Recent Posts

Search the DAFNE Online Forums

15,864 posts found

Jan 24, 2012
Lizzie 87 posts

Topic: General Discussion / Redoing DAFNE???

No I am not in contact with the nurses. I don't know why. Like I said doctors seem to lose interest in me.

I am on Humalog and Lantus. The Lantus at the moment is 30u before bed but I am not sure if that is right. I kept increasing it until my blood sugars through the night were reasonable as I kept waking up high but during the day as I mentioned it gets confusing.

Thanks for helping.
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Redoing DAFNE???

I think what you need is motivation, as opposed to the education, even though you may have forgot most of it. The best source of motivation is from yourself and your team. Are you not in contact with the nurses that done your DAFNE course?

They can help you but not if your not testing on a regular basis. Its the regular testing and spotting of patterns which lets you change your doses confidently........

Start testing today, if you dont have a diary, just record it on paper, so blood sugar, carbs, quick acting insulin. I have a spreadsheet I could email you that I use for writing information on............

As soon as you get some results down on paper you can email me them back and I could make some comments, once the ball is moving it gets easier..............

What insulin are you on? How much background do you take and when?
 
Jan 24, 2012
Lizzie 87 posts

Topic: General Discussion / Redoing DAFNE???

Thankyou for being so kind.

The truth is, I will admit to you, I only really check my blood sugar when I feel high or low. I have stopped checking on a regular basis and stopped writing it down. I just feel low about it as every reading seems high or low and I don't know why.

I seem to be always doing correction doses but I don't know where to start in working out what doses are right or wrong.

I am Ok with carbs when eating prepackaged foods which have carbs per portion on them but am not so good with anything that does not have a carb value written on it or only has it per 100g rather than per portion. The problem was that on the course I could not afford to buy expensive food in the canteen every day so missed out on all the weighing and measuring parts of the course.

It may not be that different doing DAFNE again. However I am resolved not to listen to my GP if they try and make me do anything I am not happy with. Also, I cannot overemphasise how world shattering DAFNE was for me. For some reason I seem to slip through the net and seem to have some sort of invisibility cape on so doctors cannot see me. I was never told how to count carbs or measure my insulin in 15 years. For several years I did not see any doctors at all and nobody said anything. I was at the point where I was terrified of my diabetes, thinking about it made me cry I was so terrified of complications and did not know how to make my blood sugars right. So when I got onto a DAFNE course I had to take in all the things that I missed in 15 years and it was a lot to absorb. On the day when I was trying to figure out my insulin dosage I ended up in hysterical tears as I was confronted by this massive fear I had been avoiding for so long. It was an intense emotional week. I was happy afterwards as my doctors were happy with me for the first time ever. But then I was forced into taking medication I did not want or need and that messed up my blood sugars and then I was comfort eating and since I had donned my invisibility cloak nobody noticed and here I am again, in a mess of problems and not knowing where to turn for help. I am pretty sure I am depressed and I am fighting to make myself do anything to be honest, I just don't care and want to ignore everything. I know I will feel better if my blood sugars are less erratic. But without help I can't make them right. The only time any nurse or doctor has taken an interest was when I was on DAFNE.

What I really need is ongoing support from a nurse plus counselling but that is not likely. So I am stuck in this cycle of falling over and picking myself up again like a silent slapstick movie on a loop.
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Redoing DAFNE???

I would contact Marke or Simon who will help you access the handbook, it will help you..................

To be successful in dose adjustment you need to get blood sugar readings consistently before meals, if this isn't happening then this needs to be addressed before anything else...........

how bad is it when you say you often dont have time to check your blood sugars.....?

Have you got a dairy/homemade sheet to write down your results?

You dont need to look at numbers at work, or at least make any decisions on long term dose..........you can give a correction dose and a dose for your food, if the ratio is wrong, then you can analyze that later at home......

I would also say getting the carb count is important, as this would hinder your dose decisions if the count was wrong..........

What part of counting are you struggling with?

I would try and get on another course if you can, however what will make it different this time round..........?

In the mean time me and others on here will be happy to help you in any way we can...... Wink
 
Jan 24, 2012
Lizzie 87 posts

Topic: General Discussion / Redoing DAFNE???

There were some refreshers shortly after I did the course however they were in the day so I had some problems getting leave from work, by the time I had arranged this there was no space left. I wish they would do something in the evening or at the weekend. After about a year these stopped and I now get zero support - eye checks once a year and a consultant appointment with someone who I don't know from Adam once a year and that's the lot.

What I need is to work through the process of finding out the ratios again with an educator. It worked on the course as it was isolated from 'real life' - the whole week was spent on the course so that was a big chunk of time I could devote to diabetes and only diabetes and there was nothing else to interfere. When I try it alone it does not work as real life interferes and I cannot work out which of the many confusing factors has caused a high or a low, and if I am at work I don't have time to look at numbers and plot graphs of what my blood sugar was through the day. I often don't even have time to check my blood sugar, I feel like I am always running to catch up. I also need help with sick day rules and carb counting so pretty much the whole lot. That is another reason why a refresher would not work - you have to choose only one or two things to work on. Also I need a similar level of supervision as I did on the course and the educators are far too busy to give that sort of help outside specifically arranged events like the DAFNE course.

I did try to access the handbook however I only got an error message.

I just don't know what to do. When I did DAFNE things seemed to work for the first time in 15 years. I was eating sensibly and had some understanding of my diabetes and started to lose weight. However after that I was forced into a bad decision by my GP and had family illness and everything fell apart. I just want to get back to how things were and DAFNE is the only thing that ever worked for me. I don't know what else to do since my doctors are not interested except to bully me into weight loss surgery or taking unecessary medications, and I am not able to get the counselling I desperately need.
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: Questions for HCPs / change of insulin

With any change it will take time to get the dose/ratio of the insulin correct..................

Start with overnight testing to see what your 6pm does to your BG with no food or QA working, the beauty with Levemir is you can see the effect straight away..........double check your findings with another day or 2, then make your adjustments up or down............dont be scared to up your dose, just do what you need to do to get your pre bed reading within +/-2mmol/l of your pre breakfast reading...........

Once correct, move on to daytime testing...................

As you know, until your background needs are satisfied, your QA doses wont be at their most effective..............
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: Questions for HCPs / Ratios and compensating

Welcome to the site Collete..................


I hope you enjoy the rest of the course............... Smile
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Redoing DAFNE???

I wouldn't say its impossible, however taking the place of someone who has not done it before may seem not very cost effective to the local PCT...................

You can ask I suppose...........

Is there not a refresher you can go on.............?

Have you went over the DAFNE handbook that you have access to on this website?

Is there anything specific you are struggling with? Can we help?
 
Jan 24, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Dafne & sports nutrition. How does it work?

JennyNZ said:
thanks for that but how would you accomodate eating about 6 cp's per hour while training?



Well I believe a reduction in your previous meal and/or your background dose would mean you would not need to eat anything during the training, as the energy stores of your muscles are depleted, the extra glucose you have swimming around because of your lower insulin dose, would be used whilst training and to re stock the muscles................

However you should always have hypo resolve to hand just in case............................its all trial and error really...............I dont train for events like this, so my experience is limited, this is just my understanding of the DAFNE approach to exercise..............
 
Jan 24, 2012
Whyters 2 posts

Topic: Questions for HCPs / change of insulin

I have just changed from Lantus to Levemir and found no problems remember lantus is working 18-24 hours where as levemir is up to 18 hours and I was told to change from one to the other when my next long acting was due as both are in the system for similar times so one is finishing as the other is taking over in your system.
I am also taking split amounts also.
I suggest you contact your diabetes nurse for advice.
 
Jan 24, 2012
meltow 78 posts

Topic: General Discussion / Dafne & sports nutrition. How does it work?

http://www.steveredgrave.com/diabetes.html
Steve Redgrave, our 5 times Olympic champion, also supports and advises to use the RunSweet website. He was diagnosed in 1997, and went on to win his 5th gold medal in 2000.
A true champion in more ways than one!
 
Jan 24, 2012
tcmonkey80 41 posts

Topic: Questions for HCPs / change of insulin

I am taking 6pm and 6am, it doesn't seem to be having much effect tho....I feel worse now lol
 
Jan 24, 2012
JennyNZ 29 posts

Topic: General Discussion / Dafne & sports nutrition. How does it work?

thanks for that but how would you accomodate eating about 6 cp's per hour while training?
 
Jan 23, 2012
Collette 2 posts

Topic: Questions for HCPs / Ratios and compensating

Hi, This is still quite new to me so I would always recommend checking with a diabetic nurse 1st but personally i started to correct over 10 1QA for 10 2QA for 13 etc over time by writing it down you will see how corrections work for you. I now correct over 8 and it normally corrects by 2 not 3 for me. If you find your always correcting at a particular mealtime it could be that you need a different ratio or slightly higher back ground insulin. These are the sorts of things covered by dafne course which I have only started today so im looking forward to learning more. I really wish all type 1 diabetics had the opportunity to attend the course as surely its beneficial for us all to have good self management and reducing the risk of complications will save money in the long run!
 
Jan 23, 2012
SimonC 78 posts

Topic: Questions for HCPs / Ratios and compensating

For me, I would take an extra 2 units for breakfast, but only 1 unit for lunch or evening.
 
Jan 23, 2012
Lizzie 87 posts

Topic: General Discussion / Redoing DAFNE???

Is it possible to retake the DAFNE course? I did it a few years back and various things in the intervening period have meant that I am now confused and unclear about most of it.
 
Jan 23, 2012
Neil Ward 1 post

Topic: Questions for HCPs / Diary info for Penny Jackson

Hi Penny

As per my e-mail please see my readings over the last ten days.

Regards

Neil
 
Jan 23, 2012
novorapidboi26 1,819 posts

Topic: Site Development / ONLINE DIARY LINK

Thanks for the quick fix guys................ Smile
 
Jan 23, 2012
Anele46 109 posts

Topic: Site Development / ONLINE DIARY LINK

marke said:
Hi, it WAS us not novarapidboi. An update last night broke it if you opened the diary from the top menu and not the one on the right. It's fixed now though.....



Thanks very much Marke, much appreciated Smile
 
Jan 23, 2012
marke 686 posts

Topic: Site Development / ONLINE DIARY LINK

Hi, it WAS us not novarapidboi. An update last night broke it if you opened the diary from the top menu and not the one on the right. It's fixed now though.....
 
Jan 23, 2012
novorapidboi26 1,819 posts

Topic: Questions for HCPs / Ratios and compensating

I would also take 1 unit for that scenario....................

However, for me, the correction factor I use depends on my blood sugar level, so the higher it is, the more units I need to get me back down...............this method had evolved from the theory that the higher you are, the more resistant you are to insulin. And was concluded with lots of testing, trial and error on my part.............

My corrections are as follows;

<10mmol/l - 1 unit drops 2.5mmol/l

10 - 13mmol/l - 1 unit drops 2mmol/l

13 - 17mmol/l - 1 unit drops 1.5mmol/l

>17mmol/l - 1 unit drops 1mmol/l

In fact it could go further but I am seldomly over 17, just every now and again...........

I personally believe everyone experiences this behavior, but would not tell you to adopt it without doing your own personal investigations..........
 
Jan 23, 2012
novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Chocolate Muffins

so did you have the full muffin without any insulin and only had a small effect on BG?.........................

 
Jan 23, 2012
meltow 78 posts

Topic: Questions for HCPs / Ratios and compensating

I tend to use 1 unit of QA for every 3mmol above my target. So in the instance you have quoted, I would be adding 1 extra unit of QA to my dosage. It is a ball point figure for me; I use this at any time of the day or before bed, but as with anything in life - we are all different, and it may take a few attempts before you find the ratio which suits you.
 
Jan 23, 2012
jgibson1962 29 posts

Topic: Questions for HCPs / Ratios and compensating

Hi

I have not done a DAFNE course (My health authority doesnt have the budget) but am trying to pick up on various DAFNE odds and sods. One question i would like to ask is when calculating the amount of insulin QA to take, if you have set a target of say 6.8mmol for breakfast and the reading is 8.8 what factor do you use to increase the insulin in addition to the existing ratio? and is this a ball park figure depending on how high or low the reading is?

Regards Razz
 
Jan 23, 2012
jgibson1962 29 posts

Topic: Carbohydrate Counting / Chocolate Muffins

Thanks for all your advice. In the end i basically picked at the muffin without any adjustments to my insulin and it didnt really make any difference, maybe one or two notches on the geiger counter. Between meals i usually eat bananas or an apple or pear and even the occasional Frosties breakfast bar. But sometimes, especially working in a office, someone brings in cakes and i mean it is teamwork isnt it and i have to do my duty to the team.