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Jayne Blakes DAFNE Graduate
Hillingdon Hospital NHS Trust
9 posts

Hi all

Thank you all for your advice with regard to bi and carb free testing - I'm not sure I could manage that! I'm not good with carb free meals I end up eating carbs and injecting but my meals running late then!

JWo thanks also for your excercise explanation.
I will try the less insulin too.

JWo - also when I say suffer - even if my levels test fine I may feel sick, have a headache, feel shakey, tired or completely knackered! Just generally unwell but levels fine!

Novorapidboi26 - good luck with the pump clinic

Chat soon

Jayne

Garry DAFNE Graduate
North Lincolnshire and Goole NHS Foundation Trust
328 posts

Please do that vic.
I have filed my diary on here religiously since doing DAFNE in November 2009 and have found that it has always given me focus.
Regards
Garry

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

vic demain said:
JWo - There seems to be little consistancy to my BI action as for a few days I run at around 14, then I go down to 3. My BI has been so up and down recently, Dr keeps wanting me to reduce it, but then I go high!!



Oh dear, if your BI alone does that, it may be possible that your BI runs out during the day... and because you raise it, the hypos happen. Are the timings of the hypos and highs different? When I was on Lantus before Levemir, I eventually found out that it was running out around 2pm (I would inject it at 10pm the night before) so I ended up splitting the dose. Have you considered this possibility? Before I knew, I was often high without fail in the afternoon and living on corrections. Sad

As for the depression, you seem to be a strong person, you are aware of the situations and I am sure that you are strong enough to get through the hard times. Try to keep the positive thoughts - you know this is tough, however, if you maintain your control and strength, then you can overcome it - and not let doubts creep in.



Thanks vic. I appreciate it. Smile

Like Jayne, I struggle with carb free meals as most of my diet includes potatoe somewhere. Also just recently I have experienced a couple of occasions where I have felt low, yet tests were 9. Feelings of energy loss, shaking and tiredness.



It is possible that if you're high frequently enough, this may be your body trying to warn you of being too low because it doesn't think the normal range is normal any more.... bit like when you lose hypo awareness from being too low, your warning signals can be too high from being too high.

I think I do understand what you're saying though. Your description is making me think of times I've had recently during the night when I've had some really annoying spells of hunger and it took a lot of time but I did eventually reach hypo range. I've been feeling like this around 10BG. Is this the sort of thing you mean? If so, it may be messed up signals.

I am so glad of the opportunity of attending the DAFNE course and thought for a while that I was doing well, but whilst everyone else seems to have improved their long acting tests, mine seem as bad as before if not worse. Think I will start filling in my diary on here again as that used to give me a sense of purpose to improve control.



Like Garry, I use the BG diary facility religiously (though I didn't do it from the start). When I got a smartphone last December, I installed the DAFNE Online app as well and stopped using the written diary so I could keep the site one updated through my phone in case I needed to send it's info to anyone (including my DSN team by email).

I'm happy to start diary sharing for the discussion. It will be very fascinating and helpful to see what numbers we see and get outside views! Smile

In light of this, I was going to hold back on an idea my partner and I had about my control problems and share it after I'd tested it out... but I'll do it as we share, yes? I was proper excited when we noticed it and I hope it works out (the 2 day rule sucks for this for this sort of thing, haha)! The idea trial starts tomorrow - can't wait! Smile

Take care all! Sleep well!

Jayne Blakes DAFNE Graduate
Hillingdon Hospital NHS Trust
9 posts

Hi all

I found that it takes a long time to fill in the diary online for the dafne site. Do any of you have the IBG Star Tester. You test away and then clip it to the bottom of the iphone and it register it all for you in a book form or a graph form and you can email it and print it! Its brilliant, takes 2 seconds. I love it!

£50 though in boots, the only place in the uk to sell it!

So monday morning before my hospital visit I can print it all off. It also charges from the phone! I should be a sales person on commission.

Chat soon
Jayne

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

I find that in order to make DAFNE effective I need to have the last three days available to me on paper, be it printed or written, this means I can make dose adjustments there and then if needed.

I use the Freestyle insulinX which records dose and CP values, so I usually fill out my written diary [homemade spreadsheet] after a few days of testing. I then fill the online diary out when I can, the more regular the better. I haven't filled in the online diary in a while as time is precious these days with work and a small baby and toddler....

the iPhone attachment does look good though, does anyone know the price of the strips on prescription..

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

Here's yesterday and today's results. Going to be interesting what happens as the day unfolds (which it will as I do my tests)! Today's change was 1:1 ratio at lunchtime as part of my idea trial.

iPhone apps aren't much good for Android phone users like me but hey, if it works, carry on using it! Smile If you wanted to share the results on the thread here, you could possibly copy and paste it into the thread so you could get feedback. Up to you though.

I update the DAFNE app like a written diary on my phone as part of the testing regime (in a way, I consider my phone a part of my kit these days), so the annoying inputting of results into the site's facility doesn't happen any more. I know I didn't use it as much as I do now when I didn't have my smart phone... just did it when felt results needed showing in the forum.

Technology is amazing isn't it? Very Happy So much choice!

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

I'm hoping so too... I'm hoping that nasty hypos in the past were caused by my lack of understanding that 1QA took me down by 4-5BG... It's going to mean a lot if my BGs stay around 10-11BG for dinnertime... may be on my way to solving a good chunk of my body puzzle if it does behave! Very Happy

I do hate the waiting game though, sigh, but it's gotta be done. ._.

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

So is your theory that 1 unit drops you 4-5 mmol just when you are in target range.....?

Would you make that assumption at 15.0 mmol for example..?

I realize you are probably just beginning to test this so probably don't have answers to the above.... Smile

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

The idea we had was that I drop by 4-5BG for 1QA, but we think its possible that this isn't the case with the effect of CPs. We think 1CP make me rise 2-3BG but I need to check this out... If it does, it'll explain a lot again of past patterns.

I feel quite tired and strange at the moment so I think a early test maybe in order.

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

OMG how interesting! Now, I will take this opportunity to just point out something.

I have felt poorly for the past few weeks so I have put my BI up here and there and not too long ago, I did a carb free day thing (results posted above) and my body held my levels like a charm on 11BI in the morning (and I hypo'd during the night on 21BI in the evening... ugh).

Considering the 4.8BG now, would that suggest that the drop may be a result of the BI effect? I will keep an eye on it... Thank goodness the drop isn't 6BG in an hour like last night lol. Scary stuff! XD

@Novo - shall I share my diary with you?