot of money as well as helping Type 1 diabetics.
I learnt so much on the course and found out lots of things i was doing wrong
Its better having plenty of time to discuss and learn things rather than 5 minutes with your doctor who is under pressure to get through patients quickly
To me its should be compulsory like in Germany
i am using less insulin which is a saving and if my control is better i hopefully will require less treatmeny on the NHS.

Jul 3, 2009

ianmac 3 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Thanks wanted a spare one to leave at work as canteen menu varies

Jul 3, 2009

NiVZ 82 posts

Topic: General Discussion / Diaries

I've also made my own spreadsheet in Excel which exactly copies the layout of the DAFNE diaries, and prints them to fill A4 sheets (like the overheads used on the DAFNE course). I added a button to make it do graphs as well (need to enable Macros).

@Phil - Yours sounds pretty good too with averages, etc

NiVZ

Jul 3, 2009

Phil Kane 4 posts

Topic: General Discussion / Diaries

I have devised a excel worksheet which caculates daily levels, weekly and monthly averages and this is turn is very easy to keep updated as it is a locked cell format. I use this instread of the dairy and I can automatically see just by looking at the screen to where the ups are downs are. The only disadvantage is you need a PC to update this sheet daily.
Phil Kane

Jul 3, 2009

Phil Kane 4 posts

Topic: General Discussion / Introductions

Hi Anne Marie. The Second Irish registered DAFNE user who is now on this site. The one thing I find amazing is the lack of support this site gets from the Health people in the various teaching hospitals in Ireland.You would think that in order for things to grow you need to participate after you finish the last day of the course and walk out into a different way of thinking. I know everybody has a honeymoon period where for a few weeks or months every test is recorded along with each CP but once the pattern gets set, old habits set back in. Keep the faith.
Phll

Jul 2, 2009

Claire Hough 12 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Yes it is! My lovely friend Becky (who is also registered on here) ordered me a spare one and some diaries I think for a small price like 70p each. I will ask her to come on and pass on the details. Claire

Jul 2, 2009

Anne-Marie 4 posts

Topic: General Discussion / Introductions

Thanks guys. Its great to have a forum to thrash these things out in. I'm keeping the chin up and know that, given the improvement (albeit imperfect) I have seen so far, then well controlled bgs are not too far away....

Jul 2, 2009

Alzibiff 20 posts

Topic: General Discussion / Introductions

"Remember we are all different!" ...... that comment reminds me of the Monty Python "Life of Brian" film - same line shouted out to the multitude followed by a reply from everyone "Yes - we're all different" ..... and then a singular "I'm not!".

Me - yes - taking a while but little by little, confident that I will get there in the end - trouble is, there's always an explanation from the HPs as to why things were not as you expected ... "Well ... that walk will have lowered the BG by more than that...", "mmm - injection site may have been the reason for that", "Ahhhh - the pint of beer could have accounted for that ..."

Keep at it!

Alan

Jul 2, 2009

marke 655 posts

Topic: General Discussion / Introductions

Welcome Ann-Marie, with regard to your sugar levels not being quite as you would like them just keep the faith. Many people seem to think they are failures because they can't get everything under control immediately after the course. This is NOT the case, it takes time and you just need to keep focusing on the positives. Focus on what you have achieved so far and be patient, I'm sure there are many others on this forum that have had the same experience. For some people it takes longer than others and I have heard of people taking 12 months to finally get fully on top of their BG's. Remember we are all different !

Jul 2, 2009

marke 655 posts

Topic: Site Development / On line carb counter

ok, ok, I admit I got it wrong :-) I will get it corrected ASAP, sorry.

Jul 2, 2009

marke 655 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Ian, I have put your question to the nice ladies at DAFNE Central. i will update you when I have a reply. In the mean time you can always use the online version, it should be identical to the paper version.

Jul 2, 2009

ianmac 3 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Is it possible to order the Dafne carb counter book which were given on the course

graduated 6 weeks ago and have seen marked improvement on blood glucose levels but still a lot to learn esp on takeaways

Thanks

Ian

Jul 2, 2009

Alzibiff 20 posts

Topic: Site Development / On line carb counter

Had me reaching for my mighty DAFNE CP List book there Thea. Mine is issue 8, October 2008 and shows exactly as you say: Chick Pea and potato curry, 200g, 2.5 CP. (pages 18 and 35).

Alan

Jul 2, 2009

Anne-Marie 4 posts

Topic: General Discussion / Introductions

Hi all. I'm Anne-Marie and I have had Type 1 diabetes since 2001, when I was diagnosed half way through my primary degree (what timing!).

I have recently completed the DAFNE course in St Vincents hospital in Dublin. I have been watching DAFNE for the past few years, always interested in it - so when the programme moved to Ireland I jumped at the opportunity to change hospitals to one where DAFNE is practiced - best decision I have ever made.

As I am only a new graduate from DAFNE (June 2009), I am still trying to get all the sugar levels as I would like them. It will probably take a couple of weeks- but I am already delighted at how much more stable and also predictable my sugar levels are. I am no longer going to bed at night, or out with my friends, with the terror of an unexpected hypo. DAFNE has helped to make it all make sense and the freedom I have found in truly life changing.

I found this website last week and it is a great facility to have - so nice to talk to other DAFNE users and pick up any tips. I find non-DAFNE users don't really understand the concept yet, and having to explain how "Yes, I can eat this piece of cake - I have NOT turned my back on my diabetes care" can get me down sometimes! So, talking to others who know all about it (the ups and downs) is really helpful. Well done on putting such a great system together, guys.

AM

Jul 2, 2009

Anne-Marie 4 posts

Topic: General Discussion / Changes to HbA1c reporting

Hi - I am not a HCP either, but I do know that what Marke says is correct. There is a common misconception that what we get from our test metres uses the same measurement as the HBA1C, but this is not the case. The test metres measure the amount of glucose in your blood per mmol of blood, whereas the HBA1C is a percentage measure, looking at how much glucose has attached to the haemaglobin - they are not the same measurements at all. It is an Apples and Oranges comparison situation - two completely separate measurements. As far as I know one of the reasons why they are introducing this new measurement of the HBA1C is to try and avoid this confusion.

Jun 30, 2009

marke 655 posts

Topic: General Discussion / Changes to HbA1c reporting

Simon, I am NOT a HCP however my understanding is that blood meters measure the level of glucose in the blood at a particular moment. A HBA1c test measures the amount of glucose that is bound to the haemaglobin in your red blood cells. They are two different things like markets and meerkats ;^) You cannot really compare on with the other, so I don't think you will ever get a meter that does what you want.
It is true that HBA1c sort of gives you an average blood sugar over the last 3 months but its not necessarily a good idea to use one as a measure of the other. But hey as I said I'm not a HCP , I'm an IT person maybe a friendly HCP reading this can give a better answer.

Jun 30, 2009

Simon Rowley 1 post

Topic: General Discussion / Changes to HbA1c reporting

If my current HbA1c is 8.0 I can compare this to my future blood tests and if they are less than 8 I am happier than if they are more then 8. If my HbAc1 changes to 64 under the new system then it would be really helpful if my own blood test meter adopted the same new numbering, so that more than 64 would be worse and less than 64 would be better. Is this likely to happen?

Jun 30, 2009

Thea 1 post

Topic: Site Development / On line carb counter

Hi Simon
I'm just navigating the site for the first time and noticed a blip in the carb counter in the Indo Asian section. The chickpea and potato curry is down as 5.5 CP's which was a typo error in the cp book and should be 2.5 cp's. If I notice anything else, I will let you know!

Thea

Jun 29, 2009

Davejg 6 posts

Topic: General Discussion / "Balance" letter about injecting in public

I dont give 2 hoots about what other people think, I inject and do bg tests anywhere if and when is necessary.
It is a necessity to stay healthy and keep me alive. I will stop injecting in public(although this doesnt happen that often) when it becomes illegal to take a life saving drug in public. I feel sorry for anyone that is afraid of what other people may think and are embarrased about there illness.

Jun 29, 2009

JayBee 582 posts

Topic: General Discussion / "Balance" letter about injecting in public

Re: A Question Of Etiquette

I personally don't think it's a lack of consideration for others at all - if someone is injecting in such a way that is attention seeking, then I'd understand - but most diabetics don't so this 'painted with the same brush' issue is just stupid. Pretty much says it all when it's just one person objecting as well.

I mean, what on earth do you do if there are no toilets avaliable? I've had to duck behind a public bin before because a friend and I were out and I needed to top up my dose after a meal. Life isn't fair or pleasant all the time and quite frankly I would love to not inject but that is not the case.

To put it simply: making a mountain out of a molehill.

Jun 29, 2009

marke 655 posts

Topic: DAFNE Online Mobile / Mobile site released

Hi, I removed the nbsp but then thought that its probably used in lots of places on the site :-( So I have now registered with the nokia site and will download their SDK to see if I can resolve the issue some other way. As soon as I have worked out what needs to be done I will let you know.

Jun 29, 2009

JayBee 582 posts

Topic: General Discussion / Applying DAFNE when hiking

I cannot say that I've been hiking to share an experience, but considering most of the DAFNE guidelines you're planning on applying have been tested to some extent and they are what are recommended, I think you will be okay.

Enjoy your hike! Smile

Jul 3, 2009 marke 655 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Ian, I have spoken to DAFNE Central and they suggest they can provide them if necessary however they would prefer you to get them from your DAFNE Educator. Why ? Because like all parts of the NHS they are under resourced and over worked. I do have the order form that I can send you to obtain copies from DAFNE Central, if this is your only option email admin at dafneonline.co.uk and we will send them to you.

Jul 3, 2009 NiVZ 82 posts	Topic: General Discussion / Diaries Hi Phil, Sounds good. Can you send in to nivz78 [at] yahoo.co.uk I'll send you a copy of what I've done if you want. Might be interesting to 'splice' them together ;o) NiVZ

Jul 3, 2009 Phil Kane 4 posts	Topic: General Discussion / Diaries I could send you a copy of same for you to look at if interested. Philip

Jul 3, 2009 ianmac 3 posts	Topic: General Discussion / DAFNE in peril at the Wirral if the powers in charge thought about it they would see that in the long run the DAFNE course may save a lot of money as well as helping Type 1 diabetics. I learnt so much on the course and found out lots of things i was doing wrong Its better having plenty of time to discuss and learn things rather than 5 minutes with your doctor who is under pressure to get through patients quickly To me its should be compulsory like in Germany i am using less insulin which is a saving and if my control is better i hopefully will require less treatmeny on the NHS.

Jul 3, 2009 ianmac 3 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Thanks wanted a spare one to leave at work as canteen menu varies

Jul 3, 2009 NiVZ 82 posts	Topic: General Discussion / Diaries I've also made my own spreadsheet in Excel which exactly copies the layout of the DAFNE diaries, and prints them to fill A4 sheets (like the overheads used on the DAFNE course). I added a button to make it do graphs as well (need to enable Macros). @Phil - Yours sounds pretty good too with averages, etc NiVZ

Jul 3, 2009 Phil Kane 4 posts	Topic: General Discussion / Diaries I have devised a excel worksheet which caculates daily levels, weekly and monthly averages and this is turn is very easy to keep updated as it is a locked cell format. I use this instread of the dairy and I can automatically see just by looking at the screen to where the ups are downs are. The only disadvantage is you need a PC to update this sheet daily. Phil Kane

Jul 3, 2009 Phil Kane 4 posts	Topic: General Discussion / Introductions Hi Anne Marie. The Second Irish registered DAFNE user who is now on this site. The one thing I find amazing is the lack of support this site gets from the Health people in the various teaching hospitals in Ireland.You would think that in order for things to grow you need to participate after you finish the last day of the course and walk out into a different way of thinking. I know everybody has a honeymoon period where for a few weeks or months every test is recorded along with each CP but once the pattern gets set, old habits set back in. Keep the faith. Phll

Jul 2, 2009 Claire Hough 12 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Yes it is! My lovely friend Becky (who is also registered on here) ordered me a spare one and some diaries I think for a small price like 70p each. I will ask her to come on and pass on the details. Claire

Jul 2, 2009 Anne-Marie 4 posts	Topic: General Discussion / Introductions Thanks guys. Its great to have a forum to thrash these things out in. I'm keeping the chin up and know that, given the improvement (albeit imperfect) I have seen so far, then well controlled bgs are not too far away....

Jul 2, 2009 Alzibiff 20 posts	Topic: General Discussion / Introductions "Remember we are all different!" ...... that comment reminds me of the Monty Python "Life of Brian" film - same line shouted out to the multitude followed by a reply from everyone "Yes - we're all different" ..... and then a singular "I'm not!". Me - yes - taking a while but little by little, confident that I will get there in the end - trouble is, there's always an explanation from the HPs as to why things were not as you expected ... "Well ... that walk will have lowered the BG by more than that...", "mmm - injection site may have been the reason for that", "Ahhhh - the pint of beer could have accounted for that ..." Keep at it! Alan

Jul 2, 2009 marke 655 posts	Topic: General Discussion / Introductions Welcome Ann-Marie, with regard to your sugar levels not being quite as you would like them just keep the faith. Many people seem to think they are failures because they can't get everything under control immediately after the course. This is NOT the case, it takes time and you just need to keep focusing on the positives. Focus on what you have achieved so far and be patient, I'm sure there are many others on this forum that have had the same experience. For some people it takes longer than others and I have heard of people taking 12 months to finally get fully on top of their BG's. Remember we are all different !

Jul 2, 2009 marke 655 posts	Topic: Site Development / On line carb counter ok, ok, I admit I got it wrong :-) I will get it corrected ASAP, sorry.

Jul 2, 2009 marke 655 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Ian, I have put your question to the nice ladies at DAFNE Central. i will update you when I have a reply. In the mean time you can always use the online version, it should be identical to the paper version.

Jul 2, 2009 ianmac 3 posts	Topic: Carbohydrate Counting / Useful link for looking up CPs Is it possible to order the Dafne carb counter book which were given on the course graduated 6 weeks ago and have seen marked improvement on blood glucose levels but still a lot to learn esp on takeaways Thanks Ian

Jul 2, 2009 Alzibiff 20 posts	Topic: Site Development / On line carb counter Had me reaching for my mighty DAFNE CP List book there Thea. Mine is issue 8, October 2008 and shows exactly as you say: Chick Pea and potato curry, 200g, 2.5 CP. (pages 18 and 35). Alan

Jul 2, 2009 Anne-Marie 4 posts	Topic: General Discussion / Introductions Hi all. I'm Anne-Marie and I have had Type 1 diabetes since 2001, when I was diagnosed half way through my primary degree (what timing!). I have recently completed the DAFNE course in St Vincents hospital in Dublin. I have been watching DAFNE for the past few years, always interested in it - so when the programme moved to Ireland I jumped at the opportunity to change hospitals to one where DAFNE is practiced - best decision I have ever made. As I am only a new graduate from DAFNE (June 2009), I am still trying to get all the sugar levels as I would like them. It will probably take a couple of weeks- but I am already delighted at how much more stable and also predictable my sugar levels are. I am no longer going to bed at night, or out with my friends, with the terror of an unexpected hypo. DAFNE has helped to make it all make sense and the freedom I have found in truly life changing. I found this website last week and it is a great facility to have - so nice to talk to other DAFNE users and pick up any tips. I find non-DAFNE users don't really understand the concept yet, and having to explain how "Yes, I can eat this piece of cake - I have NOT turned my back on my diabetes care" can get me down sometimes! So, talking to others who know all about it (the ups and downs) is really helpful. Well done on putting such a great system together, guys. AM

Jul 2, 2009 Anne-Marie 4 posts	Topic: General Discussion / Changes to HbA1c reporting Hi - I am not a HCP either, but I do know that what Marke says is correct. There is a common misconception that what we get from our test metres uses the same measurement as the HBA1C, but this is not the case. The test metres measure the amount of glucose in your blood per mmol of blood, whereas the HBA1C is a percentage measure, looking at how much glucose has attached to the haemaglobin - they are not the same measurements at all. It is an Apples and Oranges comparison situation - two completely separate measurements. As far as I know one of the reasons why they are introducing this new measurement of the HBA1C is to try and avoid this confusion.

Jun 30, 2009 marke 655 posts	Topic: General Discussion / Changes to HbA1c reporting Simon, I am NOT a HCP however my understanding is that blood meters measure the level of glucose in the blood at a particular moment. A HBA1c test measures the amount of glucose that is bound to the haemaglobin in your red blood cells. They are two different things like markets and meerkats ;^) You cannot really compare on with the other, so I don't think you will ever get a meter that does what you want. It is true that HBA1c sort of gives you an average blood sugar over the last 3 months but its not necessarily a good idea to use one as a measure of the other. But hey as I said I'm not a HCP , I'm an IT person maybe a friendly HCP reading this can give a better answer.

Jun 30, 2009 Simon Rowley 1 post	Topic: General Discussion / Changes to HbA1c reporting If my current HbA1c is 8.0 I can compare this to my future blood tests and if they are less than 8 I am happier than if they are more then 8. If my HbAc1 changes to 64 under the new system then it would be really helpful if my own blood test meter adopted the same new numbering, so that more than 64 would be worse and less than 64 would be better. Is this likely to happen?

Jun 30, 2009 Thea 1 post	Topic: Site Development / On line carb counter Hi Simon I'm just navigating the site for the first time and noticed a blip in the carb counter in the Indo Asian section. The chickpea and potato curry is down as 5.5 CP's which was a typo error in the cp book and should be 2.5 cp's. If I notice anything else, I will let you know! Thea

Jun 29, 2009 Davejg 6 posts	Topic: General Discussion / "Balance" letter about injecting in public I dont give 2 hoots about what other people think, I inject and do bg tests anywhere if and when is necessary. It is a necessity to stay healthy and keep me alive. I will stop injecting in public(although this doesnt happen that often) when it becomes illegal to take a life saving drug in public. I feel sorry for anyone that is afraid of what other people may think and are embarrased about there illness.

Jun 29, 2009 JayBee 582 posts	Topic: General Discussion / "Balance" letter about injecting in public Re: A Question Of Etiquette I personally don't think it's a lack of consideration for others at all - if someone is injecting in such a way that is attention seeking, then I'd understand - but most diabetics don't so this 'painted with the same brush' issue is just stupid. Pretty much says it all when it's just one person objecting as well. I mean, what on earth do you do if there are no toilets avaliable? I've had to duck behind a public bin before because a friend and I were out and I needed to top up my dose after a meal. Life isn't fair or pleasant all the time and quite frankly I would love to not inject but that is not the case. To put it simply: making a mountain out of a molehill.

Jun 29, 2009 marke 655 posts	Topic: DAFNE Online Mobile / Mobile site released Hi, I removed the nbsp but then thought that its probably used in lots of places on the site :-( So I have now registered with the nokia site and will download their SDK to see if I can resolve the issue some other way. As soon as I have worked out what needs to be done I will let you know.

Jun 29, 2009 JayBee 582 posts	Topic: General Discussion / Applying DAFNE when hiking I cannot say that I've been hiking to share an experience, but considering most of the DAFNE guidelines you're planning on applying have been tested to some extent and they are what are recommended, I think you will be okay. Enjoy your hike!