The Hospital - Channel 4

13 posts, 7 contributors

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marke Site Administrator
South East Kent PCT
675 posts

I should be careful what I say here, but I put patient care above politics so.... Your GP does want in because of money. They get paid an amount by the NHS for each Diabetic they 'treat', they also have to pay some of that to the hospital if you see a consultant/team there. Hence its in their interest for you to be treated at the GP's. It is NOT in your interest however, having been DAFNE-ed and being a Type 1 you really need to be seen by a specialist team not a GP and a Diabetic nurse. I'm not suggesting these people don't do a very good job, however to manage your diabetes in the tight way that DAFNE demands means 'generic'
advice is really no good for you. You have the right to demand to be seen by the hospital and indeed I do. I had a letter not long ago from my GP saying 'I see you HBA1c has gone up, your control is not as it
should be, you need to come and see me'. I wrote back, telling her to read my notes properly ( I have been on steriods that cause insulin resistance) and that I would not be coming to see her since I was under the
care of the hospital and that was the way it would stay. I have not been bothered by the GP since. You CAN do the same, I know its not always easy to go against 'medical' advice, but you can. If you have any problems with this, go to your PCT's website and search for PALS. This is a department dedicated to helping people with issues with the NHS/PCT/GP and they do a very good job.
This brings me nicely to your other point, about the GP accessing your hospital data, they should be able to and most probably can. If they cannot currently they WILL have to be able to soon. It is a now a requirement, however like most large UK IT projects the NHS systems are a badly managed mess ( from an IT point of view). Where I am its definately in place and my GP does have access to my data as do my various consultants ( since they know I work in IT, they show off their system to me) . It may not be in place in your PCT , but I would be suprised its not given where you are. At some point in the future YOU may also be able to access some of the data as well, the NHS has plans to put it all online, you can go here to find out more. I think it has been put on hold to a degree at the moment due to issues with confidentiality and patients having a 'proper' right to opt out.
I also take on board your point about DAFNE 'support' , obviously thats one of the things we started this site for. However there have been and ARE research projects ongoing about how to better support DAFNE graduates in the long term. This is one of the reasons that DAFNE is important as a programme as opposed to PCT invented equivalents. To provide ongoing care and improve the training, you need proper investment and research which one off courses cannot provide. The thing about DAFNE is its national, its followed up with research and a dedicated team who are constantly working on improving it.
Lastly I take your point on 'money saving' but personally I would rather the money went to the expensive doctors than the NHS management consultants ! Most of the doctors and consultants I have met have been brilliant and dedicated and deserve all the money they get. My PCT on the other hand was 5th on the list of spenders on external consultants, we don't need better management just the money going to the front line to treat people. But hey enough of the politics already :-)

Lizzie DAFNE Graduate
Guy's and St Thomas' Hospital
87 posts

Marke - when you say you wrote back, who did you write to? I don't really have a GP per se, don't see them very often, and when I do it is an on-the-day appointment with whoever is the duty doctor.

marke Site Administrator
South East Kent PCT
675 posts

If you don't have a particular GP then address the letter to the practice manager. All surgeries have a practive manger who does as the name suggest manages the GP's , patients etc for the surgery. They should be able to resolve the issue for you. If you explain what you did on here, about duplication etc they should be able to provide all the answers. They will know if they do have online patient records and if not when they will have. They should also be able to stop you being sent the blood test stuff. They are usually very responsive because nowadays its all about patient choice ( supposedly) and you can pick and choose your GP, hospital etc. I'm not sure thats true in reality but if they think it is and it makes them take notice of patients then all the better !