34 posts, 11 contributors
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Jennypenny
DAFNE Graduate
Lewisham & Greenwich NHS Trust 34 posts |
Hi , i have had diabetes for 30 years , i too suffer with hypo unawareness and have done for quiite a few years . My diabetes has often been discribed as brittle diabetes because i could inject the same , eat the same and exercise the same over a matter of time and it will never give the same blood results !!! Years ago i was offered a pump and choose not to have one as i felt being a diabetic was enough without carrying something about me telling everyone i was diabetic !!! ( pumps are now half the size they were originally ) Since doing DAFNE my views have changed .......... I have accepted that i have never had perfect control of my diabetes , i have diabetic related complications , i have had diabetes 30 years , i suffer with hypo unawareness and DP and i now feel Something needs to be done , so when i go for my DAFNE follow up appointment tomorrow i will be signing papers for a pump . I do work and have spoke to my employer who says she will support me with hospital appointments for getting sorted with the pump too . |
toni
DAFNE Graduate
South East Kent PCT 9 posts |
jennypenny, |
Nat
DAFNE Graduate
Cambridge University Hospital NHS Foundation Trust 30 posts |
Jennypenny |
David Bagnall
DAFNE Graduate
University College London Hospitals (UCLH) 1 post |
I have to say to me the costs are of little concern, the NHS funds plenty of people who have complications through their own fault...smokers, heavy drinkers, drug addicts etc but no one is discussing the cost implications of treating these people so why are people beating themselves over the costs of a relatively cheap insulin pump. |
novorapidboi26
DAFNE Graduate
NHS Lanarkshire 1,819 posts |
I feel the same in some ways about pumps...... |
Nat
DAFNE Graduate
Cambridge University Hospital NHS Foundation Trust 30 posts |
I have now been granted access to a 6 month pump/sensor trial due to my lack of hypo warnings. I was unsure at first but due to the small amounts that I eat and insulin consumption of QA usually between 8 units a day I found it hard to give myself the right amounts. I will see at the end of the trial whether it is worth continuing but anything will help to get rid of my 3/4/5 hypos a day! |
Jennypenny
DAFNE Graduate
Lewisham & Greenwich NHS Trust 34 posts |
Good Luck Nat , when i went to my follow up on tuesday , it was agreed that i could give the pump a go ,now they have to ask for funding and fingers crosses i might be able to get one at the end of september .Let us know how you get on Nat as mine is also to treat hypos and DP |
novorapidboi26
DAFNE Graduate
NHS Lanarkshire 1,819 posts |
Good luck with the pump...........from stories I have heard once basal doses are sorted it starts to have positive effects.........keep us posted..... |
Nat
DAFNE Graduate
Cambridge University Hospital NHS Foundation Trust 30 posts |
All my fingers are crossed. I have a 20 page document to read before I sign my life away and they said I will have one to one care and more whilst on the trial so hopefully it will go quite smoothly. After 19 years of being on a strict regime and limited food I am looking forward to being a bit normal. I will certainly keep you all posted once I get started which I believe will be in September after my holiday and my terrible trio are back at school and I have time to sit and read and learn! |
Jennypenny
DAFNE Graduate
Lewisham & Greenwich NHS Trust 34 posts |
I now know that i have funding for my pump , i go and get it on the 28th of september , a little bit anxious now its getting nearer but hopefully i will see big changes . Fingers crossed ..... |