novorapidboi26
DAFNE Graduate
NHS Lanarkshire
1,819 posts
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By saying basic, I was highlighting that after you have completed DAFNE, it doesn't stop there, you need more that what has been supplied by DAFNE, as it is only the foundation from which to build and develop a regime that caters for each individual..........
I think saying 'you could be doing damage' is OK, as it could be happening, it might not though, but that's why encouraging people to test more often and to really get to know there own bodies behavior to different food and dose timings is really important, in my opinion anyway.
My control has improved greatly since DAFNE, but its not stopping complication occurring in my eyes, and a difficulty to achieve an HbA1c within the recommended target range. This I believe is down to between meal spikes.
Everyone is different and if they want to inject after a meal, that's fine, I am not saying its wrong or bad, and certainly wouldn't imply this is what DAFNE thinks either. The majority of folk will start digesting their food before the insulin has started to work properly. So this was why I mentioned that actually you should think about injecting before you eat, and sometimes, a good few minuted before. Again, this is purely from peoples [and mine] personal experiences, no documented medical facts. I like to encourage people to test, a lot, and build a picture of whats going on, in much more detail than DAFNE will teach you to.
I think the 'bolus' calculators that are being offered are good, certainly not something to be taken lightly, but its a sign that more and more people are taking a much more detailed and pro active approach to their control, and that they want a more automated approach to it all. Certainly if you have completed DAFNE training, I believe you a more than capable of using one of these functions without danger, and even more so if your on a pump, although there are some pumpers out there that have just been given it when they don't really know whats going on......
Regarding the app, I think it could be good. However I don't believe all graduates who sign up and download the app are at similar levels of competency in their regime, so its needs to be developed carefully I think......
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marke
Site Administrator
South East Kent PCT
681 posts
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thanks thats the response I wanted to get You just need to remember that a lot of people are not as keen as you to build a regime. I have met many people through DAFNE and Diabetes UK that are happy to just roll again with the basics. This is why I questioned the 'could be doing damage', its important to seperate an opinion from evidence based on medical research. I don't have any problem with people expressing opinions, I just like to make clear thats what they are. Many people take what the read on the internet as fact whereas the truth is anyone can set up a website and publish a load of garbage, there is some truly scary stuff out there. I'm not suggesting you are necessarily wrong, I agree with a lot of what you say, but for the sake of a balanced and objective site its good sometimes to question people. I still don't think you can have an automated approach to Diabetes management because there are so many variables involved, but if people want to try thats good. The important point is they understand what they are getting is a best guess and not 100% accurate. Just like your meter, which gives you a best guess at your BG NOT a 100% accurate figure. Hopefully in our lifetimes we will see continuous BG meters linked to pumps that act as psuedo pancreas's or even stem cell therapy that will restore islet cells, in the meantime we just have to make do with life as it is.
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novorapidboi26
DAFNE Graduate
NHS Lanarkshire
1,819 posts
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I understand all your points................
I dont think anyone on here will be expecting anything from me, or anyone really, to be the gospels truth....................at least I hope that isnt the way I come across.......
Because I am quite involved with my own control, and some others, I feel I have a wide range of experience that should be shared, all be it educated opinions...... ......maybe we could get some kind of post signature set up where I could tell people that I am not an HCP and that my ideas are purely from personal experience and that they are not the opinions of DAFNE UK and any of its affiliates........lol.......[dont really think thats neccesary...]
I agree you cant have an automated approach to diabetes, but certainly the process of counting carbs and dosing can be automated slightly.....................imagine everyone was as involved as me, then you would expect people to want some automation. I realise that I am probably a minority...... .....
On a brighter note though, I have been put forward for a pump today, so its about to get a lot more complicated...................
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John H
DAFNE Graduate
Northamptonshire Healthcare NHS Foundation Trust
20 posts
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Hi, I must point out that I do have an "Expert meter" and the concept is a truly great thing. BUT I cannot stress enough the importance of this item being correctly set up from the beginning. My one gives me some strange bolus advice even during what should be a hypo! the time blocks were verified by my Dafne course leader and inputted by the Roche representative. I also have the verified information with the box the meter kit arrives in. Not sure how some of the bolus advice is calculated, so I now use this meter purely for glucose testing and nothing else until I can get the settings checked and revised if needed.
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Louise1988
DAFNE Graduate
South West Essex PCT
69 posts
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Reviving an old thread, as I've recently starting using the expert. How do I override the bolus advice? For example, if it told me to inject 5 units, but I know that I should only inject 4?
Also, where can I get the cable to transfer the data to my computer?
I'm also looking for a protective case for the meter, can anyone help?!
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novorapidboi26
DAFNE Graduate
NHS Lanarkshire
1,819 posts
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Sorry cant help you with meter, but can you explain under what circumstances you would need 4 when it says 5?
On my pump, the bolus wizard spits out the final dose after considering all the other factors, however it can then be adjusted with the arrow keys, either up or down......can you try pushing directional keys once the final dose has been suggested...
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Louise1988
DAFNE Graduate
South West Essex PCT
69 posts
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I seem to have different levels of sensitivity to insulin, depending on the time of day, and depending on other things, too. My DSN has said that if the meter tells me to do something I don't agree with, to go with my instinct, but if I do this, I don't want my meter to log that I've taken a higher or lower dosage...
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Warwick
DAFNE Graduate
Diabetes Australia-Vic, Melbourne, Victoria
423 posts
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https://www.accu-chek.co.uk/gb/customerservice/contactus/index.html - request a case and the data cable.
Where it recommends a dose, scroll down to the bolus line, press the middle button (between the scrolling buttons), use the scrolling button to change the amount, then press the middle button again.
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Louise1988
DAFNE Graduate
South West Essex PCT
69 posts
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Thanks, Warwick!
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landylara
DAFNE Graduate
Nottingham University Hospitals NHS Trust
14 posts
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Talking meters I have a Glucamen LX plus. I was given it after the DAFNE course as I liked the idea that it tested BG as well as ketones. I have been testing before meals and eating anything and everything. I inject before or after meals depending on what I am eating and if I may not eat it all or if i want more. Around 5 months after the course my HbA1c was 6.6 which i was very pleased with. I have just had my yearly check up and my HbA1c is 44 (6.2). I am so pleased with myself and finding it so easy.
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