Recent Posts - DAFNE Online

Jul 28, 2011

Simon 578 posts

Topic: General Discussion / Birth Announcement

Many Congratulations Caroline - best wishes to you and your family!x

Jul 28, 2011

sugarplum 9 posts

Topic: General Discussion / Birth Announcement

Congratulations!!!
Very Happy

xx

Jul 28, 2011

Caroline 29 posts

Topic: General Discussion / Birth Announcement

Hello

I would like to announce the birth of our beautiful daughter, Lilia Maddison, born on the 23/07/2011 weighing 7lbs 3 oz. She was born at 36 weeks and 6 days by c section. The birth was early due to myself having recently developed Pre Eclampsia a few days earlier. I would like to mention that by doing the Dafne approach, my diabetes was never a cause for concern throughout the pregnancy. However, I am beginning a new chapter now.. trying to manage my diabetes again whilst breastfeeding. Im sure that I will conquer any obstacles with help from the Dafne Team and possibly other Diabetic Mothers breastfeeding.

I would like to thank all the staff at the James Paget Hospital for their help and support they have given me to have a healthy baby.

Good luck to all you insulin dependant diabetics out there who are trying to get pregnant/are pregnant and doing the Dafne way. If you wish to share your experiences with me, I would be interested to hear them.

Caroline

Jul 28, 2011

sugarplum 9 posts

Topic: General Discussion / Help with adjustments post DAFNE

Hi everybody
I am new to the forum. I have had diabetes for 13 years and have never gained control. I am now trying to get excellent control as I hope to start a family as soon as possible. I am attending pre conception sessions at the hospital but appointments are quite far apart and each day is precious to me to try and get control. I completed the DAFNE course last week as a starting point of getting better control and since then my readings are a bit more stable but high. I find it very difficult to look at my own results and see patterns and where to make changes so I am hoping that you can all help me please. I have attached the last few days of my diary and would be very very grateful for any comments/suggestions.
Some info to note:
I am on Novorapid and Levemir (switched from Lantus to Levemir 1 week ago.)
Dafne nurses said that I am not to test between meals as temptation to correct highs but I do test sometimes when I am about to drive etc and they are going up to 18, I am really not happy about this. The nurses also seem to not want me to change the ratio of 1:1 for fast acting insulin but I am so tempted to just triple it! I really am desperate now and feel as if I am just wasting more and more time by trying to do things slowly.
Any help will be greatly appreciated.
If you need any further information to help please just ask me.

Many thanks x

Jul 28, 2011

melpessoa 7 posts

Topic: Questions for HCPs / Fitting when hypo

Darling, please go to the DAFNE course. You will be amazed how much you will learn about everything!!! The course is a must for every person with diabetes type 1. I just regret now having it earlier. It is brilliant!!!

Jul 28, 2011

Simon Heller 46 posts

Topic: Questions for HCPs / Fitting when hypo

Hi Jules
Severe hypos can actually cause fits in anyone if the glucose level goes low enough, in fact it was used in the early 1950s as treatment for schizophrenia ('insulin shock treatment') and the idea was to cause a fit in people without diabetes by injecting insulin to lower the glucose. Of course it didn't work and was abandoned. Whether you have a fit or not will depend upon your overall threshold for fits which varies in all of us. For example shortage of oxygen (hypoxia) can also cause fits. They are not that uncommon in children and very scary for everybody. As novorapidboi26 says you are probably vulnerable as your glucose control is so tight (in fact probably overtight at 6.1%) which means your defences which push your glucose back up agin are not kicking in very well probably till your glucose is down to under 2. This isn't good! If your glucose is high when you wake up it is probably very low at other times, perhaps during the night. DAFNE courses really help people with hypo problems to reduce the risk although there are other issues to deal with as well. Simon

Jul 26, 2011

Edd Smith 1 post

Topic: DAFNE Online Mobile / How to download data from iphone app

Hi there, I'm halfway through my DAFNE course and was feeling a little disheartened this evening believing technology was not as great as i thought. Indeed I was close to throwing my ipod across the room for not uploading my diary but thank goodness for forums! the re-save trick is the one to do it.
This app is going to make my diary maintenance so much easier.I will mention this tip to my cohort tomorrow and get the educators to pass it on in future courses too. Thanks for a splendid app.

Jul 26, 2011

Michael Dorr... 3 posts

Topic: Questions for HCPs / Fitting when hypo

I'm 41and a T1 diabetic and had a very bad hypo in hospital about two years ago and fitted I could hear every thing that was being said to me but could not respond to it when I did come round I found that I had split my head open on the end of the bed.
Was thankfully not had any more hypos that bad since.
Because I had fitted I had to let the DVLA know and lost my license for a year and had to have a medical to get it back.

Jul 25, 2011

Alan 49 284 posts

Topic: Questions for HCPs / Thyroxine side effects

Maria, what I was trying to say (obviously not very clearly) was that if starting these thyroxine tablets increases your body's demand for insulin, then if you are not diabetic, your pancreas would naturally produce more insulin. If subsequently, you become diabetic, then your insulin doses would be calculated based on what you then need - when you are already on the thyroxine tablets. Does that make sense?
I seem to have finally got my insulin doses sorted out and my BGs have returned to more acceptable levels, thank goodness.

Jul 24, 2011

maria51 22 posts

Topic: Questions for HCPs / Thyroxine side effects

Alan Constable said:
Maria, what tablets are you on? I'm on 25mcg Levothyroxine and they definitely seem to be affecting me - my BG readings seem to have gone through the roof since I've been taking them. As well as giving myself QA corrections of +2, +3 and +4, I've had to increase my BI dose. The nurse at my GP surgery has looked on the Internet and found that these tablets can require increased insulin doses.

I noticed in your posting that you were on Thyroxine before your diabetes was diagnosed, so perhaps you wouldn't have been affected by this.

Sorry Alan, I haven't logged in for a while & just noticed your post.
I don't think being on thyriod tabs before I had diabetes would make any difference to the outcome with diabetes.
The tablets I'm on are called EUTROXSIG & I take 200mcg for four days & 300mcg for the other three with no problems. With you taking such a small dose (25mcg) then having to compensate with large QA corrections, WOW, that must be one powerful medication you're on! Shocked

Hopefully you're thinking about swapping over to different brands till you find one that doesn't interfere? I hope for your sake that you will......asap.
All the very best.

Maria

Jul 24, 2011

Carolin 83 posts

Topic: General Discussion / Help needed, ketones but bg in range

Hi Deano,
As well as using your sick day rules (well done), you probably just need to have some CPs with QA insulin to help to clear the ketones.
Hope you enjoy the rest of your holiday

Jul 23, 2011

ketostix pla... 25 posts

Topic: General Discussion / Help needed, ketones but bg in range

Hi, I currently on holiday and have come into a problem. Woke up today with massive toothache, went to emergency dentist and have absis and broken wisdom tooth. Been given some antibiotics and pain killers to treat until infection gone.
I tested earlier and blood glucose high with three ketones, so started the sick day rules and have basically done the job of reducing the ketones and bg. However my bg is now in range but I still have one/two ketones(on borderline). Im drinking loads of fluids to try and flush them out, I'm going to check my BG and ketones in three hours time again. Its late saturday night and should be enjoying holiday, but all I have to show is ketones and sore mouth que violins lol.

Any help would be appreciated,

Cheers deano

Jul 22, 2011

Anil 39 posts

Topic: General Discussion / Android App

Coming soon..... !! :>

Jul 22, 2011

FCJ 2 posts

Topic: General Discussion / Android App

Hi All,

I second that! Would love an android version app.
I'm willing to help with testing if need be...

Jul 22, 2011

Simon 578 posts

Topic: Site Development / Do you use the Diary Graphs?

Chris - just looking at this again; the graphs which calculate averages (mean/modal) don't take into account BG readings of 0 or empty ones, which graph is behaving in the way you describe?

Garry - thanks for the feedback, will change them.

Jul 22, 2011

Anil 39 posts

Topic: Site Development / New DafneOnline Website Redesign, Opinions Needed!

Hey Guys, I'm re-designing the dafneonline.co.uk website and have made a first attempt at it, I have posted a link below to my personal website
where it is temporarily located.

Currently, I have only designed the header and the menu, but the rest will follow, I will keep this post updated as I make progress.

http://www.theebookzone.co.uk/dafne

That's it! for now...

Jul 21, 2011

Alan 49 284 posts

Topic: Questions for HCPs / Thyroxine side effects

Maria, what tablets are you on? I'm on 25mcg Levothyroxine and they definitely seem to be affecting me - my BG readings seem to have gone through the roof since I've been taking them. As well as giving myself QA corrections of +2, +3 and +4, I've had to increase my BI dose. The nurse at my GP surgery has looked on the Internet and found that these tablets can require increased insulin doses.

I noticed in your posting that you were on Thyroxine before your diabetes was diagnosed, so perhaps you wouldn't have been affected by this.

Jul 20, 2011

Alan 49 284 posts

Topic: General Discussion / Are we all eating too many carbs?

Thanks for that Mark - you've confirmed what I was thinking about it. As you pointed out 'don't believe everything you see on the internet'.
Anyway, I enjoy my carbs - Lamb Madras without rice? UNTHINKABLE!

Jul 19, 2011

marke 681 posts

Topic: General Discussion / Are we all eating too many carbs?

Sorry but for me the wonderful thing about the internet is anyone can publish any rubbish and hence we get articles like that. He says 'back in the day before insulin
was discovered... diabetes was treated with a low carbohydrate diet', haha, nope sorry before insulin was discovered people just died. There is a good book about it
apparently, my consultant who likes to stray from the subject Smile

told me about it that is about the discovery of insulin and how people used to just die before it.
The article then goes on about engineers being the best medics, again haha, I hope my consultant didn't help to write windows or I'm in big trouble Wink

As you can tell I don't think much of the article or the idea that we eat too many carbs, i would rather enjoy a shorter life eating them than have diabetes for 80 years.
Genetically I might be able to eat loads of carbs and never suffer complications anyway or I might be a perfect diabetic and get them anyway, life is just not so simple
as eat low carbs = live longer. I'm not advocating a total do what you want obviously but I really don't think low carb diets are a good idea. I also trust the medical
profession to give me the best advice they can rather than believe its all drug companies trying to line their pockets.... rant ends Very Happy

Jul 28, 2011 Simon 578 posts	Topic: General Discussion / Birth Announcement Many Congratulations Caroline - best wishes to you and your family!x

Jul 28, 2011 sugarplum 9 posts	Topic: General Discussion / Birth Announcement Congratulations!!! xx

Jul 28, 2011 Caroline 29 posts	Topic: General Discussion / Birth Announcement Hello I would like to announce the birth of our beautiful daughter, Lilia Maddison, born on the 23/07/2011 weighing 7lbs 3 oz. She was born at 36 weeks and 6 days by c section. The birth was early due to myself having recently developed Pre Eclampsia a few days earlier. I would like to mention that by doing the Dafne approach, my diabetes was never a cause for concern throughout the pregnancy. However, I am beginning a new chapter now.. trying to manage my diabetes again whilst breastfeeding. Im sure that I will conquer any obstacles with help from the Dafne Team and possibly other Diabetic Mothers breastfeeding. I would like to thank all the staff at the James Paget Hospital for their help and support they have given me to have a healthy baby. Good luck to all you insulin dependant diabetics out there who are trying to get pregnant/are pregnant and doing the Dafne way. If you wish to share your experiences with me, I would be interested to hear them. Caroline

Jul 28, 2011 sugarplum 9 posts	Topic: General Discussion / Help with adjustments post DAFNE Hi everybody I am new to the forum. I have had diabetes for 13 years and have never gained control. I am now trying to get excellent control as I hope to start a family as soon as possible. I am attending pre conception sessions at the hospital but appointments are quite far apart and each day is precious to me to try and get control. I completed the DAFNE course last week as a starting point of getting better control and since then my readings are a bit more stable but high. I find it very difficult to look at my own results and see patterns and where to make changes so I am hoping that you can all help me please. I have attached the last few days of my diary and would be very very grateful for any comments/suggestions. Some info to note: I am on Novorapid and Levemir (switched from Lantus to Levemir 1 week ago.) Dafne nurses said that I am not to test between meals as temptation to correct highs but I do test sometimes when I am about to drive etc and they are going up to 18, I am really not happy about this. The nurses also seem to not want me to change the ratio of 1:1 for fast acting insulin but I am so tempted to just triple it! I really am desperate now and feel as if I am just wasting more and more time by trying to do things slowly. Any help will be greatly appreciated. If you need any further information to help please just ask me. Many thanks x

Jul 28, 2011 melpessoa 7 posts	Topic: Questions for HCPs / Fitting when hypo Darling, please go to the DAFNE course. You will be amazed how much you will learn about everything!!! The course is a must for every person with diabetes type 1. I just regret now having it earlier. It is brilliant!!!

Jul 28, 2011 Simon Heller 46 posts	Topic: Questions for HCPs / Fitting when hypo Hi Jules Severe hypos can actually cause fits in anyone if the glucose level goes low enough, in fact it was used in the early 1950s as treatment for schizophrenia ('insulin shock treatment') and the idea was to cause a fit in people without diabetes by injecting insulin to lower the glucose. Of course it didn't work and was abandoned. Whether you have a fit or not will depend upon your overall threshold for fits which varies in all of us. For example shortage of oxygen (hypoxia) can also cause fits. They are not that uncommon in children and very scary for everybody. As novorapidboi26 says you are probably vulnerable as your glucose control is so tight (in fact probably overtight at 6.1%) which means your defences which push your glucose back up agin are not kicking in very well probably till your glucose is down to under 2. This isn't good! If your glucose is high when you wake up it is probably very low at other times, perhaps during the night. DAFNE courses really help people with hypo problems to reduce the risk although there are other issues to deal with as well. Simon

Jul 26, 2011 Edd Smith 1 post	Topic: DAFNE Online Mobile / How to download data from iphone app Hi there, I'm halfway through my DAFNE course and was feeling a little disheartened this evening believing technology was not as great as i thought. Indeed I was close to throwing my ipod across the room for not uploading my diary but thank goodness for forums! the re-save trick is the one to do it. This app is going to make my diary maintenance so much easier.I will mention this tip to my cohort tomorrow and get the educators to pass it on in future courses too. Thanks for a splendid app.

Jul 26, 2011 Michael Dorr... 3 posts	Topic: Questions for HCPs / Fitting when hypo I'm 41and a T1 diabetic and had a very bad hypo in hospital about two years ago and fitted I could hear every thing that was being said to me but could not respond to it when I did come round I found that I had split my head open on the end of the bed. Was thankfully not had any more hypos that bad since. Because I had fitted I had to let the DVLA know and lost my license for a year and had to have a medical to get it back.

Jul 25, 2011 Alan 49 284 posts	Topic: Questions for HCPs / Thyroxine side effects Maria, what I was trying to say (obviously not very clearly) was that if starting these thyroxine tablets increases your body's demand for insulin, then if you are not diabetic, your pancreas would naturally produce more insulin. If subsequently, you become diabetic, then your insulin doses would be calculated based on what you then need - when you are already on the thyroxine tablets. Does that make sense? I seem to have finally got my insulin doses sorted out and my BGs have returned to more acceptable levels, thank goodness.

Jul 24, 2011 maria51 22 posts	Topic: Questions for HCPs / Thyroxine side effects Alan Constable said: Maria, what tablets are you on? I'm on 25mcg Levothyroxine and they definitely seem to be affecting me - my BG readings seem to have gone through the roof since I've been taking them. As well as giving myself QA corrections of +2, +3 and +4, I've had to increase my BI dose. The nurse at my GP surgery has looked on the Internet and found that these tablets can require increased insulin doses. I noticed in your posting that you were on Thyroxine before your diabetes was diagnosed, so perhaps you wouldn't have been affected by this. Sorry Alan, I haven't logged in for a while & just noticed your post. I don't think being on thyriod tabs before I had diabetes would make any difference to the outcome with diabetes. The tablets I'm on are called EUTROXSIG & I take 200mcg for four days & 300mcg for the other three with no problems. With you taking such a small dose (25mcg) then having to compensate with large QA corrections, WOW, that must be one powerful medication you're on! Hopefully you're thinking about swapping over to different brands till you find one that doesn't interfere? I hope for your sake that you will......asap. All the very best. Maria

Jul 24, 2011 Carolin 83 posts	Topic: General Discussion / Help needed, ketones but bg in range Hi Deano, As well as using your sick day rules (well done), you probably just need to have some CPs with QA insulin to help to clear the ketones. Hope you enjoy the rest of your holiday

Jul 23, 2011 ketostix pla... 25 posts	Topic: General Discussion / Help needed, ketones but bg in range Hi, I currently on holiday and have come into a problem. Woke up today with massive toothache, went to emergency dentist and have absis and broken wisdom tooth. Been given some antibiotics and pain killers to treat until infection gone. I tested earlier and blood glucose high with three ketones, so started the sick day rules and have basically done the job of reducing the ketones and bg. However my bg is now in range but I still have one/two ketones(on borderline). Im drinking loads of fluids to try and flush them out, I'm going to check my BG and ketones in three hours time again. Its late saturday night and should be enjoying holiday, but all I have to show is ketones and sore mouth que violins lol. Any help would be appreciated, Cheers deano

Jul 22, 2011 Anil 39 posts	Topic: General Discussion / Android App Coming soon..... !! :>

Jul 22, 2011 FCJ 2 posts	Topic: General Discussion / Android App Hi All, I second that! Would love an android version app. I'm willing to help with testing if need be...

Jul 22, 2011 Simon 578 posts	Topic: Site Development / Do you use the Diary Graphs? Chris - just looking at this again; the graphs which calculate averages (mean/modal) don't take into account BG readings of 0 or empty ones, which graph is behaving in the way you describe? Garry - thanks for the feedback, will change them.

Jul 22, 2011 Anil 39 posts	Topic: Site Development / New DafneOnline Website Redesign, Opinions Needed! Hey Guys, I'm re-designing the dafneonline.co.uk website and have made a first attempt at it, I have posted a link below to my personal website where it is temporarily located. Currently, I have only designed the header and the menu, but the rest will follow, I will keep this post updated as I make progress. http://www.theebookzone.co.uk/dafne That's it! for now...

Jul 21, 2011 Alan 49 284 posts	Topic: Questions for HCPs / Thyroxine side effects Maria, what tablets are you on? I'm on 25mcg Levothyroxine and they definitely seem to be affecting me - my BG readings seem to have gone through the roof since I've been taking them. As well as giving myself QA corrections of +2, +3 and +4, I've had to increase my BI dose. The nurse at my GP surgery has looked on the Internet and found that these tablets can require increased insulin doses. I noticed in your posting that you were on Thyroxine before your diabetes was diagnosed, so perhaps you wouldn't have been affected by this.

Jul 20, 2011 Alan 49 284 posts	Topic: General Discussion / Are we all eating too many carbs? Thanks for that Mark - you've confirmed what I was thinking about it. As you pointed out 'don't believe everything you see on the internet'. Anyway, I enjoy my carbs - Lamb Madras without rice? UNTHINKABLE!

Jul 19, 2011 marke 681 posts	Topic: General Discussion / Are we all eating too many carbs? Sorry but for me the wonderful thing about the internet is anyone can publish any rubbish and hence we get articles like that. He says 'back in the day before insulin was discovered... diabetes was treated with a low carbohydrate diet', haha, nope sorry before insulin was discovered people just died. There is a good book about it apparently, my consultant who likes to stray from the subject told me about it that is about the discovery of insulin and how people used to just die before it. The article then goes on about engineers being the best medics, again haha, I hope my consultant didn't help to write windows or I'm in big trouble As you can tell I don't think much of the article or the idea that we eat too many carbs, i would rather enjoy a shorter life eating them than have diabetes for 80 years. Genetically I might be able to eat loads of carbs and never suffer complications anyway or I might be a perfect diabetic and get them anyway, life is just not so simple as eat low carbs = live longer. I'm not advocating a total do what you want obviously but I really don't think low carb diets are a good idea. I also trust the medical profession to give me the best advice they can rather than believe its all drug companies trying to line their pockets.... rant ends