Neuropothy -advice please

4 posts, 3 contributors

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hazbol DAFNE Graduate
South Tees Network
3 posts

For the past 4 years I have had increasing difficulty getting about because of the pain I get in my right bottocks and thigh when I am walking. The pain is so intense I can hardly breathe and doesn't go away when I rest. The muscles seem to go into cramp and I have difficulty straightening my leg for ages afterwards.

It was suggested by the rheumatologist that this could be caused by neuropathy as the pain seemed to follow the path of Shingles which I had had prior to these problems starting.

Now I seem to be at an impasse with no one able to help. The tablets prescribed by my GP either don't work at all or have intolerable side effects.

The doctor at the Diabetes clinic wants me to see a vascular specialist despite me having no problems with the lower legs and feet.

My symptoms fit Proximal Motor Neuropathy (according to Internet research) but no one seems to have heard of it.

Is there anyone on the Forum who has similar problems or who has any suggestions as to what I could do next? Are there any specialists in Diabetic Neuropathy anywhere in the UK?

Ahmentep DAFNE Graduate
NHS Lanarkshire
99 posts

Hi hazbol,

This is very interesting to me as it could explain the increasing pain in my hips, even though the joints are ok.

I hope someone is able to provide you with helpful information. It would probably help me too.

Kind regards,

Roger

hazbol DAFNE Graduate
South Tees Network
3 posts

I'm a newee here and realise that I have posted this in the wrong part of the Forum.
SORRY

marke Site Administrator
South East Kent PCT
632 posts

Hi, can I ask you to post this in the 'ask the HCPs' forum since you are more likely to get a response. There are some very good experts that read that forum and with a bit of luck Simon H might respond. There is very little he doesn't know about Diabetes if anything and he likes a challenge Very Happy
thanks