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Lucyx78 DAFNE Graduate
Northern Care Alliance NHS Foundation Trust – North East Sector Hospitals
11 posts

Hi
Thank you for your reply and advice. Yeah I am on am and pm levemir. My diabetes specialist nurse dropped my am from 26 units to 14 and 20 units to 14. All last week whilst on the course they were reading high. I've increased my pm BI to 16 and the am has come down slightly but still not within range. Would you also suggest increasing my am BI first before I increase QA to see if it had an affect on day time Bg? I am doing corrections with every meal I have but not having much affect. And these high readings make me feel a bit rubbish. I go back to work tomorrow and it's quite an active job so I will also have to consider how that has an effect on my BG. Trial and error. I suppose

alturn DAFNE Graduate
NHS Grampian
78 posts

Sorry if I appear vague but always wary of offering advice in case it causes problems - and everybody is different.

First I would ignore readings during DAFNE course - different timings, activities, brain activity, DAFNE course etc.

Dropping 26+20 to 14+14 seems a large change at one go to me, but that's done so onwards and better BG Exclamation , it's all for the best for you.

If you can get your BI so you change between meals/overnight is about +2/-2 (DAFNE target) then your BI is probably correct - change am or pm and monitor for 2/3 days, may need to have carb-free meals. When BI is stable, then adjust your ratios. That's the theory. This is not a quick process, so keep at it, I still find it very difficult to accept I have to change QA/BI. So often there is no correct answer, so we just have to make a decision and get on with it - any decision may be better than none.

When high (over 10 in my opinion), insulin may nor work the same so you may need larger adjustments to bring it down. You could publish your BG diary which might help others to advise (assume you input your readings, possibly in a new forum)?. And continuous adjustments probably means BI is incorrect.

Work (I used to do that), physical or mental, can affect you by causing highs and lows, so yes - trial and error. Have you looked at other forums to see if there is anything you could learn? You may need different regime for work/not work.

Best wishes for your first day at work. Laughing

Robert P DAFNE Graduate
Mid Yorkshire Hospitals
1 post

Mollymynett- Keep with it, I did the course a couple of months ago now, still I have those 'up & down days.' I've been diagnosed for only 2 years and have only every been on the twice a day insuline (I'm rubbish with insulin names!). The DAFNE course was amazing, real eye opener.You will get there.

Mollymynett said:
Hi I've just recently done the dafne . I've been an insulin dependent diabetic for 33years . Since I was 3 .ive had my ups and downs . Feeling a little down as changed from lantus to lev emir now twice daily . Can't seem to get my levels down from double figures . Feeling slightly frustrated is this normal . Thanks in advance

Lucyx78 DAFNE Graduate
Northern Care Alliance NHS Foundation Trust – North East Sector Hospitals
11 posts

Thanks so much for the advice and support. I'm really hoping it works for me. I'm a little frustrated with my BG readings at the moment but like you said it was an absolute eye opener the DAFNE course.

Andy Watt DAFNE Graduate
NHS Lothian
2 posts

Hi Lucy, I have just done the DAFNE course Mon - Fri last week and I also had my BI changed from Lantus to Levemir. I work 12 hour shifts and most of my low BG results happen at my work, I also have no Hypo awareness at all. I went back to work on Saturday night, and because I work 7 till 7 day or night, we decided to go for 06.30 and 18.30 for my Levemir injections, I was on 20 units of Lantus so I started on 10 units of Levemir am/pm, when I take my injection before I start my shift I only take 8 units and because my job is really physical I was told to knock 1 unit off my QA injections, I still had a few really low BG results (1.4 + 1.Cool on Saturday so on Sunday night I knocked 3 units off my QA injections and when I got home yesterday morning I was sitting at 8.6 , which I was really happy with. I'm going to stick with that theory when i'm working and see how I get on... Hope you get sorted, mind it will take time to get what works best for you .

Garry DAFNE Graduate
North Lincolnshire and Goole NHS Foundation Trust
328 posts

Welcome Andy Watt Smile
Good outcome for you I'm pleased to see. Tackle the hypos as soon as possible.
Take it steady. Ensure some consistant days worth of results between dose changes as most people find outcomes can be a little unpredictable over short time scales.
When you get things under control you may feel confident enough to run a little high for three months to help try and re-establish your hypo warning symptoms. This tactic certainly worked for me.
Regards
Garry

Andy Watt DAFNE Graduate
NHS Lothian
2 posts

Thanks for that Garry, i'll certainly give it a go